Guest guest Posted November 25, 1998 Report Share Posted November 25, 1998 Hang in there Debbie, we are your family. If you have a good day, go to the library and visit the children's department. Read a child a book, it makes you feel even better. Also you may want to keep a diary. I had a friend whose son had a baby out of wedlock and she wouldn't let the grandmother see it. I told her to keep a diary of every thought, holiday and occasion that she misses her. Someday she can give it to her and then the child will know it wasn't her fault that she wasn't allowed to see her grandmother. Hang in there OK Write anytime, I , and many of us really do care. Love Ya, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 hi dave, thanks very much i sure do appreciate everybody's prayers it helps alot.i received good news on mon- day. i applied for disability back in august after losing my job and they approved it.now i can help mom a little bit more. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Deb, Congratulations on getting your disability! That will take some of the financial pressure off of you and your mother, now you can spend more time just helping mom and dealing with CMT and all of it's demands. Please keep us updated. Bless you and Mom, Dave > hi dave, > thanks very much i sure do appreciate everybody's > prayers it helps alot.i received good news on mon- > day. i applied for disability back in august after losing > my job and they approved it.now i can help mom a little > bit more. > deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 : All taken care of! I also corrected the database so that members can edit or delete their information, I had it set up wrong! Sorry. Debbie Abby's mom MI > Hello Debbie: > > Can you please delete Rhiannon's story in the Database section - I > would like to do it a little differently, (more like the others). I > tried to edit/delete and was not able. Sorry... > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 As always, thank you sooo much.. > > Hello Debbie: > > > > Can you please delete Rhiannon's story in the Database section - I > > would like to do it a little differently, (more like the others). > I > > tried to edit/delete and was not able. Sorry... > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Wow, where'd this come from??? I didn't even know you were considering the DOCband! I'm positive you will never regret your decision You'll be amazed at how well the DOCband fits when you get it in. You followed your motherly instincts and went with what your gut was telling you. I'm sure this is a decision you'll never regret making. You NEED to feel comfortable with the product, as you said, you weren't comfortable w/the other helmet, so you moved on. Will insurance cover the DOCband? Thanks for your update. Glad the casting is over, I'm sure she's completely forgotten about it already. Let us know when the DOCband is in. Debbie Abby's mom DOCgrad MI > Well, I just got back from a 2 1/2 hour car ride to Connecticut where > we got fitted for a DOC band. She got fitted for her other helmet last > week but it was leaving red marks on the flat spots so I went for > further adjustments but there was just something about it niggling in > my mind that it just wasn't right. To the point we didn't feel > comfortable with her wearing it which made it pointless. > Anyways, I called yesterday and made an appointment for today for just > a consultation, but we ended up going for it. > The casting was much different (I wasn't there for the other one, but > my husband was) I now know why you said that you wouldn't want to put > her through another casting - quite tramatic! > Who knows if there really is a difference in the long run, but my > husband jokes that I am a marketing man's dream. The doctor's at > Children's Hospital told me the Doc band was hype and would have the > same outcome as the helmet. And they could very well be right. So, > maybe I bought into the " Hype " and will end up with the same looking > head but be neg $$$ in the bank account. - but it's a decision we feel > comfortable with. And what I learned through the last week is that as > a stay at home mom seeing her in this 24/7 - I had to find my own > comfort level. > It's hard because she is an identical twin, so I KNOW what she " should " > look like. > We pick up the band next friday. > She didn't mind wearing the other helmet. So hopefully this one will be > okay. > Now I get to think about decorating it. > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Sorry to hear you were less than pleased with your STARBand. That is weird that there were red marks on the flat spot. I would think there shouldn't be any pressure points there. The castings aren't fun, but are a necessary evil that is soon forgotten I'm sure you will be thrilled with your DOC Band! Those parental instincts tend to be right on! Dane's mom DOC Grad ..who is " helping " me type this Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 Hi : It was actually quite simple. I called CT, scheduled the casting for that week after we stopped her STARband, and went ahead with the casting. I called our ins, told them our situation & all was fine there. What are you concerned about? Insurance probably? Have you contacted them yet? Also, i saw your earlier email, Carol kson, President of CT's email is erickson@... . Sorry I'm not of more help, but like I said, everything went quite smooth for us Debbie Abby's mom DOCGrad MI > Hey... how'd you go about getting the DOCband after the STARband???? > I talked to at CT in Charlotte this morning and she said she > wasn't sure how it was going to go... any suggestions for me????? > > > Tiernan's mama > ton, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 Debbie, TERRIBLY worried about the insurance. I should probably just give them a call today and hold off on the email until I talk to them. Wheew... just really nervous. YOu know how it is, I'm sure. After hearing so many stories of people having to fight about it, I really really really am nervous... I'll go call them now and see what they have to say to me about it. Thaks. Tiernan's mama ton, SC > > Hey... how'd you go about getting the DOCband after the > STARband???? > > I talked to at CT in Charlotte this morning and she said she > > wasn't sure how it was going to go... any suggestions for me????? > > > > > > Tiernan's mama > > ton, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 GOOD LUCK today ! We're all cheering for you!!!! You can tell them that the plagio was CAUSED by the torticollis. And it's true too. In many casses plagio is secondary to tort! Sending lots of GOOD vibes your way!! > > > Thanks for the info > > > mommy of (7 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 , I'm not Debbie, but I was just wondering something. Did/Does your little one have tort? If so, I can see where they would want you to concentrate on that aspect because of tort, there is a flat spot because of limited movement due to the tight neck muscle. I could be wrong here, but because of tort, plagio exists. Am I confusing you? I'll shut up now, because I am starting to confuse myself. Dustie, mom to , DOCband 12/23/02 > > > Thanks for the info > > > mommy of (7 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 Hi : I can imagine how worried you are about her not like the band I've been w/the group 2.5 yrs now and have heard of a few babies never getting used to their band/helmet. It is rare, but as I said, I have heard of it. It's still new to her though, let's just HOPE & PRAY she'll get used to it SOON. Hang in there! Debbie Abby's mom DOCGrad MI > > Thank you Debbie, I took it off, just in case. Debbie, I'm worry, > what am I gonna do if she doesn't get used to? Have you ever heard of > babies not getting used to the band? That will break my heart even > more, if she doesn't get used to. > mommy of ( 8 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Debbie - Scroll down at the end of this post( past sponsored links, under !Group Links) and click on the first one... Visit your candida support group...it will take you to the page. Don't click on the second one it unsubscribes you....I've ALMOST done that a few times! Marie _____ From: [mailto: ] On Behalf Of Debbie Sent: Sunday, September 04, 2005 12:00 PM Subject: Re: [ ] Please change " subject " line & trim your messages my friends:) Bee, help, I have lost your web page. I tried .com and that was not it or .org. I'm frantic, I want to read the information. Please help. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Thanks Marie, But I was playing around with the web page this afternoon and I found it. I hope I find all the diet information. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Debbie, Since you said your daughter's name is Molly, I assume you posted a recipe for "Molly's Bread" a while back. I make that all the time and love it for my kids. It is so healthy and full of great grains. My daughter likes it a lot too. Thanks for posting it. Sabreena From: Debbie Duncan <debbie@...>Reply- To: Subject: Re: [ ] thought i'd introduce myselfDate: Sun, 11 Jun 2006 12:07:16 -0700 Welcome to the celiac world, Piglet. (My mother is called Rabbit, so we must be related.) My 16-year-old (on Wednesday) daughter, Molly, was diagnosed 14 years ago. A few quick suggestions: *read the www.celiac.com web site, if you haven't already. There's a wealth of information there. Our new and fabulous local web site is www.bayareaceliacs.org. *try the GF products at Whole Foods. They're pricey as heck, but the breads are delicious. Most GF breads are not! Other indulgences: Crave chocolate cake and brownies (at Piazza's and elsewhere -- find out from the Crave site, www.cravebakery.org), "I Can Eat That!" pizza crusts (Draeger's) and Kapcakes ready-to-bake goodies. Other than Whole Foods, all of those bakers are in Northern California and deserve our support. Besides, their stuff tastes delicious, even to a non-celiac like me. Another terrific local web site for goodies and info is Sure Foods Market (www.surefoodsmarket.com). *plan to come to the Stanford Celiac Conference on Sept. 16. I learn something new every year, and it's a day to meet other celiacs and not have to ask if what you're eating is GF. Good luck! Debbie On Jun 10, 2006, at 11:27 PM, piglet95037 wrote: Hi, all. I was just diagnosed this week. My friends call me Piglet (no, I am not kidding!) and as you can tell, I live in Hill. I don't have an appointment with a nutritionist for a few weeks, and I'm feeling very lost, so any help you can offer would be very welcomed! I am reading all I can get my hands on, but I think it's making me more confused.Thx in advance,Piglet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Sabreena,I'm so glad you like the Molly bread! The beauty of it is that you make it with whatever good grains you have on hand and want to use. I've modified the flour part of the recipe many times over the last 14 years. Unfortunately, in the last year my Molly has developed some new allergy that we cannot pin down (right now she's not eating corn and soy as well as gluten), so she's not eating baked products. My 21-year-old, who has a wheat allergy, thinks Molly bread is heaven on earth.I've been thinking about posting the recipe for our latest dinner-table staple, socca, made from garbanzo bean flour and olive oil -- very few ingredients and super delicious. Thanks for writing,DebbieOn Jun 13, 2006, at 6:11 AM, Sabreena Haque wrote:Hi Debbie,Since you said your daughter's name is Molly, I assume you posted a recipe for "Molly's Bread" a while back. I make that all the time and love it for my kids. It is so healthy and full of great grains. My daughter likes it a lot too. Thanks for posting it.SabreenaFrom: Debbie Duncan <debbie@...>Reply- To: Subject: Re: [ ] thought i'd introduce myselfDate: Sun, 11 Jun 2006 12:07:16 -0700Welcome to the celiac world, Piglet. (My mother is called Rabbit, so we must be related.) My 16-year-old (on Wednesday) daughter, Molly, was diagnosed 14 years ago. A few quick suggestions:*read the www.celiac.com web site, if you haven't already. There's a wealth of information there. Our new and fabulous local web site is www.bayareaceliacs.org.*try the GF products at Whole Foods. They're pricey as heck, but the breads are delicious. Most GF breads are not! Other indulgences: Crave chocolate cake and brownies (at Piazza's and elsewhere -- find out from the Crave site, www.cravebakery.org), "I Can Eat That!" pizza crusts (Draeger's) and Kapcakes ready-to-bake goodies. Other than Whole Foods, all of those bakers are in Northern California and deserve our support. Besides, their stuff tastes delicious, even to a non-celiac like me. Another terrific local web site for goodies and info is Sure Foods Market (www.surefoodsmarket.com). *plan to come to the Stanford Celiac Conference on Sept. 16. I learn something new every year, and it's a day to meet other celiacs and not have to ask if what you're eating is GF.Good luck!DebbieOn Jun 10, 2006, at 11:27 PM, piglet95037 wrote:Hi, all. I was just diagnosed this week. My friends call me Piglet (no, I am not kidding!) and as you can tell, I live in Hill. I don't have an appointment with a nutritionist for a few weeks, and I'm feeling very lost, so any help you can offer would be very welcomed! I am reading all I can get my hands on, but I think it's ma king me more confused.Thx in advance,Piglet Quote Link to comment Share on other sites More sharing options...
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