Please HELP!

[Guest guest]

In a message dated 05/30/2001 4:56:14 AM Eastern Daylight Time,

starlet_uk@... writes:

<< If anyone has any idea's please let me know - I don't want him to suffer

any more. The GP is coming to see him tomorrow, so maybe he will have another

idea.

>>

Fiona - It seems to me that your Dad's problems are far beyond the

capabilities of a GP. He needs specialists. At the very least, a good

rheumatologist, an orthopedic doctor for his back, and probably a pain

management specialist. I know that many insurance companies want the GP's to

do it all so that they don't have to pay for specialists, but I really would

insist at this point that he go to someone with more specialized knowledge

than his GP.

Just my opinion -

P.S. You are a wonderfully caring daughter to try to help your Dad like

this. He may be very unlucky with his health, but is blessed to have a

daughter like you . I hope he is does better soon!

[Guest guest]

fiona,

i feel so bad for you and especially your father.he sounds so sick . i dont

know how doctors can help him . have the doctors tried enbrel for your dad /.

i am on enbrel, oral meThotrexate and celebrex, i also take 2 teaspoons of

msm in the am and 2 tsp in the pm . i also take evening primrose oil1300 mg 3

times a day [with the gla]yoU Ucan get this at the vitamin shoppe.the doctor

also gives me elavil an antidepressan twhich helps with nerve pain as well as

depression.[ i am not on any pain meds ]. my psoriasis which i formerly had

from head to toe is completely gone now.you must be careful with the msm as

doctors are very skceptical about it. i understand it is very helpful for

back pain . one must be patient as these meds take a while to kick in . a

simple remedy for constipation is 2 teasoons of lemon juice in 1 glass of

warm water in the morning before you eat bre.. akfast. i am a registered

nurse and this works for me . i feel so bad for your dad it is a pain that

only us who have experienced it can understand. if his spine is as bad as you

say . pain medication may be the only thing that helps him at this point but

it may help his psoriasis if he tries the evening primrose oil .and msm .[

the enbrel is great but it must be prescribed by his doctor and it is very

expensive ]. i will pray for your dad ... good luck cathy from

mass?

[Guest guest]

Find the best rhuemy in your town and get him to him/her. IMEDIATELY!

I pray the new DOC can help.

[Guest guest]

In a message dated 5/30/01 1:56:25 AM Pacific Daylight Time,

starlet_uk@... writes:

>

Fiona,

First let me say I offer my prayers to both your dad and your family. I know

how hard it is when somebody hurts and you are helpless to give relief. You

will probably get a flood of answers saying get him to a rheumy ASAP. I

agree a rheumy would be advantagist however it was actually an

endocrinologist who diagnosed me and told me I had psoriatic arthritis. But

he did an awful lot of blood work first to rule out many other auto immune

diseases. Luckily for me everything came back negative but the rheumatoid

factor, I had a flareup of the lining between my lungs and ribs and I was

given massive dosages of morphine thru IV's and I will admit it did NO good.

As soon as they gave me 800 mgs ibuprofen the swelling went down and the

pain subsided. Unfortunately I cannot stay on ibuprophen because I'm on

blood thinners. The only thing that will help the pain of the PA flare is to

get the swelling under control I know the nerve damage in my legs have been

helped with amitriptyline. Check with you GP and see what he(she) thinks. I

hope he can get some amount of comfort soon. You are a very good daughter, I

am proud of you.

Chicagoland Sharon

[Guest guest]

hello fiona

sorry to hear about your dad> can i just ask where you

live because i thought it looked like you were from

the uk > if so can't your gp refer your dad to the

specialists he really needs. I know where i live in

bristol, my GP's referred me right away. I know we're

lucky not to have the insurance problem over here.

where do you live?

i am really thinking of your dad and i hope he feels

better soon.

love

jacqui

--- Fiona <starlet_uk@...> wrote: > Hi,

>

> I have joined some of these lists on behalf of my

> dad, with the hope that somebody might be able to

> help him. Here's a brief history:-

>

> My dad is 59. Many years ago he had a motorcycle

> accident and hurt his back, but over time it got

> better and for many years he lived a normal working

> life. He also has psoriasis. Over the years he had

> spells when his back got bad, but with physio and

> treatment he improved. Then about 12-13 years ago it

> got really bad, causing him a great deal of pain;

> and for the past 10 years he has been off work, now

> permanently disabled. Tests etc showed that his

> condition is quite complicated - he had several

> slipped discs with a trapped nerve which is

> calcified, and the bottom of his spine is crumbling.

> He gets severe sciatic (sp?) pain which affects his

> legs , feet and toes. He also now has psoriatic

> arthritis, and his psoriasis is very bad. Over the

> years he has had courses of physio, various pain

> meds etc etc etc... There is no operation that can

> help, and would probably leave him in a wheelchair.

>

> Anyway, since Christmas he has gone downhill very

> fast. He can no longer drive and is in agony nearly

> all the time. He is spending nearly all his time

> laying on his side in bed (he is getting alot of

> pain in the base of his spine and can't sit), and

> hardly ever comes downstairs. He has been on

> methotrexate, but it made him feel too bad. He

> cannot bear to have physio with the pain he has. In

> the past he has used a TENS machine, but didn't find

> it much use.

>

> We have a very understanding GP, but he doesn't

> really know what else to do at the moment. Dad is

> now taking morphine for the pain, but he is still in

> quite alot of pain. The meds is making him very

> constipated, and the straining is making his pain

> worse. He also looks and feels so ill in himself and

> is getting very depressed. I feel so helpless and

> desperately want to be able to help him.

>

> If anyone has any idea's please let me know - I

> don't want him to suffer any more. The GP is coming

> to see him tomorrow, so maybe he will have another

> idea.

>

> Please Help.

>

> love

> Fiona

> *~*~*

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

____________________________________________________________

[Guest guest]

In a message dated 5/15/2003 6:36:06 PM Eastern Daylight Time,

boyersc@... writes:

> Does anyone have any experience

> with this? We have never experienced a seizure to my knowledge, but

> who knows? Please help...I'm so scared. Here I am, ready to deal

> with the Asperger's diagnosis, but now that I don't know what's wrong

> with my little boy...aaahhhhhh!!!!

> I am sorry to hear this news, but you need to find out from the

other test what is going on it does not necessarily mean cancer it could be a

cyst or nothing to worry about but you defiantly should listen to the Dr's

advice and get it checked out further. Keep us informed, and I wish you well.

[Guest guest]

While we are getting his vitals, his doc comes in and

> tells us that they have found a pea sized spot on his brain and

that

> they would like to do another test at the hospital in Pensacola to

> make sure it is not cancer. If it's not, then we do another test

in

> a year to make sure it hasn't grown. Does anyone have any

experience

> with this? We have never experienced a seizure to my knowledge,

but

> who knows? Please help...I'm so scared. Here I am, ready to deal

> with the Asperger's diagnosis, but now that I don't know what's

wrong

> with my little boy...aaahhhhhh!!!!

>

> Thank you!

>

> Crissi

Crissi,

I'm so sorry. I have no experience from which to draw in this

situation, but I just wanted to send you support and sympathy.

Please let us all know how things progress.

Kathy

[Guest guest]

Crissi,

I can tell you what happened with an older friend of mine (and I'm

45). She had a " spell " where she apparently woke up one morning and

couldn't remember a thing! (don't worry about doing this,

this just begins the story)

I didn't want to press her for details but she said she didn't

remember " a thing. " Her husband took her to the ER and she was there

for maybe 2-3 days while they checked her out. No stroke, seizure or

anything showed in tests. One thing they did notice was a " spot " in

her brain. From what she said and where she pointed at the back of

her head - you know how a brain " looks " like it's 2 sections (left &

right) in a picture? Well, she has " something " , a growth, cyst, or

whatever sort of at the back of her head, located between the

2 " sections " of the brain. So she also had to get checked for a

tumor/cancer.

Well, it's fine. The doctor said that LOTS of people have these and

never know it, she probably had it her entire life and is just now

finding out due to the memory " problem " she'd had. And that they

would keep an eye on it just to make sure it doesn't grow but he

didn't think it would. And it didn't seem to be the cause of

her " memory lapse " either. She did recover her memory that week,

slowly, they never did know what caused that to happen!

Sorry to be so long in the story. But they did find " something " that

apparently isn't anything to worry about, that lots of people have

and never even find out about it unless they need testing for

something as she did.

So try not to worry! (yeah, I know, I've got 3 kids of my own, it's

hard not to!)

Keep us updated and will keep you in my prayers!

> We have had one hell of a day at the neurologist's office. It

> started at 8:30 a.m. when we went in for vision and hearing tests,

> along with an eeg. The doctor saw some seizure activity on the

eeg,

> so he sent us over for an mri while , my five year old, was

> sedated. After an hour in the mri room, we head back to the

> neurologist's because they want to check his vitals because of the

> large amount of sedative we had to give him in order to get him to

[Guest guest]

> calm/sedate. While we are getting his vitals, his doc comes in and

> tells us that they have found a pea sized spot on his brain and

that

> they would like to do another test at the hospital in Pensacola to

> make sure it is not cancer. If it's not, then we do another test

in

> a year to make sure it hasn't grown.

Crissi,

I've never experienced anything like this, but I just wanted to send

some (((HUGS))) and tell you your son is in my prayers.

Good luck, and please keep us posted.

Wendi

mom to 3yr old triplets with HFA

[Guest guest]

During one of the ultrasounds before Lexi was born they found a cyst in her

brain. Several weeks later another ultrasound was inconclusive. The bones in her

head had already hardened so they couldn't see it. Not sure if it disappeared or

what.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

( ) Re: Please Help!

> calm/sedate. While we are getting his vitals, his doc comes in and

> tells us that they have found a pea sized spot on his brain and

that

> they would like to do another test at the hospital in Pensacola to

> make sure it is not cancer. If it's not, then we do another test

in

> a year to make sure it hasn't grown.

Crissi,

I've never experienced anything like this, but I just wanted to send

some (((HUGS))) and tell you your son is in my prayers.

Good luck, and please keep us posted.

Wendi

mom to 3yr old triplets with HFA

[Guest guest]

Crissi,

Our son has seizures - they're absence seizures, which show up as staring off

into space. He misses chunks of time whenever he has a seizure. He takes

Zarontin for them, which seems to work quite well. He just had another sleep

deprived eeg a few weeks ago. ugh. He also had a spot on his mri, which had his

doctors concerned; but a repeat mri taken a couple of months later was normal. I

hope the same happens for .

Sending positive thoughts your way,

Liz

Crissi wrote:

> We have had one hell of a day at the neurologist's office. It

> started at 8:30 a.m. when we went in for vision and hearing tests,

> along with an eeg. The doctor saw some seizure activity on the eeg,

> so he sent us over for an mri while , my five year old, was

> sedated. After an hour in the mri room, we head back to the

> neurologist's because they want to check his vitals because of the

> large amount of sedative we had to give him in order to get him to be

> calm/sedate. While we are getting his vitals, his doc comes in and

> tells us that they have found a pea sized spot on his brain and that

> they would like to do another test at the hospital in Pensacola to

> make sure it is not cancer. If it's not, then we do another test in

> a year to make sure it hasn't grown. Does anyone have any experience

> with this? We have never experienced a seizure to my knowledge, but

> who knows? Please help...I'm so scared. Here I am, ready to deal

> with the Asperger's diagnosis, but now that I don't know what's wrong

> with my little boy...aaahhhhhh!!!!

>

> Thank you!

>

> Crissi

>

>

>

[Guest guest]

We have seen much stuff dealing with tumors lately. Please take a deep

breath and remember you are not alone. Our prayers are with your son.

Cristina R. & Family

[Guest guest]

Are you detoxing the child?

> who is normally reasonably laid back, for no apparent reason has

>become TOTALLY obsessed. He wants control of everything and I

>have absoloutely no

>idea why. I cannot turn a light on, draw the curtains, turn on the tv,

open

>the front door, he has to do the lot. All I know is that I just cannot

live

>like it for long..............

[Guest guest]

,

Has he been sick lately? If so, sometimes this type of thing can happen

after strep.

Pam

At 05:20 PM 8/3/2004 -0400, you wrote:

>Hi everyone,

>

>I have the most awful dilemma here, the worst that I can ever remember.

>

> who is normally reasonably laid back, for no apparent reason has

>become TOTALLY obsessed. He wants control of everything and I

>have absoloutely no

>idea why. I cannot turn a light on, draw the curtains, turn on the tv, open

>the front door, he has to do the lot. All I know is that I just cannot live

>like it for long..............

>

>The only thing we did was try a new food but that was many days ago now and

>I really don't think it is the problem.

>

>This came from nowhere and just does not seem to be improving yet we have

>not changed anything as far as we know. Plus, normally, if it was a

>die off or

>something similar (and on this occasion I don't think it is) magnesium cream

>does the trick in an instant. This time it is not calming him down much at

>all so I am at a loss.

>

>REALLY need some help here as we were going to Germany on holiday on

>Saturday but unless things improve we won't be able to.

>

>

>

>

>

>

>

>

>

[Guest guest]

No, he has not been sick and we are detoxing using Brainchild products which

we have been on for ages and have not been a problem.

[Guest guest]

,

So sorry to hear you're having a tough time. Have you screened for

parasites or anaerobic bacteria, clostridia, stuff like that? These are

the first thoughts that occurred to me in reading your description of his

symptoms. Possibly yeast, of course, but in my experience, these kind of

symptoms aren't really the yeasty kind. I suppose if you can't get testing

done, you could treat as if it's bacteria or parasites, and see if

anything changes.

I miss talking to you. Hope your family is doing well otherwise.

Terri

At 05:20 PM 8/3/2004 -0400, you wrote:

>Hi everyone,

>

>I have the most awful dilemma here, the worst that I can ever remember.

>

> who is normally reasonably laid back, for no apparent reason has

>become TOTALLY obsessed. He wants control of everything and I

>have absoloutely no

>idea why. I cannot turn a light on, draw the curtains, turn on the tv, open

>the front door, he has to do the lot. All I know is that I just cannot live

>like it for long..............

>

>The only thing we did was try a new food but that was many days ago now and

>I really don't think it is the problem.

>

>This came from nowhere and just does not seem to be improving yet we have

>not changed anything as far as we know. Plus, normally, if it was a

>die off or

>something similar (and on this occasion I don't think it is) magnesium cream

>does the trick in an instant. This time it is not calming him down much at

>all so I am at a loss.

>

>REALLY need some help here as we were going to Germany on holiday on

>Saturday but unless things improve we won't be able to.

>

>

>

>

>

>

>

>

>

[Guest guest]

> The only thing we did was try a new food but that was many days ago

now and

> I really don't think it is the problem.

Sometimes my son's reaction to a food did not appear for several days.

Especially if you mentioned that he did have a bout with diarrhea.

Many kids have OCD behaviors with virus issues. Maybe try giving him

some olive leaf extract and see if that helps.

Dana

[Guest guest]

Light, sound and obsessive compulsiveness are viral and bacterial issues

here.

Please HELP!

> Hi everyone,

>

> I have the most awful dilemma here, the worst that I can ever remember.

>

> who is normally reasonably laid back, for no apparent reason has

> become TOTALLY obsessed. He wants control of everything and I have

absoloutely no

> idea why. I cannot turn a light on, draw the curtains, turn on the tv,

open

> the front door, he has to do the lot. All I know is that I just cannot

live

> like it for long..............

>

> The only thing we did was try a new food but that was many days ago now

and

> I really don't think it is the problem.

>

> This came from nowhere and just does not seem to be improving yet we have

> not changed anything as far as we know. Plus, normally, if it was a die

off or

> something similar (and on this occasion I don't think it is) magnesium

cream

> does the trick in an instant. This time it is not calming him down much

at

> all so I am at a loss.

>

> REALLY need some help here as we were going to Germany on holiday on

> Saturday but unless things improve we won't be able to.

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear MRZ

I know as a parent you are probably feeing a little belidered and

frightened. I have not heard about the " cellulite " issue, but it

seems probable that this could be the case. A more female shape is

common in males with hormonal problems. Testosterone helps

build/shape the male " hourglass " look - wide sholders, narrow hips.

Many of us with hormonal difficulties look the opposite. At any rate,

a few general suggestions:

1.) Take a deep breath! This is not a life threatening condition, and

you have time to react appropriately.

2.) You do not know for sure if your son is XXY. Try not to judge or

over-react. This could be something completely different.

3.) You need to become as educated as possible on this condition. Go

to the LINKS section of this forum and download the AACE guidelines

for hypogonadism. This will tell you what your MD should be doing to

make a proper diagnosis of your son's condition. Make sure ALL tests

are done before any treatment is begun. Only genetic tests can truly

confirm if your son has a genetic abnormality.

4.) Find a good MD. A pediatric endocrinologist is a must in your

case. Do NOT trust this to a general endo or to your family

practitioner.

5.) This is a very supportive group, but there are others out there

specifically for Kleinfelters and other genetic disorders. Again,

look at the LINKS section.

6.) We are here for you. We'll lend any knowledge or support we can.

Having others who understand makes all the difference, and believe

me, we understand!

Regards,

K4

>

>

> My heart is crying for help!!! Please respond if you, your child or

> your friend has similar conditions. My 13-year-old boy has a

> cellulite and my female body structure (round hips). I went to our

> family doctor and he suggested us to see endocrinologist about

> probable XXY problem. I have read that males do not have cellulite

at

> all, only females do and cellulite condition is inherited from

mother

> to daughters, not to sons! Probably the information I read is

> incorrect... What is the truth about the cellulite? Does anybody

with

> XXY condition have cellulite or probably know males who do? Is

> cellulite and XXY condition related? Does TRT help to get rid of

> cellulite and round hips? I do not what to do and how to help my

> little boy! Any personal experience will be greatly appreciated!!!

> Thanks to everyone in advance!!!

[Guest guest]

>

>

> My heart is crying for help!!! Please respond if you, your child or

> your friend has similar conditions. My 13-year-old boy has a

> cellulite and my female body structure (round hips). I went to our

> family doctor and he suggested us to see endocrinologist about

> probable XXY problem. <snip>

If he is obese he may just have those problems as a normal boy. But

then the fat could be helping to produce too much Estrogen E2 & is

causing the breast growth.

I have read that raising testosterone & lowering Estrogen E2 at that

age has prevented many of the problems that bother adults with

hypogonadism, Low muscle mass & large breasts. I think I read that

research in Canada & at the Mayo Clinic is being done at that age.

Do some research on Klinefelts, hypogonadism, & puberty.

Then try to find an endo that has some experience with males at

puberty.

Keep us posted as you progress as many of us have children & maybe

have children with that condition.

Low testosterone with large breasts is one of my family traits.

[Guest guest]

,

I think different people respond at different rates...I got better almost

immediately but now Im in a flare and it seems to have fizzled out...I see my

rheumy on April 5th so we are going to discuss my options....I wouold give it a

little more time though I have been on enbrel 3 months now...

hang in there,

Vickey

mytmikel <HomeBuilders@...> wrote:

I am new to this group. I have had P for about 25 years and PA for

about 3 years. In the last 6 months it has gotten so very painful.

I was started on Enbrel one month ago and I'm not better yet. Am I

being impatient? Can I look for relief sometime in the future?

[Guest guest]

Thanks for your words of support, Vickey. I will hang in there. What else can

I do? I just want everything yesterday.

, RME

Home Builders, LLC

Quality Building and Savings

--- Vickey Arnold <smilin4dannme2002@...> wrote:

From: Vickey Arnold <smilin4dannme2002@...>

Date: Wed, 23 Mar 2005 17:25:41 -0800 (PST)

Subject: Re: [ ] Please help!

,

I think different people respond at different rates...I got

better almost immediately but now Im in a flare and it seems to

have fizzled out...I see my rheumy on April 5th so we are going

to discuss my options....I wouold give it a little more time

though I have been on enbrel 3 months now...

hang in there,

Vickey

[Guest guest]

We had my daughter on Uva Ursi to help treat Klebsiella bacteria and she started

getting very squirmy in her car seat and stroller. When we stopped the Uva

Ursi, she stopped squirming.

So, instead, we started olive leaf extract for the bacteria, again the squirming

started, but she was doing OK, pooping on her own for a change (with an addition

of aloe vera water).

We stopped the olive leaf extract because watching her squirm was really

difficult, now she is worse! She is hitting, hyper, waking a lot at night, not

pooping! The doctor thought it was yeast and upped her antifungal, but it

hasn't helped.

I'm beginning to think it's bacteria coming back or maybe viruses.

I was going to start the Lauricidin but I don't know how I'll get her to take

those awful pellets, she can't swallow them.

Please help!

Digest Number 4452

[Guest guest]

I don't see a problem. He did tear it up and that is not acceptable. Having

him buy a new one is a great idea. The only thing I would add it to practice

other ways of being mad that do not involve tearing something apart. Yell, hit

the pillow, use your words, write, throw a ball against the wall (bouncy ball)

until one can calm down.

Roxanna

( ) please help!

I don't know what to do right now. I was writing a speech for my husband who

is the best man in a wedding this evening (thank goodness my mom is watching my

aspie tonight rather than him going to this wedding). He freaked out that I was

" lying " at the begging of the speech. I tried to explain that it wasn't a lie,

it was a joke, but he didn't understand and started yelling that I was lying. I

told him he needed to go into his room to cool down. I heard banging in there

and continued to write the speech. Moments later he came out and said, " There, I

destroyed Willy's (my husband) fan! " I went in there and saw that the fan he

lent him to stay cool at night was in pieces. I know I shouldn't have yelled but

that was my immediate reaction. I told him we'd be leaving soon to go to his

bank, get his own money, and buy Willy a new fan. I yelled at him to clean it up

now and he's currently in his room (I can't hear anything that's going on) and

I'm out here writing. What do I do? Ibr> feel really bad for yelling at him, it

just came out of me.

<jackfaithsmom0304@...> wrote: You know, it is absolutely

ridiculous the things that you hear sometimes, kids shoes taped to feet, making

them stand on newspaper outside office in their own waste. I absolutely can't

believe there are adults in society that think this is ok. What is wrong with

people. If it weren't for the humiliation factor for my son, when they informed

me that I " couldn't " change my son on the school grounds, I think I would have

felt compelled to lay him down right there change his britches and slam the

messy undies on the jerk offenders desk and promptly find a new school but

that's just me, I'm still dealing with a few bitterness issues LOL I hope for

your DS sake (who sounds so sweet) that this school gets their act together b/c

it sounds like he really enjoys going there (FOR SOME REASON, what I don't know

when they treat him that way) Good luck.

<carriebeary77@...> wrote:

Rechelle,

I absolutely agree with you. The reasons my son was disciplined in

school are completely legitimate and I always backed the

administration up on their discipline.

My problem is with the attitude my son's teacher & principal had

toward us and especially toward him. They refused to have him

evaluated, therefore they ended up dealing with a kid w/ " behavior

problems " (as they called him) without ever having the boy evaluated

to decipher what REALLY was the cause. The teacher would try to

physically escort him to the office and he would pull away from her.

He was threatened w/ police involvement (by the teacher's husband, a

police officer in town!) and his teacher's previous job was Juvenile

Probation Officer. She'd only been teaching kindergarten for 4 years.

The woman also confronted me in a negative manner about helping out in

the class w/o filling out a form to submit to a background check. I

have no problem w/ a background check. But for 2 MONTHS I was helping

out in that school at LEAST twice a week and not one person ever said

one word to me about the form or anything else. As soon as Max's

teacher came back from maternity leave, suddenly I'm not allowed on

school grounds because I might be " a child molester. " She actually

implied that. Why I didn't take my son, go gather his things, and walk

him out of that school forever is beyond me. It took another day to

make that decision.

It was not ever what Max did wrong or how disciplne was handled. It

was what THEY did, what THEY said, and how they treated him.

The diarrhea incident is another issue. Read on.

Upon having a diarrhea accident in school on Dec. 19, 2005, he was

sent to the office and made to stand on paper, outside the office,

until we came to pick him up. We were not even allowed to change him

in the bathroom or clean him up so we could bring him home, even

though we were informed that we needed to bring him a change of

clothes, therefore, he sat in his own excrement until we got home.

When we put him in the shower, his skin was inflamed and raw from the

dried on waste.

>

> While I realize no nurse was in that day (she had the flu like half

the ppl in town), there is no excuse for this treatment towards any

child. I am shocked at the ability of a staff that works with

children, to be so cruel and humiliating to a child. I am stunned at

the incompetence. And we got no *real* justice after speaking w/ the

superintendent about it, either. *eyes rolling*

I honestly don't know why I didn't pull him out that minute.

And you know, for all of his mistreatment, he still loved school

itself. When we took him out to homeschool for the last 2 mos of

kindergarten he wanted to go back SO BADLY. He told me, " Maybe Mrs. A

will be nice to me now. "

After taking him out, I discovered 6 other parents had problems w/ her

and one of them was trying to get her kid changed to a different class.

Anyway, really long answer. I do agree w/ you. I just wanted to get

Max's story out there so ppl could see why I was defensive about him.

~

>

> Everyone in this group is so nice all the time wow. I have to be

> honest and I hope you all would be with me.

>

> I'm really surprised that you could defend your child throwing

> anything at a teacher, styrofoam cup, pencil, anything.

>

> I know we get so used to fighting for our kids and defending their

> rights that we forget sometimes that they are just plain wrong.

>

> It used to be that if the school called home with a problem or the

> neighbor came over to tell you that your child had done something

> wrong that the parents took action. They disciplined the kids and

> believed the other adults because children are still learning and

> are not always right.

>

> Now other parents are afraid to talk to each other. If I have a

> child over for a play date and they do something wrong I think twice

> about telling the parent because most of the time they just defend

> their child and get angry.

>

> So I'm sure you'll probably be angry about this post and want to

> defend your child again about how throwing styrofoam is not a big

> deal but really think about it throwing something at a teacher is

> just plain wrong Autism, Aspergers, or Normal kids, they have to

> learn to respect authority its just a basic fact of life.

>

> Rechelle

> Mom to Lara, 7 year old aspie

>

---------------------------------

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[Guest guest]

Kim,

Hearing about the continued rise in autism, I also wondered why it would keep

going UP even though the thimerosol was supposed to be OUT. The truth is that

the amount of thimerosol in each vaccine has been lowered but not eliminated.

In addition, the low amount of mercury is no longer enough to stop multi-dose

vials degrading. So the drug companies add aluminum and formaldehyde. These

interact with mercury synergistically to

produce effects pretty much as bad as the old vaccines.

Many folks here have stated the above. I pulled an email from someone who

explains this more thoroughly. I hope this helps.

*******************************************************************************

Wanting to determine whether mercury was truly absent from vaccines

today, the group, Health Advocacy in the Public Interest (HAPI),

recently sent 4 vaccines off to be tested. The test results showed

that all four vials contained mercury, despite claims by two drug

makers that their products were totally mercury free.

HAPI also discovered that thimerosal is still being used in the

manufacturing process of most vaccines. However, drug makers claim

they filter the thimerosal out of the final product. But Boyd Haley,

who is the Chemistry Department Chair at the University of Kentucky,

told HAPI, that claim is false because mercury binds to the antigenic

protein in the vaccine and cannot be completely filtered out 100%.

" Mercury-free " vaccines should really be called " low mercury "

vaccines.

Two or three years ago, a parents' activist group, Health Advocacy in

the Public Interest (HAPI), sent 4 vials of different vaccines off to

be tested. The test results showed that all four vials contained

mercury, despite claims by two drug makers that their products were

mercury free.

Thimerosal is still being used in the manufacturing process of most

vaccines. Drug companies say they filter the thimerosal out of the

final product. But Boyd Haley, Chemistry Department Chair at the

University of Kentucky, says mercury binds to the antigenic protein

in the vaccine and cannot be completely filtered out 100%.

But it gets worse. The low amount of mercury is no longer enough to

stop multi-dose vials degrading. So the drug companies add aluminum

and formaldehyde. These interact with mercury synergistically to

produce effects pretty much as bad as the old vaccines.

We haven't helped our case by going on and on about mercury and

saying little about the role of other substances in autism. It is now

easier than ever for the drug companies to say we are deluded and

vaccines are safe and have always been safe

Steve

kbastible <KBastible@...> wrote:

Good Morning All,

It's me Kim again, as some of you know I'm a Physician Assistant and

I work at a pediatric/adolescent clinic in the South Bronx. A

colleague of mine is pro-vaccine and is always sending me links to

the studies done by pharma as proof of the goodness of vaccines.

Today she sent me this paragraph:

" Thiomerosal in vaccines - An elegant review of the literature was

presented. Despite the removal of thiomerosal in vaccines, rates of

autism and autistic spectrum disorders continue to rise in this

country. New literature is emerging regarding other potential causes

of autism. At this time, there is no evidence to link the use of

thiomerosal with the development of autism. Further study continues.

Public comment during the session points to continued debate and

concern among parents of children with autism and other developmental

issues. "

Can anyone send me a link that will shut her up once and for all?

Since I'm at work and in between patients I don't have the time to do

the research, but I'm sure some of you have this link in

your " favorites " already.

She's a good person, but suffers from medical school brain washing in

the ump-teenth degree. Thanks, Kim

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