Re: Thanks for the immediate support

[Guest guest]

Hi Veda,

My son is 8, almost 9. He has been on growth hormone for

several years. It has done wonders for him. He is defintely

bigger, stronger and eats better than without out. Also, the

combination of periactin and growth hormone have been great

for him. Periactin alone was OK and growth hormone alone was

excellent but together, for him, the results are wonderful.

So, my biased advice is, if you have the chance for growth

hormone, go for it.

Last, we have noticed any side affects.

I hope this helps.

Ken M

>

> Hi everyone. I am the mom who asked for info on Periactin

since my 9

> year old just began taking it a week ago. It was great to have so

many

> of you e-mail me immediately with your own experiences.

>

> For those of you I didn't speak with, my 9 year old daughter

was born

> 3.5 weeks early, weighing 4lbs 8oz when we took her home

and measuring

> 17 " long. She was always tiny and my pediatricians dismissed

my

> concerns since i am only 4'9 " . What they failed to see was that

my

> husband's height (5'11) should have also been considered.

She has had

> various health concerns that have only been addressed after I

started

> getting pushy and demanding that tests be done. We recently

discovered

> that she has Asthma and severe allergies to dustmites and

cats. She

> then was referred to an endocrinologist, Dr. Rotenstein, who

did some

> tests and determined that her bone age is a little over a year

younger

> than her actual age and her growth hormones are " normal. "

But since

> she lost weight from one visit to the next, they put her on the

> Periactin. If this doesn't work, they said we should consider

GH. What

> is the collective vote on GH? I am concerned about the long

term

> effects of this. If my daughter continues to grow at her current

rate,

> her adult height will be 4'10 " , but her estimated height based

on my

> husband's and my height should be 5'3 " . That's a significant

> difference which makes me feel that GH deserves to be

considered.

>

> I am not sure if she can be considered SGA, but she has had

GH issues

> with feeling full very easily, eating like a bird and constipation.

My

> gut tells me she also has some mild PDD-like symptoms

such as

> inability to maintain eye contact and difficulty understanding

body

> language and social interaction skills. She is immature for her

age.

>

> I can't describe to you the feeling I had when I came across the

Magic

> Foundation website. It was so amazing to see so many of my

daughter's

> characteristics described in one place. Finally there was a

connection

> to all the disparate characteristics I'd been concerned about

with my

> daughter. I know that our journey is just beginning and I hope

to

> learn and benefit from all of your experiences. Please feel free

to

> share any advice that you think may be helpful. Thanks.

>

> -Veda

>

> ps She is now 46.25 " and 44.25lbs which I believe is 3rd

percentile.

>

[Guest guest]

Hi. Welcome to the group. My 7.5 yr old son, non rss but with growth

issues...(3rd % height, now moving up on charts for weight...and dad

that is 6 ft 1 and I am 5 3.5) anyways, he was struggling with

weight and stopped gaining. a couple of months before he was 7 he was

35-36 lbs. He began to take periactin. It was amazing. He is now

43 lbs and 7.5 yrs, although his his height has not caught up, he is

no longer underweight and he acutally eats. It was a miracle for

him. It didn't work for my 2 yr old RSS daugher but we started it up

again and are trying it yet again.

I don't know anytign about GH so I can't help you there, sorry! Good

luck with everything.

mom to AUtumn RSS 2 yrs g-tube, miralax, periactin, athsma

meds , Summer SGA possible RSS 6.5 mos, Skye 7.5 yrs pericatin, Ocean

3.5 yrs

>

> Hi everyone. I am the mom who asked for info on Periactin since my 9

> year old just began taking it a week ago. It was great to have so

many

> of you e-mail me immediately with your own experiences.

>

> For those of you I didn't speak with, my 9 year old daughter was

born

> 3.5 weeks early, weighing 4lbs 8oz when we took her home and

measuring

> 17 " long. She was always tiny and my pediatricians dismissed my

> concerns since i am only 4'9 " . What they failed to see was that my

> husband's height (5'11) should have also been considered. She has

had

> various health concerns that have only been addressed after I

started

> getting pushy and demanding that tests be done. We recently

discovered

> that she has Asthma and severe allergies to dustmites and cats. She

> then was referred to an endocrinologist, Dr. Rotenstein, who did

some

> tests and determined that her bone age is a little over a year

younger

> than her actual age and her growth hormones are " normal. " But since

> she lost weight from one visit to the next, they put her on the

> Periactin. If this doesn't work, they said we should consider GH.

What

> is the collective vote on GH? I am concerned about the long term

> effects of this. If my daughter continues to grow at her current

rate,

> her adult height will be 4'10 " , but her estimated height based on my

> husband's and my height should be 5'3 " . That's a significant

> difference which makes me feel that GH deserves to be considered.

>

> I am not sure if she can be considered SGA, but she has had GH

issues

> with feeling full very easily, eating like a bird and constipation.

My

> gut tells me she also has some mild PDD-like symptoms such as

> inability to maintain eye contact and difficulty understanding body

> language and social interaction skills. She is immature for her age.

>

> I can't describe to you the feeling I had when I came across the

Magic

> Foundation website. It was so amazing to see so many of my

daughter's

> characteristics described in one place. Finally there was a

connection

> to all the disparate characteristics I'd been concerned about with

my

> daughter. I know that our journey is just beginning and I hope to

> learn and benefit from all of your experiences. Please feel free to

> share any advice that you think may be helpful. Thanks.

>

> -Veda

>

> ps She is now 46.25 " and 44.25lbs which I believe is 3rd percentile.

>