Re: affording a band or helmet

January 10, 2011

You should try to get into Early Intervention.

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> > What do parents do that can not afford the bands? Insurance does not cover

them in every case and DocBand Cranial Tech does not accept IL ALL KIDS or

IPA...How do I know the medical company making the band or helmet knows what

they are doing. They don't all take digital scans or images and i have read some

horrific stories about deforming the head even further. Not sure what families

are suppose to do when they can not afford the device. I don't want to be

mis-understood because I have tried Childrens Hospital and Shirners. Shirners

won't treat PLAGIO. It's too costly according to Shirners Hospital and Childrens

wants 300 for scan and god only knows what for the helmet...Just wondering if

anyone else has had this problem and if there is a way to get help? I don't

expect it for free.. I KNOW our family can not afford much for the cost of

treatment however though... I am scared for my daughter. I am kind of lost all

together. I have read a lot of

> contradictory statements regarding the combination of the CMT and the Plagio.

My daughters doctor does not believe in helmets. My daughter just turned 3

months she was diagnosed during a visit to Childrens for what we found out to be

a X gene mutation. Her doctor did not catch any of the three conditions:( I

might add he has not been very helpful with any of it either. We are going to PT

right now and are struggling with some issues. That's probably a topic for

another post.. any info on aide is appreciated for the helmets and bands! How do

we know if she needs it? Her doctor won't do what the therapist suggested and

won't give me the proper referral... I am thinking it's time to change

Pediatricians again! UGGGHHH

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> > TOTALLY LOST MOTHER OF TWO IN CHICAGO!

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