Neurology Visit Today

[Guest guest]

Hi to everyone!

So here is a quick overview of my appointment with my Dr. today.

They had me fill out a form to list all my symptoms I was experiencing

and all meds. I stopped and started. My MS specialist didn't even look

at this list.

When I told him I stopped Copaxone in February and why, he shook his

head and wants me to go back on it which I am not totally against. But

of course when I mentioned LDN all he could say is that there is no

clinical data to support that it does anything!However, he was open

enough to give me a prescription for it in Feb. and now a new one

again. When I tried to pinpoint it down if he thought LDN was good for

any of his MS patients he said, " Whats good with MS? " I said stopping

or slowing down the progression, and he said if it did this how would

we know it was the LDN or just remission? Bingo, you too could say

this for any of the pharmaceutical drugs they are always pushing.

Before I left he tried to talk me into Avonex or a clinical trial with

an oral med. where I could possibly could be receiving a placebo.

Heres what really hit me when I thought about this after. My MRI was

ordered and my Dr. told me to wait to start back on the Copaxone after

the MRI. I told him I took it for 6 months from Aug. to Feb. and he

said now after two months it is probably out of my system. What I

really picture will happen is if my MRI comes out good wallah! it is

the Copaxone- if it comes out bad of course it is because I went off

of the Copaxone! HMMMMMM! Interesting when he wouldn't give the time

of day to the LDN. Let's see.

I have been feeling pretty o.k. with just the LDN, but in the last 4

days some symptoms have reared up their ugly head-burning in the spine

and buzzing,vibrating that goes down my right hip, and some muscle

cramping. I'm hoping they are just reoccuring from last flare. Has

anyone had a relapse while on LDN or is it keeping them totally away

for you? Thanks to all those and any of you for sharing your stories!