Re: need advice

[Guest guest]

In a message dated 4/27/2003 9:43:53 AM Eastern Standard Time,

sgarvey@... writes:

> Prints? A book? Actual clocks?

>

> All of the above?

>

> Sissi

>

I think all of the above. It's not exploiting him. There are child actors,

child singers, child musicians, so he is a child artist, as long as he

doesn't mind parting with them, I think you should go for it.

Tommi

[Guest guest]

I think a book of prints and actual clocks would be cool. Boone

would love seeing both, but esp. the real clocks I would bet. I

don't feel that it is exploitation at all. Boone loves clocks and

you are sharing it with the world. Very cool...JMHO Leggs

[Guest guest]

I think I would sell them and save the money for Boone needs and for her

future. I've never thought you are exploiting him. I don't know who told

you that, but it's not true.

Maybe you can start with the book, and prints. Not selling his actual

work. I am pretty open minded and I am sure you would use the money for

good causes and not to buy luxuries for yourself, but other people might

think that way. You have to think if what those people think matters to

you or not.

Cecilia from Perú, mom to Dessirée (05/07/99)

Lovely husband

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-----Mensaje original-----

De: Sissi Garvey

Enviado el: Domingo, 27 de Abril de 2003 08:43 a.m.

Para: parenting_autism

Asunto: need advice

I am getting requests to sell Boone's artwork.

I have also considered attempting to write a book of his clock drawings.

I have also had requests from people who want to buy his clocks.

However, I have been accused of " exploiting " Boone simply by having a

website for his artwork (never mind the fact that he loves his website

and insists that new artwork is added all the time).

I know I have asked this before, but it is getting to the point that I

am being asked quite often and I feel like I should do something soon.

What would be the best thing to do?

Prints? A book? Actual clocks?

All of the above?

Sissi

[Guest guest]

I think I would sell them and save the money for Boone needs and for her

future. I've never thought you are exploiting him. I don't know who told

you that, but it's not true.

I think Cecilia is absolutely right. Why shouldn't Boone have some

earnings? He may need them badly one day; who can ever predict what will

happen. And he won't care.

If you ever read The Siege and Exiting Nirvana, well, the mother in The

Siege was very careful to protect her daughter's identity, but by Exiting

Nirvana she knows her daughter doesn't care anyway and since she is by then

in her forties, it seems likely that she never will.

Boone is talented! Let him earn himself whatever he can.

Salli

[Guest guest]

Well, I just wrote to Kingsley publishers.

We'll see what happens.

As far as exploitation -- believe me -- I have been accused of it by certain

people. It's like Boone doesn't have a right to profit from his own talents.

Unbelievable.

I found this the other day:

between Boone and his art and new book by a writer named Gibson. The

book even has a character named Boone. (I think I better read the darn thing

and see if Boone's life has been ripped off!!!)

Anyway, they are making comparisons of the characters in the book and me and

Boone.

Freaky to see your life discussed by people who don't know you. One of the

people on the board mentions exploitation.

Why is it when disabled people are able to generate their own income it's

called exploitation????

Oh well. Thanks, Cecilia and Leggs. I guess I'm going for it. Why do I care

what a bunch of geeks think?

Sissi

RE: need advice

I think I would sell them and save the money for Boone needs and for her

future. I've never thought you are exploiting him. I don't know who told

you that, but it's not true.

Maybe you can start with the book, and prints. Not selling his actual

work. I am pretty open minded and I am sure you would use the money for

good causes and not to buy luxuries for yourself, but other people might

think that way. You have to think if what those people think matters to

you or not.

Cecilia from Perú, mom to Dessirée (05/07/99)

Lovely husband

_____

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<

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-----Mensaje original-----

De: Sissi Garvey

Enviado el: Domingo, 27 de Abril de 2003 08:43 a.m.

Para: parenting_autism

Asunto: need advice

I am getting requests to sell Boone's artwork.

I have also considered attempting to write a book of his clock drawings.

I have also had requests from people who want to buy his clocks.

However, I have been accused of " exploiting " Boone simply by having a

website for his artwork (never mind the fact that he loves his website

and insists that new artwork is added all the time).

I know I have asked this before, but it is getting to the point that I

am being asked quite often and I feel like I should do something soon.

What would be the best thing to do?

Prints? A book? Actual clocks?

All of the above?

Sissi

[Guest guest]

Thanks, Salli!

I am going to do just that!

Sissi

[Guest guest]

>

> Anyway, they are making comparisons of the characters in the book and me

and

> Boone.

>

Sissi:

This is totally weird. Why on earth do they think you are like the mother

in the book, Stella? What is she like anyway. And how do they get his from

the website. It's not THAT informative that they can discuss you in that

way.

Strange.

Salli

[Guest guest]

> > Anyway, they are making comparisons of the characters in the book and me

> and

> > Boone.

> >

>

> Sissi:

>

> This is totally weird.

No kidding. Imagine how I felt reading it! I wanted to scream at them, " Hey!

this IS real! "

Why on earth do they think you are like the mother

> in the book, Stella? What is she like anyway.

No idea. I haven't read the book. I think she's actually a sister.

And how do they get his from

> the website. It's not THAT informative that they can discuss you in that

> way.

That's what I thougt ...

>

> Strange.

Very.

But I guess if you put yourself out there, you have to accept the

criticisms/assumptions that people will make.

Sissi

[Guest guest]

> I think all of the above. It's not exploiting him. There are child actors,

> child singers, child musicians, so he is a child artist, as long as he

> doesn't mind parting with them, I think you should go for it.

> Tommi

Very good points, Tommi. But people see his disability and accuse of

exploiting that.

I think I need to think about what is best for Boone and not what people

think.

Sissi

[Guest guest]

By the way, this forum is where I heard about " The Speed of Dark. "

Sissi

[Guest guest]

I would go with all the above.

I would also make it a point to let people know that all money from selling

these things would go into a fund for him to help take care of him.

Georga

need advice

> I am getting requests to sell Boone's artwork.

>

> I have also considered attempting to write a book of his clock drawings.

>

> I have also had requests from people who want to buy his clocks.

>

> However, I have been accused of " exploiting " Boone simply by having a

website for his artwork (never mind the fact that he loves his website and

insists that new artwork is added all the time).

>

> I know I have asked this before, but it is getting to the point that I am

being asked quite often and I feel like I should do something soon.

>

> What would be the best thing to do?

>

> Prints? A book? Actual clocks?

>

> All of the above?

>

> Sissi

>

>

>

>

[Guest guest]

Boone has a talent, I would share it with the world. It's not like you

chain the boy up and command him to draw clocks all day! And if it

increases autism awareness, so much the better. I think it is important for

the " rest of the world " to realize that there is a place for autistic

individuals to contribute and participate in society. And Boone's work is

amazing. It is fabulous modern art, and for me, represents all that is good

about the autistic mind - - that amidst the chaos, is order, elegence, and

great beauty. It is extra special since we share the ASD journey.

Exploitation? puh-leeze

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal dx

Phoebe, 10 wks

need advice

> I am getting requests to sell Boone's artwork.

>

> I have also considered attempting to write a book of his clock drawings.

>

> I have also had requests from people who want to buy his clocks.

>

> However, I have been accused of " exploiting " Boone simply by having a

website for his artwork (never mind the fact that he loves his website and

insists that new artwork is added all the time).

>

> I know I have asked this before, but it is getting to the point that I am

being asked quite often and I feel like I should do something soon.

>

> What would be the best thing to do?

>

> Prints? A book? Actual clocks?

>

> All of the above?

>

> Sissi

>

>

>

>

[Guest guest]

> It is fabulous modern art, and for me, represents all that is good

> about the autistic mind - - that amidst the chaos, is order, elegence, and

> great beauty. It is extra special since we share the ASD journey.

>

> Exploitation? puh-leeze

Thank you, !

Sissi

[Guest guest]

> I would go with all the above.

> I would also make it a point to let people know that all money from

selling

> these things would go into a fund for him to help take care of him.

>

Georga,

I think it would be very important to stress that -- for the critics -- that

I would set up a trust fund or something along those lines.

The thing that has always TERRIFIED me about autism is how you basically

have to turn your kid over to the state once they become adults. That is, if

they are to receive benefits. It would be so cool if Boone could be

independent. I know I'd be much happier with that possibility.

Sissi

[Guest guest]

It is strange.

I looked at the message board.

Georga

Re: need advice

>

> >

> > Anyway, they are making comparisons of the characters in the book and me

> and

> > Boone.

> >

>

> Sissi:

>

> This is totally weird. Why on earth do they think you are like the mother

> in the book, Stella? What is she like anyway. And how do they get his

from

> the website. It's not THAT informative that they can discuss you in that

> way.

>

> Strange.

>

> Salli

>

>

>

>

>

>

>

>

[Guest guest]

Are you a member of that forum?

If you are why don't you get involved in the discussion?

Georga

Re: need advice

> By the way, this forum is where I heard about " The Speed of Dark. "

>

> Sissi

>

>

>

>

>

>

>

>

[Guest guest]

Prints yes. Nice limited edition lithos. A book, also yes. Actual

clocks..hmm...one of a kind or multiple copies of selected ones? And

how would Boone feel about that? The clocks could end up selling for

large sums which could be set up in an account for Boone. And as for

those that say you are taking advantage of him, why shouldn't Boone be

able to sell his art like any other person?

[Guest guest]

All three, but I'm biased. I love his clocks, and I'd buy them in a

heartbeat....a Boone clock to replace the boring one I already have,

prints for my kitchen and bedrooms, and books for Christmas gifts. And

it's not exploitation. It's a way for Boone to earn money. I thought

this country loved six year old entrepeneurs?

Maggie

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[Guest guest]

*THAT* right there would be the motivation for selling his stuff. To make

things better for him

You know, with a book you could do a forward explaining so much about autism

and these sorts of things....

A book. Definatly a book ;0)

Georga

Re: need advice

> > I would go with all the above.

> > I would also make it a point to let people know that all money from

> selling

> > these things would go into a fund for him to help take care of him.

> >

> Georga,

>

> I think it would be very important to stress that -- for the critics --

that

> I would set up a trust fund or something along those lines.

>

> The thing that has always TERRIFIED me about autism is how you basically

> have to turn your kid over to the state once they become adults. That is,

if

> they are to receive benefits. It would be so cool if Boone could be

> independent. I know I'd be much happier with that possibility.

>

> Sissi

>

>

>

>

>

>

>

>

>

[Guest guest]

> I think it would be very important to stress that -- for the

> critics -- that I would set up a trust fund or something along

> those lines. >

This is pretty much what I would have advised, Sissi...you might

really want to read " Exiting Nirvana " ---the mom there goes into how

much her daughter enjoy having an income that she knows she has

earned, and how it impacts her self-esteem...and also shows that the

mom understands the importance of not exploiting her child. You

might even contact the author and see if she has any advice on the

best ways to handle it all...

> The thing that has always TERRIFIED me about autism is how you

basically

> have to turn your kid over to the state once they become adults.

That is, if

> they are to receive benefits. It would be so cool if Boone could be

> independent. I know I'd be much happier with that possibility. >

That scares me, too...because will most certainly not be able

to support or care for himself as an adult. Unfortunately, he

doesn't seem to have any " exploitable " talents...LOL...so I'm looking

for ways to become independently wealthy (ideas, anyone?).

One of the challenging things about the internet is that it makes

complete strangers believe that they have the right to comment on the

lives and choices of others...informed or not. I would try not to

let it get to me.

Raena

[Guest guest]

> Are you a member of that forum?

No. I never even heard of Gibson or his books until it came up on

counter report. I like to keep track of who's linking to Boone's web page.

> If you are why don't you get involved in the discussion?

I'm not sure what I'd say to them or how they'd react. I did join a

discussion once before about Boone on another board. They attacked me.

Forget that!

Sissi

[Guest guest]

And as for

> those that say you are taking advantage of him, why shouldn't Boone be

> able to sell his art like any other person?

Good question.

<sigh>

People just have these opinions based on their limited knowledge of a

subject.

Sissi

[Guest guest]

> *THAT* right there would be the motivation for selling his stuff. To make

> things better for him

>

> You know, with a book you could do a forward explaining so much about

autism

> and these sorts of things....

>

> A book. Definatly a book ;0)

I think so too.

Sissi

[Guest guest]

They attacked you?? How dare they!! How awful..I, to, would be

hesitant to go back.

I am so sorry for people's insensitivity.

I am mentally kicking them all in the shins.

Libby

> > Are you a member of that forum?

>

> No. I never even heard of Gibson or his books until it came

up on

> counter report. I like to keep track of who's linking to Boone's

web page.

>

> > If you are why don't you get involved in the discussion?

>

> I'm not sure what I'd say to them or how they'd react. I did join a

> discussion once before about Boone on another board. They attacked

me.

>

> Forget that!

>

> Sissi

[Guest guest]

They attacked you?? How dare they!! How awful..I, to, would be

> hesitant to go back.

> I am so sorry for people's insensitivity.

> I am mentally kicking them all in the shins.

> Libby

It wasn't that particular board. It was another one entirely. One of them

went into this long story about a woman who " invented " a child with some

illness and started raising funds, accepting donations, wrote a book, all

sorts of stuff -- only to find out later that the child didn't exist at all.

The person was accusing me of doing that even though I have never asked for

donations or money of any sort whatsoever. So you see, some people are very

evil and dishonest so they think everybody else is too.

I tend to stay away from non-autism discussion boards after this and similar

experiences.

Sissi