Introduction

August 24, 2003

- did she give you a hard time as a teen? My daughter is awful! She

fights me every step with her treatments. I thought that maybe it had to do

with the fact that she was six when she was diagnosed and knew what " life " was

like without CF and treatments! I see what you mean about hiding it. My

daughter never complains -- we have to play detective and watch her....

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

August 24, 2003

In a message dated 8/24/2003 4:39:28 PM Central Daylight Time,

Torstenkrafft@... writes:

> I am the mother of 4 beautiful daughters. Two have been adopted. We

> lost one daughter at 2 months old from CF. Our 26 year old daughter has CF and

> is now having a struggle with the disease. It is heartbreaking as a parent

> to watch her striving to be independent and being sick often. She does not

> want to be different and is rebelling against the disease thinking that she

does

> not need the treatments. Now she is suffering tremendously. She is such a

> beautiful young lady and scared to death allat the same time. She is on oxygen

> half the day and struglling to be infection free. She does not want to burden

> us as parents and to worry so she doesn't always keep us up. It is

> frustrating as our children get older. When she was younger it seemed easier

because

> we made sure that she got the best care and treatments and now she is

> independent and wants to try to show us she is strong and courageous. Hope We

are not

> the only parents struggling with our adults children

>

I am dreading this day to come for me because I have two daughters with CF

and they are both very stubborn and my oldest who is 11 doesn't want anyone to

know she has CF either and does not like to be different. I fear that when she

gets older she will be just like you daughter. I am wishing you all the best.

Deb A

August 24, 2003

introduction

I am the mother of 4 beautiful daughters. Two have been adopted. We lost

one daughter at 2 months old from CF. Our 26 year old daughter has CF and is now

having a struggle with the disease. It is heartbreaking as a parent to watch her

striving to be independent and being sick often. She does not want to be

different and is rebelling against the disease thinking that she does not need

the treatments. Now she is suffering tremendously. She is such a beautiful young

lady and scared to death allat the same time. She is on oxygen half the day and

struglling to be infection free. She does not want to burden us as parents and

to worry so she doesn't always keep us up. It is frustrating as our children get

older. When she was younger it seemed easier because we made sure that she got

the best care and treatments and now she is independent and wants to try to show

us she is strong and courageous. Hope We are not the only parents struggling

with our adults children

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August 24, 2003

I am sending special wishes for her health to improve now-----if not sooner

:) You have done a good job mommy-----NOW she must carry on.

LOVE & HUGS, grandmomBEV

Fw: introduction

introduction

I am the mother of 4 beautiful daughters. Two have been adopted. We

lost one daughter at 2 months old from CF. Our 26 year old daughter has CF

and is now having a struggle with the disease. It is heartbreaking as a

parent to watch her striving to be independent and being sick often. She

does not want to be different and is rebelling against the disease thinking

that she does not need the treatments. Now she is suffering tremendously.

She is such a beautiful young lady and scared to death allat the same time.

She is on oxygen half the day and struglling to be infection free. She does

not want to burden us as parents and to worry so she doesn't always keep us

up. It is frustrating as our children get older. When she was younger it

seemed easier because we made sure that she got the best care and treatments

and now she is independent and wants to try to show us she is strong and

courageous. Hope We are not the only parents struggling with our adults

children

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The most personalized portal on the Web!

August 24, 2003

,

Welcome! Join in, ask anything you want, vent or answer queations.

mom of , (AKA the Queen of the Universe) almost five with CF.