new to sarc

[Guest guest]

Dear Barb

My name is Kathy, Welcome to the Sarc Mafia! (my nick name for the group) I have

been

livining with the Sark Monster for seven years now. My Doctor tells me I'm Lucky

to be one in

a million-for real! My sark has remained in my brain and spine,where it started.

And has not

migrated to other organs or systems. He tells me that with this disease it is

very rare for it

not to spread. Because it is in my brain it has effected my balance and my

ability to walk. As

to how this affects you, my advice is to stay on your feet as long as possible.

Move about as

much as you can. Sarc in the brain and spine can attack any number of systems

,organs or

extremiates. It is very important that you follow your doctor's orders and stay

on your feet. I

wish you the best of luck and I hope thr Sarc Monster stays away from your legs.

Don't ever

stop walking!

Love, Kathy