Re: The trigeminal nerve

[Guest guest]

Hello everyone, I have trigeminal neuralgia. It starts in my ear or jaw, and

feels as if I am being stabbed by a hot sharp knife. The pain is always on my

the right side of my face. when the pain is full blown my face or i should say

my eyelid droops, my mouth opens from the pain I can not talk I drool. This has

lasted hours at a time and I have to just wait it out. This pain can be set off

by a breeze from an overhead fan. Other than washing my face and brushing my

teeth (which can also set it off) I do not touch my face (right-side) for any

reason and my docs know not to touch. I am not trying scare anyone but this is

how tri-gem affects me! When i see my neurologist on Monday we are going to

decide if I should be medicated for this or not. Anyway I been so sick the last

couple of weeks just home from the hospital with home care but it does not seem

to be enough help? So I am being evaluated next week for admission to a rehab

center (n Joy) in

wheaton Illinois. At least being away for awhile and not be in the hospital it

will give my husband a long needed break from my care giving and household

chores, although the chores will be there. I am rambling sorry for that. My

sister has been staying with us this week (came in from Minneapolis) She has

been cooking non-stop and freezing meals for us! Yeah no fast food for awhile. I

Hope everyone has a comfortable week end! Your sarc friend Anne

[Guest guest]

Tracie,

They did find the bands in my spinal fluid, it seems double whammys are all over with this. That is good that pulling the tooth worked, sometimes root canals can make it worse. I've had two root canals on one tooth, one on another and nothing worked. I had workups for TMJ too. I started with it in 1996 and fought with it until 2005. I was afraid of the surgery back when it first came out but it was incredibly simple. Well, having 125 laser beams pointed at a single nerve at the base of your brain I guess isn't simple but it was an outpatient procedure, you just have to find a hospital with the facilites and a doctor that is trained on it. I still get some residual pain, like now with a sinus infection it flares up but is so much better than before. My prayers are with anyone struggling with it, it is a horrible kind of pain.

Devrin