Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 In a message dated 4/24/2005 3:12:48 P.M. Eastern Daylight Time, lvchefmel@... writes: Body Ecology Diet do u have the link for that questionaire about yeast by chance? Been looking for something to find out if my dd has a yeast problem *~*~*~*~*~* Lena *~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 I've never taken the enzymes myself, so I don't know if your diarrhea is enzyme related, but I did have a virus last week that caused me to have HORRIBLE cramping, no energy, and very bad diarrhea. Glad to hear you are taking the probiotics. I took them too, at high doses, and alternated with charcol tablets. The charcol sweeps the " bad stuff " out of your system. This is the only advise I can give, and what worked for me. Probiotics and charcol. Good luck! towanda219 <noway@...> wrote: Hi, My son with Aspergers has been taking pepizyde & zyme prime for over a year and has been able to successfully stop the GFCF diet with these supplements. Recently, I have been having many health problems that appear to be autoimmune and have many similarities to my sons health issues. I decided to try the enzymes myself last week and have been having severe stomach pains and diarrhea ever since. I stopped taking the enzymes 4 days ago and it isnt getting any better. Could the enzymes have caused this? Things were not perfect before but this really seems to have pushed things to a whole new level of problems. Last night, I took two doses of pepto bismol because I had to do something to try and stop this and today it is just as bad. I have stopped all other vitamin supplements and am only taking probiotics now and a pain medication (Mobic at night before bed) for the joint pains related to my autoimmune problems. The more I read about diarrhea and dehydration, the more frightened I become. Can anyone tell me how to stop this and if the enzymes are to blame. Any input would be greatly appreciated. I can't get to the doctor till tomorrow and frankly he knows very little when it comes to " alternative " treatments. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 >>>>> My son with Aspergers has been taking pepizyde & zyme prime for over a year and has been able to successfully stop the GFCF diet with > these supplements. Yea! Is he happy about that? >>>I decided to try the enzymes myself last week and have been having severe stomach pains and diarrhea ever since. How much of what enzymes did you take? And how is this pain different than before. and what part of the gut is the pain at? Stomach, mid gut, colon? If you could be more specific it would help. Has the pain changed at all in the four days either way? >>>> The more I read about diarrhea and dehydration, the more frightened I become. Unfortunately, we can't look through a window into our guts to see what is going on. So we have to guess and wonder...this can be frightening as well as frustrating. Keep drinking electrolytes (pedialyte or gatorade are handy although there are probably better things out there). Someone posted already about the BRAT diet for diarrhea. I'll wait to hear from you (feel free to write me privately too if you like). . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 I also started taking the enzymes. They all but cured my IBS. I only take one of each with meals. I know that a lot of kids have die-off. I think has had some but others have more. You could try probiotics to help replace good bacteria, I drink at least one DanActive a day. More because I just like it but the good buggies could be doing something too? I think diarrhea is the way our body gets rid of a lot of toxins. Please someone correct me if I am wrong. If you have a major yeast problem, which many women do-I know I do, you may be taking too much too soon. Is the pain gas pain? The Houstons site talks about gas being a problem for a few days until the body gets acclimated. I saw on the Body Ecology Diet web site a questionnaire to see if a person has a yeast issue. Don't know just how reliable but I thought it interesting. Dehydration is a serious problem if prolonged. If you think you are becoming seriously dehydrated please see medical attention. Our bodies have a tremendous ability to heal ourselves but we have to exercise caution as well. jornmatt <kjorn@...> wrote: >>>>> My son with Aspergers has been taking pepizyde & zyme prime for over a year and has been able to successfully stop the GFCF diet with > these supplements. Yea! Is he happy about that? >>>I decided to try the enzymes myself last week and have been having severe stomach pains and diarrhea ever since. How much of what enzymes did you take? And how is this pain different than before. and what part of the gut is the pain at? Stomach, mid gut, colon? If you could be more specific it would help. Has the pain changed at all in the four days either way? >>>> The more I read about diarrhea and dehydration, the more frightened I become. Unfortunately, we can't look through a window into our guts to see what is going on. So we have to guess and wonder...this can be frightening as well as frustrating. Keep drinking electrolytes (pedialyte or gatorade are handy although there are probably better things out there). Someone posted already about the BRAT diet for diarrhea. I'll wait to hear from you (feel free to write me privately too if you like). . --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 Thank you all for the well informed responses to my help question. I find it difficult to describe the stomach pain, just flu-like going to throw up feeling. I only took one peptizye and one zymeprime before each meal. I am guessing that if this is not a common problem with starting enzymes, I must have some yeast overgrowth issues and/or a lot of toxins being removed. I will keep treating with probiotics and hopefully things will get under control soon. The enzymes have changed my son's life for the better in so many ways. He has been able to go on out of state field trips without having to pack a separate bag for his food. He eats the horribly un-nutricious garbage that they serve in the school cafeteria everyday and he loves it! It has really helped him to " fit in " at school. And how it has changed my life! I no longer spend my days baking everything for him. His health is better all around. Sometimes, he is so well that he thinks he is cured and tries eating without the enzymes. I can always tell when he does this because he gets puffy allergy eyes, is fatigued, irritable and complains of stomach pain. I think he will probably always need them and I am just so pleased that this treatment is available for him. > > >>>>> My son with Aspergers has been taking pepizyde & zyme prime for > over a year and has been able to successfully stop the GFCF diet with > > these supplements. > > Yea! Is he happy about that? > > > >>>I decided to try the enzymes myself last week and have been having > severe stomach pains and diarrhea ever since. > > How much of what enzymes did you take? And how is this pain different > than before. and what part of the gut is the pain at? Stomach, mid > gut, colon? If you could be more specific it would help. Has the pain > changed at all in the four days either way? > > > >>>> The more I read about diarrhea and dehydration, the more > frightened I become. > > Unfortunately, we can't look through a window into our guts to see > what is going on. So we have to guess and wonder...this can be > frightening as well as frustrating. Keep drinking electrolytes > (pedialyte or gatorade are handy although there are probably better > things out there). Someone posted already about the BRAT diet for > diarrhea. I'll wait to hear from you (feel free to write me privately > too if you like). > > . > > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 >>>> I find it difficult to describe the stomach pain, just flu-like > going to throw up feeling. This is the common way that 'die-off' is described. As a general nauseating flu-like situation. Maybe with head-aches, general fatigue, etc. As opposed to a stabbing pain or throbbing pain in certain areas only. >>>I will keep treating with probiotics and hopefully things will get under control soon. and you might want to continue with the enzymes (zyme prime only) for awhile. Then in a few weeks add in the Peptizyde again very slowly. This 1-2 approach tends to minimize the adverse reactions and make the die-off more tolerable. Lots of pure water and antioxidants helps too. I generally think of diarrhea as the body trying to flush something out it doesn't like. >>>The enzymes have changed my son's life for the better in so many ways. I am soooo happy for your son and your whole family!!! wa-HOOO, doing a Happy Dance for you guys!!!! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 YEAH for your son!! So far I think my son can come off his diet as well. The dairy still makes me really nervous, no one in our family seems to tolerate it. But cheating on his diet has always produced many reactions and I am not getting them with the enzymes. I am hoping this will continue and we won't have to be so careful about what he eats. Going out of town won't be such a hassle either!! I am hoping that will open up and eat more things. He is such a skinny little thing. I am so happy for you and hope you feel better soon. I think the enzymes are a blessing. It is wonderful to be able to eat and not feel sick! Such an easy fix to something doctors seem so baffled by!! Moms are so smart (Dads too!). Best Wishes, towanda219 <noway@...> wrote: Thank you all for the well informed responses to my help question. I find it difficult to describe the stomach pain, just flu-like going to throw up feeling. I only took one peptizye and one zymeprime before each meal. I am guessing that if this is not a common problem with starting enzymes, I must have some yeast overgrowth issues and/or a lot of toxins being removed. I will keep treating with probiotics and hopefully things will get under control soon. The enzymes have changed my son's life for the better in so many ways. He has been able to go on out of state field trips without having to pack a separate bag for his food. He eats the horribly un-nutricious garbage that they serve in the school cafeteria everyday and he loves it! It has really helped him to " fit in " at school. And how it has changed my life! I no longer spend my days baking everything for him. His health is better all around. Sometimes, he is so well that he thinks he is cured and tries eating without the enzymes. I can always tell when he does this because he gets puffy allergy eyes, is fatigued, irritable and complains of stomach pain. I think he will probably always need them and I am just so pleased that this treatment is available for him. > > >>>>> My son with Aspergers has been taking pepizyde & zyme prime for > over a year and has been able to successfully stop the GFCF diet with > > these supplements. > > Yea! Is he happy about that? > > > >>>I decided to try the enzymes myself last week and have been having > severe stomach pains and diarrhea ever since. > > How much of what enzymes did you take? And how is this pain different > than before. and what part of the gut is the pain at? Stomach, mid > gut, colon? If you could be more specific it would help. Has the pain > changed at all in the four days either way? > > > >>>> The more I read about diarrhea and dehydration, the more > frightened I become. > > Unfortunately, we can't look through a window into our guts to see > what is going on. So we have to guess and wonder...this can be > frightening as well as frustrating. Keep drinking electrolytes > (pedialyte or gatorade are handy although there are probably better > things out there). Someone posted already about the BRAT diet for > diarrhea. I'll wait to hear from you (feel free to write me privately > too if you like). > > . > > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 I searched the body ecology website and didn't find it. The site is www.bodyecologydiet.com I guess that was in her book. I met her at a DAN! conference in San Diego and she later mailed me the book. The book is very informative even if you aren't wanting to do the diet. You can find it on Amazon for sure, don't know about stores. I haven't unpacked all my books from the move yet but will get out in the garage tomorrow and look. I will either scan it in and if you are okay getting an attachment from me I will send it off that way, we do have antivirus software. If that isn't okay, I will see about just typing in what I can. I am sorry. I did do a search and found some sites that sounded pretty interesting. I didn't read too much but they looked good. I hope that helps. I know that there are so many people with yeast issues that don't know it. I will let you know when I can find that information for you. www.nationalcandidacenter.com/test3.htm www.health-truth.com/questionnaire.asp www.candida treatment.org www.medical-library.net/sites/framer.html?/sites/yeast_syndrome.html cbfllady@... wrote: In a message dated 4/24/2005 3:12:48 P.M. Eastern Daylight Time, lvchefmel@... writes: Body Ecology Diet do u have the link for that questionaire about yeast by chance? Been looking for something to find out if my dd has a yeast problem *~*~*~*~*~* Lena *~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Great, according to all those tests my dd does not have a yeast problem. Thank you! ¶*:._.:*¶*:._.:*¶ Lena ¶*:._.:*¶*:._.:*¶ Re: Re: Help! I searched the body ecology website and didn't find it. The site is www.bodyecologydiet.com I guess that was in her book. I met her at a DAN! conference in San Diego and she later mailed me the book. The book is very informative even if you aren't wanting to do the diet. You can find it on Amazon for sure, don't know about stores. I haven't unpacked all my books from the move yet but will get out in the garage tomorrow and look. I will either scan it in and if you are okay getting an attachment from me I will send it off that way, we do have antivirus software. If that isn't okay, I will see about just typing in what I can. I am sorry. I did do a search and found some sites that sounded pretty interesting. I didn't read too much but they looked good. I hope that helps. I know that there are so many people with yeast issues that don't know it. I will let you know when I can find that information for you. www.nationalcandidacenter.com/test3.htm www.health-truth.com/questionnaire.asp www.candida treatment.org www.medical-library.net/sites/framer.html?/sites/yeast_syndrome.html cbfllady@... wrote: In a message dated 4/24/2005 3:12:48 P.M. Eastern Daylight Time, lvchefmel@... writes: Body Ecology Diet do u have the link for that questionaire about yeast by chance? Been looking for something to find out if my dd has a yeast problem *~*~*~*~*~* Lena *~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 >>I decided to try the enzymes myself last > week and have been having severe stomach pains and diarrhea ever > since. I stopped taking the enzymes 4 days ago and it isnt getting > any better. Could the enzymes have caused this? This is a good description of my reaction. I was using enzymes with all foods, and most of what I was eating I did not tolerate. So I had massive adjustment, which caused massive diarrhea and stomach cramps. I stopped the enzymes after only 3 days, but I basically could not eat [and even lost my appetite] for about a month, maybe 5 weeks. When I started eating again, I used a lower dose of the enzymes with all foods, and that worked. >>Can anyone tell me how to stop this and if the enzymes > are to blame. I stopped eating altogether, no foods or supplements, just drank water. Then when I started eating again, I used enzymes with ALL foods. It took a while to determine which foods caused the problems and required enzymes. As a side benefit, I lost over 40 pounds in about 3 months! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 I started my son on enzymes when he was 11 yrs old. He is 14 yrs old now. I didn't noticed anything spectacular at the beginning but since he was not doing any worse and I had paid for the enzymes already I kept on giving them to him for every bite of food he ate (btw I started the three enzymes one capsule each from the beginning... I know not the best way but I was pretty desperate at the time) A couple of months later family and friends started commenting how much calmer he was, how he seemed to understand and interact better, etc His siblings started making comments like " the magic pills " and why didn't I tell everyone about them...now they say that I can cure EVERYTHING with enzymes So my point is that for some kids the improvements might not seem that obvious and might take a little more time. Vilma > I have three boys with autism, twins 14 and a three year old. They > have all been on peptyzide and zymeprime from houston naturals for > about a month. One twin is on chewable, one on capsules and three year > old on powder. All at one capsule and powder at 1/4 tsp. Not seeing > any difference in any the twins. The smallest twin (non verbal) was > throwing up after eating and having powder supplelment so I switched > to chewable, he is doing much better, no gagging but not seeing any > weight gain (which he desperately needs) I began hearing some sounds > from nonverbal 3 yo but no other gains. He is a very picky eater so I > have a hard time getting the supplements into him. Any suggestions? I > have read such positive things about the supplements but maybe I am > doing something wrong. I don't think uping the dosage would work, I > worry it will make them throw up. Thanks for you help. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 , Don't think you are doing anything 'wrong'. Personally, I would try upping the dose, but if you don't think that is worth doing, then just stick with it. Kids getting into the teens and adults may take longer. It might be because they have just had longer to incur more physical problems and nutritional deficiencies that need fixing. It could also be they are older and have learned coping mechanisms. The person could be feeling better, but it doesn't 'show' on the outside yet. We know two teens in our area that started enzymes. I remember they gave one per meal because that is all one family would venture on, and the other family could only get one down the kid at a time. By the second and third month, there were noticeable differences that non- family people were commenting on. By the fourth month, one of the teens refused to eat anything without enzymes because she felt so significantly better. If the kids are throwing with higher amounts of enzymes, it could be they just need more 'low and slow' healing as you are doing. My son was a gagger-refluxer for years. Into the third and fourth month with enzymes, he gradually stopped doing this until it stopped completely. That was over 3 years ago. It was a healing process. So just keep up with the enzymes and they can heal in time. Do your sons have any stomach or yeast problems? The only other adjustment to try is have the kids take enzymes whenever they eat. Sometimes including with snacks makes a more noticeable difference in the beginning. In general, the more enzymes you can get down, the faster the healing happens. But then, we have to live in the real world too and do what we can. Please, please keep us posted. I think the older kids are very interesting cases as they have less options. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 >>Any suggestions? I > have read such positive things about the supplements but maybe I am > doing something wrong. I don't think uping the dosage would work, I > worry it will make them throw up. It might work to increase the dose after they have been using the enzymes for 3 weeks or so. You might want to add No-Fenol, see if they are having problems with phenol foods that the No-Fenol would address. For my kids, I used all three enzymes but there were still foods they could not eat. So you can experiment, see if you notice any changes. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Give extra vitamin C. I gave the powdered form to my daughter in her rice milk. If you reach diarrhea, then you just cut back the dose and you should get normal stools. My daughter used to have constipation, but now with a daily dose of Vitamin C, she has normal poops. The good thing about vitamin C is that it is water soluble, and when the body gets all it needs, then it expels the rest by diarrhea. So, you just keep going up until that happens and then back off a little. You basically can not go toxic on it.--Tod -- In , Janet Molsberry <jmolsber@s...> wrote: > Our little Zoe (3 years old preemie twin) is pooping little light > brown pellets What can we give her She is potty training and > tending toward constipation alot lately Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 > Our little Zoe (3 years old preemie twin) is pooping little light > brown pellets What can we give her She is potty training and > tending toward constipation alot lately Milk and rice tend to be constipating, so you can remove or reduce those and see if it helps. Magnesium and vitamin C supplements can work well. Here are other constipation ideas http://www.danasview.net/constip.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 What Vit. C are you using? I was giving this for concipation and noted after that there is Calcium and Mag in it. I am using Twinlabs buffered Vit C. Is this suitable or not Thanks Aileen > > Our little Zoe (3 years old preemie twin) is pooping little light > > brown pellets What can we give her She is potty training and > > tending toward constipation alot lately Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 So sorry to hear that your foot is hurting so much, . Maybe you should have an x-ray just to be safe (and to avoid having to go in again). If I lived near you, I'd give you a ride to your appointment, but aren't you in Canada? Vent anytime. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Help! > Hello. > > I swear, if it isn't one thing going wrong around here...it's > another. I tripped over the cat in the dark a few nights ago and my > foot was sore instantly. Nothing major....just hobbled back to bed. > Now, since I started a flare today, I can't put any weight on my foot > this afternoon. I was limping this morning, now it's become so much > worse. I go to my doctor tomorrow afternoon, and he might send me > for an x-ray. Not sure what he'll do. > > I am a total wreck here. I have kids to take care of, my boyfriend > is gone to a meeting until 10:30pm, I have to take care of two young > girls tomorrow morning, and the parkade where my doc is located is > closed for renovations. I have to park and walk a couple of blocks > (provided I can even get a spot!). To top it off....I don't know how > the heck I am supposed to walk up the stairs/ramp to the building, > make my way to the elevator, then walk down the long hallway to the > office. I have crutches, but I don't have the strength in my > hands/wrists/elbows to use them. > > I am so sorry to vent here, but there is nobody else around that > would understand. I hope and pray that this isn't a stress > fracture. What worries me most is that it's only the one foot I hurt > a few days ago, and the other foot is no worse/stiff than usual. > It's odd to have this much pain located in one area. When my RA > flares, I get it all over - both sides. > > Thanks for listening....just needed to get it off my chest. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Hi ! It makes me feel better to hear someone else whine,so please do all you want.Check with you're insurance co.and see if they will cover renting a Hover Round or what ever you call those electric thingys. Hope you feel better soon!!-Tammy- > Hello. > > I swear, if it isn't one thing going wrong around here...it's > another. I tripped over the cat in the dark a few nights ago and my > foot was sore instantly. Nothing major....just hobbled back to bed. > Now, since I started a flare today, I can't put any weight on my foot > this afternoon. I was limping this morning, now it's become so much > worse. I go to my doctor tomorrow afternoon, and he might send me > for an x-ray. Not sure what he'll do. > > I am a total wreck here. I have kids to take care of, my boyfriend > is gone to a meeting until 10:30pm, I have to take care of two young > girls tomorrow morning, and the parkade where my doc is located is > closed for renovations. I have to park and walk a couple of blocks > (provided I can even get a spot!). To top it off....I don't know how > the heck I am supposed to walk up the stairs/ramp to the building, > make my way to the elevator, then walk down the long hallway to the > office. I have crutches, but I don't have the strength in my > hands/wrists/elbows to use them. > > I am so sorry to vent here, but there is nobody else around that > would understand. I hope and pray that this isn't a stress > fracture. What worries me most is that it's only the one foot I hurt > a few days ago, and the other foot is no worse/stiff than usual. > It's odd to have this much pain located in one area. When my RA > flares, I get it all over - both sides. > > Thanks for listening....just needed to get it off my chest. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 yes, its not just me. lol. Cassy > > Hello. > > > > I swear, if it isn't one thing going wrong around here...it's > > another. I tripped over the cat in the dark a few nights ago and > my > > foot was sore instantly. Nothing major....just hobbled back to > bed. > > Now, since I started a flare today, I can't put any weight on my > foot > > this afternoon. I was limping this morning, now it's become so > much > > worse. I go to my doctor tomorrow afternoon, and he might send me > > for an x-ray. Not sure what he'll do. > > > > I am a total wreck here. I have kids to take care of, my boyfriend > > is gone to a meeting until 10:30pm, I have to take care of two > young > > girls tomorrow morning, and the parkade where my doc is located is > > closed for renovations. I have to park and walk a couple of blocks > > (provided I can even get a spot!). To top it off....I don't know > how > > the heck I am supposed to walk up the stairs/ramp to the building, > > make my way to the elevator, then walk down the long hallway to the > > office. I have crutches, but I don't have the strength in my > > hands/wrists/elbows to use them. > > > > I am so sorry to vent here, but there is nobody else around that > > would understand. I hope and pray that this isn't a stress > > fracture. What worries me most is that it's only the one foot I > hurt > > a few days ago, and the other foot is no worse/stiff than usual. > > It's odd to have this much pain located in one area. When my RA > > flares, I get it all over - both sides. > > > > Thanks for listening....just needed to get it off my chest. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 , So sorry you have hurt your foot. I hope everything is ok and it isn't a stress fracture. Let us know what the Dr. says. Hope you feel better soon. Beth(AR) --- ltlmisscrankypants <ltlmisscrankypants@...> wrote: > Hello. > > I swear, if it isn't one thing going wrong around > here...it's > another. I tripped over the cat in the dark a few > nights ago and my > foot was sore instantly. Nothing major....just > hobbled back to bed. > Now, since I started a flare today, I can't put any > weight on my foot > this afternoon. I was limping this morning, now > it's become so much > worse. I go to my doctor tomorrow afternoon, and he > might send me > for an x-ray. Not sure what he'll do. > > I am a total wreck here. I have kids to take care > of, my boyfriend > is gone to a meeting until 10:30pm, I have to take > care of two young > girls tomorrow morning, and the parkade where my doc > is located is > closed for renovations. I have to park and walk a > couple of blocks > (provided I can even get a spot!). To top it > off....I don't know how > the heck I am supposed to walk up the stairs/ramp to > the building, > make my way to the elevator, then walk down the long > hallway to the > office. I have crutches, but I don't have the > strength in my > hands/wrists/elbows to use them. > > I am so sorry to vent here, but there is nobody else > around that > would understand. I hope and pray that this isn't a > stress > fracture. What worries me most is that it's only > the one foot I hurt > a few days ago, and the other foot is no worse/stiff > than usual. > It's odd to have this much pain located in one area. > When my RA > flares, I get it all over - both sides. > > Thanks for listening....just needed to get it off my > chest. > > > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2005 Report Share Posted November 24, 2005 my 17 month old has been on diflucan for about 2 months and ever since then she has had problems with strept. I think clearing out the yeast has made the bacteria problems worse, so now we are having to treat with antibiotics for the past 10 days which I think is killing her stomach and making her not want to eat. She can't afford this because she's already underweight, any help please???? Thanks, Re: Seizures, enzymes - need advice! Has she tried B6? http://faculty.washington.edu/sgospe/pyridoxine/Webpages/pubs.html My daughter uses a combination of B6, B12 and Folinic Acid to control seizures. Head drops and sensory seizures were the main types. P --- nikitasmom33 <nikitasmom33@...> wrote: > Hi, all > I have a friend with 2yo son. He is suffering with > frequent seizures - > up to 100-200 a day. They are not like typical > seizures - his > suddenly shudders with all his body and then all his > muscles suddenly > loose tonus and he collapses like jellyfish. Just in > 1 sec after that > he is up again like nothing has happened. These > seizures can happen > at daytime and during the sleep, especially when he > is falling > asleep. At daytime the mother has to keep him in > reins all the day > because of his constant collapses - every 3-5 min. > They tried > different anticonvulsant drugs. Some of them did not > work at all, > some drugs could reduce quantity of seizures down to > 40-60 a day > initially but then again he would have 100-200 > seizures a day. She > tried to add magnesium - he had even more seizures. > In spite of > constant seizures he has not regressed. He has over > 25-30 words by > now and is slowly gaining more. Probably he is > hyperactive and has > problem with attention but otherwise seems Ok. > The other problem - he refuses to eat completely. > They have to > forcefeed him. They tried not to feed him for 2 days > - he still > refused to eat. And with anticonvulsant drugs his > refusal to eat > became even worse. He's got constant constipation > interchanging with > diarrhoea. His tummy is swollen most of the time. > Supposing that the seizures might be caused by > intestinal troubles > his mother is trying CF diet now. She introduced > Peptizyde three > weeks ago with no noticeable improvement. He refuses > to eat even > more. Now he can't eat meat at all - just throws it > up. In a few days > after starting Peptizyde his BM got loose with sour > smell. And his > sweat smelled sour. She did not give Peptizyde for > two days and the > sour smell in his sweat disappeared. Though his > poops still smell > sour. What could cause this smelly sweat? Detoxing? > Then the mother took the plunge and went casein > free. Today he is 5 > days casein free. He still rejects any food, she has > to feed him > while he is asleep. There was no obvious improvement > in his bowel > movements, no changes in seizures frequency. But his > behaviour got > worse and he's got dark circles under eyes. It might > be withdrawal > from dairy or might be intolerance to nuts she gives > him instead of > dairy. How could she say which is the case? If it is > withdrawal how > long it might take? I thought 5 days for 2yrs old is > long enough. > Should she keep on it longer? > Any inputs regarding seizures and rejecting food, > please? > Thanks > Galina > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 > > my 17 month old has been on diflucan for about 2 months and ever since then she has had problems with strept. I think clearing out the yeast has made the bacteria problems worse, so now we are having to treat with antibiotics for the past 10 days which I think is killing her stomach and making her not want to eat. She can't afford this because she's already underweight, any help please???? I would try dropping the Diflucan and increasing your antibiotics, maybe add OLE also. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Others will know more about the sleeping, it is a very common issue. I think it is 5HTP or something like that that helps people stay asleep where melatonin only helps you get to sleep. My first questions would be to ask what have you done biomedically so far? I don't know how far you are into this process, sorry! For me I would first get hair tests done on all three boys. That will give you a good jumping off point. It will let you know about metal poisoning and vitamin and mineral dificencys. I would then get them on digestive enzymes, good source of omegas, probiotics, and any vitamins and minerals they are low in. Bipolar, ADHD, ODD are all possible outcomes from mercury poisoning. Clearing that out of their bodies can potentially help them tremendously. Have you looked at... Autism Research Institute www.ari.com Generation Rescue www.generationrescue.org Andy Cutler's book Amalgam Illness is good for explaining everything about mercury and what it does to our bodies and how to get rid of it. I think his website is www.amalgamillness.com There is a TON of information out there. I just know if it were me starting out again the hair test would be the first I would get. Followed by the IgG to test for food intolerances. I would want to know what I was dealing with before jumping in. Are your kids vaccinated? Just wondering. Homeopathy is another option to look at. Amy Lansky has a great book called the Impossible Cure. Another great book is Children with Starving Brains...can't recal the author right now though. Ajerseygirl52@... wrote: Hello... My name is Sue and I am a fairly new member! I have a 17 year old with severe nonverbal autism and adhd. I also have 3 other younger children, 2 of which have disorders. I am requesting information from everyone from this group. Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 hours at night, and then does several thing randomly. He wakes up his 3 and 5 year old siblings anywhere from midnight until 4 am and they don't go back to sleep (so I don't get to go to sleep). Or he binges thru the cabinets and fridge to get food or juice. Or he goes thru the house looking for newspapers, books, maps, whatever he can read, and making a lot of noise and messes along the way. Or he goes into his sleeping brother's room and binges thru his book bag or goes into the closet (we use my 12 year old's closet as a storage closet), and makes a mess....Then after doing 1 or all of the above, he goes back to bed, and sleeps for another 3-5 hours. Then wakes up and goes to school. He takes melatonin to help him sleep, but apparently it's not working or not working enough. Like he woke up at 3:00 this morning and I gave him 6mg of melatonin and now he's asleep again, but my 3 and 5 year old are awake. Any suggestions on this matter would be greatly appreciated and totally thankful! Thank you. I don't post a lot (mainly because I have a very choatic and busy life sometimes), but want to say I love this group! It's very supportive and informative! Have a great Friday and look forward to hearing from everyone! Hugs and Blessings, Sue 'Wife to: Jim Mom to: 17 (severe nonverbal autism, developmental delays and adhd ) 12 (early onset bipolar disorder, adhd, and possible ODD) 5 (developmental delay and adhd) na 3 (totally average girl with no disabilities, delays or disorders so far Thank God!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 > Maybe suggestions or advice? My 17 year old doesn't sleep for more then 3-5 > hours at night, This is commonly caused by milk intolerance, phenol intolerance, or yeast overgrowth http://www.danasview.net/phenol.htm http://www.danasview.net/yeast.htm > fridge to get food or juice. Most juice is high phenol and feeds yeast. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 --- Ken, Her fears a valid.I think when you have our condition and you know you are not getting better..you start doing less and less. It is obvious to those who care about you ,that this is a big change in what they were used to. I believe everyone gets to the surgery option when they have just had it with this way of living and the pain, takes some folks longer than others. For me I decided fairly quickly that I was not going to live like this. My pain started June 2005 and I just had surgery Jan 2006. I am 45 and could not imagine living like I was...the pain and inability to participate in my childrens lives, I have 4 kids. I just came home from my 14year olds lacrosse game...I can tell I am on the road to recovery and I am so, so glad to be free of that nasty pain!!, PA In , " kclnt777 " <kclnt777@...> wrote: > > Hello All, > > I know I haven't been on much lately, hope you are all doing well.. > Been keeping you in my prayers (especially those recovering and > getting ready for surgery)... > > The reason I am writing today is becuase (I am missing my daughters > cheerleading competition) and I could really use some advice on how > to handle my wifes fears about my future... As I have mentioned, This > has been a hard year for us in terms of adjusting each month to more > limitations, well, I think it is starting to take its toll on her. > She is starting to question if this is just going to be " the way it > is from now on. " > > Since you are the only ones that I know going through this and so far > I have not read any mention of any one doing worse after surgery, I > tell her I have an excellent chance of improving - but - will most > likely never be exactly the same as I was a couple years ago... > > I would appreciate any feedback you can offer... > > Thank you, Ken. > Quote Link to comment Share on other sites More sharing options...
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