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Worried about the future

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Hello everyone,probably a strange question but do any RSS kids grow up

without any major medical intervention.ie feeding tubes,special diets

etc.My Ped seems to think " everything is absolutly fine and Morven

will just need growth hormones when she is 5/6 and then everything

will be fine " .Does anyone know of any kids who have grown up without

any problems?

Its just Im reading the posts and getting myself terrified about the

future.I know everyone else is coping but it just all seems so

scary.Especially as we dont seem to have the expertise her in UK.

Thanks Mum to Morven 16mths Might have RSS.

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