RE: Re:(no subject)/ shauna

[Guest guest]

Hi,

Thanks for your comments.I'm not on any drugs, but this depression problem started when I took the preds and just didn't go away. Tomorrow i see the dr and I hope he'll give me something.

I sometimes have that tired feeling also. This week, I really wanted to go to the gym and I got up, dressed and then just plopted down on my bed again, could move a musle. When I feel that I don't have the strenght, I just let it go, but then I really have guilty feelings that I didn't do my exercises.

Take care!

To: Neurosarcoidosis From: sglaspie2000@...Date: Mon, 28 Jul 2008 13:51:53 -0700Subject: Re:(no subject)

Hi Moish Pomeranc,

I just came off methylprednisone after almost a year. I have been on and off prednisone for 5 years. I have flares and until last year I wasn't having any problems with my lungs. Just the headaches and fatigue and eye problems. Neurological problems most. I do find that since being off for three weeks I feel very tired on the third week. My energy level is not what it was with the prednisone but I guess I have to get used to it. I can't do what I normally do. I usually work out at the gym and walk on the treadmill but today in my resistance training class I founf that I fatigue much quicker now. Even walking around the store is has me tired.

As for the headaches I find that in the hot summer I cannot go out in thed heat because it gives me headaches also. So I learn to do what I do earlier in the mornings or at night. That way I don't get the headaches from the heat.

Last year when we were reaching those extreme temps I just stayed in the house until it was cooler because if I was out there for even 2 minutes I had a headache. So I just avoid it if I can.

As for depression I do think that it is the medicine and the sarcoidosis. At times I am sitting in my apartment and I feel uneasy. I know that it is the medicine because normally I don't feel that way. I try to get out during the day for a minute when I can because sometimes I just need to be around people so I want think about what is hurting or feeling a little afraid in my home.

Hope this helps. Explore the seven wonders of the world Learn more!

[Guest guest]

Hi Moish,

I know how you feel about wanting to exercise, but your body not wanting to cooperate it. I exercised regularly before becoming ill, and I really miss it. Now I am lucky to have strength to do it too. I actually want to join a new gym down the street, but I am afraid of not being able to go regularly if much at all if I join.

Debbie T.

Co-Moderator

Subject: RE: Re:(no subject)/ shaunaTo: neurosarcoidosis Date: Wednesday, July 30, 2008, 6:16 AM

Hi,Thanks for your comments.I'm not on any drugs, but this depression problem started when I took the preds and just didn't go away. Tomorrow i see the dr and I hope he'll give me something. I sometimes have that tired feeling also. This week, I really wanted to go to the gym and I got up, dressed and then just plopted down on my bed again, could move a musle. When I feel that I don't have the strenght, I just let it go, but then I really have guilty feelings that I didn't do my exercises. Take care!

To: Neurosarcoidosis@ yahoogroups. comFrom: sglaspie2000@ yahoo.comDate: Mon, 28 Jul 2008 13:51:53 -0700Subject: Re:(no subject)

Hi Moish Pomeranc, I just came off methylprednisone after almost a year. I have been on and off prednisone for 5 years. I have flares and until last year I wasn't having any problems with my lungs. Just the headaches and fatigue and eye problems. Neurological problems most. I do find that since being off for three weeks I feel very tired on the third week. My energy level is not what it was with the prednisone but I guess I have to get used to it. I can't do what I normally do. I usually work out at the gym and walk on the treadmill but today in my resistance training class I founf that I fatigue much quicker now. Even walking around the store is has me tired. As for the headaches I find that in the hot summer I cannot go out in thed heat because it gives me headaches also. So I learn to do what I do earlier in the mornings or at night.

That way I don't get the headaches from the heat. Last year when we were reaching those extreme temps I just stayed in the house until it was cooler because if I was out there for even 2 minutes I had a headache. So I just avoid it if I can. As for depression I do think that it is the medicine and the sarcoidosis. At times I am sitting in my apartment and I feel uneasy. I know that it is the medicine because normally I don't feel that way. I try to get out during the day for a minute when I can because sometimes I just need to be around people so I want think about what is hurting or feeling a little afraid in my home. Hope this helps.

Explore the seven wonders of the world Learn more!