- wish I'd known sooner!

[Guest guest]

I agree completely with your statement that if you've been on a restricted diet

for many years without healing then what was the point! Our son is 16yo and

has been completely CF for 8 years. Made an attempt at GF for awhile but

just couldn't pull it off! He also can't have chocolate, pancake syrup (can

tolerate 100% pure maple syrup), fruits and numerous other things. This was

getting ridiculous!! I just found your book before Christmas and am honestly

so excited at the prospect of getting him healed and back on a regular diet.

The diet was definately necessary for a lot of years because there was no

other choice and the behaviours these foods caused just couldn't continue.

It wasn't until I read the book that I realized he had a problem with phenols -

my mind just didn't make the connection that chocolate and fruit could be in

the same " food group " !

What people with young kids have to realize is that having them on a very

restricted diet may work for them now but these kids will grow up. The diet

has not healed my son. As long as he remains on this diet and all the supps

that go along with it he will never be able to leave home!! He couldn't shop

for

himself, he'd buy the foods he wanted not the foods allowed. He can't read

and understand ingredients labels - I have enough problems with that! He

will not be able to live without support (as things stand now). If we can't

explain the importance of the diet to doctors, other pros and even extended

family, how will we convice a underpaid residential support worker! The

consequences of a slip up on the diet are great. Most of our supps can't be

bought at the local drug store but have to be ordered from out of country so

you need to be on top of that and not run out. So - unless I'm prepared to

make my son totally dependent on me to maintain his diets and supps and

supervise everything that goes in his mouth for the rest of his life - WE NEED

OFF THESE DIETS. I explained this to another mom and she tried to

convince me to go to SCD! I don't want to trade up to a newer diet, I want off.

After reading your book I really feel that there is hope. I know there are no

guarantees but at least we have an option now! I just wish I'd found your book

sooner. Thanks so much!!

ps - my Houstons products arrived this week - now I can start - hooray!!

Laurie