Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 - did she give you a hard time as a teen? My daughter is awful! She fights me every step with her treatments. I thought that maybe it had to do with the fact that she was six when she was diagnosed and knew what " life " was like without CF and treatments! I see what you mean about hiding it. My daughter never complains -- we have to play detective and watch her.... Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 In a message dated 8/24/2003 4:39:28 PM Central Daylight Time, Torstenkrafft@... writes: > I am the mother of 4 beautiful daughters. Two have been adopted. We > lost one daughter at 2 months old from CF. Our 26 year old daughter has CF and > is now having a struggle with the disease. It is heartbreaking as a parent > to watch her striving to be independent and being sick often. She does not > want to be different and is rebelling against the disease thinking that she does > not need the treatments. Now she is suffering tremendously. She is such a > beautiful young lady and scared to death allat the same time. She is on oxygen > half the day and struglling to be infection free. She does not want to burden > us as parents and to worry so she doesn't always keep us up. It is > frustrating as our children get older. When she was younger it seemed easier because > we made sure that she got the best care and treatments and now she is > independent and wants to try to show us she is strong and courageous. Hope We are not > the only parents struggling with our adults children > I am dreading this day to come for me because I have two daughters with CF and they are both very stubborn and my oldest who is 11 doesn't want anyone to know she has CF either and does not like to be different. I fear that when she gets older she will be just like you daughter. I am wishing you all the best. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 introduction I am the mother of 4 beautiful daughters. Two have been adopted. We lost one daughter at 2 months old from CF. Our 26 year old daughter has CF and is now having a struggle with the disease. It is heartbreaking as a parent to watch her striving to be independent and being sick often. She does not want to be different and is rebelling against the disease thinking that she does not need the treatments. Now she is suffering tremendously. She is such a beautiful young lady and scared to death allat the same time. She is on oxygen half the day and struglling to be infection free. She does not want to burden us as parents and to worry so she doesn't always keep us up. It is frustrating as our children get older. When she was younger it seemed easier because we made sure that she got the best care and treatments and now she is independent and wants to try to show us she is strong and courageous. Hope We are not the only parents struggling with our adults children -------------------------------------------------------------------------------- Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 I am sending special wishes for her health to improve now-----if not sooner :) You have done a good job mommy-----NOW she must carry on. LOVE & HUGS, grandmomBEV Fw: introduction introduction I am the mother of 4 beautiful daughters. Two have been adopted. We lost one daughter at 2 months old from CF. Our 26 year old daughter has CF and is now having a struggle with the disease. It is heartbreaking as a parent to watch her striving to be independent and being sick often. She does not want to be different and is rebelling against the disease thinking that she does not need the treatments. Now she is suffering tremendously. She is such a beautiful young lady and scared to death allat the same time. She is on oxygen half the day and struglling to be infection free. She does not want to burden us as parents and to worry so she doesn't always keep us up. It is frustrating as our children get older. When she was younger it seemed easier because we made sure that she got the best care and treatments and now she is independent and wants to try to show us she is strong and courageous. Hope We are not the only parents struggling with our adults children ---------------------------------------------------------------------------- ---- Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 , Welcome! Join in, ask anything you want, vent or answer queations. mom of , (AKA the Queen of the Universe) almost five with CF. introduction I am the mother of 4 beautiful daughters. Two have been adopted. We lost one daughter at 2 months old from CF. Our 26 year old daughter has CF and is now having a struggle with the disease. It is heartbreaking as a parent to watch her striving to be independent and being sick often. She does not want to be different and is rebelling against the disease thinking that she does not need the treatments. Now she is suffering tremendously. She is such a beautiful young lady and scared to death allat the same time. She is on oxygen half the day and struglling to be infection free. She does not want to burden us as parents and to worry so she doesn't always keep us up. It is frustrating as our children get older. When she was younger it seemed easier because we made sure that she got the best care and treatments and now she is independent and wants to try to show us she is strong and courageous. Hope We are not the only parents struggling with our adults children -------------------------------------------------------------------------------- Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Welcome to the group . Dawn mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 I'm KerryAnn , and I live in NC. I joined the group because I begin oral chelation this week for mercury toxicity. I'm doing it under the guidance of a holistic MD. I joined the group to learn more. The chelation we're doing is new and not on the market yet. My doctor trials different protocols and medications. So I wanted to learn more about the other options, as he told me that this protocol won't get rid of all metals, just mercury, and just from the CNS. So we'll have to do a round of a different chelator later in order to deal with whatever the other tests turn up for other metals, and to get the mercury out of the rest of my body. Thanks, and I look forward to joining in. KerryAnn http://www.cookingtf.com/ - American and Australian TF Menu Mailers http://www.tfrecipes.com/forum/ - Traditional Foods forum Quote Link to comment Share on other sites More sharing options...
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