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Re: Judy - scoiliosis

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I may have missed some of your emails, as I am having problems

receiving the daily digests. is still on GH. He is on the

maximum dose he can be on at this point. Unfortunately, he hasn't

been growing too well, but Dr. H just started him on another

medication in hopes to boost his growth. Forgive me if you have

already told me this, but what is an orthopedic doctor who asked you

to stop? If so, how familiar is he/she with RSS? 's

orthopedic doctor knows about RSS, but per Dr. H's recommendation, I

am taking him back to see another doctor who specializes only in

spinal disorders to get some more opinions about the progression of

his kyphosis/scoliosis. In your case, I don't think a few weeks on

or off GH will hurt Jack, so whatever you decide to do will probably

be ok in the meantime. Feel free to ask any other questions you have.

Kim C.

On Feb 2, 2006, at 10:51 AM, RSS-Support wrote:

> Message: 12

> Date: Thu, 02 Feb 2006 12:40:39 -0000


> Subject: Message for Kimc: Re Scoliosis/ghr


> Sorry Kim,1 more question-Has your son been taken off the growth

> hormone at all because of the scoliosis and /or kyphosis? As Jack has

> been on it continuously since he was 2,I feel abit apprehensive now

> I've been told to stop it until we've seen the specialist. I realize a

> few weeks shouldn't hurt but if its a long time I find that quite

> worrying.

> Dr Stanhope said some kids keep on growing quite well even when they

> come off of it.

> Thanks

> Judy.

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