Re: introduction - long

[Guest guest]

Hi

WOW, you don;t waste any time LOL Congratulations on what you have acheived

in such a short time!

We had the same issues with yeast and bacteria. We use Biocidin from

www.biobotanicalresearch.com Its a herbal that is good against yeast, bacteria

and

parasites. Tastes nasty but you don't need much and Sam takes it pineapple

juice.

Others have had success with Olive Leaf Extract and Oreganol oil. MOst of

these natural things tend to be high phenol though we don;t have a problem as we

use No Fenol enzyme in addition to the Pep and Zyme.

Enzymes (we use HNI and Candex) have helped considerably with gut bugs, we

give them with Biocidin. Drastically reducing sugar brought the biggest die off

reaction, cutting down on complex carbs helps too by starving out the critters

in the bowel. The difference in stools you are seeing is good news, its a

slow process and not something you deal with and forget about unfortunately,

until those metals are out (my son has high Lead as well as meeting the Counting

Rules for Mercury) you will need to do maintenance stuff I suspect.

I beleive that a year on copiosu doses of HNI enzymes prior to starting

chelation has smoothed the way for us, we still get flares but they are dealt

with

swiftly and onwards we go..............godd luck!

Mandi in Uk

Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity

[Guest guest]

Start probiotics - they are the good bacteria that the intestinal

tract needs to get rid of the bad bacteria and yeast. We use Fluro Jen

once a day added to his drink, but I'm sure there are other brands out

there. Your son sounds alot like ours (he's 2 1/2). He is on a total

of 24 different vit/supp. He has been non-verbal since he was born,

only babbling, and now has over 10 words in just 2 months of supps.

Keep up the good work,

and Jay

> hello everyone. i am new here and wanted to introduce myself. my

> name is , 24 yrs old and live in Dallas, Texas. my son Jordan

> will be 3 1/2 on july 23rd. he is my only child and was developing

> normal until he was 16 mos old. he got very sick and had an episode

> of seizures that only lasted 24 hrs 3 days after his mmr and prevnar

> vaccinations. he has never had another one and subsequent mri's and

> eeg's are normal. after that we started to notice a gradual decline

> in his development. most noticeable was him going from 10 words at

> 16 mos old to none at 2 other than babble. we had him evaluated

> through eci and started therapies. we then got him evaluated by a

> psycologist and a developmental pediatrician. he was diagnosed on

> dec. 16th 2002 with mild autism. after he turned three in january he

> started preschool special ed through the school district. i

> immediatly started research into ways to help him. the first thing i

> came across was the gfcf diet. i ordered all the books and started

> him on the diet. we also sought out a dan doctor and had tests run.

> we did a hair test for heavy metals, and comprehendsive stool

> analysis, a urine test to check neurotransmitters, and blood tests

> for chemistry and allergies. his hair test showed that he does have

> heavy metal toxicity with highest levels in lead. his stool test

> showed yeast overgrowth and klebsiella and pseudomonas aeruginosa

> bacterias in his stool. he definately had a leaky gut. his ige

> allergy test showed he was only allergic to cat dander and from a

> scale of 1 to 6, his his level of antibodies detected were low (only

> at a 1.) his igg, however, showed he had high antibody leves

> detected for gluten, cows milk, and soybean and low levels for

> wheat.his test for neurotransmitters showed that some were way off.

> oddly enough his seratonin level seem to be the most normal. we

> immediatly also started an elimination diet and began supplements to

> heal the leaky gut. we did aloe vera juice and l-glutamine for leaky

> gut, similase jr enzymes for digestion,multiviamins and uva ursi

> rotated with oil of oregano for bacteria and yeast. we started to see

> great results with his health and stools. not so much with behavior

> though. we knew before we could do chelation we needed to heal his

> gut for about 6 months and so we started all this in april of this

> year. we also started the phase three trail study for secretin.

> results from one of the labs showed his liver enzymes were elevated

> and if we didnt get them down he would be excluded from the study.

> we knew it had to be a supplement because they were normal in his

> test before we started anything. we soon found out it was the

> treatment for the yeast and bacteria. so we took him off that and

> after a 3 week break we started kirkma's yeast aid. but we have yet

> to find something else for the bacteria. i really dont want to use

> an antibiotic of any kind. because of our past history with

> prescription meds i am very scared to give him anything. i started

> looking for better supplements on my own for jordan and decided to

> order a trial size of kirkmans dpp-iv enzyme complete for jordan. we

> just started using the trial size of supplements when shopping for

> gfcf foods at a health food store i came across this book caled

> Enzymes for Autism and other Neurological Conditions by

> DeFelice. i brought it home and read the whole thing in a few days.

> i am so excited by what i have heard. i never knew there was hope to

> get him off the diet and help in so many other ways. i have already

> ordered some peptizyde and the nzyme prime to start jordan on. until

> then we have used kirkmans enzymes with dpp-iv. i havent tried

> giving him gluten with it yet but i have tried small amounts of

> casein and soy and have seen no bad effects. since doing the enzymes

> with all foods and with some periodically without food(just in a

> drink) he has started babbling alot more. we have only been doing

> this for 2 weeks. he has also gone from 5 to 6 bowel movements a day

> (all mushy) to about 2 a day. they are still somewhat inconsistent,

> one will be solid and formed and 1 will be mushy. the smell isnt

> like it used to be but it is there still. does anyone have some

> advice for combatting the bacteria? any other advice for the new one

> would be greatly appreciated.

> kelly

[Guest guest]

so we took him off that and

> after a 3 week break we started kirkma's yeast aid. but we have yet

> to find something else for the bacteria.

I use Culturelle probiotic for bacteria, works very well for my

family.

Dana

[Guest guest]

My son who is 29 months old is very similar to yours. He is getting

evaluated on the 24th this month for speech and by a psychologist. My

son didn't say anything until he was 27 months old.

Now he started to mimic us, but never says for example that he is

hungry or wants to drink. Only he says " come " if he wants us to help

him or wants to show us something. He isn't autistic, but delayed in

speech and some in comprehension. Autistic children mostly have

behavior problems, some can speak well. They mostly spin things/or

themselves, line up toys, objects and they get easily frustrated if

something is out of line.

I wouldn't worry too much, you are doing the right thing, you are

getting the help for her needed. Give her more time to develop. But

do the multivitamin/supplements for sure.

Kris

>

> Hello,

>

> I just joined this group, found it through the Cherab website

> which I found through the A4everFamily.org website. I was

researching

> speech delay in children and here I am.

>

> My daughter is 31 months (2.5 yrs) and was adopted from China at

> 14 months. She spent her first 14 months in an orphanage. She was

> very healthy when I adopted her and had one word - Mama.

>

> I do not think my daughter has Apraxia, but perhaps falls in

> the " Oral Motor " problems as she does overstuff her mouth when

> eating, doesn't so much now, but did drool a lot when not teething,

> she does bite straws when drinking (I thought all kids did that!),

> she can't blow bubbles and she is a mouth breather (keeps mouth

open

> and breaths through her mouth.)

>

> She knows all her alphabet and will say the letters but does not

> always pronounce them correctly. She knows her animals and can tell

> me what sound each animal makes, but when I ask her " Who says Mooo

> Mooo? " she will not answer - it appears that she cannot answer.

>

> She babbles a lot - when she plays with her dolls and animals,

she

> talks a lot but I can't understand a lot of what she says. She has

> lots of words and will say sentences that I've taught her e.g. " I

> want... " but will not answer questions such as " What did you have

> for lunch today? " " Did you have lunch today? "

>

> To me, she doesn't have a lot of spontaneous speech. She doesn't

> ask me questions - only " Ma help " if she needs help, but no " Why

did

> the dog do this? " " Do I have to go to bed? " such things.

>

> I've been trying to get her to say hello when we enter her room

at

> daycare but she won't try. When people ask her her name, she'll

> spell it and then tell them but speaks so softly that people can't

> hear her. (She can read and spell her name, but can't spell/read

any

> other words, I was amazed she can do her name at her age!)

>

> I had her evaluated by Early Intervention at 21 months and they

> said that she was cognitively age appropriate but expressively was

3-

> 6 months behind. They did not qualify her for services. I had them

> re-evaluate her in April and the evaluator stretched it as far as

> she could and got her to qualify so she now has speech therapy

> 2x/week that just started a couple weeks ago. The speech evaluator

> said that she really needs help on the clarity of her words. I can

> understand a lot of what she says, but no one else seems to be able

> to.

>

> My daughter has no eating, sleeping or behavior issues.

>

> I'm not sure what I'm dealing with here. My pediatrician is a

> developmental pediatrician but we rarely see him. We had a 2 1/2 yr

> appointment since she was adopted and they don't have that much

> history on her - I answered one question incorrectly (later

realized

> I had misinterpreted what he asked - he thought my daughter only

> talks when mimicing back what I say) and he went on and on how she

> might be autistic. But then gave a list of indications that she's

> not autistic e.g. good eye contact, shared her toy with him, etc. I

> have a friend who's a speech therapy practitioner and teacher and

> I'm going to ask her about apraxia and oral motor problems. She

said

> that there is no way that my daughter is autistic (having seen my

> daughter every week at dance class and then at play dates as well).

>

> So I'm not sure what to think. Mothers tell me that their kids

talk

> about my daughter for days after seeing her, but my daughter never

> talks about her friends - I don't know if that's a social issue or

> because she's not talking, but that's the kind of spontaneous talk

I

> would expect from a 2.5 yr old - about her friends, what are they

> doing, when will we see them, etc.

>

> I did stop at the health food store last night and ick up the

Nordic

> Naturals DHA for children and started giving her that last night. I

> figure it may help with her speech and it may not, but it's good

for

> her health even if it doesn't change her speech.

>

> Any advice? Anywhere to point me? Anyone else have similar

> issues/concerns?

>

> Thanks!!!!

>

> Helen

>

[Guest guest]

Hi Helen,

Welcome to the group. You will find a lot of ideas and resources

here. My youngest daughter was also adopted from China at 13 months,

and she is now 4.5 years old. She just placed out of speech therapy

through the county services, after 2 years of speech. We use fish

oils and Vitamin E, and saw immediate benefits. She went

from " talking with her mouth closed " (almost like humming) to making

many sounds. My daughter also did not speak a lot at her preschool

last year, but as her confidence grew, so did her speech. She still

is a bit reserved in new situations and larger groups, but she is

becoming more and more comfortable in those situations as well. It

is hard to tell whether that is just her personality, insecurity with

speech, or part of her innate defense mechanism (she takes a while to

warm up and trust people). Best of luck to you. Feel free to

contact me off-list if you have further questions: mommydowd @

(remove spaces).

Suzanne

>

> Hello,

>

> I just joined this group, found it through the Cherab website

> which I found through the A4everFamily.org website. I was

researching

> speech delay in children and here I am.

>

> My daughter is 31 months (2.5 yrs) and was adopted from China at

> 14 months. She spent her first 14 months in an orphanage. She was

> very healthy when I adopted her and had one word - Mama.

>

> I do not think my daughter has Apraxia, but perhaps falls in

> the " Oral Motor " problems as she does overstuff her mouth when

> eating, doesn't so much now, but did drool a lot when not teething,

> she does bite straws when drinking (I thought all kids did that!),

> she can't blow bubbles and she is a mouth breather (keeps mouth

open

> and breaths through her mouth.)

>

> She knows all her alphabet and will say the letters but does not

> always pronounce them correctly. She knows her animals and can tell

> me what sound each animal makes, but when I ask her " Who says Mooo

> Mooo? " she will not answer - it appears that she cannot answer.

>

> She babbles a lot - when she plays with her dolls and animals,

she

> talks a lot but I can't understand a lot of what she says. She has

> lots of words and will say sentences that I've taught her e.g. " I

> want... " but will not answer questions such as " What did you have

> for lunch today? " " Did you have lunch today? "

>

> To me, she doesn't have a lot of spontaneous speech. She doesn't

> ask me questions - only " Ma help " if she needs help, but no " Why

did

> the dog do this? " " Do I have to go to bed? " such things.

>

> I've been trying to get her to say hello when we enter her room

at

> daycare but she won't try. When people ask her her name, she'll

> spell it and then tell them but speaks so softly that people can't

> hear her. (She can read and spell her name, but can't spell/read

any

> other words, I was amazed she can do her name at her age!)

>

> I had her evaluated by Early Intervention at 21 months and they

> said that she was cognitively age appropriate but expressively was

3-

> 6 months behind. They did not qualify her for services. I had them

> re-evaluate her in April and the evaluator stretched it as far as

> she could and got her to qualify so she now has speech therapy

> 2x/week that just started a couple weeks ago. The speech evaluator

> said that she really needs help on the clarity of her words. I can

> understand a lot of what she says, but no one else seems to be able

> to.

>

> My daughter has no eating, sleeping or behavior issues.

>

> I'm not sure what I'm dealing with here. My pediatrician is a

> developmental pediatrician but we rarely see him. We had a 2 1/2 yr

> appointment since she was adopted and they don't have that much

> history on her - I answered one question incorrectly (later

realized

> I had misinterpreted what he asked - he thought my daughter only

> talks when mimicing back what I say) and he went on and on how she

> might be autistic. But then gave a list of indications that she's

> not autistic e.g. good eye contact, shared her toy with him, etc. I

> have a friend who's a speech therapy practitioner and teacher and

> I'm going to ask her about apraxia and oral motor problems. She

said

> that there is no way that my daughter is autistic (having seen my

> daughter every week at dance class and then at play dates as well).

>

> So I'm not sure what to think. Mothers tell me that their kids

talk

> about my daughter for days after seeing her, but my daughter never

> talks about her friends - I don't know if that's a social issue or

> because she's not talking, but that's the kind of spontaneous talk

I

> would expect from a 2.5 yr old - about her friends, what are they

> doing, when will we see them, etc.

>

> I did stop at the health food store last night and ick up the

Nordic

> Naturals DHA for children and started giving her that last night. I

> figure it may help with her speech and it may not, but it's good

for

> her health even if it doesn't change her speech.

>

> Any advice? Anywhere to point me? Anyone else have similar

> issues/concerns?

>

> Thanks!!!!

>

> Helen

>

[Guest guest]

,

Thanks for the warm welcome and the advice.

I am going to do the fish oil, the speech therapy - we have another

appointment with development pediatrician in August after she's

had a few months of speech therapy and I'll keep talking to her.

I'm also going to read the book " Late Talker " and the archive you

sent along with your reply.

And you are soooo right! I was pushing too hard when I was asking

her " Who says moo moo? " - I was " working " on it two nights in a row.

The next day I picked her up and was putting her in her car seat

and nonchalantly (without thinking) asked her how her day was.

She put her hand on my mouth and said " No, no, no " . Ahhh, I got

the message - I was pushing too hard. So I'm taking my cues from

her and seeing what progress she'll make with our new therapies.

I've decided to just talk out loud and she can hear whatever I'm

thinking ;-) That way she can absorb lots of words without me

pushing her.

Thanks so much!

Helen

>

> Hi Helen!

>

> I have to have the time to read both of your messages to answer a

bit

> more (we are having " birthday week " here for Tanner as his actual

> b'day was Wednesday so we went away for that but his party is

> tomorrow so getting everything ready for that!) but I'll throw a

few

> things out and ask a few questions which will make it easier for

all

> to give feedback. Based on what I read quickly it sounds like you

> are correct in guessing that your child cannot answer -which is

> different than not knowing the answer and different than having no

> interest in answering. I don't know based on what you wrote if the

> issue is developmental or not -I am not even sure based on what you

> wrote if there are oral motor issues there. It doesn't sound like

> she has autism which would be the reason to take her to the

> psychologist as one person suggested -it sounds to me instead that

> she is fully aware of her limitations of speech and is feeling self

> conscious about it. From what you have written her delay is that

> she's not saying sentences yet and the one she attempts that you

are

> trying to teach her she simplified - so of course she's not going

to

> be able to talk to you about her friends at school, or anything

else

> that takes more than a single word. That's not autism -that's a

> communication problem. If she was to be taught sign language or

PECS

> at this point she probably would have more of a " conversation " with

> you. But outside of writing and typing which are probably a few

> years down the road -she has no other way to communicate.

>

> Whether her delays are developmental or due to impairment at this

> point the one thing you want to watch is her self esteem because

that

> is precious -and she has already gone through so much. While other

> babies are with their families the first few months of life she

spent

> more than her first year of life in an orphanage -poor thing. She

> clearly wants to please you and make you happy -but it's clear that

> to make you happy at this point will take sentences. We worry and

> push and without meaning to at times we put more pressure on our

> children who are delayed. The best thing is to do just what you

are

> doing. Learn as much as you can so you can understand why she may

> not be at the level that is expected of her yet. The good news is

> that she appears to notice her limitations and that her receptive

and

> cognitive ability are tested to be within normal range which

explains

> her frustration -and also points more to a speech impairment vs. a

> simple delay. But again due to her history it's possible it's all

> still developmental and she just needs a bit more time. The fact

> that you are so aggressive in seeking help for her is awesome and

the

> fact she is currently in speech therapy 2X a week is perfect! You

> are doing a great job and she's fortunate she has a mom like you

> who's above average in seeking help for her after over a year of

> being orphaned.

>

> I would if I were you make an appointment with that

> neurodevelopmental pediatrician just to make sure. I would not

make

> an appointment with a psychologist. Make it easy for her for now

and

> give her time until you learn more about why she has a delay in

> speech at this point. In addition to the neuroMD the SLP may be

able

> to tell you more as she works with your daughter. To help relieve

> frustrations on her part and worry on yours -next time you want to

> ask " who says moo moo? " show her various pictures, photos, or play

> models of farm animals and let her point to which is correct.

Make a

> huge deal about how smart she is when she does. She may not

> say " cow " or " hello " because those may be words she doesn't yet

feel

> comfortable with attempting for whatever reason.

>

> She may block you out if you start asking a number of questions due

> to her frustration. If you just ask her a yes or no question in

> isolation (without all the other questions around it) will she

answer

> a question like " did you have lunch today? " by saying yes or no or

> shaking her head?

>

>

> Even though it's unclear as to why the delay -here's an archive

on " late talker vs apraxia "

>