MRI Results!!! unbelievable

[Guest guest]

Kiki,

That is wonderful news. Congratulations!

I was curious what changes if any have occurred in your symptoms

since starting the LDN?

>

>

>

>

> I just got my MRI report. The last one was in June of 2003 after

being on

> Rebif for 1 1/2 yrs and went down the tubes in that time. The day

the neuro told

> me Rebif was not working for me but would not prescribe LDN, I said

good-bye

> and saw Dr. B the next day. This is my first MRI since stopping

Rebif and

> starting LDN.

> I am copying word for word....... Clinical history.....blabla......

>

>

> " After administration of contrast material, no evidence of abnormal

> enhancement could be identified in any of these foci. The orbits

are intact. The optic

> nerves show no evidence of focal abnormality or enhancement. "

>

> " IMPRESSION: WHEN COMPARED TO THE PREVIOUS EXAM, MULTIPLE AREAS OF

WHITE

> MATTER SIGNAL ABNORMALITY ARE AGAIN IDENTIFIED AND APPEAR TO BE

STABLE IN NUMBER

> AND SIZE. THE PREVIOUSLY APPRECIATED NEW LESION IN THE LEFT MEDULLA

IS NOT AS

> WELL APPRECIATED AND OF QUESTIONABLE SIGNIFICANCE. "

>

>

> I have Primary Progressive MS. Though the improvements seen on LDN

were minor

> and Dr. B told me that I might only regain what I lost in the last

3 months

> this is a miracle . I must call Dr. B tomorrow!!!! I hope this

helps convince

> more of you to stay on whether or not you can tap dance after

taking LDN.

>

> Kiki

>

[Guest guest]

Hi , when I started LDN almost 4 yrs ago I couldn't believe how great I felt overall immediately. I attribute this to stopping the Rebif, and not so much the LDN. The following 2 weeks, I realized very subtle improvements. My bladder was almost back to normal (still not 100%) but to me it is great as compared to what it was. I had lost control about a month before strting LDN. I got some streghth back in my left hand but not all and my fatigue lessened to where I no longer needed my afternoon nap.

I still need a cane and use a wheelchair or scooter for long distances (ie) the mall. LDN did not give me back my walking but it sure helped me to keep standing.

My only regret, and I have said this many times, is that I did not start sooner and waited till I got desperate. I believed the neuro and later found out she was the lead investigator for rebif.

I also have Primary progressive MS so Rebif was not the best thing for me. In a year and a half, I went from walking almost normal to barely walking. On LDN after almost 4 yrs, I remain the same.

The purpose for LDN is to stop progression. If you have RRMS and you can heal, this is a no brainer. If you have PPMS, it is still a no brainer.

I wish there was someone out there and this site existed when I was looking for answers. The people from2004 till present should be so very grateful they have evidence and people to ask proof of.

My advice to all is...Just Do it !!! You have nothing to lose and much to gain.

Kiki

[Guest guest]

Kiki,

I agree about newly diagnosed individuals having this site and the

information it presents as an invaluable resource. I am now SPMS

and wish I had this info back in 91. However, I still think it is

great for everyone.

>

> Hi , when I started LDN almost 4 yrs ago I couldn't believe

how great I

> felt overall immediately. I attribute this to stopping the Rebif,

and not so

> much the LDN. The following 2 weeks, I realized very subtle

improvements. My

> bladder was almost back to normal (still not 100%) but to me it is

great as

> compared to what it was. I had lost control about a month before

strting LDN. I

> got some streghth back in my left hand but not all and my fatigue

lessened to

> where I no longer needed my afternoon nap.

> I still need a cane and use a wheelchair or scooter for long

distances (ie)

> the mall. LDN did not give me back my walking but it sure helped

me to keep

> standing.

> My only regret, and I have said this many times, is that I did not

start

> sooner and waited till I got desperate. I believed the neuro and

later found out

> she was the lead investigator for rebif.

> I also have Primary progressive MS so Rebif was not the best thing

for me. In

> a year and a half, I went from walking almost normal to barely

walking. On

> LDN after almost 4 yrs, I remain the same.

> The purpose for LDN is to stop progression. If you have RRMS and

you can

> heal, this is a no brainer. If you have PPMS, it is still a no

brainer.

> I wish there was someone out there and this site existed when I

was looking

> for answers. The people from2004 till present should be so very

grateful they

> have evidence and people to ask proof of.

> My advice to all is...Just Do it !!! You have nothing to lose and

much to

> gain.

>

> Kiki

>

[Guest guest]

Kiki,

Good for You! My neurologist was not

prescribing LDN UNTIL he got so many

calls from his patients that he now is

happy to prescribe LDN. HE said " it can

do no harm " . It kind of upsets me that

he would not do it in the 1st place-because

they do not know what LDN is. Good you

went to someone else. Hope it helps you

and God Bless. Have a good 2007. Pat G.

>From: noclue915@...

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: [low dose naltrexone] MRI Results!!! unbelievable

>Date: Wed, 31 Jan 2007 18:49:44 EST

>

>

>

>

>I just got my MRI report. The last one was in June of 2003 after being on

>Rebif for 1 1/2 yrs and went down the tubes in that time. The day the

>neuro told

>me Rebif was not working for me but would not prescribe LDN, I said

>good-bye

>and saw Dr. B the next day. This is my first MRI since stopping Rebif and

>starting LDN.

>I am copying word for word....... Clinical history.....blabla......

>

>

> " After administration of contrast material, no evidence of abnormal

>enhancement could be identified in any of these foci. The orbits are

>intact. The optic

>nerves show no evidence of focal abnormality or enhancement. "

>

> " IMPRESSION: WHEN COMPARED TO THE PREVIOUS EXAM, MULTIPLE AREAS OF WHITE

>MATTER SIGNAL ABNORMALITY ARE AGAIN IDENTIFIED AND APPEAR TO BE STABLE IN

>NUMBER

>AND SIZE. THE PREVIOUSLY APPRECIATED NEW LESION IN THE LEFT MEDULLA IS NOT

>AS

>WELL APPRECIATED AND OF QUESTIONABLE SIGNIFICANCE. "

>

>

>I have Primary Progressive MS. Though the improvements seen on LDN were

>minor

>and Dr. B told me that I might only regain what I lost in the last 3 months

>this is a miracle . I must call Dr. B tomorrow!!!! I hope this helps

>convince

>more of you to stay on whether or not you can tap dance after taking LDN.

>

>Kiki