sleeping issues from treating hypoglycemia

[Guest guest]

Hey there

wondering if you have any tricks from having to wake your child up to eat.

We put True to bed at 7p, right after eating. We wake him at 10p, 1a, 4a,

and then he wakes himself to eat at 7a.

Last night after the 10p feeding he didn't go back to sleep until 2:30a.

Then we had to turn around and wake him at 4a. He slept until 6:15 and hasn't

been back down! I just don't know how he is going to get the rest we need

when he is woken up every three hours. He is sleeping more at nap times but

then he misses good development time. Are there any tricks we are missing?

thanks a ton!

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

[Guest guest]

Deb - may I ask why you are waking him up every three hours? Did a

physician suggest this? If it is because of hypoglycemia I

understand - but, sometimes they can go every four hours - which

would make it easier on you. Are you testing blood sugars at that

time too? If it were me and blood sugars seemed stable for certain

lengths of time, I would try to lengthen the sleeping time if

possible. What has your physician said and are you seeing an Endo?

Sorry - I can't remember if you previously mentioned this.

- H

>

> Hey there

>

> wondering if you have any tricks from having to wake your child up

to eat.

> We put True to bed at 7p, right after eating. We wake him at

10p, 1a, 4a,

> and then he wakes himself to eat at 7a.

>

> Last night after the 10p feeding he didn't go back to sleep until

2:30a.

> Then we had to turn around and wake him at 4a. He slept until

6:15 and hasn't

> been back down! I just don't know how he is going to get the

rest we need

> when he is woken up every three hours. He is sleeping more at

nap times but

> then he misses good development time. Are there any tricks we

are missing?

>

> thanks a ton!

>

> deb...mom to four fab adopted kiddos... (07.04.96-05.26.03)

with

> Mitochondrial Myopathy...G, 6, with High Functioning Autism,

Hypoglycemia and

> Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and

True 1yo, with

> Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed

GI problems

> plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice,

Oats and

> Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12

years to F--one

> swell guy!_ www.caringbridge.org/tn/wells/_

> (http://www.caringbridge.org/tn/wells/)

(http://www.lifeofloveproject.org/)

>

>

>

>

[Guest guest]

Deb - my endo has recently given me a prescription for certain blood

draws if Ian's blood sugars drops below 60. I carry it in my wallet

at all times just in case. My endo believes that bouts of

hypoglycemia can occur when there are actually issues with

GHormone. I'm sure he has been tested for GH and if he's anything

like Ian - it usually comes up fine.....but, he was always tested

during periods of time when he wasn't having hypoglycemia issues.

Anyway, I would be happy to share those blood draws with you if you

e-mail me privately. I don't feel it would be appropriate to list

it here as it is direct from a physician. Just a thought.

- H

>

> In a message dated 2/2/2006 10:11:47 AM Central Standard Time,

> earleyboys3@... writes:

>

> Deb - may I ask why you are waking him up every three hours? Did

a

> physician suggest this?

> yes...before our feeding schedule was 6a, 9a, 12p, 2p, 5p, 7p and

Midnight.

> Which still was a lot for a one year old, but he is on Neocate

only (an

> amino acid based formula) because of his major GI issues and

allergies. We plan

> to start food trails on the 19th of this month. But since we had

so many

> calories to cram in, and he vomitted when we tried to feed him

more volume and

> stretch it out. After the hypoglycemia started in January and we

were

> inpatient twice for it, they monitored his sugars every two hours

at night and saw

> during the 5 and 5 hours he usually fasts, he was dropping int he

low 60s so

> they said to go back to every three hours. The first time I

tried to fudge,

> he dropped to 52.

>

> If it is because of hypoglycemia I

> understand - but, sometimes they can go every four hours - which

> would make it easier on you. Are you testing blood sugars at

that

> time too?

>

> we are but usually they are right around 80...sometimes in the

70s after

> three hours.

>

> If it were me and blood sugars seemed stable for certain

> lengths of time, I would try to lengthen the sleeping time if

> possible. What has your physician said and are you seeing an

Endo?

> Sorry - I can't remember if you previously mentioned this.

>

>

> They came up wiht the plan...I can't believe they would expect us

to do this

> indefinitely. I mean, selfishly it would be nice to be able to

have more

> sleep. But unselfishly, its not good for him to have so much

interrupted

> sleep.

>

> We are waiting for the nurse to call back with the appt...nothing

in our

> local endo's office moves quickly. We have been home a week and

left multiple

> msgs and they are 'working on it'. We saw 3 of the 4 local endos

while we

> were in for our two hospitalizations. The fourth one is our

other son's endo

> and I love her, but not sure who they are going to asign us to

since she wasn't

> on call when we were in.

>

> thanks...and looking forward to your thoughts!

>

> deb...mom to four fab adopted kiddos... (07.04.96-05.26.03)

with

> Mitochondrial Myopathy...G, 6, with High Functioning Autism,

Hypoglycemia and

> Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and

True 1yo, with

> Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed

GI problems

> plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice,

Oats and

> Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12

years to F--one

> swell guy!_ www.caringbridge.org/tn/wells/_

> (http://www.caringbridge.org/tn/wells/)

(http://www.lifeofloveproject.org/)

>

>

>

>