Newly diagnosed

June 30, 2004

My RD told me I had the most aggressive case of PA affecting the hands he

had ever seen. He told me if I didn't do something I would loose the use of

my hands in 3 months. I had 9 joints affected and I was in suicidal pain.

I had failed on MTX and Sulfasalasine. I had tried Minocine for 10 months

after that. When that last severe flare hit me I went on Enbrel even

though it wasn't approved for PA yet. I had relief with the first

injection. Within a month I was off all other drugs. Within 3 months my

fingernails had grown back and my Psoriasis was reduced by 80%. If I had

started Enbrel sooner I believe I could have avoided the permanent joint

damage I now have in some of my fingers.

Some people have to take MTX concurrent with their Enbrel. I never did.

For me the injections are easy, especially now with the new delivery system

and the smaller needles. I do have some minor neurological side effects but

I am told this is rare and I am a very high strung person anyway. I would

suggest trying Enbrel to control the flare if nothing else. I haven't had a

serious infection on Enbrel, but as I said before, I'm careful. What you

are calling infection may be inflammation caused by the PA. I wouldn't

start Enbrel with a sinus infection. I actually had sinus surgery before I

started Enbrel because we thought the continuing infection may have been

attributing to the arthritis. But this may have precipitated the flare. I

have also had to temporarily stop Enbrel after having a sinus infection

following a cold. Bottom line you don't want to start Enbrel with any

pre-existing infection. R.E.

June 30, 2004

Hi Fran,

How do I start.

I have had severe allergies for many years. My eyes itch horribly so much so

that I wanted to tear them out. I went to an allergist to be tested and it seems

I am allergic to alot trees, grasses, etc. The allergist told me that the

reason I am hyper sensitive is because I have an over active immune system. My

allergies caused infection and every year I end up on Predisone.

I am beginning to look at this 2 different ways. Granted my allergies cause

infections and that is why my glands are swollen, or a hyper active immune

system causes your body to fight something that isn't there and it attacks your

own body. Hence PA.

Psoriases & psoriatic arthritis are immune disorders.

I'm no Doctor but it seems to me swollen glands with this disorder shouldn't be

surprising.

I " m sorry to hear about your jaw it sounds horrible. I'm thinking they caught

my PA early so hopefully I'll be able to control it before it gets too bad. I

will ask my PA about the gland thing when I go back.

Take care.

Deb Phoenix AZ

June 30, 2004

Dear Deb, I've been told the same thing about allergies, that I'm allergic

to most everything outside or inside the house. Dust, mold, animals, hay,

pollen, trees, grass, Chinese food, MSG and those are only some that I know

of. I do my best to avoid the things I'm really allergic to, but some of

them are just impossible.

In all the time my allergies have been bad, I've never had my glands react

before. I guess that doesn't mean it's can't start now. I have had my

glands ache if I drank red wine from the sulfites in the wine, but they

never were swollen before. I'm starting to wonder if the swelling in my

face and neck is more related to edema, since the water pills seem to help

the situation when I take them. I do notice the glands being sore though and

it's possible it is allergy related.

Normally when my allergies are bad, so is my asthma and that has been great

lately. Once I got over the last chest infection from the trial of Humira,

I seem to be back on track asthma wise. Now, if I could just get rid of the

edema, pain, erythromelalgia, PA, RA. Fibromyalgia, TMJ, and stress I'd be

just fine...lol. I think I'll keep my appointment with the endocrinologist

anyway, just so they can tell me that I'm fine and the Cushing's Syndrome

just has to fade away by itself after I'm off the prednisone.

One thing I've been concerned about is if my kidneys are working correctly.

I know that you can get facial edema from kidney problems and I've been on

water pills for about 6 months now. I don't know that they can damage your

kidneys and I guess it's something I need to ask my doctor about.

Thanks for writing me and I know that allergies can make life miserable.

I've tried the allergy shots twice and both times had to stop them due to

the fact I wasn't building any antibodies. I just kept getting worse. If

your doctor agrees with you about the glands and PA, just let me know. I

plan to ask my rheumatologist when I see him at the end of the month. Take

care and I hope you have a pain free day. Love, Fran

Re: [ ] Newly diagnosed

Hi Fran,

How do I start.

I have had severe allergies for many years. My eyes itch horribly so much

so that I wanted to tear them out. I went to an allergist to be tested and

it seems I am allergic to alot trees, grasses, etc. The allergist told me

that the reason I am hyper sensitive is because I have an over active immune

system. My allergies caused infection and every year I end up on Predisone.

I am beginning to look at this 2 different ways. Granted my allergies

cause infections and that is why my glands are swollen, or a hyper active

immune system causes your body to fight something that isn't there and it

attacks your own body. Hence PA.

Psoriases & psoriatic arthritis are immune disorders.

I'm no Doctor but it seems to me swollen glands with this disorder

shouldn't be surprising.

I " m sorry to hear about your jaw it sounds horrible. I'm thinking they

caught my PA early so hopefully I'll be able to control it before it gets

too bad. I will ask my PA about the gland thing when I go back.

Take care.

Deb Phoenix AZ

August 20, 2004

Welcome to the list.

Hugs to , you and your family. This listserv is a safe place to share stories, express concerns, or ask questions. My daughter (4.5 years is 2 years in remission for AML. Typically, leukemia does strike at children with DS at younger ages, but you will find there are a varied ages. I guess like everything else, our kids don't fit the "mold".

How wonderful that is having fun at the hospital (sure beats her hating to be there since you will be visiting much). It is so humbling the amount of donations of toys we got for . People (strangers) are so generous. Still brings tears to my eyes.

sp Karchner <karcrest@...> wrote:

Hi,My name is Karchner. My daughter, was just diagnosed on Sunday with ALL. Waiting on Chromosomes hopefully by Monday of next week. So far look like low risk pre ALL. This is really new for us. , we thought was past the DS risk as she will be 7 next month. Actually, Dr. Leichman threw up the red flags on our yearly visit last Sunday, God Bless this man. Right now she is responding wonderfully to all her treatment. The Doctors tell me that she is pretty much by the book on her levels. Still very happy and no side effects as of yet. Her Blasts are down to .02 from a high of 1.54 on Sunday pretreatment. She has gotten 3 blood transfusions and 2 platlets transfusions and has more zip then she has had in two months. She thinks the hospital is a party, she is getting all kinds of presents and balloons and

this morning was singing happy birthday to herself. I am still waiting for the other shoe to drop.Oh well that is about all. A few of you may recognize me from the TNI lists. My computer pretty much went augh, so I have not been able to access much on the lists these last few weeks. is in Geisinger Childrens Hospital in Danville, Pennsylvania.Thanks for being a sounding block. Her nurse just came and told me that it is time to take her blood pressure and she does better it I am there. Will check back later. We will be here at least until Wednesday of next week. Karchner, mom to Logan(9), (6)DS and Levi(4)

September 1, 2004

Dear Shana, Welcome to our group. You've found a great bunch of supportive

and caring people. Finding out you have PA is very overwhelming and scary.

I can imagine since you just have a new baby that you are feeling like your

whole world is changing and fast. The good news is they know what is wrong

with you and hopefully you didn't suffer too long getting a diagnosis. Now

the next step is finding the right medication that works for you. My

advice is to read up on all the drugs your doctor suggested. See which ones

seem like they will fit your situation best and if you do decide to try

them, watch out for side effects. Luckily, they are rare and these drugs

have been wonder drugs for so many people, but some of us (and I'm one of

them) can't take the new biologics. I've had severe reactions every time

and it has taken me almost 6 years to find one that is finally helping me.

I'm on Arava and I'm not pain free by any means, but at least I think I'm

about 30% better. That's amazing to me. My PA hit me really hard and

basically has almost stopped my life cold. I can no longer work, I don't

drive and until about 6 weeks ago I never cooked dinner or did anything

around the house. I spent days when it was all I could do to get out of

bed. So now my positive effects from the medication seem like a lifesaver

to me. My big problem now is trying to not over do it. I still end up in

bed the next day so I do have to be careful. I'm just hoping I continue to

get better, as I hope you do as well.

I think for skin moisturizers we all use different things. Since I have so

many allergies I do well with Aveeno lotion or cream. Sometimes I need

something stronger and my doctor gave me Dovonex. I can't say it has made

anything go away, but maybe it does lighten the spots. I have the guttate

form of psoriasis, so it looks like someone has put cigarettes out all over

my arms and legs. But I'm lucky, some of the group suffer with it horribly

and mine isn't that bad.

My only other advice is be sure you love your rheumatologist. That is one

of the hardest things for most of us, finding someone who has the time to

really treat us the way a doctor should. If you aren't happy, don't

hesitate to get a 2nd opinion. You need someone you can trust and who you

feel has a good handle on this disease. Anyway, welcome and write as much

as you can. it's really good to get it out when you are frustrated. The

great thing about this group is someone has almost always been where you

are, or are dealing with the same things you are right now. So you aren't

alone anymore. Take care, Fran

[ ] newly diagnosed

Hello everyone,

After three months of various Dr appts.,xrays, tests, and lab work, I

finally got diagnosed w/PA, along with Psoriasis; Yes, they seem to go

hand and hand don't they? Boy, I thought life was challenging enough

being a single adoptive parent of a 20 month old!....I was given at

least four pamphlets on various PA drugs to read up on....all with

side affects and risks...wow...this is some decision; how do you

handle it? Also, what type of skin/hair/scalp products do you

recommend? My Dermatologist didn't go into any specific " shampoos or

conditioners " , he only mentioned using Amlactin for a skin

moisturizer. Your recommendations would be most helpful. I look

forward to hearing any/all input. Thanks! Shana in Santa Barbara

September 1, 2004

Hi Shana,

Welcome to group.

P & PA seems to be different for each person. Your symptoms, how much

you are affected, what drugs or treatments will likely vary from each

person in the group.

My advice is to read up on all the possible drugs and treatments,

then have a discussion with your rheumatologist to figure out the

best plan for you. Decide your comfort/discomfort level with the

various drugs. NSAIDS are first line of treatment to relieve pain.

DMARDS are usually next to stop the cause of the pain, but biologics

like Enbrel are helpful for many too.

If you've read posts, you'll see that what works for one person, may

not work for others. Some folks suffer side effects, others have no

trouble.

Don't get discouraged. You may have some hit & miss, but you could

also find the right course for you right away.

Stay Well,

September 1, 2004

---

Hi Shana,

I'm also new here. I have had P since I was about 12 years old-

mostly on my scalp. I've always used T/GEL shampoo by Neutrogena and

that seems to help-the bad thing is if you color or tint your hair it

will strip the color out, not immediately but after a few times of

washing with it.

I found out about the PA last year after my regular Dr. told me that

it was Gout-it started in my right index finger-I can no longer bend

it and it stays that way-my kids call it " the claw " . I'm glad that

they get some humor from it and when I point to something it isn't

straight.

I'm in this " cycle " that I have to have about 3 naps during the day

now that the kids are back to school, I feel I am sleeping my life

away and I get the attitude from my husband that no housework is

getting done. It is kind of hard with using a walker to walk with my

hands and fingers paining me awful. I cry alot because of depression-

I stay home almost 24/7 while the kids and hubby go to football

games, etc. Money is " tight " so I can't buy anything. I have to

make dinner every night and that is a challenge in it self!! Sorry

this has turned into a sob story!! I live in Michigan and the

humidity seems to make the PA worse. One of my cousins live in

Arizon-she has A (I don't know what kind, she is in her 80's) and she

said the weather helps with the dryness. I'm thinking about moving

there someday.

Thanks for listening everyone!! Sue from , Michigan

In , " shana49 " <shana49@y...> wrote:

> Hello everyone,

> After three months of various Dr appts.,xrays, tests, and lab work,

I

> finally got diagnosed w/PA, along with Psoriasis; Yes, they seem to

go

> hand and hand don't they? Boy, I thought life was challenging enough

> being a single adoptive parent of a 20 month old!....I was given at

> least four pamphlets on various PA drugs to read up on....all with

> side affects and risks...wow...this is some decision; how do you

> handle it? Also, what type of skin/hair/scalp products do you

> recommend? My Dermatologist didn't go into any specific " shampoos or

> conditioners " , he only mentioned using Amlactin for a skin

> moisturizer. Your recommendations would be most helpful. I look

> forward to hearing any/all input. Thanks! Shana in Santa Barbara

September 2, 2004

Hi Shana and welcome,

All I can do is let you know what I have used in the past and at present.

Shampoo: T Gel, Polytar and most recently Ceanel. Creams or Ointments would

include Dithrocream, Elocon, Dovenex, Exorex and just now Dovobet and Silkis.

Hope you find something that works in the list you've been given.

Sorry Shana, meant to send this yesterday but ran out of time.

You will get good advice here.

Take care,

September 2, 2004

In a message dated 9/2/2004 7:01:05 PM Eastern Standard Time,

catlizg@... writes:

Hi Shana - Over the years, I found the best things for my skin is a

lotion called Hempz (I buy it by the gallon on E-bay; my kids think

the pot leaf on the front is hysterical, but it is THC free - darn

it),

My 18 year old daughter had that lotion in her room and it smells great. I

also had to laugh at it when I saw the picture of the leaf on the bottle.

It does feel really nice on the skin. She got it at CVS I think

Janet

September 2, 2004

Hi Shana - Over the years, I found the best things for my skin is a

lotion called Hempz (I buy it by the gallon on E-bay; my kids think

the pot leaf on the front is hysterical, but it is THC free - darn

it), plain old Neutrogena skin oil in the shower and a jar of some

foot cream I found in Sally's Beauty Supply and a good foot pumice

stone. I'll check out the name if you are interested. I use Aveda

sap products on my hair.

I tried the AmLactin, have spent a fortune on fancy creams and

ointments and over time have found the above products for my P the

best to help with alligator skin and my Velcro feet. I have not had

an outbreak of P in my scalp since using the Aveda stuff for the

past 1-1/2 years.

Hope this helps.

Greer

September 3, 2004

Hi Shana,

Sorry, I forgot to mention that I am in Scotland so the shampoo's and creams

mentioned might have a different name in the US. Can anyone help? Is this

the case?

Good luck,

September 3, 2004

I have found that Alphosyl shampoo really works for me, TGel did not do any

good. It is made by Glaxo Kline.

I am in the UK but it is no doubt available in the US

Margaret

September 4, 2004

I get it from a local pharmacy in the uk, name my be different in the US, the

Glaxosmithkline website may give info

Margaret

September 4, 2004

In a message dated 9/2/2004 6:55:22 AM Eastern Standard Time,

shana49@... writes:

Hi Sue, Thanks for your email and tip about hair color

while using certain shampoos...I do color and will

need to look into this matter...don't want to strip

new color! Take good care, Sue. shana

Hi Shana, I use Tea Tree shampoo, which doesn't affect the

color and really helps with the psoriasis and itching on the scalp. I actually

use it on the patches on my elbows too and I think it helps more than any

prescription I've ever used...

November 2, 2004

,

I am sorry I don't have time to really respond. I would suggest you go to

Mediboard.com and start with the Thyroid Awareness 101 thread:

http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549

ATDs should ALWAYS be tried first, and almost everyone who is treated

properly does well on them. You need to make sure you are being medicated

properly every step of the way.

Best wishes,

At 06:46 PM 11/2/2004, you wrote:

>Hello everyone,

>

>I am very happy to have found this group. I've just been diagnosed

>with a hyperactive thyroid....and I'm concerned about the side

>effects of the treatment options.

>

>1. Radioactive Iodine - I don't want my thyroid destroyed, and then

>be hypo-active the rest of my life.

>

>2. Anti-Thyroid medication - I'm very concerned about gaining

>weight. I was overweight before I developed hypothyroidism...and

>I've lost 30 pounds over the past few months. I don't mind gaining a

>little weight back, but I am afraid of gaining a significant amount.

>

>Can anyone share any of their treatment experiences with me? Good

>and bad. I would really appreciate any advice. Feel free to email me

>if you want.

>

>Thank you so much!!

>

November 3, 2004

Hi

Welcome. As a newly diagnosed thyroid disease person, you are doing the wisest

thing you could by asking questions. Knowledge will help you get through the

next part of your illness with wisdom. You will have to decide on some form of

treatment and you are wise to have concerns. I personally did not research my

disease well and reushed into radioactive iodine (RAI) treatment. For me there

has been non stop problems. If I had it to do again, I would not have taken the

RAI. By the way, I've now gained from normal weight of 100 lbs to 150 lbs and

haveing a hard time losing even one pound. I don't believe your treatment

choice alone affects your weight change. I seem to have a voracious appetite

just when my replacement hormone is starting to feel right. The only way I can

lose is when I allow myself to become hypothyroid. I have also had some element

of Thyroid Eye Disease - a swelling of the muscles surrounding the eyes. This

became worse as the effects of the radiation kicked in.

You need to insist on a bone density scan. Hyperthyroidism can drain the

calcium reserves from your bones leading to osteoporosis. It is important to

get a baseline measurement or to start taking medication for this as soon as

possible. I have osteoporosis, and my Internist who was treating my Graves

Disease was very reluctant to send me for a bone density scan in the beginning.

It was only through my efforts to find ways to feel better that I found out

about the Osteoporosis connection. You may also suffer depression but it should

alleviate as your treatment goes on.

There is some very good information at ithyroid.com. Take the time to work

through it. It's worth reading. And research elsewhere as well. Our doctors

are not always the most knowlegible when it comes to the thyroid. This is a

major gland in your body and it controls a lot of functions so beware of

'killing' it. Don't let anyone rush you into any decision. If I can answer any

questions, ask away.

Kate

Newly diagnosed

Hello everyone,

I am very happy to have found this group. I've just been diagnosed

with a hyperactive thyroid....and I'm concerned about the side

effects of the treatment options.

1. Radioactive Iodine - I don't want my thyroid destroyed, and then

be hypo-active the rest of my life.

2. Anti-Thyroid medication - I'm very concerned about gaining

weight. I was overweight before I developed hypothyroidism...and

I've lost 30 pounds over the past few months. I don't mind gaining a

little weight back, but I am afraid of gaining a significant amount.

Can anyone share any of their treatment experiences with me? Good

and bad. I would really appreciate any advice. Feel free to email me

if you want.

Thank you so much!!

November 4, 2004

Hi ,

I have been diagnosed hyperthyroidism for some three years now. I

have been successfully

treating my thyroid disorder with Chinese Medicine and have found

much improvement.

My pulse has gone from a 118 to the 90s and 80s. I have regained much

of my energy. My

body weight is stabilizing. I sleep much better at night. I will get

a blood test in two weeks

to determine my T3 and T4 levels. This will confirm whether the

herbal formula that I've

been taking since September is effective. I will be happy to share

with all my results then.

I understand the hesitation that many here may have regarding

treatment with Traditional

Chinese Medicine. It is fairly new and foreign to a lot of you. It is

however, an effective way

of treating the body natural for thousands of years. Much of the

ailments and diseases

that spring from everyday life, such as migraines, fatigues, body

organs disorders,

insomnia, etc can be effectively cured. Chinese medicine requires an

open mind, self-

discipline, and lots of patience. The herbal formulas that I'm taking

should completely

cured my hyperthyroidism in an approximate time of 6 months...

depending on the

severity of the thyroid disorder.

I don't want to tire you with details but would be more than happy to

share with you my

experiences should you want to know more.

In the meantime, please do not take the RAI Uptake Scan. Do not

consider the RAI 125 as a

treatment. Be very careful of any medication that is recommended and

prescribed to you.

Always ask questions. Knowledge is a very powerful treatment in

itself.

Take care.

joey

>

> Hello everyone,

>

> I am very happy to have found this group. I've just been diagnosed

> with a hyperactive thyroid....and I'm concerned about the side

> effects of the treatment options.

>

> 1. Radioactive Iodine - I don't want my thyroid destroyed, and then

> be hypo-active the rest of my life.

>

> 2. Anti-Thyroid medication - I'm very concerned about gaining

> weight. I was overweight before I developed hypothyroidism...and

> I've lost 30 pounds over the past few months. I don't mind gaining

a

> little weight back, but I am afraid of gaining a significant amount.

>

> Can anyone share any of their treatment experiences with me? Good

> and bad. I would really appreciate any advice. Feel free to email

me

> if you want.

>

> Thank you so much!!

>

November 5, 2004

Dear :

Could you tell us what kind of chinese medicine you take and where to get

it? thanks

Pam

March 7, 2005

You can go to the cesiumtherapy group where after becoming a member, you can

read the information in the files and links as well as the messages.You may want

to check her pH.

Dottie

May 22, 2005

Welcome Tig!

-------------- Original message --------------

Hi there,

I was diagnosed with graves disease last week. I have had an

undetectable THS for about 9 months, positive for antibodies. Now my

T3 is also elevated. I don't have many symtoms, I think....my typical

heart rate is in the 50's, last month at the doctors it was 80 and the

other day 100. That is the biggest thing I have noticed. I am

scheduled for an uptake and scan June 21, the endo will then decide

what corse of action. I am allergic to sulfa and he said the meds he

had in mind both contain sulfa?? I am hoping that that is far as they

will have to go, we are hoping for remission. I unfortunately have

some eating issues and the thought of going into hypo and gaining all

that weight scares me to death. I haven't lost any weight from the

hyper yet? I have lots of questions, from readng the posts, looks

like a nice group here.

would love to hear from you,

Tig

May 22, 2005

Thank you ,

Is everyone here, still in the hyper state or have some people had

to go the ?RDT? treatment, which popped them into Hypo??

Tig

>

> Welcome Tig!

>

> -------------- Original message --------------

> Hi there,

> I was diagnosed with graves disease last week. I have had an

> undetectable THS for about 9 months, positive for antibodies. Now

my

> T3 is also elevated. I don't have many symtoms, I think....my

typical

> heart rate is in the 50's, last month at the doctors it was 80 and

the

> other day 100. That is the biggest thing I have noticed. I am

> scheduled for an uptake and scan June 21, the endo will then

decide

> what corse of action. I am allergic to sulfa and he said the meds

he

> had in mind both contain sulfa?? I am hoping that that is far as

they

> will have to go, we are hoping for remission. I unfortunately

have

> some eating issues and the thought of going into hypo and gaining

all

> that weight scares me to death. I haven't lost any weight from

the

> hyper yet? I have lots of questions, from readng the posts, looks

> like a nice group here.

>

> would love to hear from you,

> Tig

>

May 22, 2005

There seems to be a mix of still hyper people and people who due to various

treatment courses have become hypo. Do all of the antithyroid meds have sulfa

in them? That is a bummer you are allergic to sulfa. You might be interested

in looking at a website called www.naet.com that talks about alternative means

of desensitizing one's body to things that one is allergic too. I have had

success with that type of treatment. It is a bit out there so I am not sure if

it would be of interest to you or not. I am glad for you that you are not

having very severe symptoms. Feel free to ask whatever other questions you may

have.

-------------- Original message --------------

Thank you ,

Is everyone here, still in the hyper state or have some people had

to go the ?RDT? treatment, which popped them into Hypo??

Tig

>

> Welcome Tig!

>

> -------------- Original message --------------

> Hi there,

> I was diagnosed with graves disease last week. I have had an

> undetectable THS for about 9 months, positive for antibodies. Now

my

> T3 is also elevated. I don't have many symtoms, I think....my

typical

> heart rate is in the 50's, last month at the doctors it was 80 and

the

> other day 100. That is the biggest thing I have noticed. I am

> scheduled for an uptake and scan June 21, the endo will then

decide

> what corse of action. I am allergic to sulfa and he said the meds

he

> had in mind both contain sulfa?? I am hoping that that is far as

they

> will have to go, we are hoping for remission. I unfortunately

have

> some eating issues and the thought of going into hypo and gaining

all

> that weight scares me to death. I haven't lost any weight from

the

> hyper yet? I have lots of questions, from readng the posts, looks

> like a nice group here.

>

> would love to hear from you,

> Tig

>

May 22, 2005

hey ,

actually my chiropractor does do naet treatements, he said he could

jump right to sulfa to help me with that, he treated my daughter for

many allergics trying to get to horses.

He also has a thyroid supplement, but does not want to give me

anything until my tests and the doc decides

I also had a massage and she did some raike work on it and my heart

rate has been about 10 points lower.

\

take care,

Tig

> >

> > Welcome Tig!

> >

> > -------------- Original message --------------

> > Hi there,

> > I was diagnosed with graves disease last week. I have had an

> > undetectable THS for about 9 months, positive for antibodies.

Now

> my

> > T3 is also elevated. I don't have many symtoms, I think....my

> typical

> > heart rate is in the 50's, last month at the doctors it was 80

and

> the

> > other day 100. That is the biggest thing I have noticed. I am

> > scheduled for an uptake and scan June 21, the endo will then

> decide

> > what corse of action. I am allergic to sulfa and he said the

meds

> he

> > had in mind both contain sulfa?? I am hoping that that is far

as

> they

> > will have to go, we are hoping for remission. I unfortunately

> have

> > some eating issues and the thought of going into hypo and

gaining

> all

> > that weight scares me to death. I haven't lost any weight from

> the

> > hyper yet? I have lots of questions, from readng the posts,

looks

> > like a nice group here.

> >

> > would love to hear from you,

> > Tig

> >

May 23, 2005

I am allergic to sulfa but did just fine on PTU - an antithyroid medication.

Read and research all you can. Elaine 's book Graves' Disease is an

excellant book to start with. Tammy

newly diagnosed