Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 dear a: What you describe as akathisia isn't like any other description I have heard, from either the so-called experts or people who have suffered from it. So, at this point, I'm not convinced that this constant electrical feeling down your spine is in fact akathisia and not something else, like some kind of neuropathy -- just a wild guess here. I am not familiar with any of the drugs you list that they've given you, but I think these idiots are so stupid that you are just wasting your time going to them -- because the withdrawals from this damn drug have nothing whatsoever to do with depression per se, so they are treating the wrong problem, which means that you stand no chance of getting over this any time soon. I think you would be better at dx'ing your problem than they are. At this point don't they just think you're crazy as a loon? Isn't that why they keep trying different antidepressants? And why -- if I asked you this before, I've forgotten what you said -- haven't they tried to put you BACK on this god-awful stuff at a low dose and wean you off slowly,? Is it because they don't believe you in the first place that your problems were caused by going cold turkey????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 dear a: What you describe as akathisia isn't like any other description I have heard, from either the so-called experts or people who have suffered from it. So, at this point, I'm not convinced that this constant electrical feeling down your spine is in fact akathisia and not something else, like some kind of neuropathy -- just a wild guess here. I am not familiar with any of the drugs you list that they've given you, but I think these idiots are so stupid that you are just wasting your time going to them -- because the withdrawals from this damn drug have nothing whatsoever to do with depression per se, so they are treating the wrong problem, which means that you stand no chance of getting over this any time soon. I think you would be better at dx'ing your problem than they are. At this point don't they just think you're crazy as a loon? Isn't that why they keep trying different antidepressants? And why -- if I asked you this before, I've forgotten what you said -- haven't they tried to put you BACK on this god-awful stuff at a low dose and wean you off slowly,? Is it because they don't believe you in the first place that your problems were caused by going cold turkey????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 dear a: What you describe as akathisia isn't like any other description I have heard, from either the so-called experts or people who have suffered from it. So, at this point, I'm not convinced that this constant electrical feeling down your spine is in fact akathisia and not something else, like some kind of neuropathy -- just a wild guess here. I am not familiar with any of the drugs you list that they've given you, but I think these idiots are so stupid that you are just wasting your time going to them -- because the withdrawals from this damn drug have nothing whatsoever to do with depression per se, so they are treating the wrong problem, which means that you stand no chance of getting over this any time soon. I think you would be better at dx'ing your problem than they are. At this point don't they just think you're crazy as a loon? Isn't that why they keep trying different antidepressants? And why -- if I asked you this before, I've forgotten what you said -- haven't they tried to put you BACK on this god-awful stuff at a low dose and wean you off slowly,? Is it because they don't believe you in the first place that your problems were caused by going cold turkey????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 dear a: What you describe as akathisia isn't like any other description I have heard, from either the so-called experts or people who have suffered from it. So, at this point, I'm not convinced that this constant electrical feeling down your spine is in fact akathisia and not something else, like some kind of neuropathy -- just a wild guess here. I am not familiar with any of the drugs you list that they've given you, but I think these idiots are so stupid that you are just wasting your time going to them -- because the withdrawals from this damn drug have nothing whatsoever to do with depression per se, so they are treating the wrong problem, which means that you stand no chance of getting over this any time soon. I think you would be better at dx'ing your problem than they are. At this point don't they just think you're crazy as a loon? Isn't that why they keep trying different antidepressants? And why -- if I asked you this before, I've forgotten what you said -- haven't they tried to put you BACK on this god-awful stuff at a low dose and wean you off slowly,? Is it because they don't believe you in the first place that your problems were caused by going cold turkey????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 In a message dated 7/11/02 3:02:20 PM Mountain Daylight Time, paula.g@... writes: > During akathisia, the inner experience of agitation > includes many unusual physical feelings, such as electricity in the > Otay, this comes from Breggin, so I suppose he knows more than most. I was well aware of the inner agitation, but was not aware that it can accompany the elctrical charge feeling. Sheesh! And what, if anything, has Breggin written about how to abate these symptoms???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 In a message dated 7/11/02 3:02:20 PM Mountain Daylight Time, paula.g@... writes: > During akathisia, the inner experience of agitation > includes many unusual physical feelings, such as electricity in the > Otay, this comes from Breggin, so I suppose he knows more than most. I was well aware of the inner agitation, but was not aware that it can accompany the elctrical charge feeling. Sheesh! And what, if anything, has Breggin written about how to abate these symptoms???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 PESSA, I'll answer this in uppercase so you can see which are my replies, otherwise I'll forget all you're saying: > dear a: What you describe as akathisia isn't like any other description > I have heard, from either the so-called experts or people who have suffered > from it. EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. So, at this point, I'm not convinced that this constant electrical > feeling down your spine is in fact akathisia and not something else, like > some kind of neuropathy -- just a wild guess here. STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST SITTING IN NERVES. I am not familiar with > any of the drugs you list that they've given you, but I think these idiots > are so stupid that you are just wasting your time going to them -- because > the withdrawals from this damn drug have nothing whatsoever to do with > depression per se, so they are treating the wrong problem, which means that > you stand no chance of getting over this any time soon. I KNOW, BUT I CAN'T KEEP THIS UP EITHER SO OUT OF DESPERATION AND HOPE KEEP GOING BACK. I think you would be > better at dx'ing your problem than they are. At this point don't they just > think you're crazy as a loon? Isn't that why they keep trying different > antidepressants? EXPERT DOESN'T THINK SO (THOUGH WAS DUBIOUS MAYBE AT FIRST, WASN'T SURE), BUT MY PSYCH IS WHO I HAVE TO GO WITH, MEDICAL PROTOCOL ETC, AND SHE IS TRYING TO UNDERSTAND, UNDERSTANDS A BIT MORE THAN SHE DID A FEW MONTHS AGO, BUT IT SEEMS MOSTLY DOESN'T ACTUALLY UNDERSTAND MUCH AT ALL. And why -- if I asked you this before, I've forgotten what > you said -- haven't they tried to put you BACK on this god-awful stuff at a > low dose and wean you off slowly,? Is it because they don't believe you in > the first place that your problems were caused by going cold turkey????? I WASN'T BELIEVED TO BEGIN WITH (DECEMBER) BY PSYCH, ANGRY, " INTERNET RUBBISH " ATTITUDE ETC. NOR WOULD THE HOSPITAL IN FEB/MARCH BELIEVE ME. BY THE TIME (MARCH) I GOT TO SEE AN EXPERT AS SECOND OPINION IT WAS ADVISED (SUGGESTED) ANYWAY THAT IT WAS TOO LATE TO GO BACK ONTO ANY SSRI FOR WITHDRAWAL PURPOSES - THERE WAS NOT THE SAME 'RATIONALE' AS GOING BACK ON FAIRLY QUICKLY- IT MIGHT LEAD TO MORE DAMAGE. Lol, back to lower case - as there's no more message to answer. And I feel I'm in some huge mess. OK, am going to copy paste the one bit of electrical akathisia I found recently, its the only article I've seen that includes electrical sensation, and until I read it I wasn't absolutely sure the expert who told me it was akathisia was right, but having found this I assume he was right: An extract from: http://www.breggin.com/paxilproductliability.html " (5) SSRI-induced akathisia, an internal sensation of agitation or discomfort that drives a person to move about, and also to lose impulse control. During akathisia, the inner experience of agitation includes many unusual physical feelings, such as electricity in the head or body. The person suffering from akathisia typically feels compelled to move the feet when sitting, to stand, or to pace. Akathisia is known to increase the risk of suicide and violence. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 PESSA, I'll answer this in uppercase so you can see which are my replies, otherwise I'll forget all you're saying: > dear a: What you describe as akathisia isn't like any other description > I have heard, from either the so-called experts or people who have suffered > from it. EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. So, at this point, I'm not convinced that this constant electrical > feeling down your spine is in fact akathisia and not something else, like > some kind of neuropathy -- just a wild guess here. STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST SITTING IN NERVES. I am not familiar with > any of the drugs you list that they've given you, but I think these idiots > are so stupid that you are just wasting your time going to them -- because > the withdrawals from this damn drug have nothing whatsoever to do with > depression per se, so they are treating the wrong problem, which means that > you stand no chance of getting over this any time soon. I KNOW, BUT I CAN'T KEEP THIS UP EITHER SO OUT OF DESPERATION AND HOPE KEEP GOING BACK. I think you would be > better at dx'ing your problem than they are. At this point don't they just > think you're crazy as a loon? Isn't that why they keep trying different > antidepressants? EXPERT DOESN'T THINK SO (THOUGH WAS DUBIOUS MAYBE AT FIRST, WASN'T SURE), BUT MY PSYCH IS WHO I HAVE TO GO WITH, MEDICAL PROTOCOL ETC, AND SHE IS TRYING TO UNDERSTAND, UNDERSTANDS A BIT MORE THAN SHE DID A FEW MONTHS AGO, BUT IT SEEMS MOSTLY DOESN'T ACTUALLY UNDERSTAND MUCH AT ALL. And why -- if I asked you this before, I've forgotten what > you said -- haven't they tried to put you BACK on this god-awful stuff at a > low dose and wean you off slowly,? Is it because they don't believe you in > the first place that your problems were caused by going cold turkey????? I WASN'T BELIEVED TO BEGIN WITH (DECEMBER) BY PSYCH, ANGRY, " INTERNET RUBBISH " ATTITUDE ETC. NOR WOULD THE HOSPITAL IN FEB/MARCH BELIEVE ME. BY THE TIME (MARCH) I GOT TO SEE AN EXPERT AS SECOND OPINION IT WAS ADVISED (SUGGESTED) ANYWAY THAT IT WAS TOO LATE TO GO BACK ONTO ANY SSRI FOR WITHDRAWAL PURPOSES - THERE WAS NOT THE SAME 'RATIONALE' AS GOING BACK ON FAIRLY QUICKLY- IT MIGHT LEAD TO MORE DAMAGE. Lol, back to lower case - as there's no more message to answer. And I feel I'm in some huge mess. OK, am going to copy paste the one bit of electrical akathisia I found recently, its the only article I've seen that includes electrical sensation, and until I read it I wasn't absolutely sure the expert who told me it was akathisia was right, but having found this I assume he was right: An extract from: http://www.breggin.com/paxilproductliability.html " (5) SSRI-induced akathisia, an internal sensation of agitation or discomfort that drives a person to move about, and also to lose impulse control. During akathisia, the inner experience of agitation includes many unusual physical feelings, such as electricity in the head or body. The person suffering from akathisia typically feels compelled to move the feet when sitting, to stand, or to pace. Akathisia is known to increase the risk of suicide and violence. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 PESSA, I'll answer this in uppercase so you can see which are my replies, otherwise I'll forget all you're saying: > dear a: What you describe as akathisia isn't like any other description > I have heard, from either the so-called experts or people who have suffered > from it. EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. So, at this point, I'm not convinced that this constant electrical > feeling down your spine is in fact akathisia and not something else, like > some kind of neuropathy -- just a wild guess here. STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST SITTING IN NERVES. I am not familiar with > any of the drugs you list that they've given you, but I think these idiots > are so stupid that you are just wasting your time going to them -- because > the withdrawals from this damn drug have nothing whatsoever to do with > depression per se, so they are treating the wrong problem, which means that > you stand no chance of getting over this any time soon. I KNOW, BUT I CAN'T KEEP THIS UP EITHER SO OUT OF DESPERATION AND HOPE KEEP GOING BACK. I think you would be > better at dx'ing your problem than they are. At this point don't they just > think you're crazy as a loon? Isn't that why they keep trying different > antidepressants? EXPERT DOESN'T THINK SO (THOUGH WAS DUBIOUS MAYBE AT FIRST, WASN'T SURE), BUT MY PSYCH IS WHO I HAVE TO GO WITH, MEDICAL PROTOCOL ETC, AND SHE IS TRYING TO UNDERSTAND, UNDERSTANDS A BIT MORE THAN SHE DID A FEW MONTHS AGO, BUT IT SEEMS MOSTLY DOESN'T ACTUALLY UNDERSTAND MUCH AT ALL. And why -- if I asked you this before, I've forgotten what > you said -- haven't they tried to put you BACK on this god-awful stuff at a > low dose and wean you off slowly,? Is it because they don't believe you in > the first place that your problems were caused by going cold turkey????? I WASN'T BELIEVED TO BEGIN WITH (DECEMBER) BY PSYCH, ANGRY, " INTERNET RUBBISH " ATTITUDE ETC. NOR WOULD THE HOSPITAL IN FEB/MARCH BELIEVE ME. BY THE TIME (MARCH) I GOT TO SEE AN EXPERT AS SECOND OPINION IT WAS ADVISED (SUGGESTED) ANYWAY THAT IT WAS TOO LATE TO GO BACK ONTO ANY SSRI FOR WITHDRAWAL PURPOSES - THERE WAS NOT THE SAME 'RATIONALE' AS GOING BACK ON FAIRLY QUICKLY- IT MIGHT LEAD TO MORE DAMAGE. Lol, back to lower case - as there's no more message to answer. And I feel I'm in some huge mess. OK, am going to copy paste the one bit of electrical akathisia I found recently, its the only article I've seen that includes electrical sensation, and until I read it I wasn't absolutely sure the expert who told me it was akathisia was right, but having found this I assume he was right: An extract from: http://www.breggin.com/paxilproductliability.html " (5) SSRI-induced akathisia, an internal sensation of agitation or discomfort that drives a person to move about, and also to lose impulse control. During akathisia, the inner experience of agitation includes many unusual physical feelings, such as electricity in the head or body. The person suffering from akathisia typically feels compelled to move the feet when sitting, to stand, or to pace. Akathisia is known to increase the risk of suicide and violence. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 PESSA, I'll answer this in uppercase so you can see which are my replies, otherwise I'll forget all you're saying: > dear a: What you describe as akathisia isn't like any other description > I have heard, from either the so-called experts or people who have suffered > from it. EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. So, at this point, I'm not convinced that this constant electrical > feeling down your spine is in fact akathisia and not something else, like > some kind of neuropathy -- just a wild guess here. STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST SITTING IN NERVES. I am not familiar with > any of the drugs you list that they've given you, but I think these idiots > are so stupid that you are just wasting your time going to them -- because > the withdrawals from this damn drug have nothing whatsoever to do with > depression per se, so they are treating the wrong problem, which means that > you stand no chance of getting over this any time soon. I KNOW, BUT I CAN'T KEEP THIS UP EITHER SO OUT OF DESPERATION AND HOPE KEEP GOING BACK. I think you would be > better at dx'ing your problem than they are. At this point don't they just > think you're crazy as a loon? Isn't that why they keep trying different > antidepressants? EXPERT DOESN'T THINK SO (THOUGH WAS DUBIOUS MAYBE AT FIRST, WASN'T SURE), BUT MY PSYCH IS WHO I HAVE TO GO WITH, MEDICAL PROTOCOL ETC, AND SHE IS TRYING TO UNDERSTAND, UNDERSTANDS A BIT MORE THAN SHE DID A FEW MONTHS AGO, BUT IT SEEMS MOSTLY DOESN'T ACTUALLY UNDERSTAND MUCH AT ALL. And why -- if I asked you this before, I've forgotten what > you said -- haven't they tried to put you BACK on this god-awful stuff at a > low dose and wean you off slowly,? Is it because they don't believe you in > the first place that your problems were caused by going cold turkey????? I WASN'T BELIEVED TO BEGIN WITH (DECEMBER) BY PSYCH, ANGRY, " INTERNET RUBBISH " ATTITUDE ETC. NOR WOULD THE HOSPITAL IN FEB/MARCH BELIEVE ME. BY THE TIME (MARCH) I GOT TO SEE AN EXPERT AS SECOND OPINION IT WAS ADVISED (SUGGESTED) ANYWAY THAT IT WAS TOO LATE TO GO BACK ONTO ANY SSRI FOR WITHDRAWAL PURPOSES - THERE WAS NOT THE SAME 'RATIONALE' AS GOING BACK ON FAIRLY QUICKLY- IT MIGHT LEAD TO MORE DAMAGE. Lol, back to lower case - as there's no more message to answer. And I feel I'm in some huge mess. OK, am going to copy paste the one bit of electrical akathisia I found recently, its the only article I've seen that includes electrical sensation, and until I read it I wasn't absolutely sure the expert who told me it was akathisia was right, but having found this I assume he was right: An extract from: http://www.breggin.com/paxilproductliability.html " (5) SSRI-induced akathisia, an internal sensation of agitation or discomfort that drives a person to move about, and also to lose impulse control. During akathisia, the inner experience of agitation includes many unusual physical feelings, such as electricity in the head or body. The person suffering from akathisia typically feels compelled to move the feet when sitting, to stand, or to pace. Akathisia is known to increase the risk of suicide and violence. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 In a message dated 7/11/02 5:16:31 PM Mountain Daylight Time, paula.g@... writes: > Am worried about , Pessa. Shouldn't interfere, but am scared > Litigation is not for the weak or faint-hearted. I am going through it right now with my husband who sustained a heady injury in an auto accident. The lawyers are now saying that I orchestrated the whole thing (even though he was flown in a flight-for-life helicopter to a trauma center) and that I convinced all 17 doctors to say that he is brain injured, even though Social Security declared him disabled. What they put me through was tantamount to some kind of Nazi interrogation. They are now investigating my past and have had both of us under surveillance for months. With 's somewhat checkered past and present, she will be grist for the mill, but maybe she can get through it and come out the other side a winner. But a lot of people don't!!!! And GSK knows this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 In a message dated 7/11/02 5:16:31 PM Mountain Daylight Time, paula.g@... writes: > Am worried about , Pessa. Shouldn't interfere, but am scared > Litigation is not for the weak or faint-hearted. I am going through it right now with my husband who sustained a heady injury in an auto accident. The lawyers are now saying that I orchestrated the whole thing (even though he was flown in a flight-for-life helicopter to a trauma center) and that I convinced all 17 doctors to say that he is brain injured, even though Social Security declared him disabled. What they put me through was tantamount to some kind of Nazi interrogation. They are now investigating my past and have had both of us under surveillance for months. With 's somewhat checkered past and present, she will be grist for the mill, but maybe she can get through it and come out the other side a winner. But a lot of people don't!!!! And GSK knows this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 >PESSA, I'll answer this in uppercase so you can see which are my >replies, otherwise I'll forget all you're saying: > > >> dear a: What you describe as akathisia isn't like any other >description >> I have heard, from either the so-called experts or people who have >suffered >> from it. >EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE >DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET >IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. > >So, at this point, I'm not convinced that this constant electrical >> feeling down your spine is in fact akathisia and not something >else, like >> some kind of neuropathy -- just a wild guess here. >STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW >WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME >THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR >INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY >SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST >SITTING IN NERVES. > A sensation of electric shock traveling down the spine when the head and neck are moved is one of the classic signs of multiple sclerosis -- try looking up L'Hermittes Sign in a medical dictionary. --C.S. -- Cheryl Soehl, MRC Certified Rehabilitation Counselor http://dmoz.org/Society/Issues/Children,_Youth_and_Family/Child_Abuse/ http://dmoz.org/Society/People/Women/Issues/Domestic_Violence/ http://dmoz.org/Society/Issues/Violence_and_Abuse/Family_Violence/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 >PESSA, I'll answer this in uppercase so you can see which are my >replies, otherwise I'll forget all you're saying: > > >> dear a: What you describe as akathisia isn't like any other >description >> I have heard, from either the so-called experts or people who have >suffered >> from it. >EXPERT IN UK EXPLAINED IT AS AKATHISIA, AND HAVE SEEN ONE ARTICLE >DESCRIBING IT RECENTLY (ON MY INFO BOARD UNDER AKATHISIA AND WILL GET >IT AND POST IT AFTERWARDS) AND SO THATS ALL I CAN NAME IT LOL. > >So, at this point, I'm not convinced that this constant electrical >> feeling down your spine is in fact akathisia and not something >else, like >> some kind of neuropathy -- just a wild guess here. >STARTED ON THE AFTERNOON THAT THE ZAPS SUBSIDED IN MORNING - A FEW >WEEKS INTO COLD TURKEY - I DON'T KNOW EITHER, BUT IT SEEMED TO ME >THAT THE ZAPS WERE JUST MORE ELECTRICITY ABLE TO DISCHARGE AT REGULAR >INTERVALS AND THIS 'AKATHISIA' THEN TOOK OVER AS LESSER ELECTRICITY >SO UNABLE TO DISCHARGE IN ZAP FORM, BUT SO STAY FOR HOURS JUST >SITTING IN NERVES. > A sensation of electric shock traveling down the spine when the head and neck are moved is one of the classic signs of multiple sclerosis -- try looking up L'Hermittes Sign in a medical dictionary. --C.S. -- Cheryl Soehl, MRC Certified Rehabilitation Counselor http://dmoz.org/Society/Issues/Children,_Youth_and_Family/Child_Abuse/ http://dmoz.org/Society/People/Women/Issues/Domestic_Violence/ http://dmoz.org/Society/Issues/Violence_and_Abuse/Family_Violence/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 " Otay, this comes from Breggin, so I suppose he knows more than most. I was > well aware of the inner agitation, but was not aware that it can accompany > the elctrical charge feeling. Sheesh! And what, if anything, has Breggin > written about how to abate these symptoms???? " I can't find anything specific but then 'my' expert doesn't really know either, and I've found (have put them on my info site) lots of akathisia articles, most of which say there isn't much other than propronalol (which apparently comes 'with its own problems') or diazepam to ease Akathisia and most of which concur that Akathisia is a problem which is best avoided in the first place LOL. Maybe Breggin has something in his books, maybe I just haven't searched enough, I don't concentrate that long at any one time anyway. And maybe the electrical feeling isn't akathisia too as its only him and 'my' expert that have said it is? They could be wrong, they might just be putting it into that classification because they don't know what else it might be, but whatever it is it I need a 'name' for it LOL, so akathisia is what I call it being as they do (is too long to explain electrical sensation akin to spinal column being hooked into power socket LOL). Am worried about , Pessa. Shouldn't interfere, but am scared the issue might destroy her cos she's so vulnerable. I know it would destroy me, and she's in a worse position. And I hope she doesn't go ahead with it, don't think she's anywhere near strong enough after what she's been through. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 " Otay, this comes from Breggin, so I suppose he knows more than most. I was > well aware of the inner agitation, but was not aware that it can accompany > the elctrical charge feeling. Sheesh! And what, if anything, has Breggin > written about how to abate these symptoms???? " I can't find anything specific but then 'my' expert doesn't really know either, and I've found (have put them on my info site) lots of akathisia articles, most of which say there isn't much other than propronalol (which apparently comes 'with its own problems') or diazepam to ease Akathisia and most of which concur that Akathisia is a problem which is best avoided in the first place LOL. Maybe Breggin has something in his books, maybe I just haven't searched enough, I don't concentrate that long at any one time anyway. And maybe the electrical feeling isn't akathisia too as its only him and 'my' expert that have said it is? They could be wrong, they might just be putting it into that classification because they don't know what else it might be, but whatever it is it I need a 'name' for it LOL, so akathisia is what I call it being as they do (is too long to explain electrical sensation akin to spinal column being hooked into power socket LOL). Am worried about , Pessa. Shouldn't interfere, but am scared the issue might destroy her cos she's so vulnerable. I know it would destroy me, and she's in a worse position. And I hope she doesn't go ahead with it, don't think she's anywhere near strong enough after what she's been through. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 4:46:28 AM Mountain Daylight Time, paula.g@... writes: > There should > be some sort of law against that kind of surveillance at least. Isn't > there some sort of harrassment law or similar you could invoke? This is all perfectly legal. Once you engage in litigation it is open season. They can spy on you all they want -- we didn't even know, but now that I KNOW they are watching, I walk out on my deck naked in the morning and flip the bushes the middle finger just in case they're watching!!! They even called hubby's ex-wife, who, luckily, told the investigators to F*** off. That's why I said lawsuits are NOT for the faint-hearted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 4:46:28 AM Mountain Daylight Time, paula.g@... writes: > There should > be some sort of law against that kind of surveillance at least. Isn't > there some sort of harrassment law or similar you could invoke? This is all perfectly legal. Once you engage in litigation it is open season. They can spy on you all they want -- we didn't even know, but now that I KNOW they are watching, I walk out on my deck naked in the morning and flip the bushes the middle finger just in case they're watching!!! They even called hubby's ex-wife, who, luckily, told the investigators to F*** off. That's why I said lawsuits are NOT for the faint-hearted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 I am going through it right > now with my husband who sustained a heady injury in an auto accident. The > lawyers are now saying that I orchestrated the whole thing (even though he > was flown in a flight-for-life helicopter to a trauma center) and that I > convinced all 17 doctors to say that he is brain injured, even though Social > Security declared him disabled. What they put me through was tantamount to > some kind of Nazi interrogation. They are now investigating my past and have > had both of us under surveillance for months. With 's somewhat > checkered past and present, she will be grist for the mill, but maybe she can > get through it and come out the other side a winner. But a lot of people > don't!!!! And GSK knows this. PESSA, thats awful. HUGS to you and to your husband. There should be some sort of law against that kind of surveillance at least. Isn't there some sort of harrassment law or similar you could invoke? I hope you get through it OK and that does too. Peas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 I am going through it right > now with my husband who sustained a heady injury in an auto accident. The > lawyers are now saying that I orchestrated the whole thing (even though he > was flown in a flight-for-life helicopter to a trauma center) and that I > convinced all 17 doctors to say that he is brain injured, even though Social > Security declared him disabled. What they put me through was tantamount to > some kind of Nazi interrogation. They are now investigating my past and have > had both of us under surveillance for months. With 's somewhat > checkered past and present, she will be grist for the mill, but maybe she can > get through it and come out the other side a winner. But a lot of people > don't!!!! And GSK knows this. PESSA, thats awful. HUGS to you and to your husband. There should be some sort of law against that kind of surveillance at least. Isn't there some sort of harrassment law or similar you could invoke? I hope you get through it OK and that does too. Peas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Dear a, Hi, this is Suzy. I don't roam around the sites too much because I don't seem to have the time. But, after reading your story, I must say that I know that you are getting the zaps and akathisia from some or all of the meds you have been taking. To help convince those who are close to you and those who are supposed to be helping you, ask your library to get you the PDR, Physicians Desk Reference, and the Companion PDR for 2002 (2001 if 2002 is not yet available) and look up all of your meds. The descriptions and warnings are definite. Zerox them and you will have your proof. I know Dawn, Glitter and the others will have good advice and support. Love, Suzy >From: " peasmoon " <paula.g@...> >Reply-SSRI medications >SSRI medications >Subject: I give up. >Date: Thu, 11 Jul 2002 13:30:54 -0000 > >Firstly, I find the style a bit difficult to navigate, but can >see I'm in the right place, cos of Dawn and Glitter being here. Used >to the one-forum style but I spose I'll get used to this one too > >Anyway, in case you don't recognise my ID, its a/Peagee/Peas and >I'm just about fed up with everything and have got in more of a >muddle than know how to deal wit > >Cold turkey is now 7 months and the only psych drug taken in this was >zopiclone (which was the only way I could sleep and have now been on >it for about a year). But the akathisia was causing so much >unbearable stuff and suicidal bits occasionally in it that a few >weeks ago I got given some diazepam. cos was still trying to work >out how to deal with this, mixed up generally and desperate as well. >Took the diazepam episodically and only when akathisia electrocution >got to the point of being dangerously suicidal. Managed to be too >late in waiting about 3/4 weeks ago cos I took a diazepam late >evening and waited, still felt electrified. So took a zopiclone, >waited, still felt electr. Lost head then and took a couple of >weeks' zopiclone and the rest (not many left) diazepam and ended up >in poisons unit again. A couple of days later psych gave me a week's >supply of dothiepin and more zopiclone. Didn't take the dothepin cos >didn't want to get back into the AD scenario, just wanted help with >the akathisia. (AKATHISIA - electical feel down spinal chord for >hours at a time in my case - started on the same day that the zaps >subsided and I preferred the zaps that at least had split-second >breaks between them). > >In this confusion of what to take and how, I decided (LOL) that >zopiclone wasn't exactly a good idea and it was highly addictive and >I was hooked and damned if I was going to stay that way. So.... a >couple of weeks ago I decided to take the diazepam at night and keep >the last couple of zopiclone as a safety net in case I still couldn't >sleep. Noticed in the following week that using diazepam at night I >didn't get any akathisia during the day, and that I did get some >sleep. BUT......... > >THEN I noticed (for the first time in the last 7 month) days WITHOUT >akathisia which normally alternated with days of ill-feeling fatigue, >instead, fatigue days alternated with clearly DEPRESSED days. This >was consistent for a week or so until someone upset me badly last >Wednesday (last week) and despite NOT having akathisia I took the >week's dothiepin (which Dinks was hiding for me, but I found them) >and the couple of zopiclone and ended up in the poisons unit again >(because dothiepin is toxic). Ie, on diazepam the akathisia went and >I got depressed, but likewise maybe it was withdrawal from >zopiclone??? Its all a bit confusing. > >Spent 2 days in hospital and came home on Saturday. Had been given 4 >days of zopiclone and on Saturday night took a zop and slept like a >log for a few hours, but got akathisia on Sunday. ie, zopiclone >doesn't help the akathisia LOL. > >On Monday my counsellor visited (now apparently my social worker not >my counsellor) who is very understanding and said she had had a group >meeting with a PSYCHOLOGIST (not my psychiatrist) a few days earlier >and that he had suggested in a common-sense sort of way - " why don't >they treat the akathisia and the neuromuscular symptoms as a separate >issue as these are probably the most distinct of the withdrawal >symptoms at present " and suggested to my social worker procyclidine. >My social worker is not allowed to prescribe (nor is the >psychologist - I'm not his patient) meds so she had a chat to my >Psych and relayed what the psychologist had suggested. My psych >apparently was not convinced it would help the akathisia but it would >be worth trying for a couple of days at least to see if it helped or >hindered. > >Tuesday I had an appointment with my Psych. She suggested treating >my " depression " and prescribed lofepramine. I didn't want to get the >others into trouble by pushing the akathisia-v-procylidine issue so >kept quiet and took the prescription. But I did ask whether it would >help the akathisia. SHE SAID... > > " IF the akathisia is caused by serotonin, then lifting your mood will >help you cope with it better. IF its caused by depression then it >will go altogether on an antidepressant " . I have NEVER EVER had any >electrical feelings until the zaps and the akathisia started on the >afternoon of the same day that in the morning the zaps subsided. And >I thought she was beginning to understand that akathisia was part of >the withdrawal, but obviously she isn't. I just didn't want any more >aggrevation so just kept silent. I explained often enough before. IN >CASE it didn't work at my request she also gave me some diazepam. > >SO.. Tuesday evening was getting wired again, just a bit. On and off >in that " oh no, is it coming or is it gonna leave " way. Didn't take >any diazepam - stuck it out and took a lofepramine (only 70 mg but am >supposed to double up on that next week and then she's going to put >it up again in 2 weeks). Within about half an hour I noticed that >the wired up was getting slightly worse. ie, the lofepramine was not >having a calming effect on the akathisia. So took a diazepam. >Yesterday I could hardly get out of bed in the morning, felt dizzy >and sick and heart racing and staggering around for the first few >hours in the morning. > >Dinks said " stop taking them " . But if I don't at least try then >psych might get offhand and probably not even give me zopiclone or >diazepam and I'll be in deep trouble if I can't sleep one way or >another. So last night I took no diazepam - took the lofepramine and >started feeling a bit stressed. A while later took the zopiclone >which added at first to the stressed feeling before it eventually >worked. Zopiclone doesn't normally make me feel stressed. Today I >have a bad headache (worse than usual in withdrawal) and feel a bit >heart-racing and very slightly giddy. > >I have no idea what to do. She told me that lofepramine has no side >effects other than dry mouth + constipation, and no significant >withdrawal. I stayed at Dink's yesterday (felt too ill to get up and >dressed), but came home today and looked it up. Don't understand >quite what it is. Seems it is part ssri, part other inhibitors >somehow, but there's too much confusing stuff out there. As paxil >did so much damage in the first place, if this is part ssri >(something to do with neurotransmittor uptake inhibiting???) this is >surely just going to make it worse? > >Most of all I give up because after 7 months I thought she was taking >this withdrawal a bit more seriously. Now it seems its still DOWN TO >DEPRESSION. Or at least the suspicion is there. " IF the akathisia >is caused by... " > >So, I suppose I need to keep taking this stuff till next appointment >and then explain I don't like it? And maybe bring up the procylidine >subject? And I have no idea why I've written all this, have to tell >someone and I can't tell her. And feel such a mess now. Which is >why I give up. Cos I don't know what else to do. > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 2:22:25 PM Mountain Daylight Time, paula.g@... writes: > I not only had the symptoms I mentioned before but > I know this isn't funny, but it made me laugh anyway. It's almost biblical!!!!! Poor you, (as Princess Margaret said to Lillibet) I can't believe the level of incompetency of those doctors!!! =================== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 2:22:25 PM Mountain Daylight Time, paula.g@... writes: > I not only had the symptoms I mentioned before but > I know this isn't funny, but it made me laugh anyway. It's almost biblical!!!!! Poor you, (as Princess Margaret said to Lillibet) I can't believe the level of incompetency of those doctors!!! =================== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 2:22:25 PM Mountain Daylight Time, paula.g@... writes: > After the second > tablet, yesterday I not only had the symptoms I mentioned before but > a nice crop of boils > I know this isn't funny, but it made me laugh anyway. It's almost biblical!!!!! Poor you, (as Princess Margaret said to Lillibet) I can't believe the level of incompetency of those doctors!!! !Sorry about posting this twice but the part about the boils was cut off, so what I said about it being biblical didn't make any sense! (LOL) =================== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 7/12/02 2:22:25 PM Mountain Daylight Time, paula.g@... writes: > After the second > tablet, yesterday I not only had the symptoms I mentioned before but > a nice crop of boils > I know this isn't funny, but it made me laugh anyway. It's almost biblical!!!!! Poor you, (as Princess Margaret said to Lillibet) I can't believe the level of incompetency of those doctors!!! !Sorry about posting this twice but the part about the boils was cut off, so what I said about it being biblical didn't make any sense! (LOL) =================== Quote Link to comment Share on other sites More sharing options...
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