Re: McCarthy

[Guest guest]

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone, they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

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[Guest guest]

Really, what happened to we don't know? I know some kids who have

been treated and have read of 2 cured. I think anything is possible

but we won't know until we try.

>

> Autism is not curable, it just isn't. It is a part of who these

kids are.

> Just like you cannot cure obsessive compulsive disorder or diabetes

or many

> other conditions the therapies and bio medical interventions can

make things a

> whole lot better. If you believe your child can be cured that is

great, but

> autism is a complex neurological condition and it doesn't just go

away. Many

> autistic adults have been asked if they would like their autism to

be gone, they

> usually answer no. I hope some of my son's autistic tendencies

get better,

> every day we see new improvement in one area or another, but there

really is

> nothing to cure, he has autism and it is part of his being. The

symptoms

> get better usually as they get older and other interventions also

help. They may

> even improve so much no one ever knows that they have it. This is

my belief.

> If others believe that their children have been cured

congratulations. Jen

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news &

> more!

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>

[Guest guest]

Jen,

 

I totally agree with you.  Plain and simple, autismt is not curable.  Symptoms

can be treated but autism is not curable.  Saying autism is curable, I believe,

is irresponsible and gives the impression to the general public that every child

with autism is the same and curable.  I believe this message hurts all the

organizations that due great work in autism awareness and research.

 

Great email!

 

Matt

From: jennyjudy@... <jennyjudy@...>

Subject: Re: [ ] McCarthy

Date: Monday, November 17, 2008, 7:52 PM

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone, they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

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[Guest guest]

Oh Gosh....

If you want to call up my house and ask Mark whether he'd like to be free of

dyspraxia tomorrow..... he would absolutely state an emphatic YES!!!

It is not a 'fun' condition and I don't believe that it is 'naturally' a part

of him.... and most importantly.... NEITHER DOES HE!!! For he has many, many

days where he is completely symptom free.... and guess what.... those are the

days he cherishes and he feels like himself. Now we only have 'dyspraxic' days

a couple of times a month and on those days.... he gets really down and

depressed about it. Because now, he 'sees' the ADD and he 'sees' the brain fog

and he 'sees' the bad articulation and it frustrates and annoys him to no end.

For my son.... dyspraxia is a MEDICAL condition.... not a part of who he

naturally is. But, like diabetes, he may always have it to some extent but....

like diabetes and cancer... we should ALWAYS be seeking a CURE! I don't see low

muscle tone as a neurological issue but as a 'medical' issue.

Believe me everyone... if you don't believe that your child can heal.. he won't

ever find recovery. To heal your child you must picture him everyday as being

recovered and then slowly work towards that picture.... baby step by baby step,

the picture comes to life. You must believe and your child must believe.....

Today my darling son headed off to school at 7:00 am to participate on the

wrestling team! My daughter looked at his frail skinny body and remarked....

" he just doesn't give up, does he? " I smiled and said, " Yeah, kids with

dyspraxia may have weak bodies but their spirit is darn tough! They just keep

on trying until they finally get there! " Mark had a blast on the wrestling team

today and easily fit into the lightest group with his skinny little arms and

tall stature. He came home this afternoon to declare that he had just joined

the curling team; he'd be home late on Fridays. I'm still trying to imagine him

having the strength to throw that curlng rock down the lane! (I can barely do

it). I watch him valiently work his push-ups; he's up to 16 now; a month ago he

had to do wall pushups because he lacked the forearm strength to do regular

ones.

He's already started studying for his learners license which he plans to take

several days after his birthday this Christmas. He knows that many people with

dyspraxia cannot drive and he's determined that he will not suffer this

handicap. This is HIM... not me, mom, pushing.

If my son believed in dyspraxia and autism.... he'd never have flown to

California this summer on his own to do Adventure Camp; he wouldn't have

mountain biked down a MOUNTAIN in Utah with a guide (not with me, I was too

chicken); he wouldn't have white water rafted last summer in BC, mountain

climbed and repelled using ropes or done half of the things he's done even

though he has struggled so with severe global dyspraxia; he'd never have done 3

hours a day of home therapy after school and right now.... at this present

moment, he wouldn't be wearing a patch on his left eye while working on his

hand-writing.

He'd have given up.... and he would have become a depressed and wounded soul. I

am so so thankful that he doesn't believe that he's 'Stuck' with this nasty

disease called dyspraxia..... I am so glad that he's chosen to FIGHT with every

fiber of his being...because if he had simply 'accepted' dyspraxia.... he

wouldn't be half the wonderful, daring soul that he currently IS!

Be careful as to how you want to define dyspraxia in your life; for us, we wage

WAR on it every single day and I won't give up.... not til my dying breath...

looking for a CURE for this awful condition.... and my son.... well, he's

decided that dyspraxia will not DEFINE him nor will it CONTROL him... NEVER!

I am not trying to yell here... but I do want to emphasize that 'mindset' is a

key ingredient to healing.... the decision to 'fight' makes us powerful and

strong. It is an 'important' part of healing and overcoming dyspraxia.

So... choose your course carefully, you will find what you envision and

imagine....

Janice

Mother of Mark, 13

[sPAM]Re: [ ] McCarthy

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone,

they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They

may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

**************Get the Moviefone Toolbar. Showtimes, theaters, movie news &

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[Guest guest]

>

> Autism is not curable, it just isn't. It is a part of who these

kids are.

> Just like you cannot cure obsessive compulsive disorder or diabetes

or many

> other conditions the therapies and bio medical interventions can

make things a

> whole lot better. If you believe your child can be cured that is

great, but

> autism is a complex neurological condition and it doesn't just go

away. Many

> autistic adults have been asked if they would like their autism to

be gone, they

> usually answer no. I hope some of my son's autistic tendencies

get better,

> every day we see new improvement in one area or another, but there

really is

> nothing to cure, he has autism and it is part of his being. The

symptoms

> get better usually as they get older and other interventions also

help. They may

> even improve so much no one ever knows that they have it. This is

my belief.

> If others believe that their children have been cured

congratulations. Jen

> **************Get the Moviefone Toolbar. Showtimes, theaters, movie

news &

> more!

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>

[Guest guest]

I will quote something McCarthy has said several times " You can get hit by

a bus and will not be cured from the injuries but you can recover.  Your child

will not be cured from autism, but he/she may recover "

 

From: jennyjudy@... <jennyjudy@...>

Subject: Re: [ ] McCarthy

Date: Monday, November 17, 2008, 7:52 PM

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone, they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news &

more!(http://pr.atwola. com/promoclk/ 100000075x121277 4565x1200812037/

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[Guest guest]

I read your e mail in my own rocking chair. I like the rocking chair. I hope

you are not having too much trouble getting out of it yet. I remember those

days with fond memories.

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[Guest guest]

I feel the same way about apraxia.

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[Guest guest]

I think we need to keep trying for a cure and I am a supporter of Mc

Carthy and this is not a black and white issue. People can regress . My mother

in law died from cancer she had radiation for a year and then went 7 years

with no symptoms until her leg started to hurt and then she found out her

cancer was back. She did 6 months later. If says her son is cured it is

ok

with me. I think it is great. Hope everyone else can replicate the same

treatment and become asymptomatic but we need to understand that we are not all

the

same be tolerant of others who are different and realize that we are who we

are because of our experiences. I had 3 sons. One of them had bipolar

disorder. It was treatable with medication and he would go along time without

symptoms until he quit taking his medication and then the symptoms would

reappear.

I feel compelled to respond to your e mail in honor of Danny. Danny had an

accidental overdose 2 years ago and died. Most of the time I just read the

emails. Thank you for responding. I know it is controversial and many people

feel

passionately on one side or the other. We all want to cure the world of

things that we consider to hold us back but we also have to accept that not

everyone can or wants to be cured. Some of us have accepted ourselves the way

we

are. I know that this message was not intended for me and I apologize if I

have offended anyone in anyway. I thank you for posting.

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[Guest guest]

'Many autistic adults have been asked if they would like their autism to be

gone, they

usually answer no.'

Well they didn't ask me. Do you know how hard it is to stem and rock when you

are 8 months pregnant!!! (smile)

From: jennyjudy@... <jennyjudy@...>

Subject: Re: [ ] McCarthy

Date: Monday, November 17, 2008, 7:52 PM

Autism is not curable, it just isn't. It is a part of who these kids

are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone, they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

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[Guest guest]

I believe my child can heal, but completely get rid of a neurological

condition for which right now there is no cure, no not right at the moment do I

believe in a 100% cure. Recovery and cure have two different meanings. Apraxia

and autism are two different things. I am sure my son would love to be able to

say all that is on his mind as well. I do believe my son will achieve

greatness but I am not ignoring he has a medical condition. I look for the

positive

everyday and my son leads a positive life with lots of goals to reach and he

knows we all support him. I will continue to research, fight and look for

anything that may help my son, and I do believe in my heart he will talk. I was

just trying to convey that telling people that something is curable when it

isn't is misleading and can cause parents who are new to this to try

everything presented to them to help their child that may just be wasting money

and

precious time. I believe in my son more than anyone. Jen

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[Guest guest]

, you are too funny! Thanks for my morning chuckle. I sure needed it

today!

I yelled at Mark today for losing his school binder and I feel awful. I did

exactly what I 'wasn't' supposed to do....bawl him out! What I am supposed to

do is to create 'consequences' but I forgot until after he left for school.....

That is on my NACD program and I forgot.... shoot! GUILT, GUILT, GUILT!

That is what we have issues with mostly now-a-days.... organization and

attention to the 'small' things in life. Patching his right eye while

practicing fine motor skills is working beyond my wildest dreams (along with

supplementing with piracetam) and his writing skills are almost normalized now.

AMAZING.... one silly eye issue plus a LOT of muscle work has really gotten this

issue tackled for him.

I notice that he still has some visual discrimination issues.... trouble seeing

outlines... and I think that I will research this a little since it may be the

key to getting his organizational abilities up to par. So...one BIG issue

conquored.... and one 'little one' to go! I am continuing with pleoptics to

stimulate his central detail vision but I confess that this is an exercise that

I often forget to do.... I'll have to put it up higher on to my radar screen.

That's how you heal dyspraxia.... tackling one developmental issue at a time or

many little developmental issues at a a time. But you CAN tackle these things

and succeed; you just need to decide to do the research on your child and try to

figure out 'why' they cannot do things.... you need to look straight to the root

of the senses that are not working (for us right now it is the eyes) and then

figure out how to stimulate that neural pathway.

I think that I just want to say that there are many in the autistic adult

community that are just so darn frustrated with therapy that doesn't work, with

people trying to 'change' them that I completely 'get' where they are coming

from.

But today, we have a new generation and a whole host of new therapy, biomedical

and medical techniques at our disposal.

Our kids are not adults; they are still just kids and their mindset; who they

think they are and how they feel about themselves is just developing. When I

went with the 'system' techniques and before I learned that many of my son's

issues were actually medical... well, he was a pretty depressed and defeated

little boy. He had given up. So had I. We were just 'existing' with dyspraxia

and we were not challenging dyspraxia... so my boy never got better. He didn't

improve and would not have improved had I not changed my approach when he was

11.

Changing the way we see dyspraxia.... as an ailment to be fought; as a medical

condition that can be alleviated via healing.... well, this changed how he saw

himself. He was able to separate his personal identity from that of dyspraxia.

Today, Dyspraxia is something he " HAS " not something he " IS " . This may not seem

like a huge differentiation but really... in terms of our personal identity....

it is enormous!

This change in mindset; the idea that when he works hard, he defeats dyspraxia

has given him the courage to fight. Because he has seen results and his life

has changed tremendously after starting to fight back.... I don't believe that

he'll ever stop fighting. He's made a personal decision not to let dyspraxia

rule; he's made the decision to conquor it.

Our kids need to be fighters. What they lack in physical strength, they need to

develop in personal strength. They need to believe in themselves and in their

ability to overcome whatever challenges are tossed their way.

So.... how do I 'know' intrinsically that a lot of my child's issues are really

medical with neurological outcomes? Because we have recovered most of his

facilities, that's how. I used to belong to an adult dyspraxia board and I

listened to the stories told by the many adults while doing home therapy every

day. One by one, I read on while my son was conquoring the issues of complaint

that the adults had. My boy was lucky. Via their stories and via my research,

he had access to therapies that these adults did not have. In part because of

them, he got better. They did reject me when I tried to tell them of our

success and did not want to hear it..... I understand and I get why. I also

know that as Mark ages, it gets harder and harder to change 'instilled'

neurodevelopmental pathways. If all of those adults did the exact same

therapies that Mark had done, they probably would not have achieved the same

success. Their neurological issues are more 'hard-wired'. That is why you will

see more stories of the really little kids.... aged between 2 and 6... achieve

complete recovery while few of the older kids ever do.

Today, while we are mostly healed.... Mark still has an 'imprint' of dyspraxia

in his being. I believe that this is due to us having overcome these issues

after he was so much older. I believe that the little ones, the toddlers and

the young children.... have an even better prognosis.

As we have rid ourselves of most of the 'physical' issues that define

dyspraxia... what is left are the medical issues and that is a great part of my

current focus. Mark's body is still ailing though he has overcome the

neurological condition to a great extent. When he has a 'medical' relapse and

his body is ailing, some of the neurological symptoms return. Thus, I know that

I am on the right track here. His body lets me know. I clean up his body and

the neurological symptoms go away.

Do I think that dyspraxia is " completely " curable? I don't know. I'll let you

know if we ever achieve it! BUT.... I must believe that it is. Of course, in

order to achieve this, I must be able to completely heal my son's immune system

and that includes auto-immune issues. That's a pretty tough one! However I

must believe in my heart of hearts that we can overcome even this.... for this

is what drives me and maybe..... in the end, I'll settle for recovery rather

then an outright cure!

The one thing that I do know now.... is that Mark, himself will never settle.

He has made a personal decision that comes with maturity and understanding... he

has decided to stand up and fight. And for that, I applaud him. I don't know

where along the therapy stream that he developed this. I think that in some

small way, it has always been part of him and at one point, he just really

internalized it. The one thing that I notice about all apraxic/dyspraxic

children is that they have this 'never-give-up' personal will. It is a

beautiful part of their spirit.

Okay.... rambling now!

Janice

Mother of Mark, 13

said,

Well they didn't ask me. Do you know how hard it is to stem and rock when you

are 8 months pregnant!!! (smile)

From: jennyjudy@... <jennyjudy@...>

Subject: Re: [ ] McCarthy

Date: Monday, November 17, 2008, 7:52 PM

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone,

they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They

may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news &

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[Guest guest]

I don't believe that to be a kind statement at all that a person should find

a different group just because they dont believe in what you do. I want my

son to be cured, I want his autism and apraxia cured, I am doing everything in

my power to help him, I am a mother who loves her son so much, I would sell

everything I have to cure him from these things, but I can't. There is only so

much that supplements and bio medical treatments can do. If you feel that

your child is cured I said that is great, congratulations, I just said I didn't

believe it to be that simple to cure a neurological disorder like autism or

apraxia. My posts were not attacking anyone in any way. I think it is you

that should find another group. Jen

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[Guest guest]

I believe it is curable for a certain percentage of children. The

toughest part is finding out what damage your child has. Every child

is different - a supplement or treatment that helps one child won't

necessarily help another. What did the damage in the first place is

still a point of contention.

I'm one who truly believes that my son was born with a vulnerability

to start with and the vaccines hurt him because of this

vulnerability. I saw him regress in front of my own eyes - the day

after receiving 4 shots - could not sit up, drooling, looked like he

was given a sedative. He was never the same again. Lost his speech

and eye contact.

's son is RECOVERED not cured... her words. Sorry you don't

believe it. I've brought my son probably 80% so far. I won't stop

until it's complete. If you have a child that responds to simple

vitamins it convinces you that you CAN help them and there is

something that can be done.

If you don't believe a child can be recovered you should join some

other - parents are doing this as we speak.

>

> Autism is not curable, it just isn't. It is a part of who these

kids are.

> Just like you cannot cure obsessive compulsive disorder or diabetes

or many

> other conditions the therapies and bio medical interventions can

make things a

> whole lot better. If you believe your child can be cured that is

great, but

> autism is a complex neurological condition and it doesn't just go

away. Many

> autistic adults have been asked if they would like their autism to

be gone, they

> usually answer no. I hope some of my son's autistic tendencies

get better,

> every day we see new improvement in one area or another, but there

really is

> nothing to cure, he has autism and it is part of his being. The

symptoms

> get better usually as they get older and other interventions also

help. They may

> even improve so much no one ever knows that they have it. This is

my belief.

> If others believe that their children have been cured

congratulations. Jen

> **************Get the Moviefone Toolbar. Showtimes, theaters, movie

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> more!

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>

>

[Guest guest]

Janice - to you give your son acetyl-l-carnitine?

[Guest guest]

We will never find a cure unless we actually LOOK for it! With all of the

current research being done, I do believe that we will have one within my

lifetime.... probably within the next 10 years. I'm not willing to write my son

off that quickly! ....and I am willing to 'push' harder for a cure becuase

that's what it takes..... it takes dissatisfied parents to advocate and to push

harder and harder for the scientific community to respond.

What really is the difference between healing and curing? For me, if we heal

all of the different neurological pathways, all of the signs and symptoms, all

of the digestive issues and bring a person forth to their " natural " potential

and all of the body parts functioning as they should.... are they not healed and

in this, are they not cured of the condition?

We tend to say that our children are apraxic, they are autistic, etc..... but we

always say, I had a stroke (not I am a stroke), I have cancer (not I am cancer).

In this choice of words, we consign our children to a state of 'being' which

sticks to them like cement.

I guess that we are so close to the end now.... so close to complete recovery

that I DO believe in it. I believe in it because I personally am witnessing it.

Are we 100% yet? No. But think of it..... I started neurodevelopmental therapy

with a severely globally apraxic/dyspraxic child when he was 11.5. I started

biomed when he was 12.5 and began seriously addressing gut issues/metals when he

was 13. ....and today my son who is almost 14 is pretty darn close to being

100%. So..... wonder what he would have been like today had I started when he

was 3 or even 6?

Jen, I am not directing this post to you personally and I completely 'get' what

your say.... you don't wish to have false hope and send incorrect messages out

to the world. I respect that. These conditions are definately ones that

parents need to wage war against and fight in order to win..... and we need to

ensure that research continues; we must demand it from our society.

Janice

Mother of Mark, 13

[sPAM]Re: [ ] McCarthy

I believe my child can heal, but completely get rid of a neurological

condition for which right now there is no cure, no not right at the moment do

I

believe in a 100% cure. Recovery and cure have two different meanings. Apraxia

and autism are two different things. I am sure my son would love to be able to

say all that is on his mind as well. I do believe my son will achieve

greatness but I am not ignoring he has a medical condition. I look for the

positive

everyday and my son leads a positive life with lots of goals to reach and he

knows we all support him. I will continue to research, fight and look for

anything that may help my son, and I do believe in my heart he will talk. I

was

just trying to convey that telling people that something is curable when it

isn't is misleading and can cause parents who are new to this to try

everything presented to them to help their child that may just be wasting

money and

precious time. I believe in my son more than anyone. Jen

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[Guest guest]

Janice,

I love your posts; they are extremely informative and descriptive. 

I was so frustrated when I was pregnant that I was a really difficult person to

be around. " Getting lost " in my rocking has always been relaxing for me; so the

larger my belly got the more difficult it became.  I can usually miss a day or

two of rocking but if I miss longer than that ........ you don't want to be

around me.   After my daughter was born, there was so much going on that I

didn't even think about rocking (which was weird for me).  But, I clearly

remember at around 3 weeks, I felt the " urge " to stem (rock) so I made sure my

daughter was asleep, grabbed some headphones and just sat in the floor and

rocked and rocked.

So, you can imagine why my ex-husband thought I was a loon!! (smile)  If I ever

get married again, I'm going to make sure he has a lot of Quirks so we can

balance each other out!

I have so many questions concerning the neurological only belief concerning the

cause for or what is Autism. I mean if that is the only cause then we all have

some form of Autism.

I wonder if people would people consider me Cured?

My twin and I went into the military on Buddy Passes and we were both diagnosed

with autistic like behavior and ADHD.  I remember while in Basic Training, we

used to stand in formation for so long. I tried so hard to pay attention but one

day, it happened, I got lost.  So when the drill sergeant yelled " Formation

March " , the Squadron marched off....and left me.  I didn't even realize everyone

had left until the Drill Sergeant yelled in my ear. 

S.

[Guest guest]

,

At NACD, they teach us that when you stim, you are playing with a neurological

pathway that is broken and that you are strengthening that 'brokenness' as

stimming is indeed adictive.... but rocking... as a stim... I don't think that

one is too too bad. Eye stims are the worst since they affect the function of

the eye for normal use.

I suspect rocking must fulfill some sensory issue with the inner ear and the

vestibular? Perhaps this is why it gives you so much comfort? Mark used to

rock for a time as well when he was in special ed. It stopped when we left

special ed and after we did the creeping, crawling, marching, skipping program

with him. Perhaps there is some pathway in his central nervous system that

didn't get fully taken care of that this program addressed? I know that with

regards to birth reflexes; if we don't inhibit certain reflexes to develop

postoral reflexes, the person has underlying 'needs' and deficincies in their

physical make-up ie. the central nervous system that continue on forever. Until

we went back to the 'beginning' and worked Marks CNS.... he just couldn't

develop further in many, many areas. We had to go back to babyhood for him. If

NACD has you doing exercises with your boy, maybe you'll get some side benefits

too!

Those ADD moments.....that is how our regressions look like these days. Mark

had a regression last Friday and was really out of it. It annoyed him because

he felt like he couldn't seem to sustain his attention during basketball

practice. He indicated that small, stupid things kept on distracting him and he

felt really 'lost in space'. His first question to me after practice was....

" did you give me a new pill or something? Red dye? Why couldn't I focus? " I

looked at his ears; they were FLAMING red and he had a rash on his lower cheeks

and his words were stiff. This is definately an alergic reaction to 'something'

either food or chemical.... possibly phenols... don't know what it was but I

know that it was 'something'.

I like quirky guys ! Usually they are smart and witty..... I'm sure that

you will find that man who is 'just' right for you! I did and though we are not

married (we are both still pretty scared of the M word), we have been together

for 6 years now..... he completely accepts my Mark and his boy (a superstar

athelete) has been the best OT I have ever had for my boy! The right guy is out

there and when " you " are ready.... he'll find you, don't worry!

Right now, I would guess that we have dyspraxia 'under control' and stabilized

rather then cured but..... I would like to see a cure down the road! Maybe I'm

dreaming.... but that is what I'm aiming for! The thing is... since every child

is so individual there could not 'rationally' be a single cure to cover all of

our kids..... just treatment plans.

PS. I used to smoke.... guess that was a 'stim' too? perhaps not... but it

certainly was 'addictive' behaviour! Better a rocker then a smoker! Yuck...

can't believe I used to do that.

Take care,

Janice

Mother of Mark, 13

[Guest guest]

,

 

I think your response to Jen's email is harsh.  She is stating the very obvious

that autism is not curable but is more apart of our children and their make up, 

She mentions interventions as being a key to tool to a child's success in

overcoming their autism sx.

 

Asking someone to just leave because you disagree with their position on curable

vs recovery is harsh and unfair.  These are the same challenges we face with the

outside public when our kids want to join public schools, events, sports, etc. 

Just because our kids are not atypical and have their own special

quirks...should they leave those groups too?  It is imperative we teach

tolerance and acceptance to the general public about our children and their

challenges.  

 

Matt 

From: ckrupa3672 <ckrupa3672@...>

Subject: [ ] Re: McCarthy

Date: Tuesday, November 18, 2008, 5:08 PM

I believe it is curable for a certain percentage of children. The

toughest part is finding out what damage your child has. Every child

is different - a supplement or treatment that helps one child won't

necessarily help another. What did the damage in the first place is

still a point of contention.

I'm one who truly believes that my son was born with a vulnerability

to start with and the vaccines hurt him because of this

vulnerability. I saw him regress in front of my own eyes - the day

after receiving 4 shots - could not sit up, drooling, looked like he

was given a sedative. He was never the same again. Lost his speech

and eye contact.

's son is RECOVERED not cured... her words. Sorry you don't

believe it. I've brought my son probably 80% so far. I won't stop

until it's complete. If you have a child that responds to simple

vitamins it convinces you that you CAN help them and there is

something that can be done.

If you don't believe a child can be recovered you should join some

other - parents are doing this as we speak.

>

> Autism is not curable, it just isn't. It is a part of who these

kids are.

> Just like you cannot cure obsessive compulsive disorder or diabetes

or many

> other conditions the therapies and bio medical interventions can

make things a

> whole lot better. If you believe your child can be cured that is

great, but

> autism is a complex neurological condition and it doesn't just go

away. Many

> autistic adults have been asked if they would like their autism to

be gone, they

> usually answer no. I hope some of my son's autistic tendencies

get better,

> every day we see new improvement in one area or another, but there

really is

> nothing to cure, he has autism and it is part of his being. The

symptoms

> get better usually as they get older and other interventions also

help. They may

> even improve so much no one ever knows that they have it. This is

my belief.

> If others believe that their children have been cured

congratulations. Jen

[Guest guest]

Thanks Matt!! Jen

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[Guest guest]

I read your post to my husband. He was a navy guy.

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[Guest guest]

very well said Matt.

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[Guest guest]

Janice,

 

I always love what you post.  You are right!  Our children are not defined by

their diganosis.  I do not like the term autistic.  I say my boys have autism. 

It does not define them.

 

Dana

[Guest guest]

I think that the closer you get to complete recovery.... the more you believe in

it. I would bet that the majority here who are stating that recovery is

possible.... actually have kids that are close to complete recovery or for whom

the parents have discovered a major 'key' to their healing!

..... and I would 'guess' that the people who argue against recovery have not

made as many gains and have kids who are 'tougher nuts'.

We all have different perspectives and we are all at different stages in this

and as well..... all of our kids are unique and different. What works to

recover my kid may help other kids but for a different subset of children.... it

may do nothing.

It is important to practice tolerance. I hope to inspire and to encourage

others with my posts and I so hope that I have not personally alienated a single

mother or dad. This is a tough course that we all follow, full of small leaps

in development which send us to euphoria and then just as full of regressions

which send us down in the dumps. (They still make me depressed, even after all

these years... and I 'know' that regressions are a part of the process/path to

healing).

What we do have, I hope... is the support of each other through all of the good

days, the bad days and the days that you just don't believe that your child will

get better. I fervantly call out to those that feel like this will " never "

end.... Don't give up hope.... Don't give up searching or researching.... We

will all be there for you and will hold your hand through ALL of the days, both

the good and the bad.

Take care everyone,

Janice

Mother of Mark, 13

[Guest guest]

Janice--

you are my hero and I agree with all that you've said

bek

In a message dated 11/18/2008 8:19:07 A.M. Eastern Standard Time,

jscott@... writes:

Oh Gosh....

If you want to call up my house and ask Mark whether he'd like to be free of

dyspraxia tomorrow....If you want to call up my house and ask Mark wheth

It is not a 'fun' condition and I don't believe that it is 'naturally' a

part of him.... and most importantly.It is not a 'fun' condition and I don't

believe that it is 'naturally' a part of him.... and most importantly.<WBR>...

NEITHER DOES HE!!! For he has many, many days where he is completely symptom

free.... and guess what.... those are the days he cherishes and he feels like

himself. Now we only have 'dyspraxic' days a couple of times a month and on

those days.... he gets really down and depressed about it. Because now, he

'sees' the

For my son.... dyspraxia is a MEDICAL condition...For my son.... dyspraxia

is a MEDICAL condition...<WBR>. not a part of who he naturally is. But, like

diabetes, he may always have it to some extent but.... like diabetes and

cancer... we should ALWAYS be seeking a CURE! I don't see low muscle

Believe me everyone... if you don't believe that your child can heal.. he

won't ever find recovery. To heal your child you must picture him everyday as

being recovered and then slowly work towards that picture.... baby step by

baby step, the picture comes to life. You must believe and your child must

believe.....

Today my darling son headed off to school at 7:00 am to participate on the

wrestling team! My daughter looked at his frail skinny body and remarked....

" he just doesn't give up, does he? " I smiled and said, " Yeah, kids with

dyspraxia may have weak bodies but their spirit is darn tough! They just keep

on

trying until they finally get there! " Mark had a blast on the wrestling team

today and easily fit into the lightest group with his skinny little arms and

tall stature. He came home this afternoon to declare that he had just joined

the curling team; he'd be home late on Fridays. I'm still trying to imagine him

having the strength to throw that curlng rock down the lane! (I can barely

do it). I watch him valiently work his push-ups; he's up to 16 now; a month

ago he had to do wall pushups because he lacked the forearm strength to do

regular ones.

He's already started studying for his learners license which he plans to

take several days after his birthday this Christmas. He knows that many people

with dyspraxia cannot drive and he's determined that he will not suffer this

handicap. This is HIM... not me, mom, pushing.

If my son believed in dyspraxia and autism.... he'd never have flown to

California this summer on his own to do Adventure Camp; he wouldn't have

mountain

biked down a MOUNTAIN in Utah with a guide (not with me, I was too chicken);

he wouldn't have white water rafted last summer in BC, mountain climbed and

repelled using ropes or done half of the things he's done even though he has

struggled so with severe global dyspraxia; he'd never have done 3 hours a day

of home therapy after school and right now.... at this present moment, he

wouldn't be wearing a patch on his left eye while working on his hand-writing.

He'd have given up.... and he would have become a depressed and wounded

soul. I am so so thankful that he doesn't believe that he's 'Stuck' with this

nasty disease called dyspraxia...He'd have given up.... and he would have become

a depressed and wounded soul. I am so so thankful that he doesn't believe

thatHe'd have given up.... and he would have become a depressed and wounde

Be careful as to how you want to define dyspraxia in your life; for us, we

wage WAR on it every single day and I won't give up.... not til my dying

breath... looking for a CURE for this awful condition...Be careful as to how

you

want to define dyspraxia in your life; for us, we wage WAR on it every single d

I am not trying to yell here... but I do want to emphasize that 'mindset' is

a key ingredient to healing.... the decision to 'fight' makes us powerful

and strong. It is an 'important' part of healing and overcoming dyspraxia.

So... choose your course carefully, you will find what you envision and

imagine....

Janice

Mother of Mark, 13

[sPAM]Re

Autism is not curable, it just isn't. It is a part of who these kids are.

Just like you cannot cure obsessive compulsive disorder or diabetes or many

other conditions the therapies and bio medical interventions can make things

a

whole lot better. If you believe your child can be cured that is great, but

autism is a complex neurological condition and it doesn't just go away. Many

autistic adults have been asked if they would like their autism to be gone,

they

usually answer no. I hope some of my son's autistic tendencies get better,

every day we see new improvement in one area or another, but there really is

nothing to cure, he has autism and it is part of his being. The symptoms

get better usually as they get older and other interventions also help. They

may

even improve so much no one ever knows that they have it. This is my belief.

If others believe that their children have been cured congratulations. Jen

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