How do get a diagnosis?

[Guest guest]

Hello Everyone,My name is and I'm brand new to the group. I joined because I suspect that I may have neurosarcoid. Almost ten years ago I developed symptoms of painful "pins and needles" on my face and head that were concurrent to periods of confusion and disorientation. I've also had "red rashes" on my face, loss of taste and smell, and other troubling signs warning of a possible neurological condition. Since 2001 I've seen a psychiatrist, two neurologists, and had a battery of neuropsyc assessments. Every diagnostic tool has returned results that were either inconclusive, or unremarkable. I wonder if anyone is willing to share their story of how they were diagnosed? I have read a considerable amount of material and can find no inconsistency between my symptoms and those experienced by neurosarcoid

sufferers. What tests should I be asking for to get an official diagnosis?Any insight anyone here can provide could be very helpful and would be much appreciated.Many thanks.Chris