I have systemic sarcoidosis and a liver transplant

[Guest guest]

Since age five when I was diagnosed with Sarcoidosis. It has

interrupted my life with serious illnesses and surgeries, to include

a liver transplant in 1996. I am in quite a dilemma here because

since the transplant I've been on immunosupressants. I've also lost

other internal organs. I am a lovely 50 years old now, and I've still

got lots to live for. I an writing this to find someone who might be

in my perdicament or close to it. What is bothering me now is that

other things are going wrong. I have begun to feel aches and pains in

my joints and muscles. I am not financially able to have private

insurance, and I an not on disability; it doesn't pay enough to live

on. So I go to the local VA clinic because, yes I'm, a veteran.

However; I know that the care I'm getting there is far below the

best, I have no other choice. I would like to know if there is a

foundation or organization who could or maybe would help me. Nine

months ago my beautiful grand daughter was born. I was thinking kinda

negative until then, now I would like to be around for a while

longer. If no one on this site can lead me in the direction of help,

I would still appreciate chatting with others who understand what I'm

feeling.