update on Dasia

[Guest guest]

I'm sitting here with tears running down my cheeks! I pray to God that we never

have to go through this. We're thinking of you and praying for you guys!

Jeanie

Donna wrote:

,

It rips your heart into shreds when they do that. Because you knew how much it

hurts but you are powerless to do anything but, try to comfort them and hold

them. They don't understand that you can't take away the pain even though you

would do anything in the world to. I know that when Eva has had her surgery's

and it is a test of faith for me. But, just know that someday that she will

understand that you did everything you could.

You all are in my prayers, hang in there girl.

Donna, mom to Eva G.

wrote:

The good news is everything went according to planned, the bad news

is, I was no where near prepared to see Dasia in so much pain. She

would grip onto me shaking when they would try to go near her stomach,

and she cried throughout the day, and napped a little in between. I

barely held it together. After a very LONG day, thankfully my husband

let me come home, and he stayed the night with her, I'll go back 1st

thing in the morning after I get my other daughter on the bus. Also

from what Chad says, she is much less whiney when I'm not around to

complain to. I know she's in good hands, and I can get some much

needed rest, I'm so exhausted. Good night everyone.

[Guest guest]

as always i am think of Dasia in this time of need it is so hard to see our kids

in pain. i the end we all know we do it for there best chances

cara mom to jacob

wrote:

The good news is everything went according to planned, the bad news

is, I was no where near prepared to see Dasia in so much pain. She

would grip onto me shaking when they would try to go near her stomach,

and she cried throughout the day, and napped a little in between. I

barely held it together. After a very LONG day, thankfully my husband

let me come home, and he stayed the night with her, I'll go back 1st

thing in the morning after I get my other daughter on the bus. Also

from what Chad says, she is much less whiney when I'm not around to

complain to. I know she's in good hands, and I can get some much

needed rest, I'm so exhausted. Good night everyone.

[Guest guest]

The good news is, Dasia is finally thriving since the surgery! After

taking her first steps 5 months ago, she's now walking everywhere,

(backwards, sideways, with and without shoes). She's talking up a

storm, even sings and dances! She laughs and plays with so much more

animation, and we have been able to enjoy her so much more, not having

to worry about her gaining or losing weight. It is a complete turn

around for her, and for us. Just like everone said, one month later,

and she's a totally different child. Her therapists are amazed at her

progress, and PT has been lowered to once a week. The complications

with reflux and granulation tissue really pale in comparison to the

gains she has made in the last month.

We also found out she'll most likely be on meds for her thyroid, she

had high TSH levels, and we need to go back for more in depth testing.