Guest guest Posted June 27, 2007 Report Posted June 27, 2007 Hmm As far as heat intolerance improvement I used to get utterly tight and exhausted barely could walk if above high 60's .But now yesterday I was functioning walking doing kid pick up errands at around 90F I was not particularly exhausted a little sweaty but that is pretty normal at 95+humidity. Don't get me wrong I wasn't running or doing jumping jacks but I was getting things done. I also started taking B1 injections IM daily before the LDN and have continued that unquestionably was helping with the heat intolerance too . Barbara >From: " " <granola_grrrl@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] Re: A week & a half on LDN >Date: Tue, 26 Jun 2007 13:30:41 -0000 > >Hi Barbara, >I have total radar for anyone saying anything about heat >intolerance!!! It is a MAJOR problem for me, and combined with >vascular and neuropathic rosacea, it is very traumatizing. I cannot >tolerate temps above 15 - 17 degrees Celsius (nothing above 60 - 62 >F). It has totally devastated my life, since I cannot go to other's >houses, public places, etc. I do not know if it is caused by >autonomic nerve damage, or by HPA axis malfunction or what. It has >been going on for over 6 years now, and has gotten progessively >worse over the years. > >Can you tell me a little more specifically (so I can have hope!) in >what ways your heat intolerance is improved? E.g. you can tolerate >X degrees more in temp, if it affects excessive sweating if you have >it, or flushing, or burning pain, etc. > > > > > > > > Hi Theo > > good luck with your trial.Of course it is natural to look for some >changes > > when taking a new medication. I don't think or at least I hope >that no one > > means to attack you. Please we are all very interested in the >trial and > > your experiences. I started ldn aprox 1 month ago. I was looking >for > > reduction in spasticity my most annoying symptom what I got was >improvement > > in fatigue and heat sensitivity. > _________________________________________________________________ Make every IM count. Download Messenger and join the i’m Initiative now. It’s free. http://im.live.com/messenger/im/home/?source=TAGHM_June07 Quote
Guest guest Posted June 27, 2007 Report Posted June 27, 2007 Hi I like the dreams too! I find sometimes they actually help me resolve problems or come up with good ideas. Barbara >From: " Gijsman, Arjan J. (CIAT) " <A.GIJSMAN@...> >Reply-low dose naltrexone ><low dose naltrexone > >Subject: RE: [low dose naltrexone] Re: A week & a half on LDN >Date: Tue, 26 Jun 2007 12:38:25 -0500 > >Theo, > > >The main side effect I have heard of is that for some people LDN interferes >with the ability to sleep and for others it gives wild dreams. I had none >of these during my initial 7 weeks on 3 mg/d and the one week on 4.5 mg/d. >I would not mind dreaming, because now I go to sleep around 10 PM and wake >up 8 hrs later without having any memory of what happened; it is a lost >time! > >Arjan Gijsman > > > [low dose naltrexone] Starting on LDN > > > > Hi > > > > I have been on the LDN clinical trial at UCSF and > > almost a week ago I completed the 1st phase. Both my > > neuro as well as myself felt that i was on placebo > > during the 1st phase. > > According to my neuro, who is not w/ UCSF, I would > > have felt the drug somehow had I started on LDN. > > > > Coming THU, in 1 day that is, will be switching to > > possibly LDN. > > > > I will keep the list posted on my experiences. > > > > regards > > theo > > > > --- Bren < b63powell (DOT) <mailto:b63powell%40> com> wrote: > > > > > > > > Papillion, > > > > > > Regardless of what doctor told you that you would > > > feel something upon > > > starting LDN is not the case. Some never see > > > improvement in symptoms > > > and some can only tell they are improving by the > > > disease progression > > > halting. The only way Marcie knows LDN is working > > > is her last MRI > > > showed no new lesions and no active lesions in the > > > nearly 4 years > > > she's been on LDN, Marcie has progressive MS. Your > > > statement below is > > > what's really got me, Art and Marcie concerned. > > > > > > Are you thinking LDN is doing nothing because you > > > haven't felt a kick > > > in? Who are these LDN experts you speak of? Too > > > many people come in > > > here expecting LDN to get rid of all their > > symptoms, > > > that's not going > > > to happen. As I said before, LDN's main purpose is > > > to stop disease > > > progression, not to improve symptoms. You may > > never > > > feel a kick-in > > > but that does not mean LDN is not working. > > > > > > Papillion wrote.... > > > " I haven't noticed any improvement so far. I know > > > that many LDN > > > experts have mentioned that it takes time for LDN > > to > > > kick in. " > > > > > > > > > My main rant against the MS and LDN trials is that > > > they are using LDN > > > along with the interferons, it makes no sense > > unless > > > one is trying to > > > ruin LDN's chances. > > > > > > > > > > > > > > > > >__________________________________________________________ > > Looking for a deal? Find great prices on flights and > > hotels with FareChase. > > http://farechase. <http://farechase./> / > > > > > > > > > >__________________________________________________________ >Never miss an email again! > Toolbar alerts you the instant new Mail arrives. >http://tools. <http://tools.search./toolbar/features/mail/> >search./toolbar/features/mail/ > _________________________________________________________________ Like puzzles? Play free games & earn great prizes. Play Clink now. http://club.live.com/clink.aspx?icid=clink_hotmailtextlink2 Quote
Guest guest Posted June 28, 2007 Report Posted June 28, 2007 Anyone using LDN for fibromyalgia? My girlfriend is suffering severely from it and I want to start her on it asap. However I am tryin to get her off the pain killers first, before we do so. Just looking for any other info on that. Anyone experience dizziness or a disconnected head feeling from the LDN? I think I am. Skyler ___________________ Skyler Ditchfield Skyler.Ditchfield@... Quote
Guest guest Posted June 28, 2007 Report Posted June 28, 2007 My girlfriend is suffering also and is also on pain meds she is probably addicted to. She is interested in finding out more about it. From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Skyler DitchfieldSent: Wednesday, June 27, 2007 8:57 PMlow dose naltrexone Subject: RE: [low dose naltrexone] Re: A week & a half on LDN Anyone using LDN for fibromyalgia? My girlfriend is suffering severely from it and I want to start her on it asap. However I am tryin to get her off the pain killers first, before we do so. Just looking for any other info on that. Anyone experience dizziness or a disconnected head feeling from the LDN? I think I am. Skyler ___________________ Skyler Ditchfield Skyler.DitchfieldGmail Quote
Guest guest Posted June 28, 2007 Report Posted June 28, 2007 Hey Skyler, I have CFS/FM. " disconnected head " .....that is a great way to describe it!!!! Yes, big time to the lightheadness, dizziness, spaciness, etc. Just over 3 wks on LDN now for me (25 days to be exact). I don't have alot of pain with my FM (helped by MSM supplement) but am taking more for the CFS part........very severe symptoms...... > > Anyone using LDN for fibromyalgia? > > > > My girlfriend is suffering severely from it and I want to start her on it > asap. However I am tryin to get her off the pain killers first, before we > do so. > > > > Just looking for any other info on that. > > > > Anyone experience dizziness or a disconnected head feeling from the LDN? I > think I am. > > > > Skyler > > > > > > ___________________ > > Skyler Ditchfield > > Skyler.Ditchfield@... > Quote
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