Please HELP!

[Guest guest]

Kim,

Here is a link to the article which shows that " mercury free " vaccines still

contain mercury:

http://www.hapihealth.com/index.php?option=com_content & task=view & id=19 & Itemid=33

Abid Khan <a_bit_solutions@...> wrote:

Kim,

Hearing about the continued rise in autism, I also wondered why it would keep

going UP even though the thimerosol was supposed to be OUT. The truth is that

the amount of thimerosol in each vaccine has been lowered but not eliminated. In

addition, the low amount of mercury is no longer enough to stop multi-dose vials

degrading. So the drug companies add aluminum and formaldehyde. These interact

with mercury synergistically to

produce effects pretty much as bad as the old vaccines.

Many folks here have stated the above. I pulled an email from someone who

explains this more thoroughly. I hope this helps.

*******************************************************************************

Wanting to determine whether mercury was truly absent from vaccines

today, the group, Health Advocacy in the Public Interest (HAPI),

recently sent 4 vaccines off to be tested. The test results showed

that all four vials contained mercury, despite claims by two drug

makers that their products were totally mercury free.

HAPI also discovered that thimerosal is still being used in the

manufacturing process of most vaccines. However, drug makers claim

they filter the thimerosal out of the final product. But Boyd Haley,

who is the Chemistry Department Chair at the University of Kentucky,

told HAPI, that claim is false because mercury binds to the antigenic

protein in the vaccine and cannot be completely filtered out 100%.

" Mercury-free " vaccines should really be called " low mercury "

vaccines.

Two or three years ago, a parents' activist group, Health Advocacy in

the Public Interest (HAPI), sent 4 vials of different vaccines off to

be tested. The test results showed that all four vials contained

mercury, despite claims by two drug makers that their products were

mercury free.

Thimerosal is still being used in the manufacturing process of most

vaccines. Drug companies say they filter the thimerosal out of the

final product. But Boyd Haley, Chemistry Department Chair at the

University of Kentucky, says mercury binds to the antigenic protein

in the vaccine and cannot be completely filtered out 100%.

But it gets worse. The low amount of mercury is no longer enough to

stop multi-dose vials degrading. So the drug companies add aluminum

and formaldehyde. These interact with mercury synergistically to

produce effects pretty much as bad as the old vaccines.

We haven't helped our case by going on and on about mercury and

saying little about the role of other substances in autism. It is now

easier than ever for the drug companies to say we are deluded and

vaccines are safe and have always been safe

Steve

kbastible <KBastible@...> wrote:

Good Morning All,

It's me Kim again, as some of you know I'm a Physician Assistant and

I work at a pediatric/adolescent clinic in the South Bronx. A

colleague of mine is pro-vaccine and is always sending me links to

the studies done by pharma as proof of the goodness of vaccines.

Today she sent me this paragraph:

" Thiomerosal in vaccines - An elegant review of the literature was

presented. Despite the removal of thiomerosal in vaccines, rates of

autism and autistic spectrum disorders continue to rise in this

country. New literature is emerging regarding other potential causes

of autism. At this time, there is no evidence to link the use of

thiomerosal with the development of autism. Further study continues.

Public comment during the session points to continued debate and

concern among parents of children with autism and other developmental

issues. "

Can anyone send me a link that will shut her up once and for all?

Since I'm at work and in between patients I don't have the time to do

the research, but I'm sure some of you have this link in

your " favorites " already.

She's a good person, but suffers from medical school brain washing in

the ump-teenth degree. Thanks, Kim

---------------------------------

Don't get soaked. Take a quick peak at the forecast

with the Search weather shortcut.

[Guest guest]

>

> Good Morning All,

> It's me Kim again, as some of you know I'm a Physician Assistant

and

> I work at a pediatric/adolescent clinic in the South Bronx. A

> colleague of mine is pro-vaccine and is always sending me links to

> the studies done by pharma as proof of the goodness of vaccines.

> Today she sent me this paragraph:

>

> " Thiomerosal in vaccines - An elegant review of the literature was

> presented. Despite the removal of thiomerosal in vaccines, rates of

> autism and autistic spectrum disorders continue to rise in this

> country. New literature is emerging regarding other potential

causes

> of autism. At this time, there is no evidence to link the use of

> thiomerosal with the development of autism. Further study

continues.

> Public comment during the session points to continued debate and

> concern among parents of children with autism and other

developmental

> issues. "

>

> Can anyone send me a link that will shut her up once and for all?

> Since I'm at work and in between patients I don't have the time to

do

> the research, but I'm sure some of you have this link in

> your " favorites " already.

>

> She's a good person, but suffers from medical school brain washing

in

> the ump-teenth degree. Thanks, Kim

>

Kim I think Representative Weldon's " Something's Rotten but not just

in Denmark " is what you are looking for. Weldon is not only a Florida

Congressman, but also a practicing M.D.

http://tinyurl.com/26vlvd

Charlie

[Guest guest]

>

> Can anyone tell me if they know what will be causing my son (autism/

> mercury, lead, tin, antimony, alumminum, & arsenic) to have EXCESSIVE

> sweaty feet & hands. I mean, it was constant for the last 2 days.

Usually it is a sign of the body detoxing from things it encountered

during the day that it did not tolerate.

>>except for 3

> days earlier I gave him a little nystatin for yeast.

He may not tolerate this, or it may be causing die off. Try giving

activated charcoal 30-45 minutes after the Nystatin, see if that helps.

Did you have the Nystatin specially compounded?

Dana

[Guest guest]

This is typical of mercury-toxic people. I would interpret it as a sign that he

is detoxing. Remember, we use saunas to get these kids to sweat.

Barb

[ ] Please Help!

Can anyone tell me if they know what will be causing my son (autism/

mercury, lead, tin, antimony, alumminum, & arsenic) to have EXCESSIVE

sweaty feet & hands. I mean, it was constant for the last 2 days. He is

on NOTHING right now & hasn't been for a little while, except for 3

days earlier I gave him a little nystatin for yeast. He is still on a

GF/CF/SF/beefF diet.

He is not sweating ANYWHERE else, & it's cool inside, but he is

sweating prefusly on his feet(mostly the bottom) & his hands?

Any ideas of what is causing this???

His typical twin brother did this constantly for months as an infant!!!

Thanks for any insight, I am a little worried!

Michele

[Guest guest]

Hi there

Welcome to the group no one wants to belong to!

Your story sounds like my husbands. The minute he was diagnosed his

doctor was pushing Avonex on him. We stalled while I did some

research and I came across LDN. We did " a deal " with him and said

that if he prescribes LDN and lets us try it for 6 months with no

sucess then we`d go on the Avonex. We actually had no intention of

going on Avonex but wanted to buy some time and then I was less bold

in speaking up and didnt realise that we were in control and not to

be scared by the doctor and just take his word for everything!

So, my husband started LDN over three years ago and as far as we know

the disease has not progressed at all. Some of his lesions (he had a

lot) have gone or are no longer active and he has had no new symptoms

or disabilites. The neuro still tries to push the Avonex at each

appointment so they never give up and in my husbands case tries to

say he probably has more benign MS and will never credit LDN with

keeping him well. This is from a really open minded neuro who is at

UCSF and is well aware of the recent trials there but he still has to

ask us each time how to make out the prescription and for what dose?!.

So, in my opinion, try to do a deal with your neuro and suggest you

try LDN first. They are trained (and given bonus`s for) to push the

toxic drugs on you but it`s your body and you should go with your

gut. You`ve probably read enough stories here to know that the

majority of people have great sucess and are happy with the choice to

use LDN.

Good luck and good health.

Bev

>

> hi all

>

> I am a new member to the group and would like your suggestions and

> opnions on LDN for MS.I am 26 years, female and was diagonsed with

> MS in January 2008.I have had two attacks so far with numbness and

> loss of vision which is better now after taking cortisone.

>

> My doctor is suggesting me to start taking Avonex weekly which is

> apparantly only 30-50% effective and toxic.

>

> I have read a great deal about LDN use in MS and positive feedbacks

> from a number of users.

>

> I would be grateful if you could give me your opnions in this

regard

> since you have been using it.

>

> -Please let me know if i should start off using LDN or try Avonex

as

> my doc says?which is more effective in the long run?

>

> - To what extend is it really effective?

>

> - What are the possible side effects?

>

> Thanx a lot

> snn

>

[Guest guest]

I have MS, was diagnosed 18 mos ago but in retrospect was plagued with symptoms for 20 years and had been told to go see a neurologist for years but then the symptoms would go away and I was so busy, I just would forget about it. Yes, I was in SERIOUS denial. I just can't believe how stupid I was with my health. If it were my kids or my husband I'd be outraged by the neglect! In any event, I have attacked my MS first line with diet.......I urge you to eliminate all gluten, all refined sugar, flours, aspartame, MSG. I take high quality natural supplements from the health food store....NOT a big box store. I also juice daily.I read every label of everything I put in my mouth and have opted to basically shopping the perimeter of the grocery store and buying organic! I have had a dramatic improvement in my health. To be honest, I feel better than I have in 20 years! The only remaining MS symptoms I have are fatigue,

bladder urgency and some numbness, some spasticity. The only drug I was willing to take for my symptoms was Cymbalta. I used it for the horrible all over body pain and the severe depression. Guess what? After 6 months on the diet I went off the Cymbalta......I JUST DON"T NEED IT! I just started the LDN in hope that I can completely reverse the effects of the MS. Before starting the LDN, I would URGE you to commit to cleaning up your diet. It's tough but it's better than letting MS take over your body. Read all you can and then take action! ~joni "Whether you think you can, or you think you can't........you're right."snnagpal <snnagpal@...> wrote: hi all I am a new member to the group and would like your suggestions and opnions on LDN for MS.I am 26 years, female and was diagonsed with MS in January 2008.I have had two attacks so far with numbness and loss of vision which is better now after taking cortisone. My doctor is suggesting me to start taking Avonex weekly which is apparantly only 30-50% effective and toxic. I have read a great deal about LDN use in MS and positive feedbacks from a number of users.I would be grateful if you could give me your opnions in this regard since you have been using it. -Please let me know if i should

start off using LDN or try Avonex as my doc says?which is more effective in the long run?- To what extend is it really effective?- What are the possible side effects?Thanx a lotsnn

[Guest guest]

Avonex®

Flu-like symptoms following injection, which lessen over time for

many. Less common: depression, suicidal tendency, mild anemia,

elevated liver enzymes, allergic reactions, heart problems.

Avonex sounds great, eh?

Art

--

>

> hi all

>

> I am a new member to the group and would like your suggestions and

> opnions on LDN for MS.I am 26 years, female and was diagonsed with

> MS in January 2008.I have had two attacks so far with numbness and

> loss of vision which is better now after taking cortisone.

>

> My doctor is suggesting me to start taking Avonex weekly which is

> apparantly only 30-50% effective and toxic.

>

> I have read a great deal about LDN use in MS and positive feedbacks

> from a number of users.

>

> I would be grateful if you could give me your opnions in this

regard

> since you have been using it.

>

> -Please let me know if i should start off using LDN or try Avonex

as

> my doc says?which is more effective in the long run?

>

> - To what extend is it really effective?

>

> - What are the possible side effects?

>

> Thanx a lot

> snn

>

[Guest guest]

People from the Tri-State area rule, right Joni?!!

Art, from Lawn Guyland

--

>

> I have MS, was diagnosed 18 mos ago but in retrospect was plagued

with symptoms for 20 years and had been told to go see a neurologist

for years but then the symptoms would go away and I was so busy, I

just would forget about it. Yes, I was in SERIOUS denial. I just

can't believe how stupid I was with my health. If it were my kids or

my husband I'd be outraged by the neglect!

>

> In any event, I have attacked my MS first line with diet.......I

urge you to eliminate all gluten, all refined sugar, flours,

aspartame, MSG. I take high quality natural supplements from the

health food store....NOT a big box store. I also juice daily.I read

every label of everything I put in my mouth and have opted to

basically shopping the perimeter of the grocery store and buying

organic! I have had a dramatic improvement in my health. To be

honest, I feel better than I have in 20 years! The only remaining MS

symptoms I have are fatigue, bladder urgency and some numbness, some

spasticity.

>

> The only drug I was willing to take for my symptoms was Cymbalta.

I used it for the horrible all over body pain and the severe

depression. Guess what? After 6 months on the diet I went off the

Cymbalta......I JUST DON " T NEED IT!

>

> I just started the LDN in hope that I can completely reverse the

effects of the MS.

>

> Before starting the LDN, I would URGE you to commit to cleaning

up your diet. It's tough but it's better than letting MS take over

your body.

>

> Read all you can and then take action!

>

> ~joni

>

> " Whether you think you can, or you think you can't........you're

right. "

[Guest guest]

You are correct, as usual my friend! :-)Art <rtee54@...> wrote: People from the Tri-State area rule, right Joni?!!Art, from Lawn Guyland-->> I have MS, was diagnosed 18 mos ago but in retrospect was plagued with symptoms for 20 years and had been told to go see a neurologist for years but then the symptoms would go away and I

was so busy, I just would forget about it. Yes, I was in SERIOUS denial. I just can't believe how stupid I was with my health. If it were my kids or my husband I'd be outraged by the neglect! > > In any event, I have attacked my MS first line with diet.......I urge you to eliminate all gluten, all refined sugar, flours, aspartame, MSG. I take high quality natural supplements from the health food store....NOT a big box store. I also juice daily.I read every label of everything I put in my mouth and have opted to basically shopping the perimeter of the grocery store and buying organic! I have had a dramatic improvement in my health. To be honest, I feel better than I have in 20 years! The only remaining MS symptoms I have are fatigue, bladder urgency and some numbness, some spasticity.> > The only drug I was willing to take for my symptoms was Cymbalta. I used it for the horrible all over body

pain and the severe depression. Guess what? After 6 months on the diet I went off the Cymbalta......I JUST DON"T NEED IT! > > I just started the LDN in hope that I can completely reverse the effects of the MS.> > Before starting the LDN, I would URGE you to commit to cleaning up your diet. It's tough but it's better than letting MS take over your body. > > Read all you can and then take action! > > ~joni> > "Whether you think you can, or you think you can't........you're right."

[Guest guest]

Dearest Snn,

I sooo wish someone had told me about LDN when I was diagnosed about 5

years ago. Thank God - you have found out about it. Instead, I took

Rebif for 3.5 years and although I haven't had any major relapses I

walk with a noticeable limp and can only do so for short distances.

Plus, I developed Raynaud's (I believe from the Rebif) and felt

horrible while taking it. I can't tell you that LDN has changed my

life but it has helped my outlook and although I'm still limping if I

continue to stabilize it will be well worth it as the rest of my body

is much happier. You are still in good shape - NOW - is the time to

get on the LDN and stay on it !!!!!!!!!!

Best of luck with your decision. I know it is a difficult one but

follow your heart and don't let those damn neurologists scare you. I

know they did me and I could shoot myself for not having the strength

at the time to take my own path.

>

> hi all

>

> I am a new member to the group and would like your suggestions and

> opnions on LDN for MS.I am 26 years, female and was diagonsed with

> MS in January 2008.I have had two attacks so far with numbness and

> loss of vision which is better now after taking cortisone.

>

> My doctor is suggesting me to start taking Avonex weekly which is

> apparantly only 30-50% effective and toxic.

>

> I have read a great deal about LDN use in MS and positive feedbacks

> from a number of users.

>

> I would be grateful if you could give me your opnions in this regard

> since you have been using it.

>

> -Please let me know if i should start off using LDN or try Avonex as

> my doc says?which is more effective in the long run?

>

> - To what extend is it really effective?

>

> - What are the possible side effects?

>

> Thanx a lot

> snn

>

[Guest guest]

I'm sorry I meant to say that LDN HAS HAS HAS changed my life. Wether

I get symptom improvement or not. oops typo

-- In low dose naltrexone , " " <juliedodaro@...> wrote:

>

> Dearest Snn,

>

> I sooo wish someone had told me about LDN when I was diagnosed about 5

> years ago. Thank God - you have found out about it. Instead, I took

> Rebif for 3.5 years and although I haven't had any major relapses I

> walk with a noticeable limp and can only do so for short distances.

> Plus, I developed Raynaud's (I believe from the Rebif) and felt

> horrible while taking it. I can't tell you that LDN has changed my

> life but it has helped my outlook and although I'm still limping if I

> continue to stabilize it will be well worth it as the rest of my body

> is much happier. You are still in good shape - NOW - is the time to

> get on the LDN and stay on it !!!!!!!!!!

>

> Best of luck with your decision. I know it is a difficult one but

> follow your heart and don't let those damn neurologists scare you. I

> know they did me and I could shoot myself for not having the strength

> at the time to take my own path.

>

>

>

>

> >

> > hi all

> >

> > I am a new member to the group and would like your suggestions and

> > opnions on LDN for MS.I am 26 years, female and was diagonsed with

> > MS in January 2008.I have had two attacks so far with numbness and

> > loss of vision which is better now after taking cortisone.

> >

> > My doctor is suggesting me to start taking Avonex weekly which is

> > apparantly only 30-50% effective and toxic.

> >

> > I have read a great deal about LDN use in MS and positive feedbacks

> > from a number of users.

> >

> > I would be grateful if you could give me your opnions in this regard

> > since you have been using it.

> >

> > -Please let me know if i should start off using LDN or try Avonex as

> > my doc says?which is more effective in the long run?

> >

> > - To what extend is it really effective?

> >

> > - What are the possible side effects?

> >

> > Thanx a lot

> > snn

> >

>

[Guest guest]

when I was diagnosed in 1998- I took Avonex for a year. I didn't help

me- probably made me worse.... I got off of avonex - and took only

nutrients to help... found LDN about 4 yr ago.... in dec I ran out...

and had my first attack in 4 yrs.... now I am back on it and will never

be without.... I started at 1.5 mg tablets- taking 2 or 3 to determine

the right dose for me.. ( it is 3 mg )

I will never take the injectables that the drs recommend again....

start with the LDN...

lori

[Guest guest]

Hello Lorri.

I am on Avonex for 4 years ( I have MS) too. I have spsticity in my legs and stiffness ( legs too), difficult to walk. 1.5 weeks ago I started to take LDN ( 1 week - 4.5 mg but I had switching and 3 days I take LDN- 3mg. Also when i started LDN I don't do my Injection with Avonex.

You said that you take LDN for 4 years so how do you feel? do you have the same symptoms like I have or you feel better after you take LDN?

What dose do you take?

Thank you,

Svetlana

From: Lori <lgrady214@...>Subject: [low dose naltrexone] Re: Please help!low dose naltrexone Date: Friday, June 20, 2008, 10:23 PM

when I was diagnosed in 1998- I took Avonex for a year. I didn't help me- probably made me worse.... I got off of avonex - and took only nutrients to help... found LDN about 4 yr ago.... in dec I ran out... and had my first attack in 4 yrs.... now I am back on it and will never be without.... I started at 1.5 mg tablets- taking 2 or 3 to determine the right dose for me.. ( it is 3 mg )I will never take the injectables that the drs recommend again.... start with the LDN...lori

[Guest guest]

toh - still in a cast

i had some issues with fish oils. i started when my son was 4 yrs.

initially he had a tiny bit more verbal attempts, but that didn't continue.

we stopped them (just one proefa) when he had an extended stomach bug.

after he got serial sinus infection and broke out head to toe in hives from

the abx given to treat them (it /did/ kill the bug, but he was red for over

a week - thankfully no breathing issues.) when i started again he got

incredibly weepy and just different. you can check the archives for that if

you wish. so we stopped.

about a year later i decided to give them another try. at that time both

boys got hyper on the fish oils. instead of going to bed they would bounce

off the walls. i gave just 1 proefa initially, then went up to 2 proefa and

then added 1 proepa. the reaction just got worse. lisa suggested giving

them all together in the am. i had been doing them 2x/day with more at

night. that helped a little, but in time the craziness slowed then went

away. i never did see a surge from he fish oils, but vitamin e coincided

with a huge spurt for him.

this summer he started balking at taking any meds. i decided to give him a

break and he has had no regressions and continues to make progress and

become more and more clear with less " apraxic " episodes (his apraxia is

basically " resolved " now, although occasionally he has an " apraxic

moment. " )

if you can i'd suggest earlier in the am dosing if you aren't already and

then perhaps just wait it out. it took about 2 months for my son to

adjust. to me that's worth it if you are seeing improvement!

good luck.

miche

On Mon, Sep 1, 2008 at 9:32 PM, Christian Karriker <bug3235@...>wrote:

>

> Hi,

>

> I just wanted to talk about what has been happening over here in hopes that

> some of you have seen the same thing and maybe would be able to give some

> advice.

> I gave Christian (before posting on this board) 1/2 a teaspoon of PROEFA

> and saw immediate results within 4 days. Babbling continued for a few

> months and then slowed down. I then bumped up the dosage to 3/4 of a

> teaspoon-1 teaspoon and again saw results that slowed down after a period of

> time. I then posted on this board and got advice to back down to 1/2 a

> teaspoon of PROEFA and add 1 EPA pill to that. I tried it for a few days

> and found that my son was EXTREMELY cranky and not sleeping well (night

> waking). I am not sure if it was the EPA or just a bad days but I stopped

> the EPA and went back to just the PROEFA for the meantime. I kept giving

> just 1/2 a teaspoon and bumped back up to 1 teaspoon this weekend and saw

> that he babbled more! I fear that it will again plateau. He still will not

> mimick me though. We have now been on fish oil for about 4 months. I am

> worried that I will never figure out the dosage. I also worry

> that if I give him fish oil throughout the day vs. in the morning that he

> will have more night waking.

> If any of you have an advice I would really appreciate it. I am just a mom

> trying to figure all this out and I so badly want to hear my little one

> talking.

>

> Thanks,

>

> Yvette

>

>

[Guest guest]

I think you need to play around with what helps your child - it's so

hard. I tried a couple of different things and finally found the EPA

xtra from Nordic naturals to be the best for us. I was doing DHA and

EFA for a while too - but then decided to look up some of 's

posts and gave the EPA a try. My son had been doing other oils (the

DHA and EFA) for over 1.5 years - so I switched faster than I usually

did when we first added in oils. Sometimes the change in an oil will

cause stomach distress, gas, cramping - it did with my son. Also he

was not digesting them well so eventually we added an lipase enzyme

into the oil supplements. B/c there are also flavorings we may add a

fenol-type enzyme.

I also try to give things a few weeks in between trying unless it is

causing a obvious problem - that way a good and bad day isn't

confused as working or not working...Give it some time - go slow.

Best luck,

>

> >

> > Hi,

> >

> > I just wanted to talk about what has been happening over here in

hopes that

> > some of you have seen the same thing and maybe would be able to

give some

> > advice.

> > I gave Christian (before posting on this board) 1/2 a teaspoon

of PROEFA

> > and saw immediate results within 4 days. Babbling continued for

a few

> > months and then slowed down. I then bumped up the dosage to 3/4

of a

> > teaspoon-1 teaspoon and again saw results that slowed down after

a period of

> > time. I then posted on this board and got advice to back down to

1/2 a

> > teaspoon of PROEFA and add 1 EPA pill to that. I tried it for a

few days

> > and found that my son was EXTREMELY cranky and not sleeping well

(night

> > waking). I am not sure if it was the EPA or just a bad days but

I stopped

> > the EPA and went back to just the PROEFA for the meantime. I

kept giving

> > just 1/2 a teaspoon and bumped back up to 1 teaspoon this weekend

and saw

> > that he babbled more! I fear that it will again plateau. He

still will not

> > mimick me though. We have now been on fish oil for about 4

months. I am

> > worried that I will never figure out the dosage. I also worry

> > that if I give him fish oil throughout the day vs. in the morning

that he

> > will have more night waking.

> > If any of you have an advice I would really appreciate it. I am

just a mom

> > trying to figure all this out and I so badly want to hear my

little one

> > talking.

> >

> > Thanks,

> >

> > Yvette

> >

> >

[Guest guest]

Hi Yvette!

I did answer the last time you posted (I'll put part of that below)

You may have missed it due to the many posts here.

Here are my suggestions in brief.

When you switch the formula you don't want to necessarily lower the

dosage. You were at what was equivalent to 3 capsules of ProEFA and

then you went to 2 capsules of ProEFA and 1 of ProEPA. You just went

to a tsp of ProEFA oil which is around 4 capsules of ProEFA.

You don't have to increase the 2/1 ratio all at once. For example

you can give 3 capsules of ProEFA and one capsule of ProEPA -you can

give 4 capsules of ProEFA and one of ProEPA -but before you get to 5

capsules of ProEFA and one of ProEPA -most of us find a better surge

by (again) raising the ProEPA -so next step would be 4 ProEFA and 2

ProEPA.

You don't have to give the oils throughout the day. I for example

give a double dosage to Tanner but all in the AM. Some give a triple

dosage all at once in the AM -and I just heard from Dr.

that she's up to 4 dosages a day with her son

You may want to switch to the capsules vs the oil that you are using

for a few reasons. Rancidity will effect the oil's performance and

the oil in the bottle doesn't have a long shelf life -just a few

months -and it needs to be refrigerated. The capsules stay fresh for

up to 4 years.

You don't have to increase the ProEPA all at once from the capsule.

You can pierce a hole in the capsule and squeeze just 1/4 or 1/2 the

capsule in to the mix. In general in this group - " bad " behavior

isn't always a bad thing when it comes to the fish oils working.

Yvette let me know if you want me to send you archives on this as

there are a ton of them!

You want to make sure you don't have your child on a high fiber diet

or one that has lots of saturated fats since both seem to compromise

the effectiveness of the good fats. Also if you mix other fish oils

like cod liver oil with the ProEFA and ProEPA you change the formula

and raise the DHA Omega 3. If you want to raise the Omega 3 you are

better off raising the EPA in almost all cases.

Here's part of the past archive I sent:

Re: Frustrated

Hi Yvette!

A few things to keep in mind is that while our children progress in

one area -they at times slack in another. In other words a child

that is talking well who is learning to read sometimes regresses a

bit in speech. I'm not saying your child is learning to read but is

there another skill he is working on right now? Also the ratio of

the ProEFA to ProEPA is most important -but if you went from a tsp to

the 2/1 ratio then you reduced the dosage. You can give the 1/2 tsp

of the ProEFA which equals the 2 capsules to one capsule of ProEPA up

to 3X a day. I always give all dosages once a day in the AM but some

parents including Dr. found it important to give the

doses throughout the day.

(also my 12YO son who is almost 5'7 " only takes 6 a day not 9)

(and 4 alpha/gamma natural vitamin E too!)

The second thing to keep in mind is to notice if the diet changed or

if you raised the fiber. For some reason a few of us including me

noticed a regression in speech on high fiber. Below is an archive on

saturated fats and why to reduce them when introducing oils.

We all have our up and down days and there are times where it appears

we take one step forward to two steps back. Even top athletes have

ups and downs as we've seen in the Olympics. The good news is that

if you are seeing changes in your child you will be the best judge of

what is working and what isn't. The changes on oil therapy do not

take months or years -as you noticed they typically take no longer

than a day or two.

The good news for you is that I've never seen it work and then stop

working. It will work again once you figure out what the cause is -

or once this stage passes. It's OK to be frustrated -we're all

human.

full message here

/message/81913

More on fish oils from the CHERAB site

http://www.cherab.org/information/indexinformation.html#diet

http://www.cherab.org/information/dietaryeffects/efatips.html

http://www.cherab.org/information/dietaryeffects/efabasics.html

=====

[Guest guest]

I am in need of help. I need someone to talk to about my sons condition.

Clay is a very happy 4 month old little boy. While taking our oldest

out for his birthday my mother noticed Clay had a flat spot on the

side of his head. Lets just say that was the end of my fun for the

day. I called his doctor immediately. We took him in the next day and

found out that he has plagiocephaly and torticollis. We have been

going to a chiropractor which has made the torticollis much better. We

just started going to PT with Infants and Toddlers. Yesterday when I

took him the PT said he was in need of a helmet and to see a

neurologist. YIKES. The thought of my child wearing a helmet and

seeing a neurologist makes me unable to eat. I am so worried. I am

100% convinced this is from his swing... and so is the doctor. Could

someone please talk to me? Does anyone have any advice? Anything that

can help him? Any toys that are safe?

Maybe if we (USA) would make products in the country they would be

safe. I'm sick of buying products that take little to no thought in

making. I'm so angry about this issue. I try my hardest to be the best

mom I can be and this kills me to think something is wrong with my son.

Thanks

[Guest guest]

Hi and welcome tot he group. We used the Bumbo seat with my daughter until she could sit on her own. This I think really helped her headshape.

I know how you are feeling. My now 6 1/2 year old wore a band from age 9 to 21 months. I had the same feelings you do now. Hers was partially the swing,back to sleep and her headshape from birth.

What really helped me was looking in the photos of the happily banded babies and the before and afters.

Angie

Please HELP!

I am in need of help. I need someone to talk to about my sons condition. Clay is a very happy 4 month old little boy. While taking our oldestout for his birthday my mother noticed Clay had a flat spot on theside of his head. Lets just say that was the end of my fun for theday. I called his doctor immediately. We took him in the next day andfound out that he has plagiocephaly and torticollis. We have beengoing to a chiropractor which has made the torticollis much better. Wejust started going to PT with Infants and Toddlers. Yesterday when Itook him the PT said he was in need of a helmet and to see aneurologist. YIKES. The thought of my child wearing a helmet andseeing a neurologist makes me unable to eat. I am so worried. I am100% convinced this is from his swing... and so is the doctor. Couldsomeone please talk to me? Does anyone have any advice? Anything thatcan help him? Any toys that are safe? Maybe if we (USA) would make products in the country they would besafe. I'm sick of buying products that take little to no thought inmaking. I'm so angry about this issue. I try my hardest to be the bestmom I can be and this kills me to think something is wrong with my son.Thanks

[Guest guest]

i have a 4 month old who was just diagnosed also... he actually went to his

first p/t session yesterday.. i am also very nervous about what may happen...

his head is very flat on the left side, and he was diagnosed w/ plagiocephaly

and torticollis as well... u are not alone and we are all scared but if it makes

u feel better most of the material i have read points to a good outcome..hope

this helps a little=)

> From: paralegal21035 <paralegal21035@...>

> Subject: Please HELP!

> Plagiocephaly

> Date: Wednesday, September 17, 2008, 7:40 AM

> I am in need of help. I need someone to talk to about my

> sons condition.

>

> Clay is a very happy 4 month old little boy. While taking

> our oldest

> out for his birthday my mother noticed Clay had a flat spot

> on the

> side of his head. Lets just say that was the end of my fun

> for the

> day. I called his doctor immediately. We took him in the

> next day and

> found out that he has plagiocephaly and torticollis. We

> have been

> going to a chiropractor which has made the torticollis much

> better. We

> just started going to PT with Infants and Toddlers.

> Yesterday when I

> took him the PT said he was in need of a helmet and to see

> a

> neurologist. YIKES. The thought of my child wearing a

> helmet and

> seeing a neurologist makes me unable to eat. I am so

> worried. I am

> 100% convinced this is from his swing... and so is the

> doctor. Could

> someone please talk to me? Does anyone have any advice?

> Anything that

> can help him? Any toys that are safe?

>

> Maybe if we (USA) would make products in the country they

> would be

> safe. I'm sick of buying products that take little to

> no thought in

> making. I'm so angry about this issue. I try my hardest

> to be the best

> mom I can be and this kills me to think something is wrong

> with my son.

>

> Thanks

[Guest guest]

I felt just like you when I found out about my daughter. She is going to be 5 monthes at the end of this month and will be getting the DOCband on Oct. 6th. What I keep reminding myself is that Plagio has increased something like 600 percent since the back to sleep campaign and SIDS has gone down 40 percent. I am lucky that my ped. spotted it so soon and that it can be fixed. It feels like a hassle but by getting the band we are helping our children....there are amazing results. I feel 100 percent about my decision to go ahead with the band. I am giving her a gift that she may have been mad at me later on in life if I hadnt. My baby is extremely easy going and all my siblings had fussy babies. I was MAD that she was so good because I never had to hold her to soothe her. She has the flat head and my

niece and nephews dont. I placed a lot of blame on myself for putting her in products that did this to her. I am here for you....people kept telling me that it could be worse she could have a life threatening illness....thats easy for them to say...its not their child. If you have any questions we are all here for you and will answer the best to our ability. I hope I have helped....please email me personally anytime heather_migliore@...

Oh I have since bought a lot of tummy time toys to keep her occupied instead of putting her in the swing or bouncy seat. Get a jumparoo if you dont have one....great toy even if they dont get the concept of jumping yet...lets them see in a whole new prospective....you can attache some of their favorite toys to it. I also go the boppy mat that has the mini boppy. she seems to not mind this. I can get exact product names and manufacturers if you want on these products...there is one other that I would have to look up. It is a little tougher when they cant sit up yet but i will help with ideas if you would like. Sincerely,

From: paralegal21035 <paralegal21035@...>Subject: Please HELP!Plagiocephaly Date: Wednesday, September 17, 2008, 8:40 AM

I am in need of help. I need someone to talk to about my sons condition. Clay is a very happy 4 month old little boy. While taking our oldestout for his birthday my mother noticed Clay had a flat spot on theside of his head. Lets just say that was the end of my fun for theday. I called his doctor immediately. We took him in the next day andfound out that he has plagiocephaly and torticollis. We have beengoing to a chiropractor which has made the torticollis much better. Wejust started going to PT with Infants and Toddlers. Yesterday when Itook him the PT said he was in need of a helmet and to see aneurologist. YIKES. The thought of my child wearing a helmet andseeing a neurologist makes me unable to eat. I am so worried. I am100% convinced this is from his swing... and so is the doctor. Couldsomeone please talk to me? Does anyone have any advice? Anything thatcan help him? Any toys that are

safe? Maybe if we (USA) would make products in the country they would besafe. I'm sick of buying products that take little to no thought inmaking. I'm so angry about this issue. I try my hardest to be the bestmom I can be and this kills me to think something is wrong with my son.Thanks

[Guest guest]

I was the same way when Chloe was first diagnosed with torticollis and plagio. Now she is in her helmet, and it is part of our lives. It doesn't bother her at all. I was blaming myself until I was reassured by everyone that there was nothing I could have done to prevent it. What upset me is her pediatrician didn't even examine her for torticollis, ugh. I have been taking Chloe to physical therapy for a month and she is doing great, she also has been in her helmet for almost a month and people can already see the difference. It is very scary, but in all actuality it is not that bad. I wouldn't blame the swing completely. Chloe was born with torticollis, from being cramped in the womb, which caused her to pull her head to the right side when she was sleeping, while she was awake she was on her tummy, swing, bouncy seat, never just laying on her

head but at night she would always sleep to the right side. I tried moving her and even changed everything around in her room, I could not get her to lay on the other side of her head and here it was from the tort. It will get better and if you need to talk I am here. Candy

From: paralegal21035 <paralegal21035@...>Subject: Please HELP!Plagiocephaly Date: Wednesday, September 17, 2008, 7:40 AM

I am in need of help. I need someone to talk to about my sons condition. Clay is a very happy 4 month old little boy. While taking our oldestout for his birthday my mother noticed Clay had a flat spot on theside of his head. Lets just say that was the end of my fun for theday. I called his doctor immediately. We took him in the next day andfound out that he has plagiocephaly and torticollis. We have beengoing to a chiropractor which has made the torticollis much better. Wejust started going to PT with Infants and Toddlers. Yesterday when Itook him the PT said he was in need of a helmet and to see aneurologist. YIKES. The thought of my child wearing a helmet andseeing a neurologist makes me unable to eat. I am so worried. I am100% convinced this is from his swing... and so is the doctor. Couldsomeone please talk to me? Does anyone have any advice? Anything thatcan help him? Any toys that are

safe? Maybe if we (USA) would make products in the country they would besafe. I'm sick of buying products that take little to no thought inmaking. I'm so angry about this issue. I try my hardest to be the bestmom I can be and this kills me to think something is wrong with my son.Thanks

[Guest guest]

Thanks for your support. I wish you well and please keep my posted on anything new. I am looking for advice on toys and activities for my little guy. Alvarado <texazgurl26@...> wrote: i have a 4 month old who was just diagnosed also... he actually went to his first p/t session yesterday.. i am also very nervous about what may happen... his head is very flat on the left side, and he was diagnosed w/ plagiocephaly and torticollis as well... u are not alone and we are all scared but if it makes u feel

better most of the material i have read points to a good outcome..hope this helps a little=) > From: paralegal21035 <paralegal21035 > > Subject: Please HELP! > Plagiocephaly > Date: Wednesday, September 17, 2008, 7:40 AM > I am in need of help. I need someone to talk to about my > sons condition. > > Clay is a very happy 4 month old little boy. While taking > our oldest > out for his birthday my mother noticed Clay had a flat spot > on the > side of his head. Lets just say that was the end of my fun > for the > day. I called his doctor immediately. We took him in the >

next day and > found out that he has plagiocephaly and torticollis. We > have been > going to a chiropractor which has made the torticollis much > better. We > just started going to PT with Infants and Toddlers. > Yesterday when I > took him the PT said he was in need of a helmet and to see > a > neurologist. YIKES. The thought of my child wearing a > helmet and > seeing a neurologist makes me unable to eat. I am so > worried. I am > 100% convinced this is from his swing... and so is the > doctor. Could > someone please talk to me? Does anyone have any advice? > Anything that > can help him? Any toys that are safe? > > Maybe if we (USA) would make products in the country they > would be > safe. I'm sick of buying products that take little to > no thought in > making. I'm so angry about this issue. I try my

hardest > to be the best > mom I can be and this kills me to think something is wrong > with my son. > > Thanks

[Guest guest]

Hello and welcome to the group. Unfortunately I think we were all

poorly educated about plagio when our babies were born. doctors, books

etc don't seem to give you enough information to help prevent it. Also

with torticollis it is really hard to avoid plagio, and you need to

know what to look for and how to help stretch the neck. The swing can

contribute, but so can lots of time in the car seat (for example using

it in the stroller for walks). The biggest contributor in most cases

is back sleeping to prevent SIDS.

The neuro visit is usually a precaution to rule out craniosystosis.

Getting a helmet or band is really not that bad, although I know it

seems overwhelming at first. Also you're starting at a very good age,

so should see excellent correction. I see others responded to your

post too, so I'll keep this short, but please post any questions you

have, or just read all the stories here for a little moral support.

-christine

sydney 2.5 yrs starband grad

>

> I am in need of help. I need someone to talk to about my sons

condition.

>

> Clay is a very happy 4 month old little boy. While taking our oldest

> out for his birthday my mother noticed Clay had a flat spot on the

> side of his head. Lets just say that was the end of my fun for the

> day. I called his doctor immediately. We took him in the next day and

> found out that he has plagiocephaly and torticollis. We have been

> going to a chiropractor which has made the torticollis much better. We

> just started going to PT with Infants and Toddlers. Yesterday when I

> took him the PT said he was in need of a helmet and to see a

> neurologist. YIKES. The thought of my child wearing a helmet and

> seeing a neurologist makes me unable to eat. I am so worried. I am

> 100% convinced this is from his swing... and so is the doctor. Could

> someone please talk to me? Does anyone have any advice? Anything that

> can help him? Any toys that are safe?

>

> Maybe if we (USA) would make products in the country they would be

> safe. I'm sick of buying products that take little to no thought in

> making. I'm so angry about this issue. I try my hardest to be the best

> mom I can be and this kills me to think something is wrong with my son.

>

> Thanks

>