Guest guest Posted April 20, 2011 Report Posted April 20, 2011 hi all just wanted to send a little update - believe it or not, my headaches were probably caused by the fact that my blood pressure had suddenly gone whacky. after a week full of PCP visits & measuring my bp @ 140/90, i finally had had enough and went to the emergency room two days ago, and they measured it at 178/103. got some basic blood pressure meds now, my bp is textbook normal, and the headaches are 80% gone. so there is some good news. the vertigo, the light-headedness (i've stopped calling it dizziness, because i haven't fallen over even once yet) and the foggy - can't - quite - concentrate feeling are still with me, but they're a little better. we continue to work on this, and we're giving the bp meds a few days to see if these feelings get any better. had some good conversations with my PCP, he has told me that he would support any efforts toward getting disability. i didn't even have to ask, he volunteered it. he suggests i look into part-time work, if i think i can handle it, and if i do, that'll lower my income & i'll finally qualify for all those assistance programs that have recently turned me away. the irony... i found a good neurologist locally who knows sarcoid (i still thank you JoDee!) and we're looking into the other symptoms - the new numbness on my hands, and the tingling on my face & on my tongue. i'm going in for a lumbar puncture next week - would love to hear of anyone's experience with that. one last time, my thanks for all the help and recommendations and advice, and patience through my little panic attacks. Connie, i may have some questions for you in the near future! chris Quote
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