Carpenter2077

[Guest guest]

Just wondering how everything is going for your daughter. (and you!) Have you noticed any improvement? Is she sleeping more comfortably? Jacksen's appointment is quickly approaching. He gets his band on Monday 2/9. I was curious as to what your daughter's "measurements" were at consultation. Jack's are as follows:Cranial Vault Asymmetry - 6mmMid-Face Asymmetry - 2mmSkull-Base Asymmetry - 2mmI've tried to research what each is really measuring but it gets confusing. And I'm not sure what is considered a "normal" range. I look forward to hearing from you!JacquiBurt, Jacqui & Jacksen 30 Ansley Court Inwood, WV 25428 http://web.mac.com/bsoltero/--- On Thu, 1/29/09, sarahcarpenter2077 <sarahcarpenter2077@...> wrote:From: sarahcarpenter2077 <sarahcarpenter2077@...>Subject: burtandjacquiPlagiocephaly Date: Thursday, January 29, 2009, 9:18 PM

I think it would be great to keep in touch about this. It would be

great to talk to someone who is new at this too, I feel like I'm even

using the wrong terminology here! I guess I should be calling

the "helmet" a 'band". Anyways, tomorrow we will be putting the band

on her for 6 hours during the day and then she is supposed to wear it

to sleep in for the first time. I'm pretty worried because she won't

even nap in it yet! I'll write a post to let you know how it goes!

I look forward to hearing how your first fitting goes, good luck I

look forward to hearing from you soon!

> >

> > My 8 month old daughter was diagnosed with positional

plagiocephaly

> > early in December. We have just recently got her helmet, and I

was

> > wondering if anyone would be willing to share their personal

> > experiences with the helmets. I am not fully convinced that we

made

> > the right decision to get her the helmet.

> >

> > The Neurologist that we saw told us that she felt that helmets

were

> > a "racket" and that there is a lot of false information passed on

to

> > parents by Physical Therapists. (my daughter also goes to PT for

> > tortocollis) She said by the time children are 5, you can't

really

> > tell who wore a helmet and who didn't. She also told us that if

it

> > got to be a hassle, not to worry if we decided not to continue

> > wearing the helmet. She left the final decision up to my husband

and

> > me, our insurance covered the helmet fully so we decided to get

it.

> > up

> > My daughter's head sweats like crazy, I mean it is actually

dripping

> > out of the helmet, and she is pretty cranky towards the end of

the

> > wearing period. (we're only up to 6 hours) I tried to have her

nap

> > in it today, but she wouldn't. My husband and I are pretty

upset,

> > and we're worried that we are putting our baby through wearing

this

> > cumbersome device for nothing. I guess it would be helpful to

> > mention her plagiocephaly is "moderate".

> >

> > I would appreciate any feedback, thanks!

> >

>