Re: 12 mo old & just diagnosed

[Guest guest]

Hi Amy-

No I did not have the support of my pediatrician. I made the mistake

of seeing a different ped in the same practice for a couple of well

visits in a row and he came right out and told me that helmets were

a crock and that it would round out by the time my son was 3. But if

I waited until he was 3, it would be too late to do anything. So I

went to another pediatrician in a different practice and he was very

open and understanding and was willing to write the script for me. I

also saw a craniofacial surgeon though too, who wrote the script,

though he was unsure it would do any good because of my son's age.

It turned out that once he was banded, our original ped was very

supportive and understanding, so I wish I would have continued to

see her throughout the second half of my son's first year instead of

switching. Maybe I would have been able to convince her and we would

have banded sooner.

So my advice to you is, if you really feel the band is the way to go

for you, I would keep searching until I found a doctor willing to

write the script. I would start by going to another ped for a second

opinion. That way he's viewing your son with a fresh eye and setting

it up as a second opinion visit, puts some importance on the

situation and hopefully they will take your concerns seriously. If

that doesn't work, seek out a specialist (I would recommend a

craniofacial/plastic surgeon over a neurosurgeon, they seem to take

plagio a little more seriously).

Good luck! Please keep me posted!

Jake-20m (tort resolved/rt plagio/DOCBand 12 weeks)

Jordan-4

> >

> > Kaitlyn was just today diagnosed at 12 mo of age. I am curious

if

> any

> > of you think this was actually worth it? What would it hurt not

to

> get

> > it done? I see all of the visual effects, but what will it

matter

> over

> > all? How bad is the doc helmet? Would she have to wear it 24/7?

> Also,

> > is there anyone out there on Tricare?

> >

> > ANY information would be greatly appreciated! !!

> >

>

>

>

>

>

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