Re: Intro - DSi Today

[Guest guest]

She's adorable! Has your ped examined her for tort? Because I think I would

still get her checked out specifically for that because even if she has range of

motion both ways, I would still want to check out her tilt just to be sure (it

could be that her neck is just short, rather than short AND tight). Is her head

tilted like that often?

I think the back angle photo shows her brachy pretty well, her head sort of

angles out on the left side. I see it in the top looking down as well. So I

think you are making a wise choice to band her. I look forward to seeing her

after photos!

And I know, seriously, what you mean about second-guessing and focusing on the

numbers. For me, I was actually concerned that the numbers wouldn't be severe

enough to prove that I was seeing what I was seeing. I needed the validation, I

guess, because I was so going to band him no matter what (he was 17 months old

and I was desperate), but at least when his numbers came back at 15mm for both

cranial vault and skull base, I was like " yes! I'm NOT crazy! " So sad, but so

true. And then again, I sometimes like to give his beginning and ending numbers,

particularly when other parents of older babies are questioning whether banding

is worth it or not, because it shows that there was, in fact, improvement at a

later age. So yeah, I get it, cause I definitely go back and forth with it

regularly.

Jake-2.5 (DOCBand Grad 9/08)

Jordan-5

> > >

> > > Hi everyone. I have been " lurking " on this group for the past

> > couple of weeks. I have really enjoyed reading the posts and have

> > already learned a lot along with having more questions/concerns. My

> > daughter, Mackenzie is 9 mo and has Brachycephaly and right Plagio.

> > According to the clinician, she is in the " high moderate to low

> > severe " range. I will post her Photo Study soon. We are going to CT

> > in Charlotte. Today, we went for the DSi and paid for the treatment,

> > so I guess we are committed to it now. She did fine with the DSi.

> > She was even fine with the stocking they put over her face, although

> > mommy was a little nervous about that one.

> > >

> > > After reading a lot of the posts with everyone talking about their

> > " measurements " , I started getting a little concerned because CT

> > never gave us any measurements. Today, I asked about them. She

> > showed us the measurements but did mention that they only take them

> > for insurance purposes. She said that they are basically measuring

> > from one bone point to another and that the severe areas may not

> > always show up in the particular areas they are measuring. That is

> > why they don't pay a lot of attention to the measurements. I would

> > like to thank for explaining the measurements. That helped me

> > to understand it a LITTLE better. I don't remember exactly what each

> > number represented, because I did not get a copy, but what I could

> > remember of her numbers, I wrote down when I got to the car. The

> > Cephalic Index was 91.00 underneath that was a +2 (not sure what

> > that meant) The next number she gave was a 7. I think this was the

> > Cranial Vault Assym. The last number was a 6. I think I remember her

> > telling me that this was the measurements from ear to nose (maybe?).

> > Does this make sense to anyone? I am not sure where the Cephalic

> > Index " should be " either. All I really know is that these were the

> > numbers in this order, if anyone knows what CT typically measures

> > first, second, so forth please explain this to me. I would love

> > anyone's advice or input on Mackenzie, just please don't tell me

> > that you don't think her measurements are severe enough to do the

> > treatment, since we just forked out all the money today. :-)

> > >

> > > Thanks.

> > >

> > > Amy

> > > Mackenzie - 9 months (receiving DOC band on April 29th)

> > >

> >

> >

> >

>