Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi Leila - I looked at the pictures at it looks like your daughter has more of a case of brachy than plagio. Did the PT at CT mention to you the Cephalic Ratio? The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal ratio is 78% and the normal range is 73-83%. At 7 mm of asymmetry I would say that she has a mild case of plagio. Molly Novato, California Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 5 , 8.5 Please, take a look Hello to all, Could some of you please take a look at the before pics of my daughter Maysa in the M folder on page 90. We took her to CT this past Wednesday and I don't know what to make of it. We did not get a sheet of her measurements but when I asked, the PT told me she was at a 7mm and then told me that she had moderate brachy-plagiocephaly. What do you think? Her head is changing every day it seems and I think that I am going crazy. She has been handling tummy time a lot more just within this past week but she still sleeps a lot, on her back... I felt that the therapist at CT was trying to sell us the band and didn't even have us talk to their insurance specialist. As much as I was anxious to pay them a visit, I am quite disappointed. Also, after examining her the therapist was saying that the fact that she has a right tort makes it hard for her to turn right, which is so not the case. What she can't do is tilt her head left. When I said that, she looked at her again and said oh yes, she (my daughter) was just trying to trick her. Needless to say that I wasn't too impressed... Leila, mother of Maysa (5 months, right tort, brachy-plagio) ------------------------------------ For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I see the brachy and the plagio, but neither is severe. Given the combo I would probably band, also because her head looks very flat in the back. However at 5 mo you still have time. If you're reluctant to band you could try repositioning her for another month or two before deciding. You have good pics of her head now, so you can compare and see where you are in comparison. However if you decide to wait you should make a big effort to keep her off her back and the flatter side. Repo is a lot of work, but you're far more likely to see results if you're aggressive about it than if you just wait to see how she does on her own. We banded my daughter at 5 mo, but her brachy was obviously severe, so we didn't really consider not banding. -christine sydney 2.5 yrs starband grad > > Hi Leila - > > I looked at the pictures at it looks like your daughter has more of a case > of brachy than plagio. Did the PT at CT mention to you the Cephalic Ratio? > The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal ratio is 78% > and the normal range is 73-83%. At 7 mm of asymmetry I would say that she > has a mild case of plagio. > > Molly > Novato, California > Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > Graduate! > , 5 > , 8.5 > > Please, take a look > > Hello to all, > > Could some of you please take a look at the before pics of my > daughter Maysa in the M folder on page 90. We took her to CT this > past Wednesday and I don't know what to make of it. We did not get a > sheet of her measurements but when I asked, the PT told me she was at > a 7mm and then told me that she had moderate brachy-plagiocephaly. > What do you think? > > Her head is changing every day it seems and I think that I am going > crazy. She has been handling tummy time a lot more just within this > past week but she still sleeps a lot, on her back... > > I felt that the therapist at CT was trying to sell us the band and > didn't even have us talk to their insurance specialist. As much as I > was anxious to pay them a visit, I am quite disappointed. > > Also, after examining her the therapist was saying that the fact that > she has a right tort makes it hard for her to turn right, which is so > not the case. What she can't do is tilt her head left. When I said > that, she looked at her again and said oh yes, she (my daughter) was > just trying to trick her. > > Needless to say that I wasn't too impressed... > > Leila, mother of Maysa (5 months, right tort, brachy-plagio) > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi there,I agree with Molly that it looks like she has more brachy than plagio. I didn't get a sheet of my daughter's measurements either. And CT likes to say that they don't really like to pay that much attention to the measurements. It can be so different from person to person measuring. They put a lot more emphasis on the pictures. From the pictures, I think your daughter would do well with a band. Maybe you could ask for another consultation with a different orthotist. I definitely have a favorite orthotist. In fact, I delayed banding my daughter because I didn't feel as confident in the ability/knowledge of one of the orthotists. We did consultations/pictures at 2 months, 4 months and 6 months before we got the band. We got an insurance pre-certification before we had the imaging. I think it costs $100 to do another consultation after the free one. They might even waive it if you explain your feelings. Or you could try going to an Starband office? Good luck!Wendee Please, take a lookHello to all, Could some of you please take a look at the before pics of my daughter Maysa in the M folder on page 90. We took her to CT this past Wednesday and I don't know what to make of it. We did not get a sheet of her measurements but when I asked, the PT told me she was at a 7mm and then told me that she had moderate brachy-plagiocephal y. What do you think? Her head is changing every day it seems and I think that I am going crazy. She has been handling tummy time a lot more just within this past week but she still sleeps a lot, on her back... I felt that the therapist at CT was trying to sell us the band and didn't even have us talk to their insurance specialist. As much as I was anxious to pay them a visit, I am quite disappointed. Also, after examining her the therapist was saying that the fact that she has a right tort makes it hard for her to turn right, which is so not the case. What she can't do is tilt her head left. When I said that, she looked at her again and said oh yes, she (my daughter) was just trying to trick her. Needless to say that I wasn't too impressed... Leila, mother of Maysa (5 months, right tort, brachy-plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 As far as the tort, it was explained to me this way: if she tilts to the left then she'll always want to turn to the right and vice versa for the other side - if she always wants to turn to the left then she probably tilts to the right. I can see her brachy in the pictures but I don't really see the plagio. Maybe the assymetry was caused by the tort and not plagio.?.. My son is in a STARband and we've never been to CT so I can't really comment on your thoughts with them, but I do know it is very rare to hear anyone dislike them. Just make sure that YOU are comfortable with where you take her because it is very important to have a good relationship with the ortho/technician as well as getting a good one. Austin-6 mos(tort/plagio)Blake-4 Please, take a look Hello to all,Could some of you please take a look at the before pics of my daughter Maysa in the M folder on page 90. We took her to CT this past Wednesday and I don't know what to make of it. We did not get a sheet of her measurements but when I asked, the PT told me she was at a 7mm and then told me that she had moderate brachy-plagiocephal y. What do you think?Her head is changing every day it seems and I think that I am going crazy. She has been handling tummy time a lot more just within this past week but she still sleeps a lot, on her back...I felt that the therapist at CT was trying to sell us the band and didn't even have us talk to their insurance specialist. As much as I was anxious to pay them a visit, I am quite disappointed.Also, after examining her the therapist was saying that the fact that she has a right tort makes it hard for her to turn right, which is so not the case. What she can't do is tilt her head left. When I said that, she looked at her again and said oh yes, she (my daughter) was just trying to trick her. Needless to say that I wasn't too impressed...Leila, mother of Maysa (5 months, right tort, brachy-plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Alright, I got an answer back regarding her cephalic ratio. It is: 92.6% according to the measurements she took. The paper also says that there is a standard deviation of +4.1. Her mid-face and skull-face asymetry are 3mm each while her cranial vault asymetry is 7mm. Also, her cranial width is listed as 126mm and her cranial length at 136mm. There you have it. Leila From: Foley, Molly <mafoley@...>Subject: RE: Please, take a lookPlagiocephaly Date: Friday, June 20, 2008, 11:17 AM Hi Leila -I looked at the pictures at it looks like your daughter has more of a caseof brachy than plagio. Did the PT at CT mention to you the Cephalic Ratio?The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal ratio is 78%and the normal range is 73-83%. At 7 mm of asymmetry I would say that shehas a mild case of plagio.MollyNovato, CaliforniaNicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/ 06,Graduate!, 5, 8.5 Please, take a lookHello to all,Could some of you please take a look at the before pics of my daughter Maysa in the M folder on page 90. We took her to CT this past Wednesday and I don't know what to make of it. We did not get a sheet of her measurements but when I asked, the PT told me she was at a 7mm and then told me that she had moderate brachy-plagiocephal y. What do you think?Her head is changing every day it seems and I think that I am going crazy. She has been handling tummy time a lot more just within this past week but she still sleeps a lot, on her back...I felt that the therapist at CT was trying to sell us the band and didn't even have us talk to their insurance specialist. As much as I was anxious to pay them a visit, I am quite disappointed.Also, after examining her the therapist was saying that the fact that she has a right tort makes it hard for her to turn right, which is so not the case. What she can't do is tilt her head left. When I said that, she looked at her again and said oh yes, she (my daughter) was just trying to trick her. Needless to say that I wasn't too impressed...Leila, mother of Maysa (5 months, right tort, brachy-plagio)------------ --------- --------- ------For more plagio info, go to www.plagiocephaly. org/support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I would band with this CI. Our specialist (cranio facial plastic surgeon) recommends banding at 90% or above. My daughter started at about 96 or 97 % (I forget) with only 4.5 mm of asymmetry. She got down to about 85% and 3.5 mm. Even now her head isn't perfect. I'm really glad we got as much correction as we did. Normal is about 78%. You can see her before and after as well as a scan (outline) showing both in the Photos area of this group under Our Plagio Babies S/Sydney M if your are interested. -christine sydney 2.5 yrs starband grad > > From: Foley, Molly <mafoley@...> > Subject: RE: Please, take a look > Plagiocephaly > Date: Friday, June 20, 2008, 11:17 AM > > > > > > > Hi Leila - > > I looked at the pictures at it looks like your daughter has more of a case > of brachy than plagio. Did the PT at CT mention to you the Cephalic Ratio? > The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal ratio is 78% > and the normal range is 73-83%. At 7 mm of asymmetry I would say that she > has a mild case of plagio. > > Molly > Novato, California > Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/ 06, > Graduate! > , 5 > , 8.5 > > Please, take a look > > Hello to all, > > Could some of you please take a look at the before pics of my > daughter Maysa in the M folder on page 90. We took her to CT this > past Wednesday and I don't know what to make of it. We did not get a > sheet of her measurements but when I asked, the PT told me she was at > a 7mm and then told me that she had moderate brachy-plagiocephal y. > What do you think? > > Her head is changing every day it seems and I think that I am going > crazy. She has been handling tummy time a lot more just within this > past week but she still sleeps a lot, on her back... > > I felt that the therapist at CT was trying to sell us the band and > didn't even have us talk to their insurance specialist. As much as I > was anxious to pay them a visit, I am quite disappointed. > > Also, after examining her the therapist was saying that the fact that > she has a right tort makes it hard for her to turn right, which is so > not the case. What she can't do is tilt her head left. When I said > that, she looked at her again and said oh yes, she (my daughter) was > just trying to trick her. > > Needless to say that I wasn't too impressed... > > Leila, mother of Maysa (5 months, right tort, brachy-plagio) > > ------------ --------- --------- ------ > > For more plagio info, go to www.plagiocephaly. org/support > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I think banding is a very good idea with a 92.6% ratio. That's well over the " norm " . They get that number by taking the 126mm (cranial width) divided by 136mm (cranial length). So at this point, I think you can feel comfortable that banding will be beneficial (if you decide to go that route), you would just have to decide who to go to. I would be sure when you go to ECA to ask about their experience treating both plagio and brachy combined with that type of band (hard plastic shell with no/little foam for adjustments). That should be an important deciding factor. I have never heard of ECA before and would personally need to know exactly how their helmet works before I felt comfortable going with them (all those bolts and hinges on their helmet make me a nervous). I know you said they are FDA approved, but do you know when? I would also ask them how long they have been making this helmet. Their website says they've treated over 300 plagio cases and I would just be interested to know how many years that number spans to get a better idea of how much experience they have (i.e. 10 years at 30 babies a year, vs. 5 years at 60 babies a year). Just some ideas of what I would ask if I was in your situation, since they are the lesser known of your two choices. Good Luck! Jake-21m (tort resolved/rt plagio/DOCBand #2 2weeks) Jordan-4 > > From: Foley, Molly <mafoley@...> > Subject: RE: Please, take a look > Plagiocephaly > Date: Friday, June 20, 2008, 11:17 AM > > > > > > > Hi Leila - > > I looked at the pictures at it looks like your daughter has more of a case > of brachy than plagio. Did the PT at CT mention to you the Cephalic Ratio? > The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal ratio is 78% > and the normal range is 73-83%. At 7 mm of asymmetry I would say that she > has a mild case of plagio. > > Molly > Novato, California > Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/ 06, > Graduate! > , 5 > , 8.5 > > Please, take a look > > Hello to all, > > Could some of you please take a look at the before pics of my > daughter Maysa in the M folder on page 90. We took her to CT this > past Wednesday and I don't know what to make of it. We did not get a > sheet of her measurements but when I asked, the PT told me she was at > a 7mm and then told me that she had moderate brachy-plagiocephal y. > What do you think? > > Her head is changing every day it seems and I think that I am going > crazy. She has been handling tummy time a lot more just within this > past week but she still sleeps a lot, on her back... > > I felt that the therapist at CT was trying to sell us the band and > didn't even have us talk to their insurance specialist. As much as I > was anxious to pay them a visit, I am quite disappointed. > > Also, after examining her the therapist was saying that the fact that > she has a right tort makes it hard for her to turn right, which is so > not the case. What she can't do is tilt her head left. When I said > that, she looked at her again and said oh yes, she (my daughter) was > just trying to trick her. > > Needless to say that I wasn't too impressed... > > Leila, mother of Maysa (5 months, right tort, brachy-plagio) > > ------------ --------- --------- ------ > > For more plagio info, go to www.plagiocephaly. org/support > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Sorry, one more thing I saw on ECA's website...if they tell you that the DOCBand doesn't work as well as theirs because the foam doesn't exert as much pressure and will compress and take the shape of the baby's head, that's simply not true. The liner that is used in the DOCBand is actually very hard. You can't press it in with your finger, it's very dense and strong. My son wore his first DOCBand for 16 weeks and the holding points stayed firm and the liner never compressed that entire time. Jake-21m (tort resolved/rt plagio/DOCBand #2 2 weeks) Jordan-4 > > > > From: Foley, Molly <mafoley@> > > Subject: RE: Please, take a look > > Plagiocephaly > > Date: Friday, June 20, 2008, 11:17 AM > > > > > > > > > > > > > > Hi Leila - > > > > I looked at the pictures at it looks like your daughter has more > of a case > > of brachy than plagio. Did the PT at CT mention to you the > Cephalic Ratio? > > The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal > ratio is 78% > > and the normal range is 73-83%. At 7 mm of asymmetry I would say > that she > > has a mild case of plagio. > > > > Molly > > Novato, California > > Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06- 9/12/ > 06, > > Graduate! > > , 5 > > , 8.5 > > > > Please, take a look > > > > Hello to all, > > > > Could some of you please take a look at the before pics of my > > daughter Maysa in the M folder on page 90. We took her to CT this > > past Wednesday and I don't know what to make of it. We did not get > a > > sheet of her measurements but when I asked, the PT told me she was > at > > a 7mm and then told me that she had moderate brachy-plagiocephal > y. > > What do you think? > > > > Her head is changing every day it seems and I think that I am > going > > crazy. She has been handling tummy time a lot more just within > this > > past week but she still sleeps a lot, on her back... > > > > I felt that the therapist at CT was trying to sell us the band and > > didn't even have us talk to their insurance specialist. As much as > I > > was anxious to pay them a visit, I am quite disappointed. > > > > Also, after examining her the therapist was saying that the fact > that > > she has a right tort makes it hard for her to turn right, which is > so > > not the case. What she can't do is tilt her head left. When I said > > that, she looked at her again and said oh yes, she (my daughter) > was > > just trying to trick her. > > > > Needless to say that I wasn't too impressed... > > > > Leila, mother of Maysa (5 months, right tort, brachy-plagio) > > > > ------------ --------- --------- ------ > > > > For more plagio info, go to www.plagiocephaly. org/support > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I have to recant part of my statement. I was just cleaning my son's DOCBand and you can press the foam in with your finger, but not by very much (if I wanted to really squeeze the heck out of it, I could probably push it all the way down to the plastic, but it would take some exersion). The ECA website compares bands with foam liners to jumping on a mattress and how the foam compresses to support your body and therefore doesn't allow for maximum correction. The foam of the DOCBand is definitely not as soft as a mattress (at least not one I'd want to sleep on!) and the head does not jump in the band, so...just wanted to clarify! Sorry I mispoke, if my son hadn't been napping at the time of my earlier post, I would have checked it right then! Jake-21m (tort resolved/rt plagio/DOCBand #2 2 weeks) Jordan-4 > > > > > > From: Foley, Molly <mafoley@> > > > Subject: RE: Please, take a look > > > Plagiocephaly > > > Date: Friday, June 20, 2008, 11:17 AM > > > > > > > > > > > > > > > > > > > > > Hi Leila - > > > > > > I looked at the pictures at it looks like your daughter has more > > of a case > > > of brachy than plagio. Did the PT at CT mention to you the > > Cephalic Ratio? > > > The Cephalic Ratio = Cranial Breadth/Cranial Length; the ideal > > ratio is 78% > > > and the normal range is 73-83%. At 7 mm of asymmetry I would say > > that she > > > has a mild case of plagio. > > > > > > Molly > > > Novato, California > > > Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06- > 9/12/ > > 06, > > > Graduate! > > > , 5 > > > , 8.5 > > > > > > Please, take a look > > > > > > Hello to all, > > > > > > Could some of you please take a look at the before pics of my > > > daughter Maysa in the M folder on page 90. We took her to CT > this > > > past Wednesday and I don't know what to make of it. We did not > get > > a > > > sheet of her measurements but when I asked, the PT told me she > was > > at > > > a 7mm and then told me that she had moderate brachy- plagiocephal > > y. > > > What do you think? > > > > > > Her head is changing every day it seems and I think that I am > > going > > > crazy. She has been handling tummy time a lot more just within > > this > > > past week but she still sleeps a lot, on her back... > > > > > > I felt that the therapist at CT was trying to sell us the band > and > > > didn't even have us talk to their insurance specialist. As much > as > > I > > > was anxious to pay them a visit, I am quite disappointed. > > > > > > Also, after examining her the therapist was saying that the fact > > that > > > she has a right tort makes it hard for her to turn right, which > is > > so > > > not the case. What she can't do is tilt her head left. When I > said > > > that, she looked at her again and said oh yes, she (my daughter) > > was > > > just trying to trick her. > > > > > > Needless to say that I wasn't too impressed... > > > > > > Leila, mother of Maysa (5 months, right tort, brachy-plagio) > > > > > > ------------ --------- --------- ------ > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > Quote Link to comment Share on other sites More sharing options...
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