National Jewish Hospital

[Guest guest]

Greetings,

I'm here to inquire and/or complain. I was seen at NJH October 8th and 9th. I

was told they would send for my biopsy slides from University of Tennessee and

decide on a course of treatment when they had reviewed them. To date I have not

heard from them but to say they had not yet received the slides. That was

probably in October (memory fails me as I didn't write it down). I already have

my reports from them as to all tests and recommendations.

I've been in touch with them for advice about a URI that four courses of

different antibiotics has not covered. Dr. Hines said I needed a culture while

there twice but never did one. After talking to NJH this morning I was told to

call my Dr. and if that fails, go to urgent care and let them know how I'm doing

later in the week.

So, I finally called UT pathology myself concerning the slides. It seems they

were sent October 20th and they already have the report back from NJH. To say

I'm baffled is an understatement. I now need a culture; but nobody would do one

before antibiotics were started and I am having too many problems to wait a week

without treatment. Question here: If this microbe can survive 4 different

antibiotics and continue to thrive, then why must I wait 7 days for a culture to

be valid? The darn bug is as healthy as ever and should grow in abundance! FYI,

antibiotics were, Leviquin, Augmenten, Doxycycline and Omnicef.

The good news, I hope, is that I have an appt to see a pulmo here at last. It

is a week from today. Meanwhile I am getting sicker by the day and, it seems,

will need antibiotics before my seven days off antibiotics is complete. Looks

like urgent care or my largely disinterested internist will have to do. I have

a call in to him now.

If anyone has any other suggestions I'm all ears. Looks like this is more of a

complaint than inquiry as it seems, after writing this, that I am doing the best

I can for now. Still wonder about the biopsy slide thing and why they have not

called.

ann

PF, NSIP, HP, Bronchiectisis in five lobes, and who knows what next!