Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 In a message dated 05/30/2001 4:56:14 AM Eastern Daylight Time, starlet_uk@... writes: << If anyone has any idea's please let me know - I don't want him to suffer any more. The GP is coming to see him tomorrow, so maybe he will have another idea. >> Fiona - It seems to me that your Dad's problems are far beyond the capabilities of a GP. He needs specialists. At the very least, a good rheumatologist, an orthopedic doctor for his back, and probably a pain management specialist. I know that many insurance companies want the GP's to do it all so that they don't have to pay for specialists, but I really would insist at this point that he go to someone with more specialized knowledge than his GP. Just my opinion - P.S. You are a wonderfully caring daughter to try to help your Dad like this. He may be very unlucky with his health, but is blessed to have a daughter like you . I hope he is does better soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 fiona, i feel so bad for you and especially your father.he sounds so sick . i dont know how doctors can help him . have the doctors tried enbrel for your dad /. i am on enbrel, oral meThotrexate and celebrex, i also take 2 teaspoons of msm in the am and 2 tsp in the pm . i also take evening primrose oil1300 mg 3 times a day [with the gla]yoU Ucan get this at the vitamin shoppe.the doctor also gives me elavil an antidepressan twhich helps with nerve pain as well as depression.[ i am not on any pain meds ]. my psoriasis which i formerly had from head to toe is completely gone now.you must be careful with the msm as doctors are very skceptical about it. i understand it is very helpful for back pain . one must be patient as these meds take a while to kick in . a simple remedy for constipation is 2 teasoons of lemon juice in 1 glass of warm water in the morning before you eat bre.. akfast. i am a registered nurse and this works for me . i feel so bad for your dad it is a pain that only us who have experienced it can understand. if his spine is as bad as you say . pain medication may be the only thing that helps him at this point but it may help his psoriasis if he tries the evening primrose oil .and msm .[ the enbrel is great but it must be prescribed by his doctor and it is very expensive ]. i will pray for your dad ... good luck cathy from mass? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Find the best rhuemy in your town and get him to him/her. IMEDIATELY! I pray the new DOC can help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 In a message dated 5/30/01 1:56:25 AM Pacific Daylight Time, starlet_uk@... writes: > Fiona, First let me say I offer my prayers to both your dad and your family. I know how hard it is when somebody hurts and you are helpless to give relief. You will probably get a flood of answers saying get him to a rheumy ASAP. I agree a rheumy would be advantagist however it was actually an endocrinologist who diagnosed me and told me I had psoriatic arthritis. But he did an awful lot of blood work first to rule out many other auto immune diseases. Luckily for me everything came back negative but the rheumatoid factor, I had a flareup of the lining between my lungs and ribs and I was given massive dosages of morphine thru IV's and I will admit it did NO good. As soon as they gave me 800 mgs ibuprofen the swelling went down and the pain subsided. Unfortunately I cannot stay on ibuprophen because I'm on blood thinners. The only thing that will help the pain of the PA flare is to get the swelling under control I know the nerve damage in my legs have been helped with amitriptyline. Check with you GP and see what he(she) thinks. I hope he can get some amount of comfort soon. You are a very good daughter, I am proud of you. Chicagoland Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 hello fiona sorry to hear about your dad> can i just ask where you live because i thought it looked like you were from the uk > if so can't your gp refer your dad to the specialists he really needs. I know where i live in bristol, my GP's referred me right away. I know we're lucky not to have the insurance problem over here. where do you live? i am really thinking of your dad and i hope he feels better soon. love jacqui --- Fiona <starlet_uk@...> wrote: > Hi, > > I have joined some of these lists on behalf of my > dad, with the hope that somebody might be able to > help him. Here's a brief history:- > > My dad is 59. Many years ago he had a motorcycle > accident and hurt his back, but over time it got > better and for many years he lived a normal working > life. He also has psoriasis. Over the years he had > spells when his back got bad, but with physio and > treatment he improved. Then about 12-13 years ago it > got really bad, causing him a great deal of pain; > and for the past 10 years he has been off work, now > permanently disabled. Tests etc showed that his > condition is quite complicated - he had several > slipped discs with a trapped nerve which is > calcified, and the bottom of his spine is crumbling. > He gets severe sciatic (sp?) pain which affects his > legs , feet and toes. He also now has psoriatic > arthritis, and his psoriasis is very bad. Over the > years he has had courses of physio, various pain > meds etc etc etc... There is no operation that can > help, and would probably leave him in a wheelchair. > > Anyway, since Christmas he has gone downhill very > fast. He can no longer drive and is in agony nearly > all the time. He is spending nearly all his time > laying on his side in bed (he is getting alot of > pain in the base of his spine and can't sit), and > hardly ever comes downstairs. He has been on > methotrexate, but it made him feel too bad. He > cannot bear to have physio with the pain he has. In > the past he has used a TENS machine, but didn't find > it much use. > > We have a very understanding GP, but he doesn't > really know what else to do at the moment. Dad is > now taking morphine for the pain, but he is still in > quite alot of pain. The meds is making him very > constipated, and the straining is making his pain > worse. He also looks and feels so ill in himself and > is getting very depressed. I feel so helpless and > desperately want to be able to help him. > > If anyone has any idea's please let me know - I > don't want him to suffer any more. The GP is coming > to see him tomorrow, so maybe he will have another > idea. > > Please Help. > > love > Fiona > *~*~* > > > [Non-text portions of this message have been > removed] > > > ____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 In a message dated 5/15/2003 6:36:06 PM Eastern Daylight Time, boyersc@... writes: > Does anyone have any experience > with this? We have never experienced a seizure to my knowledge, but > who knows? Please help...I'm so scared. Here I am, ready to deal > with the Asperger's diagnosis, but now that I don't know what's wrong > with my little boy...aaahhhhhh!!!! > I am sorry to hear this news, but you need to find out from the other test what is going on it does not necessarily mean cancer it could be a cyst or nothing to worry about but you defiantly should listen to the Dr's advice and get it checked out further. Keep us informed, and I wish you well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 While we are getting his vitals, his doc comes in and > tells us that they have found a pea sized spot on his brain and that > they would like to do another test at the hospital in Pensacola to > make sure it is not cancer. If it's not, then we do another test in > a year to make sure it hasn't grown. Does anyone have any experience > with this? We have never experienced a seizure to my knowledge, but > who knows? Please help...I'm so scared. Here I am, ready to deal > with the Asperger's diagnosis, but now that I don't know what's wrong > with my little boy...aaahhhhhh!!!! > > Thank you! > > Crissi Crissi, I'm so sorry. I have no experience from which to draw in this situation, but I just wanted to send you support and sympathy. Please let us all know how things progress. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 Crissi, I can tell you what happened with an older friend of mine (and I'm 45). She had a " spell " where she apparently woke up one morning and couldn't remember a thing! (don't worry about doing this, this just begins the story) I didn't want to press her for details but she said she didn't remember " a thing. " Her husband took her to the ER and she was there for maybe 2-3 days while they checked her out. No stroke, seizure or anything showed in tests. One thing they did notice was a " spot " in her brain. From what she said and where she pointed at the back of her head - you know how a brain " looks " like it's 2 sections (left & right) in a picture? Well, she has " something " , a growth, cyst, or whatever sort of at the back of her head, located between the 2 " sections " of the brain. So she also had to get checked for a tumor/cancer. Well, it's fine. The doctor said that LOTS of people have these and never know it, she probably had it her entire life and is just now finding out due to the memory " problem " she'd had. And that they would keep an eye on it just to make sure it doesn't grow but he didn't think it would. And it didn't seem to be the cause of her " memory lapse " either. She did recover her memory that week, slowly, they never did know what caused that to happen! Sorry to be so long in the story. But they did find " something " that apparently isn't anything to worry about, that lots of people have and never even find out about it unless they need testing for something as she did. So try not to worry! (yeah, I know, I've got 3 kids of my own, it's hard not to!) Keep us updated and will keep you in my prayers! > We have had one hell of a day at the neurologist's office. It > started at 8:30 a.m. when we went in for vision and hearing tests, > along with an eeg. The doctor saw some seizure activity on the eeg, > so he sent us over for an mri while , my five year old, was > sedated. After an hour in the mri room, we head back to the > neurologist's because they want to check his vitals because of the > large amount of sedative we had to give him in order to get him to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 > calm/sedate. While we are getting his vitals, his doc comes in and > tells us that they have found a pea sized spot on his brain and that > they would like to do another test at the hospital in Pensacola to > make sure it is not cancer. If it's not, then we do another test in > a year to make sure it hasn't grown. Crissi, I've never experienced anything like this, but I just wanted to send some (((HUGS))) and tell you your son is in my prayers. Good luck, and please keep us posted. Wendi mom to 3yr old triplets with HFA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 During one of the ultrasounds before Lexi was born they found a cyst in her brain. Several weeks later another ultrasound was inconclusive. The bones in her head had already hardened so they couldn't see it. Not sure if it disappeared or what. MISSY SAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. ( ) Re: Please Help! > calm/sedate. While we are getting his vitals, his doc comes in and > tells us that they have found a pea sized spot on his brain and that > they would like to do another test at the hospital in Pensacola to > make sure it is not cancer. If it's not, then we do another test in > a year to make sure it hasn't grown. Crissi, I've never experienced anything like this, but I just wanted to send some (((HUGS))) and tell you your son is in my prayers. Good luck, and please keep us posted. Wendi mom to 3yr old triplets with HFA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Crissi, Our son has seizures - they're absence seizures, which show up as staring off into space. He misses chunks of time whenever he has a seizure. He takes Zarontin for them, which seems to work quite well. He just had another sleep deprived eeg a few weeks ago. ugh. He also had a spot on his mri, which had his doctors concerned; but a repeat mri taken a couple of months later was normal. I hope the same happens for . Sending positive thoughts your way, Liz Crissi wrote: > We have had one hell of a day at the neurologist's office. It > started at 8:30 a.m. when we went in for vision and hearing tests, > along with an eeg. The doctor saw some seizure activity on the eeg, > so he sent us over for an mri while , my five year old, was > sedated. After an hour in the mri room, we head back to the > neurologist's because they want to check his vitals because of the > large amount of sedative we had to give him in order to get him to be > calm/sedate. While we are getting his vitals, his doc comes in and > tells us that they have found a pea sized spot on his brain and that > they would like to do another test at the hospital in Pensacola to > make sure it is not cancer. If it's not, then we do another test in > a year to make sure it hasn't grown. Does anyone have any experience > with this? We have never experienced a seizure to my knowledge, but > who knows? Please help...I'm so scared. Here I am, ready to deal > with the Asperger's diagnosis, but now that I don't know what's wrong > with my little boy...aaahhhhhh!!!! > > Thank you! > > Crissi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 We have seen much stuff dealing with tumors lately. Please take a deep breath and remember you are not alone. Our prayers are with your son. Cristina R. & Family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Are you detoxing the child? > who is normally reasonably laid back, for no apparent reason has >become TOTALLY obsessed. He wants control of everything and I >have absoloutely no >idea why. I cannot turn a light on, draw the curtains, turn on the tv, open >the front door, he has to do the lot. All I know is that I just cannot live >like it for long.............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 , Has he been sick lately? If so, sometimes this type of thing can happen after strep. Pam At 05:20 PM 8/3/2004 -0400, you wrote: >Hi everyone, > >I have the most awful dilemma here, the worst that I can ever remember. > > who is normally reasonably laid back, for no apparent reason has >become TOTALLY obsessed. He wants control of everything and I >have absoloutely no >idea why. I cannot turn a light on, draw the curtains, turn on the tv, open >the front door, he has to do the lot. All I know is that I just cannot live >like it for long.............. > >The only thing we did was try a new food but that was many days ago now and >I really don't think it is the problem. > >This came from nowhere and just does not seem to be improving yet we have >not changed anything as far as we know. Plus, normally, if it was a >die off or >something similar (and on this occasion I don't think it is) magnesium cream >does the trick in an instant. This time it is not calming him down much at >all so I am at a loss. > >REALLY need some help here as we were going to Germany on holiday on >Saturday but unless things improve we won't be able to. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 No, he has not been sick and we are detoxing using Brainchild products which we have been on for ages and have not been a problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 , So sorry to hear you're having a tough time. Have you screened for parasites or anaerobic bacteria, clostridia, stuff like that? These are the first thoughts that occurred to me in reading your description of his symptoms. Possibly yeast, of course, but in my experience, these kind of symptoms aren't really the yeasty kind. I suppose if you can't get testing done, you could treat as if it's bacteria or parasites, and see if anything changes. I miss talking to you. Hope your family is doing well otherwise. Terri At 05:20 PM 8/3/2004 -0400, you wrote: >Hi everyone, > >I have the most awful dilemma here, the worst that I can ever remember. > > who is normally reasonably laid back, for no apparent reason has >become TOTALLY obsessed. He wants control of everything and I >have absoloutely no >idea why. I cannot turn a light on, draw the curtains, turn on the tv, open >the front door, he has to do the lot. All I know is that I just cannot live >like it for long.............. > >The only thing we did was try a new food but that was many days ago now and >I really don't think it is the problem. > >This came from nowhere and just does not seem to be improving yet we have >not changed anything as far as we know. Plus, normally, if it was a >die off or >something similar (and on this occasion I don't think it is) magnesium cream >does the trick in an instant. This time it is not calming him down much at >all so I am at a loss. > >REALLY need some help here as we were going to Germany on holiday on >Saturday but unless things improve we won't be able to. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 > The only thing we did was try a new food but that was many days ago now and > I really don't think it is the problem. Sometimes my son's reaction to a food did not appear for several days. Especially if you mentioned that he did have a bout with diarrhea. Many kids have OCD behaviors with virus issues. Maybe try giving him some olive leaf extract and see if that helps. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Light, sound and obsessive compulsiveness are viral and bacterial issues here. Please HELP! > Hi everyone, > > I have the most awful dilemma here, the worst that I can ever remember. > > who is normally reasonably laid back, for no apparent reason has > become TOTALLY obsessed. He wants control of everything and I have absoloutely no > idea why. I cannot turn a light on, draw the curtains, turn on the tv, open > the front door, he has to do the lot. All I know is that I just cannot live > like it for long.............. > > The only thing we did was try a new food but that was many days ago now and > I really don't think it is the problem. > > This came from nowhere and just does not seem to be improving yet we have > not changed anything as far as we know. Plus, normally, if it was a die off or > something similar (and on this occasion I don't think it is) magnesium cream > does the trick in an instant. This time it is not calming him down much at > all so I am at a loss. > > REALLY need some help here as we were going to Germany on holiday on > Saturday but unless things improve we won't be able to. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Dear MRZ I know as a parent you are probably feeing a little belidered and frightened. I have not heard about the " cellulite " issue, but it seems probable that this could be the case. A more female shape is common in males with hormonal problems. Testosterone helps build/shape the male " hourglass " look - wide sholders, narrow hips. Many of us with hormonal difficulties look the opposite. At any rate, a few general suggestions: 1.) Take a deep breath! This is not a life threatening condition, and you have time to react appropriately. 2.) You do not know for sure if your son is XXY. Try not to judge or over-react. This could be something completely different. 3.) You need to become as educated as possible on this condition. Go to the LINKS section of this forum and download the AACE guidelines for hypogonadism. This will tell you what your MD should be doing to make a proper diagnosis of your son's condition. Make sure ALL tests are done before any treatment is begun. Only genetic tests can truly confirm if your son has a genetic abnormality. 4.) Find a good MD. A pediatric endocrinologist is a must in your case. Do NOT trust this to a general endo or to your family practitioner. 5.) This is a very supportive group, but there are others out there specifically for Kleinfelters and other genetic disorders. Again, look at the LINKS section. 6.) We are here for you. We'll lend any knowledge or support we can. Having others who understand makes all the difference, and believe me, we understand! Regards, K4 > > > My heart is crying for help!!! Please respond if you, your child or > your friend has similar conditions. My 13-year-old boy has a > cellulite and my female body structure (round hips). I went to our > family doctor and he suggested us to see endocrinologist about > probable XXY problem. I have read that males do not have cellulite at > all, only females do and cellulite condition is inherited from mother > to daughters, not to sons! Probably the information I read is > incorrect... What is the truth about the cellulite? Does anybody with > XXY condition have cellulite or probably know males who do? Is > cellulite and XXY condition related? Does TRT help to get rid of > cellulite and round hips? I do not what to do and how to help my > little boy! Any personal experience will be greatly appreciated!!! > Thanks to everyone in advance!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 > > > My heart is crying for help!!! Please respond if you, your child or > your friend has similar conditions. My 13-year-old boy has a > cellulite and my female body structure (round hips). I went to our > family doctor and he suggested us to see endocrinologist about > probable XXY problem. <snip> If he is obese he may just have those problems as a normal boy. But then the fat could be helping to produce too much Estrogen E2 & is causing the breast growth. I have read that raising testosterone & lowering Estrogen E2 at that age has prevented many of the problems that bother adults with hypogonadism, Low muscle mass & large breasts. I think I read that research in Canada & at the Mayo Clinic is being done at that age. Do some research on Klinefelts, hypogonadism, & puberty. Then try to find an endo that has some experience with males at puberty. Keep us posted as you progress as many of us have children & maybe have children with that condition. Low testosterone with large breasts is one of my family traits. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 , I think different people respond at different rates...I got better almost immediately but now Im in a flare and it seems to have fizzled out...I see my rheumy on April 5th so we are going to discuss my options....I wouold give it a little more time though I have been on enbrel 3 months now... hang in there, Vickey mytmikel <HomeBuilders@...> wrote: I am new to this group. I have had P for about 25 years and PA for about 3 years. In the last 6 months it has gotten so very painful. I was started on Enbrel one month ago and I'm not better yet. Am I being impatient? Can I look for relief sometime in the future? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Thanks for your words of support, Vickey. I will hang in there. What else can I do? I just want everything yesterday. , RME Home Builders, LLC Quality Building and Savings --- Vickey Arnold <smilin4dannme2002@...> wrote: From: Vickey Arnold <smilin4dannme2002@...> Date: Wed, 23 Mar 2005 17:25:41 -0800 (PST) Subject: Re: [ ] Please help! , I think different people respond at different rates...I got better almost immediately but now Im in a flare and it seems to have fizzled out...I see my rheumy on April 5th so we are going to discuss my options....I wouold give it a little more time though I have been on enbrel 3 months now... hang in there, Vickey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 We had my daughter on Uva Ursi to help treat Klebsiella bacteria and she started getting very squirmy in her car seat and stroller. When we stopped the Uva Ursi, she stopped squirming. So, instead, we started olive leaf extract for the bacteria, again the squirming started, but she was doing OK, pooping on her own for a change (with an addition of aloe vera water). We stopped the olive leaf extract because watching her squirm was really difficult, now she is worse! She is hitting, hyper, waking a lot at night, not pooping! The doctor thought it was yeast and upped her antifungal, but it hasn't helped. I'm beginning to think it's bacteria coming back or maybe viruses. I was going to start the Lauricidin but I don't know how I'll get her to take those awful pellets, she can't swallow them. Please help! Digest Number 4452 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I don't see a problem. He did tear it up and that is not acceptable. Having him buy a new one is a great idea. The only thing I would add it to practice other ways of being mad that do not involve tearing something apart. Yell, hit the pillow, use your words, write, throw a ball against the wall (bouncy ball) until one can calm down. Roxanna ( ) please help! I don't know what to do right now. I was writing a speech for my husband who is the best man in a wedding this evening (thank goodness my mom is watching my aspie tonight rather than him going to this wedding). He freaked out that I was " lying " at the begging of the speech. I tried to explain that it wasn't a lie, it was a joke, but he didn't understand and started yelling that I was lying. I told him he needed to go into his room to cool down. I heard banging in there and continued to write the speech. Moments later he came out and said, " There, I destroyed Willy's (my husband) fan! " I went in there and saw that the fan he lent him to stay cool at night was in pieces. I know I shouldn't have yelled but that was my immediate reaction. I told him we'd be leaving soon to go to his bank, get his own money, and buy Willy a new fan. I yelled at him to clean it up now and he's currently in his room (I can't hear anything that's going on) and I'm out here writing. What do I do? Ibr> feel really bad for yelling at him, it just came out of me. <jackfaithsmom0304@...> wrote: You know, it is absolutely ridiculous the things that you hear sometimes, kids shoes taped to feet, making them stand on newspaper outside office in their own waste. I absolutely can't believe there are adults in society that think this is ok. What is wrong with people. If it weren't for the humiliation factor for my son, when they informed me that I " couldn't " change my son on the school grounds, I think I would have felt compelled to lay him down right there change his britches and slam the messy undies on the jerk offenders desk and promptly find a new school but that's just me, I'm still dealing with a few bitterness issues LOL I hope for your DS sake (who sounds so sweet) that this school gets their act together b/c it sounds like he really enjoys going there (FOR SOME REASON, what I don't know when they treat him that way) Good luck. <carriebeary77@...> wrote: Rechelle, I absolutely agree with you. The reasons my son was disciplined in school are completely legitimate and I always backed the administration up on their discipline. My problem is with the attitude my son's teacher & principal had toward us and especially toward him. They refused to have him evaluated, therefore they ended up dealing with a kid w/ " behavior problems " (as they called him) without ever having the boy evaluated to decipher what REALLY was the cause. The teacher would try to physically escort him to the office and he would pull away from her. He was threatened w/ police involvement (by the teacher's husband, a police officer in town!) and his teacher's previous job was Juvenile Probation Officer. She'd only been teaching kindergarten for 4 years. The woman also confronted me in a negative manner about helping out in the class w/o filling out a form to submit to a background check. I have no problem w/ a background check. But for 2 MONTHS I was helping out in that school at LEAST twice a week and not one person ever said one word to me about the form or anything else. As soon as Max's teacher came back from maternity leave, suddenly I'm not allowed on school grounds because I might be " a child molester. " She actually implied that. Why I didn't take my son, go gather his things, and walk him out of that school forever is beyond me. It took another day to make that decision. It was not ever what Max did wrong or how disciplne was handled. It was what THEY did, what THEY said, and how they treated him. The diarrhea incident is another issue. Read on. Upon having a diarrhea accident in school on Dec. 19, 2005, he was sent to the office and made to stand on paper, outside the office, until we came to pick him up. We were not even allowed to change him in the bathroom or clean him up so we could bring him home, even though we were informed that we needed to bring him a change of clothes, therefore, he sat in his own excrement until we got home. When we put him in the shower, his skin was inflamed and raw from the dried on waste. > > While I realize no nurse was in that day (she had the flu like half the ppl in town), there is no excuse for this treatment towards any child. I am shocked at the ability of a staff that works with children, to be so cruel and humiliating to a child. I am stunned at the incompetence. And we got no *real* justice after speaking w/ the superintendent about it, either. *eyes rolling* I honestly don't know why I didn't pull him out that minute. And you know, for all of his mistreatment, he still loved school itself. When we took him out to homeschool for the last 2 mos of kindergarten he wanted to go back SO BADLY. He told me, " Maybe Mrs. A will be nice to me now. " After taking him out, I discovered 6 other parents had problems w/ her and one of them was trying to get her kid changed to a different class. Anyway, really long answer. I do agree w/ you. I just wanted to get Max's story out there so ppl could see why I was defensive about him. ~ > > Everyone in this group is so nice all the time wow. I have to be > honest and I hope you all would be with me. > > I'm really surprised that you could defend your child throwing > anything at a teacher, styrofoam cup, pencil, anything. > > I know we get so used to fighting for our kids and defending their > rights that we forget sometimes that they are just plain wrong. > > It used to be that if the school called home with a problem or the > neighbor came over to tell you that your child had done something > wrong that the parents took action. They disciplined the kids and > believed the other adults because children are still learning and > are not always right. > > Now other parents are afraid to talk to each other. If I have a > child over for a play date and they do something wrong I think twice > about telling the parent because most of the time they just defend > their child and get angry. > > So I'm sure you'll probably be angry about this post and want to > defend your child again about how throwing styrofoam is not a big > deal but really think about it throwing something at a teacher is > just plain wrong Autism, Aspergers, or Normal kids, they have to > learn to respect authority its just a basic fact of life. > > Rechelle > Mom to Lara, 7 year old aspie > --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Kim, Hearing about the continued rise in autism, I also wondered why it would keep going UP even though the thimerosol was supposed to be OUT. The truth is that the amount of thimerosol in each vaccine has been lowered but not eliminated. In addition, the low amount of mercury is no longer enough to stop multi-dose vials degrading. So the drug companies add aluminum and formaldehyde. These interact with mercury synergistically to produce effects pretty much as bad as the old vaccines. Many folks here have stated the above. I pulled an email from someone who explains this more thoroughly. I hope this helps. ******************************************************************************* Wanting to determine whether mercury was truly absent from vaccines today, the group, Health Advocacy in the Public Interest (HAPI), recently sent 4 vaccines off to be tested. The test results showed that all four vials contained mercury, despite claims by two drug makers that their products were totally mercury free. HAPI also discovered that thimerosal is still being used in the manufacturing process of most vaccines. However, drug makers claim they filter the thimerosal out of the final product. But Boyd Haley, who is the Chemistry Department Chair at the University of Kentucky, told HAPI, that claim is false because mercury binds to the antigenic protein in the vaccine and cannot be completely filtered out 100%. " Mercury-free " vaccines should really be called " low mercury " vaccines. Two or three years ago, a parents' activist group, Health Advocacy in the Public Interest (HAPI), sent 4 vials of different vaccines off to be tested. The test results showed that all four vials contained mercury, despite claims by two drug makers that their products were mercury free. Thimerosal is still being used in the manufacturing process of most vaccines. Drug companies say they filter the thimerosal out of the final product. But Boyd Haley, Chemistry Department Chair at the University of Kentucky, says mercury binds to the antigenic protein in the vaccine and cannot be completely filtered out 100%. But it gets worse. The low amount of mercury is no longer enough to stop multi-dose vials degrading. So the drug companies add aluminum and formaldehyde. These interact with mercury synergistically to produce effects pretty much as bad as the old vaccines. We haven't helped our case by going on and on about mercury and saying little about the role of other substances in autism. It is now easier than ever for the drug companies to say we are deluded and vaccines are safe and have always been safe Steve kbastible <KBastible@...> wrote: Good Morning All, It's me Kim again, as some of you know I'm a Physician Assistant and I work at a pediatric/adolescent clinic in the South Bronx. A colleague of mine is pro-vaccine and is always sending me links to the studies done by pharma as proof of the goodness of vaccines. Today she sent me this paragraph: " Thiomerosal in vaccines - An elegant review of the literature was presented. Despite the removal of thiomerosal in vaccines, rates of autism and autistic spectrum disorders continue to rise in this country. New literature is emerging regarding other potential causes of autism. At this time, there is no evidence to link the use of thiomerosal with the development of autism. Further study continues. Public comment during the session points to continued debate and concern among parents of children with autism and other developmental issues. " Can anyone send me a link that will shut her up once and for all? Since I'm at work and in between patients I don't have the time to do the research, but I'm sure some of you have this link in your " favorites " already. She's a good person, but suffers from medical school brain washing in the ump-teenth degree. Thanks, Kim --------------------------------- Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
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