Newly diagnosed

November 7, 2010

Hi there and welcome to the group!

You have come to a great place to vent and get advice. The advantage you have is

that you have an early diagnosis. My son was 10 before he was diagnosised with

AS and therefor we missed out on a lot of potentially good therepies.

The number one thing I would recommend is find a local support group that you

can go to and meet other parents in your area that you can exchange information

with. The second thing would be to tell you to read and gain as much information

you can on AS, special education law and how to advocate for your son.

www.wrightslaw.com is one of the best places to find information. Also,

www.yellowpagesforkids.org is a great place to help you find services in your

area. Another great site is Autism Speaks.

This is going to be a long and often bumpy road you've embarked on, but if you

make sure you take care of yourself, arm yourself with knowledge and take it one

day or sometimes one hour at a time, you'll do just fine. We are all here if you

have questions or need to vent after a rough day. Take care and let us know how

you are doing. <<hugs>>

>

> Hi, everyone!

>

> My 5 year old son was diagnosed on Friday. I feel overwhelmed and wonder

where to start? PLEASE HELP !!!!

>

> Thank you !

>

November 16, 2010

Hi everyone,

My 3 yr old son has been newly diagnosed with apraxia. I'm not sure what to do

next to try and get insurance coverage for speech therapy. Does he need to go

to peds neuro as well for back up? The school district isn't helping much.

Thanks

June 27, 2011

Amy,

Keep your head up. I am going on 26yrs. old and got hepatitis C two weeks

after i was born from a blood transfussion. Back in '85 all the world knew was

that there was a non-A/non-B hepatitis. I went through a clinical trial

sponsored by Shering Plough Pharmaceuticals. It was the original 3 times a week

interferon injections and ribavirin (combo). I'm living proof that the treatment

works. I have continue to get tested once a year and to date still show

undetectable HCV levels. I also continue to have full liver panel workups as

well. Everything normal. I'm telling you this because there is light through the

tunnel. You have taken the first step now continue to put one foot in front of

the other. One thing I always did was drink lots of orange juice. Keep your

immune system strong so as your body can focus on getting better. Good news too

Shering Plough is continuing to develope more effective drugs to aide in the

treatment of HCV.

Best of Luck,

JC

June 28, 2011

Hi LMS,

First, keep it Sunny Side Up!! Second, you may want to ask for a Viral load

(PCR by RNA), a genotype test and a liver biopsy. Ask for and keep copies of

all your lab reports. How you contracted it is not as important as when you

did. A doctor may want you to be in AA for 6 months to a year before you can

start treatment. Make sure your doctor knows what meds your are taking, how

often and for what. There are several sites where you can download a meds diary

to make it easier. www.hcvadvocate.org has tons of material to review. If you

keep their logo on the information sheets you can print out the materials and

make copies if you need to. A good place to start is 'Newly Diagnosed'.

Glenn

>

> Hi,

> I'm a 34-year-old Native American woman from Minnesota. I am an alcoholic and

have two daughters, ages 7 and 4, that I lost temporary custody of to my

ex-husband due to an accidental overdose in January of alcohol and Mucinex. I

have had gastric bypass surgery in 2009, which makes this diagnosis a little

complicated on the protein front. I also have major depressive disorder,

borderline personality disorder, and generalized anxiety disorder and am taking

Seroquel and Paxil, which I'm wondering if I can still take. I had liver enzymes

drawn today and they were within normal range. I don't know the severity of my

illness or my viral load but am scared to death OF death. My mom had hepatitis C

and died of cirrhosis at the age of 44. My sister died of cirrhosis at age 24,

which makes me curious of her hepatitis C status when she died. Right now I'm

scared more than anything. I spent the weekend in detox before this diagnosis

but between that trip to

> detox and the hepatitis C diagnosis, I know it's time to get serious. I am in

outpatient treatment and am going to start AA this week but am a little scared

of the unknown. I want to start attending a local church, too, although am

nervous of doing that alone too. I have a history of agoraphobia and going

places alone is so hard for me. I cried so hard the first day of treatment

because i was scared of groups.

>

> Anyway Im not sure what is next for me. If it's treatment of the hepatitis C,

watching and waiting, or what. I just know sobriety is my main concern right

now.

>

> I hope to learn from all of you.

> LMS.

>

July 10, 2011

Hi LMS,

I too have Hepatitis C and had a bad drinking problem. I quit drinking

11/7/2009. I just wanted to let you know the difference quitting drinking

made in my life. While drinking I started developing a lot of fears. I

started fearing heights so much that I was afraid to drive on highway

overpasses! That can make life difficult in Southern California where freeways

are

the main way to get around. I was also developing a lot of other fears,

such as your fear of groups. All these fears are gone now.

Just wanted to give you something to look forward to while fighting the

addiction to alcohol.

FYI, I found that marijuana helps a lot when ever I get the urge to drink.

But that might not work for you.

Good luck!

DMM

In a message dated 6/27/2011 9:02:01 P.M. Pacific Daylight Time,

littlemisssunshine612@... writes:

Hi,

I'm a 34-year-old Native American woman from Minnesota. I am an alcoholic

and have two daughters, ages 7 and 4, that I lost temporary custody of to

my ex-husband due to an accidental overdose in January of alcohol and

Mucinex. I have had gastric bypass surgery in 2009, which makes this diagnosis

a

little complicated on the protein front. I also have major depressive

disorder, borderline personality disorder, and generalized anxiety disorder and

am taking Seroquel and Paxil, which I'm wondering if I can still take. I

had liver enzymes drawn today and they were within normal range. I don't know

the severity of my illness or my viral load but am scared to death OF

death. My mom had hepatitis C and died of cirrhosis at the age of 44. My sister

died of cirrhosis at age 24, which makes me curious of her hepatitis C

status when she died. Right now I'm scared more than anything. I spent the

weekend in detox before this diagnosis but between that trip to

detox and the hepatitis C diagnosis, I know it's time to get serious. I am

in outpatient treatment and am going to start AA this week but am a little

scared of the unknown. I want to start attending a local church, too,

although am nervous of doing that alone too. I have a history of agoraphobia

and going places alone is so hard for me. I cried so hard the first day of

treatment because i was scared of groups.

Anyway Im not sure what is next for me. If it's treatment of the hepatitis

C, watching and waiting, or what. I just know sobriety is my main concern

right now.

I hope to learn from all of you.

LMS.

[Non-text portions of this message have been removed]

July 19, 2011

HAS ANYONE HEARD ABOUT THIS,SOUNDS LIKE ITS JUST 1 PILL ADAY,NOT TAKEN WITH

ANYTHING ELSE...

Â

https://www.facebook.com/l.php?u=http%3A%2F%2Fwww.marketwatch.com%2Fstory%2Fmedi\

vir-tmc435-has-received-fast-track-designation-from-the-fda-and-tmc435-will-be-s\

tudied-in-combination-with-pharmassets-psi-7977-for-hcv-genotype-1-2011-07-06%3F\

reflink%3DMW_news_stmp & h=AAQAr8lDT

From: dmmsam2@... <dmmsam2@...>

Subject: Re: Newly diagnosed

Hepatitis C

Date: Sunday, July 10, 2011, 12:08 PM

Â

Hi LMS,

I too have Hepatitis C and had a bad drinking problem. I quit drinking

11/7/2009. I just wanted to let you know the difference quitting drinking

made in my life. While drinking I started developing a lot of fears. I

started fearing heights so much that I was afraid to drive on highway

overpasses! That can make life difficult in Southern California where freeways

are

the main way to get around. I was also developing a lot of other fears,

such as your fear of groups. All these fears are gone now.

Just wanted to give you something to look forward to while fighting the

addiction to alcohol.

FYI, I found that marijuana helps a lot when ever I get the urge to drink.

But that might not work for you.

Good luck!

DMM

In a message dated 6/27/2011 9:02:01 P.M. Pacific Daylight Time,

littlemisssunshine612@... writes:

Hi,

I'm a 34-year-old Native American woman from Minnesota. I am an alcoholic

and have two daughters, ages 7 and 4, that I lost temporary custody of to

my ex-husband due to an accidental overdose in January of alcohol and

Mucinex. I have had gastric bypass surgery in 2009, which makes this diagnosis a