Re: Arimed in NYC? Starband Results/Opinions.

[Guest guest]

Hey ,

Luke started wearing his band at 5-7months old and had severe brachy. His CI

went from 97.5% to 91% in his STARband.

CT said his CI was 93% when he was measured in August for his band (at 9.5

months old) and he graduated at 88%. CT also said he had severe plagio: 14mm

and he graduated at 4mm. At Arimed, I didn't even know how severe his plagio

was or that he was severe because Mohammed told me that his diagonal difference

was 6mm.

That was one issue that I had with Mohammed. He always said that everything was

" okay " and that Luke looked " good " . Whenever I brought up my concerns, we went

in circles. He just kept saying the same things over and over again. It was

infuriating. I finally had to consult with Bob, but by then, I was so defeated

and stressed.

The biggest issue I had was that Luke's band rotated to the left too much. It

folded over his right ear and squished his right eye so much that it was swollen

when he woke up.

I went to see Mohammed every other day for the first 2 weeks and he couldn't get

it to stop rotating. The helmet was too big to me. I kept telling him that and

he kept telling me that that is how the helmet worked and because of Luke's head

shape, the rotation would keep occurring. Which is the truth, but the rotation

should not be SO much.

Under the suggestion from a member of this group, I asked him to put some

padding at the posterior opening of Luke's helmet. He said it wouldn't help and

that it would make an indentation to his head. I asked at 4 different

appointments during a span of 1.5 weeks. He kept saying no. I finally ended up

cutting up some moleskin and applying it. It helped decrease the rotation. I

showed it to him at the next appointment and he told me that it was because

Luke's head had grown!.!.!

Bob helped a bit, however, he is only at the office 2 days a week, so I didn't

get to see him as much as I had wanted to.

Also, there were never any pressure spots. I kept bringing that up and Mohammed

kept saying that it was " okay " and everything was " good. " (I'm getting angry

just thinking about it!)

If you do go to Arimed, bring some toys that are distracting, because Mohammed

has no idea how to deal with babies and your daughter has to stay still for

about 3 seconds in the STARscanner. It can be the looooongest 3 seconds of your

life. Especially if your daughter doesn't like to lay down.

If you feel the scan did not go well, insist that you keep doing them until you

are satisfied. That was my first mistake. And make sure that when he says he

is ready to scan, that he is READY to scan. I can't tell you how many times,

he would say he was ready, I would lay Luke down, Luke would actually be still

and Mohammed did not push the button to scan. And then it would be impossible

to get Luke to be still again.

I know that Luke's measurements went down in his STARband. I am happy about

that. However, I think he would have improved so much more and would have had

only one band if he had a better fitting helmet and a more competent ortho.

Please contact me if you have any other questions. I do not want anyone else to

go through what I went through.

p.s. Be prepared to hear a lot of " okays " being said. You'll understand when

it happens. I can still hear it......

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> > Hi,

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> > My daughter recently got a prescription from her physician (finally) and he

is telling her to go to Arimed here in NYC. Has anyone dealt with this office in

Manhattan? I was researching their information and it looks like they use the

Starband. Am I better off going with CT? She's 8 months now so I want this

process started right away.

> >

> > Any help is appreciated. Thanks.

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