Re: OMG: Very Discouraging News for Us

[Guest guest]

I agree with you and feel you are doing the right thing by speaking up. Too many of us stay quiet while others make mistakes in order to be polite and politically correct. I too feel the DOC band is superior to the other bands and I will one up you and say that is true for the young and the older babies. I loved the experience we had and would not have gone anywhere else. Good luck and keep being honest. Tammy

From: <nwilkens2275@...>Subject: Re: OMG: Very Discouraging News for UsPlagiocephaly Date: Friday, May 30, 2008, 7:25 PM

I changed my mind, I guess personally I WOULD say CT is better at treating older babies, straight out. I guess i was trying to be too politically correct by saying it had more to do with the protocol of wear. But I should be able to say that, speaking from personal experience, I do think they're better at treating older babies. They are more experienced and open to the idea that the baby's head can still change well into the second year and are willing to give it their all to see that some positive change occurs, no matter the age. And I am very happy with the results so far. Jake-20m (tort resolved/rt plagio/DOCBand 15 weeks)Jordan-4> > > > > > >> > > > > > > I'm so sorry - I know you must be very disappointed. ? :-(> > > > > > > Maybe

he just hasn't had a growth spurt??? Has his > > > circumfrence > > > > > > grown???> > > > > > > What do YOU think of the fit... is it holding in places > > (his > > > > > > prominate forhead for example)> > > > > > > > > > > > > > Let us know what the dr says.?> > > > > > > > > > > > > > > > > > > > > ?Jen and Luli - 29 months> > > > > > > Left tort - Right Plagio - Hanger Band Grad - CA> > > > > > > http://www.babieson line.com/ babies/j/ jens5th/> > > > > > > > > > > > > > > > > > > > > OMG: Very Discouraging News for Us> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > So, had been in his STARband for seven weeks now > and > > > we > > > > > have > > > > > > > followed the rules to the letter. He has missed several > > days > > > > due > > > >

> to > > > > > > a > > > > > > > really bad sore on his head and two fevers, but other > than > > > > that, > > > > > we > > > > > > > have been extremely compliant. We went to the orthotist > > > today > > > > and > > > > > > not > > > > > > > only have his measurements not changed from the last > visit > > a > > > > > couple > > > > > > of > > > > > > > weeks ago, but they show that both the flat and > prominant > > > spots > > > > > > have > > > > > > > grown equally. I swear it looks like there has been > > > progress, > > > > but > > > > > > the >

> > > > > > numbers two visits in a row don't support that. If you > > > measure > > > > > left > > > > > > > front to right back and vice versa, and subtract to find > > the > > > > > > > difference, it still shows 1cm difference. 10 whole > stinkin > > > > > mm!!!! > > > > > > I > > > > > > > can't believe it. The child is nine months old. What are > we > > > > going > > > > > > to > > > > > > > do? The orthotist doesn't think there's anything wrong > with > > > the > > > > > > helmet > > > > > > > or the fit, but that can't be. I don't know what to do, > but > > > > > > > > >

> > has > > > > > > > a well visit on Monday am and any advice or suggestions > > > anyone > > > > > can > > > > > > > offer would be greatly appreciated.> > > > > > > Thank you, > > > > > > > > > > > > > > * 9mo * tort resolved * lft plagio * STARband 7wks> > > > > > > Conner * 2yrs> > > > > > > Greenville, NC USA> > > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > >

[Guest guest]

Staci, that is very encouraging! The older gets with no

measurable progress, the more nervouws I get, but it's good to know

it can (and will) happen. We've just got to figure this out!

Thanks! I'm thinking Orhtomerica will probably give us a new helmet,

so we'll have to stick with STARband for now. But, if we have any

more trouble, it's to CT we go!! Thanks!

> > > > > > > > >

> > > > > > > > > I'm so sorry - I know you must be very

> > disappointed.? :-(

> > > > > > > > > Maybe he just hasn't had a growth spurt??? Has his

> > > > > circumfrence

> > > > > > > > grown???

> > > > > > > > > What do YOU think of the fit... is it holding in

> > places

> > > > (his

> > > > > > > > prominate forhead for example)

> > > > > > > > >

> > > > > > > > > Let us know what the dr says.?

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > ?Jen and Luli - 29 months

> > > > > > > > > Left tort - Right Plagio - Hanger Band Grad - CA

> > > > > > > > > http://www.babiesonline.com/babies/j/jens5th/

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > OMG: Very Discouraging News for

Us

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > So, had been in his STARband for seven

weeks

> > now

> > > and

> > > > > we

> > > > > > > have

> > > > > > > > > followed the rules to the letter. He has missed

> > several

> > > > days

> > > > > > due

> > > > > > > to

> > > > > > > > a

> > > > > > > > > really bad sore on his head and two fevers, but

other

> > > than

> > > > > > that,

> > > > > > > we

> > > > > > > > > have been extremely compliant. We went to the

> > orthotist

> > > > > today

> > > > > > and

> > > > > > > > not

> > > > > > > > > only have his measurements not changed from the

last

> > > visit

> > > > a

> > > > > > > couple

> > > > > > > > of

> > > > > > > > > weeks ago, but they show that both the flat and

> > > prominant

> > > > > spots

> > > > > > > > have

> > > > > > > > > grown equally. I swear it looks like there has

been

> > > > > progress,

> > > > > > but

> > > > > > > > the

> > > > > > > > > numbers two visits in a row don't support that. If

> you

> > > > > measure

> > > > > > > left

> > > > > > > > > front to right back and vice versa, and subtract

to

> > find

> > > > the

> > > > > > > > > difference, it still shows 1cm difference. 10

whole

> > > stinkin

> > > > > > > mm!!!!

> > > > > > > > I

> > > > > > > > > can't believe it. The child is nine months old.

What

> > are

> > > we

> > > > > > going

> > > > > > > > to

> > > > > > > > > do? The orthotist doesn't think there's anything

> wrong

> > > with

> > > > > the

> > > > > > > > helmet

> > > > > > > > > or the fit, but that can't be. I don't know what

to

> > do,

> > > but

> > > > > > >

> > > > > > > > has

> > > > > > > > > a well visit on Monday am and any advice or

> > suggestions

> > > > > anyone

> > > > > > > can

> > > > > > > > > offer would be greatly appreciated.

> > > > > > > > > Thank you,

> > > > > > > > >

> > > > > > > > > * 9mo * tort resolved * lft plagio *

STARband

> > 7wks

> > > > > > > > > Conner * 2yrs

> > > > > > > > > Greenville, NC USA

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ------------------------------------

> > > > > > >

> > > > > > > For more plagio info, go to

www.plagiocephaly.org/support

> > > > > > >