To Jeanie - Welcome

[Guest guest]

Jeanie,

I am not doing the official greeting since that is Sheldon's job

these days, but I just could not go without responding to your

email. Look! You DID do something right! Your message came

through! It probably had to be approved by Ken before you could

start posting right away. He's the moderator and he rules with an

iron fist.

I am one of several Jodis on this listserve, but only two of us

spell Jodi correctly. I have a 17 year old son, Maxwell, who has

RSS and a 20 year old daughter who is adding more gray to my head

than I care to admit. She does not have RSS, however. If you have

not already noticed, I post a lot. I do my best to help whoever I

can.

That being said, tell us more about your son. I'm sure you are

partly devestated and partly relieved to have a diagnosis. This

group of people is the best resource and the best source of support.

There is also the MAGIC Foundation who sponsors a yearly convention

in Chicago. Check out their website at www.magicfoundation.org.

Once you tell us more, we can be more specific with information to

share with you. HOWEVER if you have not been warned about the

possibility of nighttime hypoglycemia, consider this to be it. Many

of our kids have that and their parents have not been told. There

are a couple of ways to check and simple things to ensure it does

not happen. But I don't want to overwhelm you right now.

Please also tell us where you live. Many of us take our kids to see

Dr. Madeleine Harbison in NYC. She is the guru of RSS in the US.

There are only two other doctors in the world who know as much and

they are in Europe. Dr. H, as we call her, has over 200 RSS

patients and has come to our rescue many a time.

Again, welcome and I look forward to hearing from you soon.

Jodi Z