Isaac Endocrine Update

February 3, 2006

Hello Everyone-

We saw the endocrinologist today and Isaac's TSH (thyroid) levels

were VERY high and the doc feels like that is why the weight gain

hasn't been great. He did show me that Isaac has been following a

curve and told me that over the last year Isaac has grown 4 1/2 " in

length which isn't too bad. We discussed Growth Hormones and we are

going to start them this year but the doc doesn't feel like it is

absolutley necessary at this time so we are going to wait until

June. He really wants to monitor the thyroid levels and get them

back to normal before we start GH. They did do a bone scan today and

Isaac HATED it..it didn't help that the x-rays are done at the same

place we get bloodwork taken..ugg!

After careful deliberation we have decided to cancel our Dr. H

appointment in New York. Being a one income family there is no way

we could go to convention and New York. It is going to be a strain

to just do one of the two. We get more " bang for our buck " with the

convention because we will get to see Dr. H (hopefully) and get to

meet the families (say hello again to families we met in 2004) and

all of the educational information..It just seems to be the best

option. My husbands parents are even thinking about going to

convention!!

Love-

Mimi

mom to : Isaac RSS, MCAD, Hypothyroid (24 mos 19 lbs, 30 " )

Sofia will be 5 mos on Valentines day!

P.S.- I skimmed through the " subject line " posts and wanted to say

that there have been a couple of times that I felt like " no one

cared " because I didn't get any responses to my post. Not too long

ago I had a horrible Doctor's visit and I felt like that parent with

a new RSS diagnosis all over again. The responses I got to that post

pulled me through that awful cloud of guilt and self-blame. My

heartfelt thanks to all who give so much of their time to console

and inform on this listserve!!

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