autism speaks

[Guest guest]

> One thing I have seen BIG TIME in the scientific/medical community

> is that science is not based off what we are taught, proving/

> disproving theories. It's full of politics, cliques, and butt-

> kissing (metaphor used) so that science isn't nearly as much about

> truth-finding as people like you and me are lead to believe.

You mean like that arrogant, megalomaniac Harvard " researcher " who

told and that his " study " on Risperdal would show it

to be safe even BEFORE he did his " study " ?

http://www.nytimes.com/2009/03/20/us/20psych.html?_r=1

Yeah, so much for reputable science. The only thing worth listening

to these days are gut instincts, anecdotal evidence from trusted

sources (like other parents) and double blind studies with no bias or

conflict of interest. The last one is pretty much a beautiful fairy

tale.

[Guest guest]

Debi I to have heared of much of the same over and over from AS but was unsure

of its truth.

my thinking is of this, they know people who do ABA can make of lots of money

off families.... they know if they get of insurances to cover then they can and

may end up investing in much much ABA clinics to again make of money of hurting

and desperate familes and care nothing about the actual familes as much as over

the market of making more invested money for them as a whole, this is of what my

brain is of fearing might be of their intent and while i to be of very

supportive of the bill and the need for ABA my fears lies with the so called

power they have to try to monopolize in a money market things,,, now I to have

of no truth to my thinking but just my wondering to it and this thinking is of

not based off of fact.just assumptions.

they by the way did of the same in Ohio.....

[Guest guest]

Debi I to have heared of much of the same over and over from AS but was unsure

of its truth.

my thinking is of this, they know people who do ABA can make of lots of money

off families.... they know if they get of insurances to cover then they can and

may end up investing in much much ABA clinics to again make of money of hurting

and desperate familes and care nothing about the actual familes as much as over

the market of making more invested money for them as a whole, this is of what my

brain is of fearing might be of their intent and while i to be of very

supportive of the bill and the need for ABA my fears lies with the so called

power they have to try to monopolize in a money market things,,, now I to have

of no truth to my thinking but just my wondering to it and this thinking is of

not based off of fact.just assumptions.

they by the way did of the same in Ohio.....

[Guest guest]

cathy so they do not support research in areas of biomedical b ut yet claim they

are of seeking the cure? how can they cure something they do not treat in

theory?

sondra

[Guest guest]

cathy so they do not support research in areas of biomedical b ut yet claim they

are of seeking the cure? how can they cure something they do not treat in

theory?

sondra

[Guest guest]

cathy so they do not support research in areas of biomedical b ut yet claim they

are of seeking the cure? how can they cure something they do not treat in

theory?

sondra

[Guest guest]

> cathy so they do not support research in areas of biomedical b ut

> yet claim they are of seeking the cure? how can they cure something

> they do not treat in theory?

> sondra

I don't know, Sondra. I only really listen to those with the purest

of motives, and for the most part, Autism Speaks doesn't fit that

category.

[Guest guest]

> cathy so they do not support research in areas of biomedical b ut

> yet claim they are of seeking the cure? how can they cure something

> they do not treat in theory?

> sondra

I don't know, Sondra. I only really listen to those with the purest

of motives, and for the most part, Autism Speaks doesn't fit that

category.

[Guest guest]

> cathy so they do not support research in areas of biomedical b ut

> yet claim they are of seeking the cure? how can they cure something

> they do not treat in theory?

> sondra

I don't know, Sondra. I only really listen to those with the purest

of motives, and for the most part, Autism Speaks doesn't fit that

category.

[Guest guest]

Sondra, I never thought about that, that they may try to make money off ABA

centers. But other places like CA's CARD centers are already doing the same

thing. I read about them & thought they sounded like a dream come true & how

they will set up centers other places. So I made contact with them & started the

process for Knoxville. They wanted to know who funded ABA. After I quit laughing

& told them no one does, they wouldn't return any of my emails/phone calls.

Debi

-

[Guest guest]

Sondra, I never thought about that, that they may try to make money off ABA

centers. But other places like CA's CARD centers are already doing the same

thing. I read about them & thought they sounded like a dream come true & how

they will set up centers other places. So I made contact with them & started the

process for Knoxville. They wanted to know who funded ABA. After I quit laughing

& told them no one does, they wouldn't return any of my emails/phone calls.

Debi

-

[Guest guest]

Sondra, I never thought about that, that they may try to make money off ABA

centers. But other places like CA's CARD centers are already doing the same

thing. I read about them & thought they sounded like a dream come true & how

they will set up centers other places. So I made contact with them & started the

process for Knoxville. They wanted to know who funded ABA. After I quit laughing

& told them no one does, they wouldn't return any of my emails/phone calls.

Debi

-

[Guest guest]

Sondra-

There is a lot of information out there on Autism Speaks- way too

much to put in one email. I decided that I'd never support anything that

they did after the Autism Every Day

<http://www.youtube.com/watch?v=FDMMwG7RrFQ> video, and I've never

regretted

that decision as I really don't agree with them on much (especially

since they

keep changing their minds about different things). I can't imagine

wishing that

my children were never born, thinking of my entire life as a pit of

despair because

I have autistic children, or saying in front of any of my autistic kids

that I wish that I'd driven off

a bridge with them. I think that they show a basic lack of respect for

autistic

people, and that it's very telling that no matter how many times people

offer,

they still will not let an austic person be on their board of

directors. I'm not interested

in " autism organizations " that won't let autistic people speak for

themselves.

Jen

sondra wrote:

>

> I to be of wanting to learn more on this group from members and people

> I to trust so have of several questions

>

> 1) why is of Autism speaks leading legistlation in much of the various

> states to pass of insurance reform... not disputing their need for

> such a bill but wanted to know why they are going to each state to

> push this bill? is there some sort of monetary gain in this?

>

> 2) why is of autism speaks endorsing ABA ? why do they insist it is of

> in the bill? is there a motive and or personal gain by doing so. It

> isof not that I to not endorse and respect ABA but if the intent or

> agenda is of not correct and for the right reasons I to have of concerns?

>

> 3) why do they not specifically name other options by name but leave

> it vague?

>

> 4) I to felt Kassi at one point did disclose of the salary of the key

> heads of Autism speaks and so wondered on it too?

>

> 5) I to agree the bill needs to pass and will stay of silent to it

> just so it passes but the concerns to me is of the mindsets of Autism

> speaks I to have been of told and or learned concerns of me?

> especially when they speak of things that can lead to infantide and

> they solicite without any ethical reserves for our brains for research

> as if our existance does not count but our deaths do?

>

> 6) I to also know that autism speaks has been of to have a stong

> stance on the vaccine issue? but not sure of their stance completely

> yet on that? does any one to know? i to think they were aginst

> biomedical but they raise of funds to research biomedical? so why the

> double thinking unless I to misunderstood of what i to read. and then

> too I to see they were of part of Iacc but pulled out angrily from it

> but lack why?

>

> 7) they also have been of know to raise much much money ion various

> states and only a few dollars tricked back to the state itself and

> they pocketed much of it? where did of the money go and why did it not

> filter in complete back to the state the funds were of raised from?

>

> 8) does any one also know what they agenda may be of collaborating

> with one methodolgoy instead of supportive of others and being heads

> of this bill in all of the states they have so far done?

>

> I to just need to make of sense of all of this because as I to shared

> currently they are of heading the insurance bill reform.

>

> sondra

>

>

[Guest guest]

Sondra-

There is a lot of information out there on Autism Speaks- way too

much to put in one email. I decided that I'd never support anything that

they did after the Autism Every Day

<http://www.youtube.com/watch?v=FDMMwG7RrFQ> video, and I've never

regretted

that decision as I really don't agree with them on much (especially

since they

keep changing their minds about different things). I can't imagine

wishing that

my children were never born, thinking of my entire life as a pit of

despair because

I have autistic children, or saying in front of any of my autistic kids

that I wish that I'd driven off

a bridge with them. I think that they show a basic lack of respect for

autistic

people, and that it's very telling that no matter how many times people

offer,

they still will not let an austic person be on their board of

directors. I'm not interested

in " autism organizations " that won't let autistic people speak for

themselves.

Jen

sondra wrote:

>

> I to be of wanting to learn more on this group from members and people

> I to trust so have of several questions

>

> 1) why is of Autism speaks leading legistlation in much of the various

> states to pass of insurance reform... not disputing their need for

> such a bill but wanted to know why they are going to each state to

> push this bill? is there some sort of monetary gain in this?

>

> 2) why is of autism speaks endorsing ABA ? why do they insist it is of

> in the bill? is there a motive and or personal gain by doing so. It

> isof not that I to not endorse and respect ABA but if the intent or

> agenda is of not correct and for the right reasons I to have of concerns?

>

> 3) why do they not specifically name other options by name but leave

> it vague?

>

> 4) I to felt Kassi at one point did disclose of the salary of the key

> heads of Autism speaks and so wondered on it too?

>

> 5) I to agree the bill needs to pass and will stay of silent to it

> just so it passes but the concerns to me is of the mindsets of Autism

> speaks I to have been of told and or learned concerns of me?

> especially when they speak of things that can lead to infantide and

> they solicite without any ethical reserves for our brains for research

> as if our existance does not count but our deaths do?

>

> 6) I to also know that autism speaks has been of to have a stong

> stance on the vaccine issue? but not sure of their stance completely

> yet on that? does any one to know? i to think they were aginst

> biomedical but they raise of funds to research biomedical? so why the

> double thinking unless I to misunderstood of what i to read. and then

> too I to see they were of part of Iacc but pulled out angrily from it

> but lack why?

>

> 7) they also have been of know to raise much much money ion various

> states and only a few dollars tricked back to the state itself and

> they pocketed much of it? where did of the money go and why did it not

> filter in complete back to the state the funds were of raised from?

>

> 8) does any one also know what they agenda may be of collaborating

> with one methodolgoy instead of supportive of others and being heads

> of this bill in all of the states they have so far done?

>

> I to just need to make of sense of all of this because as I to shared

> currently they are of heading the insurance bill reform.

>

> sondra

>

>

[Guest guest]

Sondra-

There is a lot of information out there on Autism Speaks- way too

much to put in one email. I decided that I'd never support anything that

they did after the Autism Every Day

<http://www.youtube.com/watch?v=FDMMwG7RrFQ> video, and I've never

regretted

that decision as I really don't agree with them on much (especially

since they

keep changing their minds about different things). I can't imagine

wishing that

my children were never born, thinking of my entire life as a pit of

despair because

I have autistic children, or saying in front of any of my autistic kids

that I wish that I'd driven off

a bridge with them. I think that they show a basic lack of respect for

autistic

people, and that it's very telling that no matter how many times people

offer,

they still will not let an austic person be on their board of

directors. I'm not interested

in " autism organizations " that won't let autistic people speak for

themselves.

Jen

sondra wrote:

>

> I to be of wanting to learn more on this group from members and people

> I to trust so have of several questions

>

> 1) why is of Autism speaks leading legistlation in much of the various

> states to pass of insurance reform... not disputing their need for

> such a bill but wanted to know why they are going to each state to

> push this bill? is there some sort of monetary gain in this?

>

> 2) why is of autism speaks endorsing ABA ? why do they insist it is of

> in the bill? is there a motive and or personal gain by doing so. It

> isof not that I to not endorse and respect ABA but if the intent or

> agenda is of not correct and for the right reasons I to have of concerns?

>

> 3) why do they not specifically name other options by name but leave

> it vague?

>

> 4) I to felt Kassi at one point did disclose of the salary of the key

> heads of Autism speaks and so wondered on it too?

>

> 5) I to agree the bill needs to pass and will stay of silent to it

> just so it passes but the concerns to me is of the mindsets of Autism

> speaks I to have been of told and or learned concerns of me?

> especially when they speak of things that can lead to infantide and

> they solicite without any ethical reserves for our brains for research

> as if our existance does not count but our deaths do?

>

> 6) I to also know that autism speaks has been of to have a stong

> stance on the vaccine issue? but not sure of their stance completely

> yet on that? does any one to know? i to think they were aginst

> biomedical but they raise of funds to research biomedical? so why the

> double thinking unless I to misunderstood of what i to read. and then

> too I to see they were of part of Iacc but pulled out angrily from it

> but lack why?

>

> 7) they also have been of know to raise much much money ion various

> states and only a few dollars tricked back to the state itself and

> they pocketed much of it? where did of the money go and why did it not

> filter in complete back to the state the funds were of raised from?

>

> 8) does any one also know what they agenda may be of collaborating

> with one methodolgoy instead of supportive of others and being heads

> of this bill in all of the states they have so far done?

>

> I to just need to make of sense of all of this because as I to shared

> currently they are of heading the insurance bill reform.

>

> sondra

>

>

[Guest guest]

My personal op is AS is looking for a genetic way to end autism. I have heard

some mutterings that they want to create prenatal screening like with Down

Syndrome where 90% of those found to have it (or even suspected) are aborted

before they have a chance at life. I guess you can tell from my posting that I

find that horribly offensive.

Debi

>

> cathy so they do not support research in areas of biomedical b ut yet claim

they are of seeking the cure? how can they cure something they do not treat in

theory?

> sondra

>

[Guest guest]

My personal op is AS is looking for a genetic way to end autism. I have heard

some mutterings that they want to create prenatal screening like with Down

Syndrome where 90% of those found to have it (or even suspected) are aborted

before they have a chance at life. I guess you can tell from my posting that I

find that horribly offensive.

Debi

>

> cathy so they do not support research in areas of biomedical b ut yet claim

they are of seeking the cure? how can they cure something they do not treat in

theory?

> sondra

>

[Guest guest]

My personal op is AS is looking for a genetic way to end autism. I have heard

some mutterings that they want to create prenatal screening like with Down

Syndrome where 90% of those found to have it (or even suspected) are aborted

before they have a chance at life. I guess you can tell from my posting that I

find that horribly offensive.

Debi

>

> cathy so they do not support research in areas of biomedical b ut yet claim

they are of seeking the cure? how can they cure something they do not treat in

theory?

> sondra

>

[Guest guest]

I to have of a question on a rash that is of odd, this rash is not the

first time I to getted of it but this rash looks like or similar to poison ivy

but is of not it also looks like a raised heat rash. it does itch some but also

burns and stings when in the shower and the soap or water touches of it. I to

only get of it on the arms like the fold of it and down to the wrist areas and

get of it behind of my legs where the back of the knee place is of to be. it

causes of much headache like things too, I to also not i to get of itside of the

nose and then get of these sore bumps outside but around the nose and cracks of

the lips of my mouth at times?

at first was thinking allergic reaction but not have a pattern and cant know

what things would cause of me to react only in certain parts of the body not

other parts.

the rash seems to be of more noted at night and less noted in the day. I to also

note that my brain seems much so out of sync during that time.

lastly the doctor put of me on the pill called of camila to try to help of me

with the hormone issues and to try to get of my inner body parts ready for a

surgery sort of things. does any one have of any bad experiences with this? I to

not been of able to take birth control before but the doctor shared it was of

because was of hyper reactive to female hormone and this one is of all male

hormone things or maybe got this backwards but so far took of it two days and no

vomitting but do get of nausea and it seems to be of triggering somewhat the

sjogrens because the eyes are of tearing again and waking with the sinuses being

of so dry and swollen that it is of blocking air from coming in our out so cant

sleep because of this.

I to go to cleveland clinic in the fall to see the wolrds best specialist in the

areas of mitochondrial disease and will be of evlauated and have of much much

testing done but that to me is of a long time it seems for me.

sondra

[Guest guest]

I to have of a question on a rash that is of odd, this rash is not the

first time I to getted of it but this rash looks like or similar to poison ivy

but is of not it also looks like a raised heat rash. it does itch some but also

burns and stings when in the shower and the soap or water touches of it. I to

only get of it on the arms like the fold of it and down to the wrist areas and

get of it behind of my legs where the back of the knee place is of to be. it

causes of much headache like things too, I to also not i to get of itside of the

nose and then get of these sore bumps outside but around the nose and cracks of

the lips of my mouth at times?

at first was thinking allergic reaction but not have a pattern and cant know

what things would cause of me to react only in certain parts of the body not

other parts.

the rash seems to be of more noted at night and less noted in the day. I to also

note that my brain seems much so out of sync during that time.

lastly the doctor put of me on the pill called of camila to try to help of me

with the hormone issues and to try to get of my inner body parts ready for a

surgery sort of things. does any one have of any bad experiences with this? I to

not been of able to take birth control before but the doctor shared it was of

because was of hyper reactive to female hormone and this one is of all male

hormone things or maybe got this backwards but so far took of it two days and no

vomitting but do get of nausea and it seems to be of triggering somewhat the

sjogrens because the eyes are of tearing again and waking with the sinuses being

of so dry and swollen that it is of blocking air from coming in our out so cant

sleep because of this.

I to go to cleveland clinic in the fall to see the wolrds best specialist in the

areas of mitochondrial disease and will be of evlauated and have of much much

testing done but that to me is of a long time it seems for me.

sondra

[Guest guest]

I to have of a question on a rash that is of odd, this rash is not the

first time I to getted of it but this rash looks like or similar to poison ivy

but is of not it also looks like a raised heat rash. it does itch some but also

burns and stings when in the shower and the soap or water touches of it. I to

only get of it on the arms like the fold of it and down to the wrist areas and

get of it behind of my legs where the back of the knee place is of to be. it

causes of much headache like things too, I to also not i to get of itside of the

nose and then get of these sore bumps outside but around the nose and cracks of

the lips of my mouth at times?

at first was thinking allergic reaction but not have a pattern and cant know

what things would cause of me to react only in certain parts of the body not

other parts.

the rash seems to be of more noted at night and less noted in the day. I to also

note that my brain seems much so out of sync during that time.

lastly the doctor put of me on the pill called of camila to try to help of me

with the hormone issues and to try to get of my inner body parts ready for a

surgery sort of things. does any one have of any bad experiences with this? I to

not been of able to take birth control before but the doctor shared it was of

because was of hyper reactive to female hormone and this one is of all male

hormone things or maybe got this backwards but so far took of it two days and no

vomitting but do get of nausea and it seems to be of triggering somewhat the

sjogrens because the eyes are of tearing again and waking with the sinuses being

of so dry and swollen that it is of blocking air from coming in our out so cant

sleep because of this.

I to go to cleveland clinic in the fall to see the wolrds best specialist in the

areas of mitochondrial disease and will be of evlauated and have of much much

testing done but that to me is of a long time it seems for me.

sondra

[Guest guest]

Hi Sondra,

That's a form of eczema called atopic dermatitis. Flareups have many

causes, including dry, cold air, soaps, hot water, certain foods, hay

fever, etc. Given your sensitive immune system, it's not surprising

you also have eczema.Cortisone type creams can help, but avoiding

things that cause flareups, when identified, works best. The brain fog

can be candida yeast overgrowth, which could also lead to rashes like

you describe.

> I to have of a question on a rash that is of odd, this rash is

> not the first time I to getted of it but this rash looks like or

> similar to poison ivy but is of not it also looks like a raised heat

> rash. it does itch some but also burns and stings when in the shower

> and the soap or water touches of it. I to only get of it on the arms

> like the fold of it and down to the wrist areas and get of it behind

> of my legs where the back of the knee place is of to be. it causes

> of much headache like things too, I to also not i to get of itside

> of the nose and then get of these sore bumps outside but around the

> nose and cracks of the lips of my mouth at times?

>

> at first was thinking allergic reaction but not have a pattern and

> cant know what things would cause of me to react only in certain

> parts of the body not other parts.

>

> the rash seems to be of more noted at night and less noted in the

> day. I to also note that my brain seems much so out of sync during

> that time.

>

> lastly the doctor put of me on the pill called of camila to try to

> help of me with the hormone issues and to try to get of my inner

> body parts ready for a surgery sort of things. does any one have of

> any bad experiences with this? I to not been of able to take birth

> control before but the doctor shared it was of because was of hyper

> reactive to female hormone and this one is of all male hormone

> things or maybe got this backwards but so far took of it two days

> and no vomitting but do get of nausea and it seems to be of

> triggering somewhat the sjogrens because the eyes are of tearing

> again and waking with the sinuses being of so dry and swollen that

> it is of blocking air from coming in our out so cant sleep because

> of this.

>

> I to go to cleveland clinic in the fall to see the wolrds best

> specialist in the areas of mitochondrial disease and will be of

> evlauated and have of much much testing done but that to me is of a

> long time it seems for me.

>

> sondra

[Guest guest]

ohhhh thats sooo wrong, sorry, thats my opinion only. to abort a child because

of autism just isn't in my mind set at all..........yes, i feel sorry for those

parents who have a child that makes their life unbearable, but i still couldn't

abort.

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: fightingautism@...

Date: Sat, 21 Mar 2009 22:12:03 +0000

Subject: Re: autism speaks

My personal op is AS is looking for a genetic way to end autism. I have heard

some mutterings that they want to create prenatal screening like with Down

Syndrome where 90% of those found to have it (or even suspected) are aborted

before they have a chance at life. I guess you can tell from my posting that I

find that horribly offensive.

Debi

>

> cathy so they do not support research in areas of biomedical b ut yet claim

they are of seeking the cure? how can they cure something they do not treat in

theory?

> sondra

>

_________________________________________________________________

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[Guest guest]

Sorry Debi.. Have to disagree with you on this one regarding the prenatal

screening on this one.  Don't see it happening... At least not in our life

time... They (science) are not even remotely close.... Genetic testing is not

that easy, nevermind prenatal testing......

once again, just my $0..02

ps... i'm reading a lot of " pissing and moaning " about AS and what they are

trying to accomplish with trying to get the grassroots strong and getting laws

passed for insurance coverage for ABA... this is a good thing people...   I

don't know about any of you, but I have two on the spectrum... ABA is the reason

why Jake and Ella can tell me what they want, what's hurting them, what they

want to eat, what they don't like, and that they love me too....   Sorry to be

such a stick in the mud again.............

" ABA-based techniques are often used to treat autism, and have demonstrated

effectiveness in several controlled studies: children have been shown to make

sustained gains in academic performance, adaptive behavior, and language, with

outcomes significantly better than control groups.[82] A 2009 review of

educational interventions for children, whose mean age was six years or less at

intake, found that the higher-quality studies all assessed ABA, that ABA is

well-established and no other educational treatment is considered

probably-efficacious, and that intensive ABA treatment, carried out by trained

therapists, is demonstrated effective in enhancing global functioning in

pre-school children.[83] A 2008 evidence-based review of comprehensive treatment

approaches found that ABA is well-established for improving intellectual

performance of young children with ASD.[84] A 2009 comprehensive synthesis of

early intensive behavioral intervention (EIBI), a form of

ABA treatment, found that EIBI produces strong effects, suggesting that it can

be effective for some children with autism; it also found that the large effects

might be an artifact of comparison groups with treatments that have yet to be

empirically validated, and that no comparisons between EIBI and other widely

recognized treatment programs have been published.[85] A 2009 systematic review

came to the same principal conclusion that EIBI is effective for some but not

all children, with wide variability in response to treatment; it also suggested

that any gains are likely to be greatest in the first year of intervention.[86]

However, a 2008 systematic review and meta-analysis found that applied behavior

intervention (ABI), another name for EIBI, did not significantly improve

outcomes of preschool children in the areas of cognitive outcome, expressive

language, receptive language, and adaptive behavior.[87] "

________________________________

To: Autism_in_Girls_and_Women

Sent: Saturday, March 21, 2009 6:12:03 PM

Subject: Re: autism speaks

My personal op is AS is looking for a genetic way to end autism. I have heard

some mutterings that they want to create prenatal screening like with Down

Syndrome where 90% of those found to have it (or even suspected) are aborted

before they have a chance at life. I guess you can tell from my posting that I

find that horribly offensive.

Debi

>

> cathy so they do not support research in areas of biomedical b ut yet claim

they are of seeking the cure? how can they cure something they do not treat in

theory?

> sondra

>

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[Guest guest]

amy I ot think you misunderstand my seeking.

I to be of a supporter of ABA and do agree the bill is of a good bill and do

support of it greatly.

but there is of already so much politics and such around ABA and often because

of that it leaves many families unable to access GOOD ABA there are of too many

unregulated, unethical, and under trained ABA places that can be of to use this

as a money market. I to worry over the uprising of the BAD ABA that can cause of

more harm/////

Much of Autism Speaks employees do not even have of children of autism and have

work histories that do not even reflect of life time training or exploring of

autism from the reading I to have had on them. I to just be of curious to their

motive behind leading this bill and insisting ABA is of in the bill or they will

not sponser it?

for me yes this is of good that ABA is of in there but Autism speaks from many

many sources have proven to be of not so honest and not fully truthful to their

motives and this fears of me not the bill not the ABA but Autism speaks?

so when I to have of a fear of somethings I to need to research it much to have

it balanced out within me so I to need to hear good or bad and learn my own

thinking and view from all the gathered informations.

I to not be saying I to fully support Autism speaks, but also not saying I do

not. I to need to learn of it it of all. So far the only exposure I to had with

them is of been approached 3 times for my brain when i to be of dead???? and or

they hand of me papers of their chapter meetings but they NEVER had tried to

approach me as a human and interact with me as such.... we even have of a

chapter here in Ohio out of OSU. it is of a student chapter and they have been

to each hearing in our state over insurnace reform as I to be of to attended all

of them too. Much from all of the other autism groups and chapters and

professionals and people DO consistenly come to me give of me hugs, speak to me

as if human and interact with me. much of the familes do the same. much of the

political people I to know of as well doo, but autism speaks only hands me

papers to their chapter meetings but do not interact. Even though they know of

me and know of me by name.

some of my favorite people in my areas are of heads of ABA clinics.

sinclair is of one of my favorite peopls and i to have of a list of them. much

as I to shared do have of ABA clinics and I to support of their work and fight

for them to continue of their work because they are of strong GOOD ABA

clinics....

My motives is of to look at all angles of things and to assure that their is of

no manipulation and explotation of griving and suffering familes and that it

does not become a battle of money market things at teh expense of these

families.

that is of all. Amy I to be of sorry if my words offended of you. but for me my

motive was to protect of the current good ABA clinics and familes as a whole.

not for any personal reasons outside of that.

sondra