Re: I need help with Lyme disease, please

[Guest guest]

The best answers to this detailed ? would be from the LIA (Lyme Induced Autism)

Yahoo group

Here's a link to it:

http://www.lymeinducedautism.com/

On the right you will find " Support " " Join Yahoo Group " to help aid you joining

the right group.

This group & the LIA group are my personal favorites...great informed groups )

Rita

>

> Hi friends,

>

> I know some of you on here know a lot about Lyme disease and I was wondering

if you could give me a little guidance.

>

> Long story short, I have been having a lot of health issues for a while and my

doctors have not been able to figure it all out. I have been diagnosed with

Hashimoto's and an enlarged thyroid. One time when blood work was done, my TSH

was very, very low (hyperthyroid) but all my other labs have shown normal

thyroid levels so I am not on any supplemental hormones for my thyroid.

>

> A rheumatologist ran a ton of tests and most of them came back normal. The

few that didn't don't fit a typical pattern for any specific autoimmune disease.

He did run a western blot because I described a rash that he said sounded like

the typical " bullseye " rash. He is right. I have a picture of the rash and it

could be described as " bullseye. " I had never thought of Lyme disease when I

had the rash or even with all my symptoms because I live in FL and it just

didn't cross my mind.

>

> Anyway, the only thing that came back reactive on the western blot was the 23

KD IGM band. The test results say that 2 or more of the 3 IGM bands need to be

reactive to be considered positive for Lyme disease.

>

> My doctor did not even mention the Lyme band. I know about it because I have

my test results.

>

> Thoughts? Can I be assured that I don't need to worry about Lyme if that was

the only reactive band?

>

> Thanks,

> Cathy

>

[Guest guest]

I agree with Rita to join the LIA group, it's an excellent resource! All the below info is on the site too.From what I have read the 23 band on the western blot is always indicitive of Lyme, so because it sounds like you may have had it for some time and some people don't show many antibodies for various reasons, further testing at a lab like IgeneX might be worth your while.Subject: Re: I need help with Lyme disease, pleaseTo: mb12valtrex Date: Tuesday, September 25, 2012, 12:52 PM

The best answers to this detailed ? would be from the LIA (Lyme Induced Autism) Yahoo group

Here's a link to it:

http://www.lymeinducedautism.com/

On the right you will find "Support" "Join Yahoo Group" to help aid you joining the right group.

This group & the LIA group are my personal favorites...great informed groups )

Rita

>

> Hi friends,

>

> I know some of you on here know a lot about Lyme disease and I was wondering if you could give me a little guidance.

>

> Long story short, I have been having a lot of health issues for a while and my doctors have not been able to figure it all out. I have been diagnosed with Hashimoto's and an enlarged thyroid. One time when blood work was done, my TSH was very, very low (hyperthyroid) but all my other labs have shown normal thyroid levels so I am not on any supplemental hormones for my thyroid.

>

> A rheumatologist ran a ton of tests and most of them came back normal. The few that didn't don't fit a typical pattern for any specific autoimmune disease. He did run a western blot because I described a rash that he said sounded like the typical "bullseye" rash. He is right. I have a picture of the rash and it could be described as "bullseye." I had never thought of Lyme disease when I had the rash or even with all my symptoms because I live in FL and it just didn't cross my mind.

>

> Anyway, the only thing that came back reactive on the western blot was the 23 KD IGM band. The test results say that 2 or more of the 3 IGM bands need to be reactive to be considered positive for Lyme disease.

>

> My doctor did not even mention the Lyme band. I know about it because I have my test results.

>

> Thoughts? Can I be assured that I don't need to worry about Lyme if that was the only reactive band?

>

> Thanks,

> Cathy

>

[Guest guest]

Yes, please get further testing, through Igenex, or, Adavanced Labs has a Lyme

test you can take if off antibiotics that will culture your blood and if

positive, actually comes back with a photo of spirochetes found.

I have Lyme disease and Bartonella, walked around with symptoms and no clue for

years.

Found when 'on a whim' I sent in a Western Blot for my PANDAS daughter, it came

back band 23 positive.

Found a Lyme literate MD (google Lymenet.flash seeking a doctor for one in your

area)

got further testing on us both, we are in treatment.

Both of us have had improvements.

>

> Hi friends,

>

> I know some of you on here know a lot about Lyme disease and I was wondering

if you could give me a little guidance.

>

> Long story short, I have been having a lot of health issues for a while and my

doctors have not been able to figure it all out. I have been diagnosed with

Hashimoto's and an enlarged thyroid. One time when blood work was done, my TSH

was very, very low (hyperthyroid) but all my other labs have shown normal

thyroid levels so I am not on any supplemental hormones for my thyroid.

>

> A rheumatologist ran a ton of tests and most of them came back normal. The

few that didn't don't fit a typical pattern for any specific autoimmune disease.

He did run a western blot because I described a rash that he said sounded like

the typical " bullseye " rash. He is right. I have a picture of the rash and it

could be described as " bullseye. " I had never thought of Lyme disease when I

had the rash or even with all my symptoms because I live in FL and it just

didn't cross my mind.

>

> Anyway, the only thing that came back reactive on the western blot was the 23

KD IGM band. The test results say that 2 or more of the 3 IGM bands need to be

reactive to be considered positive for Lyme disease.

>

> My doctor did not even mention the Lyme band. I know about it because I have

my test results.

>

> Thoughts? Can I be assured that I don't need to worry about Lyme if that was

the only reactive band?

>

> Thanks,

> Cathy

>