Re: Putting head to ground or rubbing head across floor.

[Guest guest]

My son does this too!!! I haven't been able to nail it down exactly but my son

does it off and on. I wonder if it isn't yeast. You mention so many good

things, are you chelating? That can cause yeast and all kinds of behaviors. If

you upped your yeast protocal I wonder if that wouldn't get rid of it. I

wondered if anyone else's kid did this. I don't remember seeing it mentioned

before but mine used to do it all the time.

As we have progressed with biomed I definitely don't see it as often.

Other thing I wondered as far as cause is just a stim. For my son these are

caused by vitamin/mineral deficiencies in particular b vitamins. A good couple

doses and they start going away.

HTH,

dxat2in98 <astralweeks1@...> wrote:

SOOOOOOOOOOO many good things to relay BUT what is this new behavior

about?

=======================================================

[Guest guest]

Sorry, no biomedical advice here, but have you tried massaging his head

and offering him a firm pillow?

Increased stimming seems to be common when children are improving and

becoming more aware of their environment. It's seems to be a way for

them to deal with the increased stimuli. My guess is that it will pass.

Redirecting it, turning it into some silly play, comforting him with a

pillow and a massage may help. Hope it does.

Beti

>

> SOOOOOOOOOOO many good things to relay BUT what is this new behavior

> about?

>

[Guest guest]

I think it may be caused by a headache. My son used to do this when

he was first diagnosed. It got worse as we went GFCF for a few days.

(I assumed a withdrawel reaction) And it disappeared soon after.

You might try magnesium to see if that helps.

My best,

Tami

Gavin's mom

>

> SOOOOOOOOOOO many good things to relay BUT what is this new behavior

> about?

>

[Guest guest]

>

> I think it may be caused by a headache. My son used to do this when

> he was first diagnosed. It got worse as we went GFCF for a few days.

> (I assumed a withdrawel reaction) And it disappeared soon after.

>

> You might try magnesium to see if that helps.

>

> My best,

> Tami

> Gavin's mom

>

I switched from Houston enzymes to the potent enzyme from Kirkman...I

didn't even think of that but won't I have yeast issue with either

detoxing and/or enzyme therapy? Poor kid! He's nine and he did it

right as I was picking him up from school...kind of held up the line

of parents in their cars. LOL

[Guest guest]

What kind of floor? Any surface or only specific kinds? Perhaps he wants the

cool feel from uncarpeted floors. If chelating what chelator, dose, and dosing

schedule, and when in the chelation schedule does he do this? Do you see this

after he has eaten certain things? Next time he does this pay attention to the

noises occuring at the time, not just volume, but sources of sounds. One of the

kids at a group home where I worked would want staff to massage his head. It

turns out he was having (subclinical) seizures. Might want to consider CST

(Cranial Sacral Therapy) and see if that makes a difference.

S S

SOOOOOOOOOOO many good things to relay BUT what is this new behavior<BR>

about?<BR>

_______________________________________________

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[Guest guest]

>

>

> What kind of floor? Any surface or only specific kinds? Perhaps he

wants the cool feel from uncarpeted floors. If chelating what

chelator, dose, and dosing schedule, and when in the chelation

schedule does he do this? Do you see this after he has eaten certain

things? Next time he does this pay attention to the noises occuring

at the time, not just volume, but sources of sounds. One of the kids

at a group home where I worked would want staff to massage his head.

It turns out he was having (subclinical) seizures. Might want to

consider CST (Cranial Sacral Therapy) and see if that makes a difference.

> S S

>

>

It's a new behavior. We're versed in ABA. Big into functional

analysis of problem behavior...I think this falls into the attenuate

pain BUT I'm trying to figure out the cause of pain. When it's

fleeting, it's more self stimulatory. That's the one that's annoying

because he just does it and there are no signs of pain (face, tears,

tantrums). It's like he has to do it like he might have to flip a

switch 5 times before turning off the light (which we shape, of course).

He had been on Gabatril (speaking to your seizure comment) but I

wasn't seeing any great improvements. He's no longer on it. He's on

PCA-Rx and we're low and thinning out dosage while the order is being

shipped (a little is better than none). I did not see this when we

were doing the ALA, BTW. Again, very happy kid, can't wait for Friday.

Any info on CST is welcomed. Love to hear from other parents.

[Guest guest]

Consider switching back to the ALA. Why did you switch to PCA-Rx? I personally

wouldn't trust any product that claims it chelates mercury but says it's ok to

use it on people who still have mercury amalgam dental fillings.

Here's some info on CST http://www.upledger.com/therapies/cst.htm I had it

done for a while after a neck injury (kid w/ASD yanked me to the ground when I

tried to stop him from running into traffic) and my vision improved considerably

(the eye doc retested 4 times because he couldn't believe the change).

S S

<tt>

<BR>

><BR>

> <BR>

> What kind of floor?  Any surface or only specific kinds?  Perhaps he<BR>

wants the cool feel from uncarpeted floors.  If chelating what<BR>

chelator, dose, and dosing schedule, and when in the chelation<BR>

schedule does he do this?  Do you see this after he has eaten certain<BR>

things?  Next time he does this pay attention to the noises occuring<BR>

at the time, not just volume, but sources of sounds.  One of the kids<BR>

at a group home where I worked would want staff to massage his head. <BR>

It turns out he was having (subclinical) seizures.  Might want to<BR>

consider CST (Cranial Sacral Therapy) and see if that makes a difference.<BR>

> S S <BR>

> <BR>

> <BR>

It's a new behavior.  We're versed in ABA. Big into functional<BR>

analysis of problem behavior...I think this falls into the attenuate<BR>

pain BUT I'm trying to figure out the cause of pain.  When it's<BR>

fleeting, it's more self stimulatory. That's the one that's annoying<BR>

because he just does it and there are no signs of pain (face, tears,<BR>

tantrums). It's like he has to do it like he might have to flip a<BR>

switch 5 times before turning off the light (which we shape, of course). <BR>

He  had been on Gabatril (speaking to your seizure comment) but I<BR>

wasn't seeing any great improvements. He's no longer on it. He's on<BR>

PCA-Rx and we're low and thinning out dosage while the order is being<BR>

shipped (a little is better than none).  I did not see this when we<BR>

were doing the ALA, BTW.  Again, very happy kid, can't wait for Friday. <BR>

<BR>

Any info on CST is welcomed.  Love to hear from other parents.<BR>

<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

--- In , " dxat2in98 " <astralweeks1@...>

> I switched from Houston enzymes to the potent enzyme from Kirkman...I

> didn't even think of that but won't I have yeast issue with either

> detoxing and/or enzyme therapy?

Did the head-rubbing start after you switched enzymes? For my son,

head-rubbing (on me usually) means yeast.

Nell

[Guest guest]

He's on

> PCA-Rx and we're low and thinning out dosage while the order is being

> shipped (a little is better than none). I did not see this when we

> were doing the ALA, BTW.

PCA-Rx has ALA in it, doesn't it? In that case you'd be better off

dosing every 3 hrs -- when I tried stetching out the nighttime dose I

got terrible, terrible headaches.

Nell

[Guest guest]

>

>

> Consider switching back to the ALA. Why did you switch to PCA-Rx?

I personally wouldn't trust any product that claims it chelates

mercury but says it's ok to use it on people who still have mercury

amalgam dental fillings.

Thanks you for you thoughts. I completely trust the PCA-Rx and have

been using it off and on for quite sometime with my entire family but

not testing. But when the doc wanted me to use Chelex, I chose to

supplement PCA-Rx with ALA. Now, I've started testing. The PCA-Rx

test came back clearing more toxins than the DMPS challenge. The

baseline (nothing in his system) even had elevated levels but I am

making a leap that seretonin (Lexapro) has chelative properties OR he

has enough seretonin now to evoke his own melatonin (which is what

seretonin becomes) so he is sleeping deeper and getting into a healing

stage of level 4 and his body is slowly dumping. But I'm going with

Andy on the hair analysis. I need to look at all elements to get a

better picture of what the heck we're up against.

The mechanism in PCA-Rx is that it wraps around the toxin. You don't

get the dropping like you would with a simple ionic bond (one reason

it's noted as safe to use with filling -- my hubby has six and we're

getting them removed but he's had no adverse side effects using it at

all and it has helped with a condition that I think was caused by the

amalgams) BUT I do know that it clears metals out in a certain order

so that Merc and Alum will be later in the usage...I worry that it

will take forever to get to that level with my son because he has

chronic exposure to " lower " metals and it's difficult to keep a

" clean " environment -- he's a magnet to anything toxic, I think! I'm

hoping ALA will help and I'm going to continue my use of PCA-Rx (if it

ever gets here).

[Guest guest]

I'm thinking you (and others) are right. It can just be head rubbing

sans any " bad " behavior, right?

>

> --- In , " dxat2in98 " <astralweeks1@>

>

> > I switched from Houston enzymes to the potent enzyme from Kirkman...I

> > didn't even think of that but won't I have yeast issue with either

> > detoxing and/or enzyme therapy?

>

> Did the head-rubbing start after you switched enzymes? For my son,

> head-rubbing (on me usually) means yeast.

>

> Nell

>

[Guest guest]

> The mechanism in PCA-Rx is that it wraps around the toxin.

The above is a claim that the company makes. I haven't seen any

evidence that there is any truth to this. I continue to ask in the

adult groups for people to put forward any evidence that they have and

so far no one has. I haven't found anything in archives anywhere that

would support the company claims.

>You don't

> get the dropping like you would with a simple ionic bond

If this statement was true then I would expect that there would be no

side effects from PCA Rx. Poisoned adults in the adult groups report

major reproducible side effects even with extremely low doses.

I suspect that the chelation ability of PCA Rx is mainly from the

lipoic acid it contains. The benefits and risks of using lipoic acid

will depend on the dosing schedule, just like using oral ALA. Oral

ALA is a lot cheaper. It's easier to determine the dose of oral ALA

and keep it consistant.

J

> >

> >

> > Consider switching back to the ALA. Why did you switch to PCA-Rx?

> I personally wouldn't trust any product that claims it chelates

> mercury but says it's ok to use it on people who still have mercury

> amalgam dental fillings.

>

> Thanks you for you thoughts. I completely trust the PCA-Rx and have

> been using it off and on for quite sometime with my entire family but

> not testing. But when the doc wanted me to use Chelex, I chose to

> supplement PCA-Rx with ALA. Now, I've started testing. The PCA-Rx

> test came back clearing more toxins than the DMPS challenge. The

> baseline (nothing in his system) even had elevated levels but I am

> making a leap that seretonin (Lexapro) has chelative properties OR he

> has enough seretonin now to evoke his own melatonin (which is what

> seretonin becomes) so he is sleeping deeper and getting into a healing

> stage of level 4 and his body is slowly dumping. But I'm going with

> Andy on the hair analysis. I need to look at all elements to get a

> better picture of what the heck we're up against.

>

> The mechanism in PCA-Rx is that it wraps around the toxin. You don't

> get the dropping like you would with a simple ionic bond (one reason

> it's noted as safe to use with filling -- my hubby has six and we're

> getting them removed but he's had no adverse side effects using it at

> all and it has helped with a condition that I think was caused by the

> amalgams) BUT I do know that it clears metals out in a certain order

> so that Merc and Alum will be later in the usage...I worry that it

> will take forever to get to that level with my son because he has

> chronic exposure to " lower " metals and it's difficult to keep a

> " clean " environment -- he's a magnet to anything toxic, I think! I'm

> hoping ALA will help and I'm going to continue my use of PCA-Rx (if it

> ever gets here).

>

[Guest guest]

My son use to do this and and did do the rubbing across the floor

recently. I also just found out that Jack is having seizures when he

sleeps and probably has had them for 6years. We doubled the dose of

seizure med and started modified atkins and he is doing great.

Saying some words w/in a week. I also think seizure were probably

better when we were chelating w/ ALA because all hell broke loose

when we stopped chelating over a year ago.

nne

-- In , " Shepard Salzer "

<_Shepard@...> wrote:

>

>

> Consider switching back to the ALA. Why did you switch to PCA-

Rx? I personally wouldn't trust any product that claims it chelates

mercury but says it's ok to use it on people who still have mercury

amalgam dental fillings.

>

> Here's some info on CST

http://www.upledger.com/therapies/cst.htm I had it done for a while

after a neck injury (kid w/ASD yanked me to the ground when I tried

to stop him from running into traffic) and my vision improved

considerably (the eye doc retested 4 times because he couldn't

believe the change).

> S S

>

>

>

>

> <tt>

> <BR>

> ><BR>

> > <BR>

> > What kind of floor?  Any surface or only specific kinds? 

Perhaps he<BR>

> wants the cool feel from uncarpeted floors.  If chelating what<BR>

> chelator, dose, and dosing schedule, and when in the chelation<BR>

> schedule does he do this?  Do you see this after he has eaten

certain<BR>

> things?  Next time he does this pay attention to the noises

occuring<BR>

> at the time, not just volume, but sources of sounds.  One of the

kids<BR>

> at a group home where I worked would want staff to massage his

head. <BR>

> It turns out he was having (subclinical) seizures.  Might want

to<BR>

> consider CST (Cranial Sacral Therapy) and see if that makes a

difference.<BR>

> > S S <BR>

> > <BR>

> > <BR>

> It's a new behavior.  We're versed in ABA. Big into functional<BR>

> analysis of problem behavior...I think this falls into the

attenuate<BR>

> pain BUT I'm trying to figure out the cause of pain.  When it's<BR>

> fleeting, it's more self stimulatory. That's the one that's

annoying<BR>

> because he just does it and there are no signs of pain (face,

tears,<BR>

> tantrums). It's like he has to do it like he might have to flip

a<BR>

> switch 5 times before turning off the light (which we shape, of

course). <BR>

> He  had been on Gabatril (speaking to your seizure comment) but

I<BR>

> wasn't seeing any great improvements. He's no longer on it. He's

on<BR>

> PCA-Rx and we're low and thinning out dosage while the order is

being<BR>

> shipped (a little is better than none).  I did not see this when

we<BR>

> were doing the ALA, BTW.  Again, very happy kid, can't wait for

Friday. <BR>

> <BR>

> Any info on CST is welcomed.  Love to hear from other parents.<BR>

> <BR>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

>

> SOOOOOOOOOOO many good things to relay BUT what is this new behavior

> about?

This was a visual stim for my son. If it is new for your child,

consider either a new supplement you added [or removed] or yeast

overgrowth. For my son, many things contributed to his visual issues,

primarily virus issues, but intolerances and/or yeast were also

primary contributors.

Dana

[Guest guest]

i remember reading something a long time ago about an asd boy doing this and

it was because he was having headaches. is your son verbal? can he type or

write what the problem might be?

vicki

danasview <danasview@...> wrote:

>

> SOOOOOOOOOOO many good things to relay BUT what is this new behavior

> about?

This was a visual stim for my son. If it is new for your child,

consider either a new supplement you added [or removed] or yeast

overgrowth. For my son, many things contributed to his visual issues,

primarily virus issues, but intolerances and/or yeast were also

primary contributors.

Dana

=======================================================