Re: We're back!

[Guest guest]

I just got to read your update. Isaac had his consultation with a

new dr. last wk, and his tenotomy this week.

I am so glad that you were able to go to Iowa and meet Dr. Ponsetti.

I also can't wait to hear of Lucas' progress after his first cast.

Kailee 7-00

Ean 6-03

Isaac 7-05 (unilateral, right clubfoot)

>

> Hey everyone! We made it back Sat afternoon- the roads were awful

in

> MN. We almost didn't go since we found out on Wed that our

insurance

> wasn't going to pay for it. We found out when we went to pick up

our

> referral- would have been nice for them to call us and let us

know!

> Anyway my husband called Dr. Ponseti's office to let them know

what

> was going on and the nurse called back saying that Dr. Ponseti

wanted

> to see Lucas anyway, so to come on in and they'll take care of it!

> Made my hubby tear up. I'm still in shock at how they seriously

seem

> to care for every single clubfoot baby! After a year of being

shuffled

> around and not getting anywhere with other docs...

>

> Lucas' appt went well. Dr. Ponseti did a thorough exam of Lucas-

> checking out every joint as well as his back to make sure he

didn't

> have anything else wrong. His middle fingers are curled under and

Dr.

> Ponseti figured out which joint is the problem. The hand

specialist

> here didn't do that- just told us to splint them at night. But Dr.

> Ponseti said nothing could be done about them until later- same

thing

> the doc here says.

>

> I'm sure I don't have to tell anyone how amazing he is. He's

> extrememly gentle- Lucas didn't cry at all until they put the

casts

> on. Barb and Joyce were great as well- I've never seen so many

people

> jumping up and down and making funny faces to please a baby!

>

> Dr. Ponseti said he can make Lucas' left foot completely normal,

but

> that the right one already has some scar tissue from the surgery

so

> that one will be stiff. But that he could make it better. He was

> rubbing Lucas' scar and mumbling " too bad " under his breath, so

I'm

> assuming that Lucas shouldn't have had that surgery- but I was too

> scared to ask. He did say that Lucas has a difficult clubfoot to

treat

> and the right one is definitely atypical. He also that our doc

here

> can't treat clubfoot like Lucas', but that he can. He said 5 casts

and

> we'd be done. We didn't know that he liked to switch out every 5

days,

> so we drove back home and our next appt is for Fri. My hubby is

going

> to take off of work and drive back over there and they'll stay for

3

> weeks or so until the treatment is finished. This way it'll be

much

> easier for Lucas. It'll go faster and he won't have to be in the

car

> so much (12 hrs each way). So far I cry every time I think about

it.

> He'll be fine in my husbands hands (my mother in law is also

going),

> but I'll miss him terribly!

>

> The brace we had here is " not right " according to Dr. Ponseti. He

> looked like he wanted to spit on it. When he explained the casts

to me

> he said 5 and then he'll be put in a brace- then he glanced in

disgust

> over at the DBB that I brought and said " A different one. "

>

> Like I said before- what an amazing man. I think it's got to be

very

> frustrating for him though. Here he has a good proven method of

> treating clubfoot, he trains docs all the time in his method, and

yet

> he regularly gets babies who have been treated wrong and he has to

> correct the other doctors mistakes!

>

>

> Okay, time for work and the baby! Thanks for all of your support!

>

> Jenn

>

[Guest guest]

Good luck on the tenotomy! Let me know how it went.

Jenn

> >

> > Hey everyone! We made it back Sat afternoon- the roads were

awful

> in

> > MN. We almost didn't go since we found out on Wed that our

> insurance

> > wasn't going to pay for it. We found out when we went to pick up

> our

> > referral- would have been nice for them to call us and let us

> know!

> > Anyway my husband called Dr. Ponseti's office to let them know

> what

> > was going on and the nurse called back saying that Dr. Ponseti

> wanted

> > to see Lucas anyway, so to come on in and they'll take care of

it!

> > Made my hubby tear up. I'm still in shock at how they seriously

> seem

> > to care for every single clubfoot baby! After a year of being

> shuffled

> > around and not getting anywhere with other docs...

> >

> > Lucas' appt went well. Dr. Ponseti did a thorough exam of Lucas-

> > checking out every joint as well as his back to make sure he

> didn't

> > have anything else wrong. His middle fingers are curled under

and

> Dr.

> > Ponseti figured out which joint is the problem. The hand

> specialist

> > here didn't do that- just told us to splint them at night. But

Dr.

> > Ponseti said nothing could be done about them until later- same

> thing

> > the doc here says.

> >

> > I'm sure I don't have to tell anyone how amazing he is. He's

> > extrememly gentle- Lucas didn't cry at all until they put the

> casts

> > on. Barb and Joyce were great as well- I've never seen so many

> people

> > jumping up and down and making funny faces to please a baby!

> >

> > Dr. Ponseti said he can make Lucas' left foot completely normal,

> but

> > that the right one already has some scar tissue from the surgery

> so

> > that one will be stiff. But that he could make it better. He was

> > rubbing Lucas' scar and mumbling " too bad " under his breath, so

> I'm

> > assuming that Lucas shouldn't have had that surgery- but I was

too

> > scared to ask. He did say that Lucas has a difficult clubfoot to

> treat

> > and the right one is definitely atypical. He also that our doc

> here

> > can't treat clubfoot like Lucas', but that he can. He said 5

casts

> and

> > we'd be done. We didn't know that he liked to switch out every 5

> days,

> > so we drove back home and our next appt is for Fri. My hubby is

> going

> > to take off of work and drive back over there and they'll stay

for

> 3

> > weeks or so until the treatment is finished. This way it'll be

> much

> > easier for Lucas. It'll go faster and he won't have to be in the

> car

> > so much (12 hrs each way). So far I cry every time I think about

> it.

> > He'll be fine in my husbands hands (my mother in law is also

> going),

> > but I'll miss him terribly!

> >

> > The brace we had here is " not right " according to Dr. Ponseti.

He

> > looked like he wanted to spit on it. When he explained the casts

> to me

> > he said 5 and then he'll be put in a brace- then he glanced in

> disgust

> > over at the DBB that I brought and said " A different one. "

> >

> > Like I said before- what an amazing man. I think it's got to be

> very

> > frustrating for him though. Here he has a good proven method of

> > treating clubfoot, he trains docs all the time in his method,

and

> yet

> > he regularly gets babies who have been treated wrong and he has

to

> > correct the other doctors mistakes!

> >

> >

> > Okay, time for work and the baby! Thanks for all of your

support!

> >

> > Jenn

> >

>