update from laura

[Guest guest]

Dear friends, I had my appointment with the GI doctor and he thinks that my esophagus shoulnd't be a problem for my transplant, he wants me to have a surgery in my esophagus during the transplant surgery. I think that surgery is called esophyx or something like that.

My lungs are really giving up, I am loosing weight fast, i dropped two sizes in less than a month, i mentioned to my pulmonologist but she didn't comment anything, maybe this is normal in people with low DLCO?

I can't take a deep breath, i don't cough much. I do have to stop and catch my breath while doing simple tasks, but not due to coughing, is more like an "off" feeling or like i really need to rest.

I still have some more tests done before the doctors can decide if i am a candidate for a trasnplant.

G.

36 years old.

Baton Rouge LA.

Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009