Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 yes i would.and thank you very much.raynell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 I hope your wife continues to improve too!!! I have been on ldn for two weeks now. Initilly, I was so tired, but felt an overall wellness about me!! My mind was clearer...I am less stressed.... bladder function has improved and I have moments of better balance. I switched to 4.5 last night. It seems to be ok so far. I am so excited about ldn. Just with the small improvements, I want to be on this for a long time.... Stay positive, trust God and keep on the path of ldn and nutrition. Lori --- In low dose naltrexone , Ts N433R <tspeckman@f...> wrote: > My wife has RR MS. We live SW Ohio. She is 58 and was diagnosed about > 25 years ago. She has had very few problems for 24 years, right foot > might drag once in awhile with a few stumbles, but nothing significant. > Starting last year her face went numb for about six weeks with complete > recovery. Fatigue started to be a problem, then viberating in hands. > Numbness started in legs with heaviness in knees. Again symptoms would > remit to almost normal. Started using Copaxone in July. In November a > big relaspe of weakness and pain. At that time has an IV infusion of > steroids followed with oral steroids for 2 weeks. Started taking B12 @ > 500mg 3X daily, Vitamin E d@ 400 ieu 3X daily in addition to > multivitamin. Switched from Copaxone to Avonex for better control of > symptoms. Avonex had no side effects for three weeks. Forth week had > lower back severe pain for day following injection. Fifth weeks reaction > was more severe, lasting several days. Stopped Avonex and went back to > Copaxone. > A web search found the LDN website which sounded very interesting. Read > all info we could find and she decided to give it a try. Her neuro said > ok if she would sign a liability release. She got a script for 3mg for > 6 days then 4.5mg. The LDN is compounded with cornstarch. > At this point symptoms are weakness in legs, viberation in hands. > Started 3.0mg LDN on Jan 17 at 10:30pm. Next day felt weaker. Second > day still weaker but hand viberations intermittent. Third day left side > becomming numb. 4th 5th 6th day no change. Seventh day, first at 4.5mg, > no change, hands viberate left side numb knees, hips and toes hurt. > Added vitamin D 1000 iu to diet. > We are hoping for improvment so will continue LDN for a while. > > Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Because of too many lawyers out there that want a quick buck! Our home town clinic that I go to says that they have no insurance if a doc. prescribes something that isn,t recommended by the FDA for that specific use.But the form was no biggy to get anyway. Reg. -------Original Message------- From: low dose naltrexone Date: 01/24/04 10:04:20 low dose naltrexone Subject: Re: [low dose naltrexone] New to group Why would one need to sign a liability release to obtain Naltrexone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 So the doctor could not be sued for aanything negative that might occur. TylerRose2@... wrote: Why would one need to sign a liability release to obtain Naltrexone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 In Holland the doctors just refuse to help. Then they cannot be sued;o) --- In low dose naltrexone , Ts N433R <tspeckman@f...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 HI MAYBE YOU CAN GET A PERSCRIPTION FROM HERE. I HAVE A LIST OF DR.'S AND PERSCRIPTION PLACES FOF WHERE TO GET LDN FILLED, IF YOU ARE INTERESTED. DENISE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 I recommend advancing the time you are taking the LDN to 9:00-9:30 PM and see what your response is. This time frame has worked better for some MS patients. Noland ----- Original Message ----- From: " Ts N433R " <tspeckman@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 9:28 AM Subject: [low dose naltrexone] New to group > My wife has RR MS. We live SW Ohio. She is 58 and was diagnosed about > 25 years ago. She has had very few problems for 24 years, right foot > might drag once in awhile with a few stumbles, but nothing significant. > Starting last year her face went numb for about six weeks with complete > recovery. Fatigue started to be a problem, then viberating in hands. > Numbness started in legs with heaviness in knees. Again symptoms would > remit to almost normal. Started using Copaxone in July. In November a > big relaspe of weakness and pain. At that time has an IV infusion of > steroids followed with oral steroids for 2 weeks. Started taking B12 @ > 500mg 3X daily, Vitamin E d@ 400 ieu 3X daily in addition to > multivitamin. Switched from Copaxone to Avonex for better control of > symptoms. Avonex had no side effects for three weeks. Forth week had > lower back severe pain for day following injection. Fifth weeks reaction > was more severe, lasting several days. Stopped Avonex and went back to > Copaxone. > A web search found the LDN website which sounded very interesting. Read > all info we could find and she decided to give it a try. Her neuro said > ok if she would sign a liability release. She got a script for 3mg for > 6 days then 4.5mg. The LDN is compounded with cornstarch. > At this point symptoms are weakness in legs, viberation in hands. > Started 3.0mg LDN on Jan 17 at 10:30pm. Next day felt weaker. Second > day still weaker but hand viberations intermittent. Third day left side > becomming numb. 4th 5th 6th day no change. Seventh day, first at 4.5mg, > no change, hands viberate left side numb knees, hips and toes hurt. > Added vitamin D 1000 iu to diet. > We are hoping for improvment so will continue LDN for a while. > > Tom > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 If you are not having any problems with insomnia or leg stiffness, I wouldn't change the dosage for at least a couple of months. I think you will find that the fatigue will be gone by then. Noland ----- Original Message ----- From: " mspenguin22001 " <mspenguin22001@...> <low dose naltrexone > Sent: Wednesday, January 28, 2004 12:25 PM Subject: [low dose naltrexone] NEW TO GROUP > Hi, > > > I'm new to the group. Started LDN on Jan13. Had the insomnia for a > few days, but that's better. I also take Copaxone. I really feel > much better, but now I'm more tired during the day. I take 4.5 mg. > I don't know if i should call the dr. and change the dose. I feel > like its really working. Please give me advise. Thanks and have a > great day. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 In a message dated 5/29/2004 8:14:27 PM Eastern Standard Time, bowlady@... writes: > Well I usually do however there are > times I think I can cheat and pay for it during the night. Any > suggestions? Any help would be appeciated. Hi Bowlady, Next time you suffer an attack, or feel one coming on, you could try taking a tspn of epsom salts in a cup of freshly squeezed grapefruit juice (to dull the taste of the Epsom salts). You should get some relief within about 20 mins, as it relaxes and dilates the bile ducts. It's only a bandaid fix, however, and it's still important to exercise regularly, eat right and, if you're comfortable doing so, to flush. Like you, I started suffering from increasingly painful and frequent attacks, since last Nov. While flushing was a little nerve-racking initially (actually, it got to the point where it was flush or get surgery), I was ecstatic to discover that the fasting and running to the bathroom was the worst of it and I got rid of a number of stones...both bile and calcium stones, bile sludge and chaff. Since then, I have had a reduction in the severity of attacks, as well as a number of other side-benefits I really hadn't expected...like increased energy and a reduction in migraine headaches and pms! Of course, this is just my story, as each person's experience with flushing is so unique and must be a conscious, personal choice. Epsom salts does cause quite a loosening effect on the bowels, however, so it's best doing this when you know you will be home for a few hours. Blessings, n. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Bow Lady, Yep, most of us are in the same boat. Welcome! I know, for sure that when I " cheat " I pay for it. Yet, on the other hand, I remain hopeful for a full cure and final dissolusion of all stones and inflammation. In the process, I believe the things we are doing protect everything else in the body. They are all good. Additionally, my pain and hospitalization scared the c--p out of me! Go back and work your way through the previous messages and you will find all our secrets and collected wisdom! One thing that seems to be apparent is that if you are passive, taking a " watch and wait " approach, i.e. doing nothing, you will be seeing a surgery suite sooner or later. Will in Minneapolis 'THERE IS NO COMING TO CONSCIOUSNESS WITHOUT PAIN " Carl Jung Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Wow, how exciting that Xolair is giving you such improvement so quickly. Yeah, I don't miss the cushnoid features either. I don't yet have the energy that Greg describes. I'm going to my GP next month to get my thyroid and blood sugar checked just to make sure I don't have some underlying problem. But I've had those tests before and they've been negative. Maybe I'm not getting enough nutrients or something. I'm just fatigued and sleepy all the time. On the ohter hand, I'm not sick all the time so I can deal with the fatigue if I have to. Anyway, welcome to the board. Most of us seem to be having a lot of success with Xolair. It's such a great thing to be formerly miserable after all those times of being miserable. Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 welcome to the group. i'm relatively new here too. thats great that you see so many changes so quickly with the xolair! i'm at the six month marker, and i've been noticing some changes the last month or so. addy....i'm glad i'm not the only one who is chronicly exhausted. i know i'm not a great sleeper, but i go through periods of time (as in two months at a time) where i am so tired i can barely function, then i'll be fine again for two months. they were also worried b/c i am covered head to toe in bruises, which i know is a side effect of the steroids, but i'm not on pred right now (and wasn't when the bruises really started coming out in the massive amounts), and down to 1320 mcg - 6 puffs of 220 - of flovent a day (i was at 2200 mcg) - and the bruising started when i was just on advair 500, not an unreasonable dose. they have run every test known to man, and everything comes out fine. its definately frustrating. i'm on a lot of vitamins, and thats not helping either. i hope your tests come out okay. heather > Wow, how exciting that Xolair is giving you such improvement so > quickly. Yeah, I don't miss the cushnoid features either. > > I don't yet have the energy that Greg describes. I'm going to my GP > next month to get my thyroid and blood sugar checked just to make > sure I don't have some underlying problem. But I've had those tests > before and they've been negative. Maybe I'm not getting enough > nutrients or something. I'm just fatigued and sleepy all the time. > On the ohter hand, I'm not sick all the time so I can deal with the > fatigue if I have to. > > Anyway, welcome to the board. Most of us seem to be having a lot of > success with Xolair. It's such a great thing to be formerly > miserable after all those times of being miserable. > > Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Just wanted to pipe in here too. I am new also. I think I posted an intro about three weeks ago. Briefly, I am 39 yrs old, a lifelong asthmatic and very allergic person (you name it, I am allergic to it)! During the course of my 39 yrs, I have been through so many meds, ER visits and hospital stays and I dread allergy season every year (as it is guaranteed to get me right back on Prednisone). As for current med regimen, I am on Claritin, Pulmicort, Serevent and Proventil, plus prednisone between 20-40mgs depending on the severity of my allergic symptoms (which have been in full flare since April). Beyond that, I am so happy to hear positive testimonials that you are all posting as to the effectiveness of Xolair! It has helped me decide to go forward with the treatments. I saw my pulmonologist and we are just waiting for the approval from the insurance for the treatments to start! I really can't wait as I can relate to what's being said about the prednisone, it causes many distressful symptoms and I am now going through the process of weaning off of it, albeit slowly. I am in cushingoid state too, with my weight gain now topping 40 lbs total (in the course of two years) and my face and body showing many of the traits. It is very uncomfortable to be in this position now, especially in the summer, but I am definitely looking forward to experiencing the joys of not having to take steroids anymore! Thanks for letting me participate in this group and I look forward to sharing my experience with Xolair here too! Carole from NY addy....i'm glad i'm not the only one who is chronicly exhausted. i know i'm not a great sleeper, but i go through periods of time (as in two months at a time) where i am so tired i can barely function, then i'll be fine again for two months. they were also worried b/c i am covered head to toe in bruises, which i know is a side effect of the steroids, but i'm not on pred right now (and wasn't when the bruises really started coming out in the massive amounts), and down to 1320 mcg - 6 puffs of 220 - of flovent a day (i was at 2200 mcg) -and the bruising started when i was just on advair 500, not an unreasonable dose. they have run every test known to man, and everything comes out fine. its definately frustrating. i'm on a lot of vitamins, and thats not helping either.i hope your tests come out okay.heather__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 hi carole! where in NY are you from?? i'm on long island! heather --- In , ChakraCari <chakracari65@y...> wrote: > Just wanted to pipe in here too. I am new also. I think I posted an intro about three weeks ago. Briefly, I am 39 yrs old, a lifelong asthmatic and very allergic person (you name it, I am allergic to it)! During the course of my 39 yrs, I have been through so many meds, ER visits and hospital stays and I dread allergy season every year (as it is guaranteed to get me right back on Prednisone). As for current med regimen, I am on Claritin, Pulmicort, Serevent and Proventil, plus prednisone between 20-40mgs depending on the severity of my allergic symptoms (which have been in full flare since April). > > Beyond that, I am so happy to hear positive testimonials that you are all posting as to the effectiveness of Xolair! It has helped me decide to go forward with the treatments. I saw my pulmonologist and we are just waiting for the approval from the insurance for the treatments to start! I really can't wait as I can relate to what's being said about the prednisone, it causes many distressful symptoms and I am now going through the process of weaning off of it, albeit slowly. I am in cushingoid state too, with my weight gain now topping 40 lbs total (in the course of two years) and my face and body showing many of the traits. It is very uncomfortable to be in this position now, especially in the summer, but I am definitely looking forward to experiencing the joys of not having to take steroids anymore! Thanks for letting me participate in this group and I look forward to sharing my experience with Xolair here too! > > Carole from NY > > addy....i'm glad i'm not the only one who is chronicly exhausted. i > know i'm not a great sleeper, but i go through periods of time (as > in two months at a time) where i am so tired i can barely function, > then i'll be fine again for two months. they were also worried b/c i > am covered head to toe in bruises, which i know is a side effect of > the steroids, but i'm not on pred right now (and wasn't when the > bruises really started coming out in the massive amounts), and down > to 1320 mcg - 6 puffs of 220 - of flovent a day (i was at 2200 mcg) - > and the bruising started when i was just on advair 500, not an > unreasonable dose. they have run every test known to man, and > everything comes out fine. its definately frustrating. i'm on a lot > of vitamins, and thats not helping either. > > i hope your tests come out okay. > > heather > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Carole- Welcome to the group! I hope your insurance company authorization goes through quickly. Keep us posted on how you do with Xolair. Addy (co-moderator and 8 months on Xolair) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Hi All: I am in the " same boat " as Pat and also need input. I was diagnosed about four or five years ago with the same situation, but have taken no action yet. I was concerned because of the size of the stone, and was advised not to do the flush? I have had no problems resulting from it within the last five years. I am age 62, and really don't want surgery. If I am going to have to have it, I guess I would be better off having it done now, rather than later. Any advice would be sincerely appreciated. Have a great weekend. Bob Baer ----- Original Message ----- From: Pat B ....I was diagnosed a couple of years ago as having one large gallstone. 13mm when last tested. When it was first diagnosed, my gastroenterologist said to ignore it since it really wasn't causing any trouble.... Then, on routine visit last year, he started pushing me to have my gall bladder out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Pat, I think almost everyone here has had the crap scared out of them by the boogeymen, be it a surgeon or a gastroentrologist. Some people here have had the surgery, but most, like myself, have decided surgery will only be the LAST resort. As you may know, surgical removal doesn't necessarily cure any of your health problems, and could even give you new ones. FLUSHING is the key to success, a great life and world peace, but if you are too afraid to do it now, begin the DISSOLVING program asap. You will never regret it. There is a lifestyle reason why you are making stones and the surgery will not cure that. Keeping your bile healthy and flowing means you have a healthy liver. There is no substitute for that. It's my feeling that very very soon cholecystectomy surgery (just like routine tonsillectomies, radical mastectomies, and hysterectomies) is going to look like bloodletting and mercury treatments do to us now. I think that cutting out an organ instead of trying to heal it is an obsolete, crude, and barbaric procedure harkening back to a Dark Age. An age when huge industries and many CEOs got filthy rich cutting people up and overmedicating them with drugs only a select few can prescribe. Best wishes, Will, who's being nice to his gall bladder in Minneapolis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Pat, I did my first gall bladder flush around the middle of June. Everything went well. I had a little heartburn during the night. The big surprise, about three days later, was that my husband, who would never do anything like this, did a gall bladder flush without any encouragement. I was amazed. He is doing his second flush this weekend. I am waiting a few weeks. -----Original Message----- From: Pat B [mailto:rora.dora@...] Sent: Wednesday, June 30, 2004 5:40 PM gallstones Subject: new to group Hi All, I recently joined the group. Have done some checking through the archives and the curezone FAQ's. I was diagnosed a couple of years ago as having one large gallstone. 13mm when last tested. When it was first diagnosed, my gastroenterologist said to ignore it since it really wasn't causing any trouble. (I get occasional discomfort, but no real pain.) Then, on routine visit last year, he started pushing me to have my gall bladder out. I consulted with another gastroenterologist who also thought it ought to come out, but didn't see any urgency in it. So, I've been putting off surgery. A couple of people have recommended that I do a liver/gall bladder flush. I've been hesitant because of the size of the stone. So, I'd like to hear from people with similar conditions and see how you fared, whether good, bad or indifferent. If I'm going to have surgery, I really should schedule it within the next month. So, don't have a lot of prep time. At any rate, recommendations, experiences appreciated. Thx. Pat Learn more from our experience, over 7.000 liver flush stories: http://curezone.com/forums/fd50.asp?f=4 http://curezone.com/forums/fd50.asp?f=80 http://curezone.com/forums/fd50.asp?f=100 http://curezone.com/forums/fd50.asp?f=112 Liver Cleanse Recipe: http://CureZone.com/cleanse/liver/ Liver Flush FAQ: http://curezone.com/forums/f.asp?f=73 Images: http://CureZone.com/image_gallery/cleanse_flush/ http://CureZone.com/image_gallery/intrahepatic_stones/ To unsubscribe, send blank e-mail to: gallstones-unsubscribe and then reply to confirmation message! To Post message: gallstones Subscribe: gallstones-subscribe Web Sites for more information: http://CureZone.org http://www.liverdoctor.com/ http://www.sensiblehealth.com/ http://www.cyberpog.com/health/index.htm http://www.relfe.com/gall_stone_cleanse.html http://www.cleansingorsurgery.com/ Group page: gallstones To change your subscription to digest send blank e-mail to: gallstones-digest To change your subscription to NO-MAIL send blank e-mail to: gallstones-nomail To change your subscription to NORMAL send blank e-mail to: gallstones-normal You are receiving this email because you elected to subscribe to the Gallstones group on 's groups. By joining the list you agree to hold yourself FULLY responsible FOR yourself! Have a nice day ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Sorry, but attacvhments don't come through on this site. You'll have to copy and paste. ~S --- In gallstones , Gerald <rozbeg@y...> wrote: > I have the same case as yours and I followed the instructions on the attached files that my friend sent me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 I had a 2.3 cm stone. I did about 8 flushes over a year and a half. A second ultrasound at that point showed the stone to be 2.2 cm. However, my gallbladder was also thickened during that time and not working up to capacity. That's possibly why I couldn't get it to squeeze the stone out during the flushes. I also was probably not as dilligent about diet and supps as I should have been, though I tried several supps. As a homeschooling mother, my life isn't always my own, lol. Anyway, I ended up having to have the gb removed. Even with a 2.3 stone I did not experience any problems during the flushes at all. And my first flush I used one cup of lemon juice and one cup of oil, on the advice of an herbalist who was advising me. I was not aware of other methods of flushing at the time. I never really experienced the positive health benefits of the flushes as other people report afterwards, probably because that big stone was still there. I did pass many of the small green stones. I am preparing to do a post " gallbladder out " flush. Has anyone done one of these? Does anyone have any suggestions regarding altering the flush in any way? I'm thinking of starting out small, using perhaps 1/4 cup juice and 1/4 cup oil and if I tolerate that well enough, in another couple weeks I'll up it to 3/8 and 3/8. AMDG, Colleen K. ----- Original Message ----- From: Pat B gallstones Sent: Wednesday, June 30, 2004 4:39 PM Subject: new to group Hi All, I recently joined the group. Have done some checking through the archives and the curezone FAQ's. I was diagnosed a couple of years ago as having one large gallstone. 13mm when last tested. When it was first diagnosed, my gastroenterologist said to ignore it since it really wasn't causing any trouble. (I get occasional discomfort, but no real pain.) Then, on routine visit last year, he started pushing me to have my gall bladder out. I consulted with another gastroenterologist who also thought it ought to come out, but didn't see any urgency in it. So, I've been putting off surgery. A couple of people have recommended that I do a liver/gall bladder flush. I've been hesitant because of the size of the stone. So, I'd like to hear from people with similar conditions and see how you fared, whether good, bad or indifferent. If I'm going to have surgery, I really should schedule it within the next month. So, don't have a lot of prep time. At any rate, recommendations, experiences appreciated. Thx. Pat Learn more from our experience, over 7.000 liver flush stories: http://curezone.com/forums/fd50.asp?f=4 http://curezone.com/forums/fd50.asp?f=80 http://curezone.com/forums/fd50.asp?f=100 http://curezone.com/forums/fd50.asp?f=112 Liver Cleanse Recipe: http://CureZone.com/cleanse/liver/ Liver Flush FAQ: http://curezone.com/forums/f.asp?f=73 Images: http://CureZone.com/image_gallery/cleanse_flush/ http://CureZone.com/image_gallery/intrahepatic_stones/ To unsubscribe, send blank e-mail to: gallstones-unsubscribe and then reply to confirmation message! To Post message: gallstones Subscribe: gallstones-subscribe Web Sites for more information: http://CureZone.org http://www.liverdoctor.com/ http://www.sensiblehealth.com/ http://www.cyberpog.com/health/index.htm http://www.relfe.com/gall_stone_cleanse.html http://www.cleansingorsurgery.com/ Group page: gallstones To change your subscription to digest send blank e-mail to: gallstones-digest To change your subscription to NO-MAIL send blank e-mail to: gallstones-nomail To change your subscription to NORMAL send blank e-mail to: gallstones-normal You are receiving this email because you elected to subscribe to the Gallstones group on 's groups. By joining the list you agree to hold yourself FULLY responsible FOR yourself! Have a nice day ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 Pat, I wanted to mention that another good resource is www.curezone.com , the liver forum if you don't already know about this. There are many there doing the flushes. > -----Original Message----- > From: Pat B [mailto:rora.dora@...] > Sent: June 30, 2004 5:40 PM > gallstones > Subject: new to group > > Hi All, > I recently joined the group. Have done some checking through the archives > and the curezone FAQ's. I was diagnosed a couple of years ago as having > one > large gallstone. 13mm when last tested. When it was first diagnosed, my > gastroenterologist said to ignore it since it really wasn't causing any > trouble. (I get occasional discomfort, but no real pain.) Then, on > routine > visit last year, he started pushing me to have my gall bladder out. I > consulted with another gastroenterologist who also thought it ought to > come > out, but didn't see any urgency in it. So, I've been putting off surgery. > A couple of people have recommended that I do a liver/gall bladder flush. > I've been hesitant because of the size of the stone. So, I'd like to hear > from people with similar conditions and see how you fared, whether good, > bad > or indifferent. If I'm going to have surgery, I really should schedule it > within the next month. So, don't have a lot of prep time. At any rate, > recommendations, experiences appreciated. Thx. > Pat > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Hi Joyce, Classic Gallbladder symptoms. The dark sludge was probably impacted matter from the walls of your colon, disturbed by the colonoscopy. Wow! never realized that procedure could be therapeutic! Find a copy of Dr. Bernard Jensen's book " Tissue Cleansing Through Bowel Management " and take a look at the picture section. This book, by the way, is the bible on Colon health. Good luck, Dave ----- Original Message ----- From: " JoyceB " <crwriter@...> <gallstones > Sent: Monday, February 14, 2005 10:49 AM Subject: new to group > > Hiya. My name is Joyce, and I've been having ab problems for longer than > I > can remember. I've been pretty sick for the past year--episodic, but more > on than off. I did test positive for C Diff and was treated for it. I go > for my HIDA scan tomorrow. > > I do have a question for people in the know. After my colonoscopy (Jan > 13th--results were great) I passes this horrible black stuff which turned > out to be so dark green it looked black. I had my test at 12:30 PM and > passed this stuff between 5:30 and 6PM. My toilet was broken that day, so > it did not just fall into the water--I hadn't flushed it with the bucket > yet, so it landed on white toity paper. It was so black, I figured it > must > be digested blood, but when I thinned it out to see, I saw that it was > just > very very dark green. (about a quarter cup of it) Could this have been > that > gallbladder sludge? All the tests I've had have shown no stones--X-rays, > MRIs, Ultrasounds. Anyone know what this discharge of material is? > > During episodes or flare-ups: > > I suffer terrible, constant gas; > > right-side ab pain (now moving to include my whole upper ab); > > terrible bloat; > > soft, poorly digested stools; > > sometimes terrible burning pain in my pancreatic area and my pancreatic > lipase is elevated somewhat--has run as high as 107 with a norm of 57? > > I wake up with my tongue feeling leathery and dry, and my eyes are pretty > bloodshot no matter how much sleep I get during these episodes. > > > I just had a few good weeks. Felt so good to feel good. Had a great deal > of sharp pain in right side of my ab after colonoscopy--hard to take a > breath, yawn, etc without provoking sharp pain and hard to get comfy > laying > down in just about any position. Took awhile to resolve--perhaps a week. > But the relief from all the other symptoms was great after that resolved. > (It was the first time I had experienced sharp pain in that area.) > > Thanks in advance for any help, > > JoyceB > > > > > > > Learn more from our experience, over 7.000 liver flush stories: > http://curezone.com/forums/fd50.asp?f=4 > http://curezone.com/forums/fd50.asp?f=80 > http://curezone.com/forums/fd50.asp?f=100 > http://curezone.com/forums/fd50.asp?f=112 > > Liver Cleanse Recipe: http://CureZone.com/cleanse/liver/ > > Liver Flush FAQ: http://curezone.com/forums/f.asp?f=73 > > Images: > http://CureZone.com/image_gallery/cleanse_flush/ > http://CureZone.com/image_gallery/intrahepatic_stones/ > > To unsubscribe, send blank e-mail to: > gallstones-unsubscribe and then reply to confirmation > message! > > To Post message: gallstones > Subscribe: gallstones-subscribe > > Web Sites for more information: > http://CureZone.org > http://www.liverdoctor.com/ > http://www.sensiblehealth.com/ > http://www.cyberpog.com/health/index.htm > http://www.relfe.com/gall_stone_cleanse.html > http://www.cleansingorsurgery.com/ > > Group page: gallstones > > To change your subscription to digest send blank e-mail to: > gallstones-digest > To change your subscription to NO-MAIL send blank e-mail to: > gallstones-nomail > To change your subscription to NORMAL send blank e-mail to: > gallstones-normal > You are receiving this email because you elected to subscribe to the > Gallstones group on 's groups. By joining the list you agree to hold > yourself FULLY responsible FOR yourself! > Have a nice day ! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Thanks for your reply. Just had my Hida today, and experienced lots nausea during the infusion of gallbladder flush, but picture showed the material moving through into the bowel before the flush, so who knows... I'm 52, and have been really bad when it came to nutrition up until this started. High cholesterol and very high triglycerides for 15 years that I know about. In the past year I've brought them down to normal eating a good organic fiber diet and eating very little meat. I use Dr. Shultz super food and grind my own flax seed for my morning dose of cooked bran cereal (along with ground almonds and wheat germ and banana mixed in.). I generally have organic pasta at night. Lunch is usually soup or sandwich. Pain is a great motivator when it comes to fixing a bad diet. I do have Dr. Shutlz colon cleanse products on hand, and think I will use them now that the pain has subsided. I hesitated to use them while in any pain at all because of the warnings on his labels. Here's hoping they help. But if this Hida shows normal, I'll request an MRA to check blood flow to my organs. Lord knows my fats have been high enough for long enough to cause problems. If I'd only known... Famous last words. JoyceB -----Original Message----- From: Dave Shelden [mailto:wholehealthawareness@...] Hi Joyce, Classic Gallbladder symptoms. The dark sludge was probably impacted matter from the walls of your colon, disturbed by the colonoscopy. Wow! never realized that procedure could be therapeutic! Find a copy of Dr. Bernard Jensen's book " Tissue Cleansing Through Bowel Management " and take a look at the picture section. This book, by the way, is the bible on Colon health. Good luck, Dave ----- Original Message ----- From: " JoyceB " <crwriter@...> > Hiya. My name is Joyce, and I've been having ab problems for longer than > I > can remember. I've been pretty sick for the past year--episodic, but more > on than off. I did test positive for C Diff and was treated for it. I go > for my HIDA scan tomorrow. > > I do have a question for people in the know. After my colonoscopy (Jan > 13th--results were great) I passes this horrible black stuff which turned > out to be so dark green it looked black. I had my test at 12:30 PM and > passed this stuff between 5:30 and 6PM. My toilet was broken that day, so > it did not just fall into the water--I hadn't flushed it with the bucket > yet, so it landed on white toity paper. It was so black, I figured it > must > be digested blood, but when I thinned it out to see, I saw that it was > just > very very dark green. (about a quarter cup of it) Could this have been > that > gallbladder sludge? All the tests I've had have shown no stones--X-rays, > MRIs, Ultrasounds. Anyone know what this discharge of material is? > > During episodes or flare-ups: > > I suffer terrible, constant gas; > > right-side ab pain (now moving to include my whole upper ab); > > terrible bloat; > > soft, poorly digested stools; > > sometimes terrible burning pain in my pancreatic area and my pancreatic > lipase is elevated somewhat--has run as high as 107 with a norm of 57? > > I wake up with my tongue feeling leathery and dry, and my eyes are pretty > bloodshot no matter how much sleep I get during these episodes. > > > I just had a few good weeks. Felt so good to feel good. Had a great deal > of sharp pain in right side of my ab after colonoscopy--hard to take a > breath, yawn, etc without provoking sharp pain and hard to get comfy > laying > down in just about any position. Took awhile to resolve--perhaps a week. > But the relief from all the other symptoms was great after that resolved. > (It was the first time I had experienced sharp pain in that area.) > > Thanks in advance for any help, > > JoyceB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 Hi and welcome to the group. Your symptoms could be RA or something related to that. If you do have RA it is necessary to get in to a rheumatologist as soon as possible and to start aggressive treatment to reduce the chance of permanent joint damage. Unfortunately lab tests for RA cannot either prove RA or rule it out. They only provide indications, so getting lab work makes sense but will not be conclusive. It takes a combination of examination by a doctor and history from the patient to complete the diagnosis process. Sometimes it takes a long time for the diagnosis to be confirmed but effective treatment can be started before the diagnosis is definite. God bless. ----- Original Message ----- From: Headley Rheumatoid Arthritis Sent: Sunday, June 05, 2005 1:19 AM Subject: new to group Hello all, My name is and I'm new to this group. I've not been diagnosed with RA but am pretty sure that I will be. My mother was diagnosed about ten years ago. I have been suffering from some problems that resulted from gastric bypass surgery in August. I was unable to eat for about 4 months and developed peripheral neuropathy due to malnutrition. I have numbness, tingling and burning pain from the bottom lip down. But, along with these symptoms my joints feel enflamed and swollen. They are extremely tender to the touch and "sore". This is especially true for the joints in my feet. They are so sore and tender that some days I can barely stand it. My knees feel as if I look down on them they will be about 3 times bigger than normal. I've been over the latter symptoms I mentioned with my neurologist many times and he assures me they are not a result of the peripheral neuropathy. However, he has not suggested a test for RA. Do those latter symptoms sound as if they might be RA? I Thank You, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Hi Judy, I learned this from Dodie in the RED forum. When it's necessary to shake hands, offer your hand to shake but rather than offering your hand in the normal way, offer your hand with the palm down.........this will allow the person to notice something different and take caution when shaking your hand. It's worked for me SO well. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " judyinseoul " <mremmert@...> <Rheumatoid Arthritis > Sent: Sunday, August 28, 2005 4:07 AM Subject: new to group > Hi all, > > I haven't received a final diagnosis yet (my appointment is Tues for blood > work results), but the doc is quite sure I have RA. > > I'll have a ton of questions for all of you - especially after Tues. > > In the meantime, may I ask a social question? How do you all handle > handshakes? A man at church today gave me a firm handshake that about > brought me to my knees. How do I now politely refuse handshakes, > especially when there's no time for verbal explanations?? > > Thanks in advance, > Judy R - who lives in Seoul, S. Korea - hence the moniker above > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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