Re: Food Accident AHHHH!

[Guest guest]

> So what do you think? From others who have experienced this, how much

> longer do you think I will see the effects. Or am I just making

> something out of nothing.

Hi Debbie,

I don't think you are making something out of nothing. You just described

what happens in a lot of cases when an infringement happens. As far as how

long it lasts, every child is different. With my son, it seems to take from

a week to two weeks for him to get back to post-diet behavior. I have

copied an email I sent to this list May 2001 about our last slip-up (with

one cheeto and three pretzels....and it was " major reaction time " ). I hope

it helps you to explain to those doubting family members that can't believe

that just two crackers can do that.............the reality of it was right

in front of their eyes. Ask them, would they give a diabetic candy/sugar

and then question if they were having a reaction when their blood sugar

level changes drastically? I know, not exactly the same, but in principal

it still has a biological affect with both examples. Hang tough, you are

doing the right thing for your n.

Elsie (in Texas)

*********************************************

copy of my previous post 5/2001 to gfcfkids:

Just wanted share our experience with slip ups this week. My son has been

GFCF for a year now and has done very well, not cured by any means but with

this latest infringement(s) it has hit home with us just how far he has come

on this diet. We are in the initial process of assessment with the school

system for our son's placement in the local PPCD program for this fall. The

teacher asked me the other day what happens to him (our son) if he gets a

hold of something that he shouldn't have. It has been so long since he has

had anything with G or C, it was almost hard for me to explain why this diet

is so important. MAN, after 3 slip ups this last week, I could write a

novel for her on why this diet is critical for him. In a years span I guess

I had forgotten some of the behaviors and physical things that happens to

him. It all came flooding back yesterday.

First of all, he snatched a cheeto about 4 days ago, and then two more

infractions 3 days ago with 3 pretzels. That's all it took. Yesterday he

was WILD, WILD, WILD.

Things that resurfaced:

1) Really irritable

2) Throwing things

3) Knocking chairs over

4) The word " no " had no meaning to him

5) Running away like there was no tomorrow

6) Nothing could be on a table top-must be knocked off as hard as he could

sling it

7) Hitting at me (never was a real hitter)

8) Awakening in the night (again)

9) Terrible GI pains

10) Laughing (when he was being reprimanded)

11) Non-compliant with everything

I'm thinking, " Who is this child " !! That's just the main things. FYI, I

did get EnzymAid in him on the cheeto infraction, but could not get more

into him on the last two. Just wanted to share this for those that think

this may not be worth all the trouble. In our case...the reality is, my son

is a different person due to this diet and moral of our story..... No matter

how many people (professional/family members, etc.) may try to tell you

you're wacko for being such a fanatic about this diet, for some kids it is

their lifeline into a life of feeling better, getting better and in some

cases - recovery. Sorry to be so long. Hope everyone has a great weekend

with NO slipups.

Elsie (in Texas)

P.S. n, if you happen to read this...I'm going to the survey and

report our experience with this. Thanks!!

***************************************************

Food Accident AHHHH!

> HI everyone! We are back from our mini vacation at Jersey Shore and

> Great Adventure. On Sunday, n got ahold of 2 saltine crackers

> on the beach. I could kick myself because first, I forgot to mention

> to family members to please put away unsafe food when they were done.

> Second, I was taking care of SIL's baby and not watching my own.

> Here are the results: That evening n did ok on the boardwalk

> for awhile and then started wandering off and not responding to his

> name. On the drive home, n laughed histerically for no

> apparent reason. He woke up verbally stimming alot at 6am even though

> he didn't go to bed til 11:30pm. (He had had an afternoon nap) The

> next day he started chewing items again more intensely then before.

> He verbally stimmed alot. At dinner, he wouldn't eat much, he sat for

> a short time and then became very restless, wouldn't play with the

> toys I brought and wanted to wander around. This was my husband

> birthday dinner and it turned into a disaster with me removing

> n after he banged his head on the chair. Then my husband

> gobbling his meal so he could meet me in the car and I could eat

> mine. On Tues, n stayed home with my parents while we went to

> Great Adventure with older boys and SIL's family. My parents told me

> he chewed constantly on his blankie, and again verbal stimming alot!

> Wed. morning he actually stripped off his shirt and shorts so he

> could chew on both. We went back to Great Adventure with n on

> Wed. and we were in Bugs Bunny land. He looked so Autistic I started

> to cry. He started just going in circles up and down the playground

> equipment ignoring his surrounding. When we tried to get him on a

> ride he had a major fit because we had interupted his circling around

> the playground. I will spare you all the rest of details but finally

> we got him settled somewhat in stroller. We left Bug Bunny land and

> went over to a flume ride and that got him! He loved it. It was like

> the extreme sensory experience had snapped him out of it, not

> completely but better. We were able to make a day out of it. Today

> he is better but still doesn't seem himself.

> Does any of this sound familiar to others who have experience food

> accidents? Family members keep writing this off to " change, not his

> own surroundings etc. YET, n has slept over his grandparents

> house many many times, to the boardwalk several times this season

> where his behavior was amazing, to restaurant with my husband where

> he did much better then this occassion, he knows about rides from

> boardwalk so Great Adventure shouldn't have been completely

> unfamiliar either. One family member even came out and said, " I don't

> believe just a couple of crackers could do that. "

> So what do you think? From others who have experienced this, how much

> longer do you think I will see the effects. Or am I just making

> something out of nothing.

> Debbie

[Guest guest]

In a message dated 08/26/2001 6:26:52 AM US Mountain Standard Time,

Ethrybr@... writes:

> One family member even came out and said, " I don't

> believe just a couple of crackers could do that. "

> So what do you think? From others who have experienced this, how much

> longer do you think I will see the effects. Or am I just making

> something out of nothing.

> Debbie

>

I totally belive a couple of crackers could do that.. A couple of Kix cereals

made stop communicating for over a week!! Josh is pretty sensitive to

it, and it doesn't take much to get him regressing.. Turn that around and say

" wow, 2 crackers did that? It's good that we keep him GFCF then isn't it? " .

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

mild-moderate autism/hearing impaired

~~~~~~~~~~~~~~~~~

<A

HREF= " http://www.butcherfamily.freeservers.com " >http://www.butcherfamily.freeser\

vers.com</A>

[Guest guest]

Debbie,

Yes your child's behaviors could be from the 2 crackers. The first day of

summer school something happened to JJ. No one will admit it but we think

he got the wrong lunch. JJ started vomiting 30 minutes after getting home.

He had sever flu symptoms for the next 10 days. We took him to the dr., Flu

just give him fluids. We had an appt with a specialist for Down

Syndome---JJ was put in the hospita for 3 daysl. Turns out he had a major

food infringement, moderate dehydration, very sever gastritis , all trigger

by the wrong foods. Got the bill from the hospital yesterday--$6300!!!!

& Garry, parents of (10 ds), (9 ds), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted.