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Re: Vitamin E - lack of pain sensation

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We had the lack of pain sensation and high B12 (which I think

indicates that) prior to dairy and gluten removal and fluoridated

water removal. We no longer have it. While we are E responders, this

issue is not something E addresses. My point in saying so is that if

that remains an issue allergen may be at play. I am an E fan but do

not believe in giving that vitamin extra jobs.

>

> /links

> folder: Vitamin E

>

> Vitamin E could help with lack of pain sensation. has

talked

> about ph being able to feel pain after starting Vitamin E.

> Geng is another person that has mentioned it helping Tanner.

Please

> take a look in the Vitamin E folder for information to read through.

>

>

/message/72356

> (Neuro symptoms of vit E deficiency: Speech

> difficulty, coordination problems, low tone, loss of reflexes, loss

> of pain sensation (high pain tolerance), poor proprioception and

> positional sense - ie poor concept of body's position in space - so

> walks into walls etc). It is not a coincidence.

>

> Hope this is helpful

> Tina

>

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I meant to say not something E addresses for us because it is not

there to address.

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

> >

>

/message/72356

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

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Hi Janice:

here are some symptoms of Vitamin E deficiency

http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/

Vitamin E deficiency has been observed in individuals with severe

malnutrition, genetic defects affecting the alpha-tocopherol transfer

protein, and fat malabsorption syndromes. For example, children with

cystic fibrosis or cholestatic liver disease, who have an impaired

capacity to absorb dietary fat and therefore fat-soluble vitamins,

may develop symptomatic vitamin E deficiency. Severe vitamin E

deficiency results mainly in neurological symptoms, including

impaired balance and coordination (ataxia), injury to the sensory

nerves (peripheral neuropathy), muscle weakness (myopathy), and

damage to the retina of the eye (pigmented retinopathy). For this

reason, people who develop peripheral neuropathy, ataxia or retinitis

pigmentosa should be screened for vitamin E deficiency (2). The

developing nervous system appears to be especially vulnerable to

vitamin E deficiency because children with severe vitamin E

deficiency from birth, who are not treated with vitamin E, develop

neurological symptoms rapidly. In contrast, individuals who develop

malabsorption of vitamin E in adulthood may not develop neurological

symptoms for 10-20 years. It should be noted that symptomatic

vitamin E deficiency in healthy individuals who consume diets low in

vitamin E has never been reported (10).

http://www.merck.com/mmpe/sec01/ch004/ch004l.html

Symptoms and Signs

In children, chronic cholestatic hepatobiliary disease or cystic

fibrosis causes neurologic deficits, including spinocerebellar ataxia

with loss of deep tendon reflexes, truncal and limb ataxia, loss of

vibration and position senses, ophthalmoplegia, muscle weakness,

ptosis, and dysarthria.

I don't know enough about plasma Vitamin E levels to respond.

Perhaps can respond to blood tests coming up normal.

Tina

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

> >

>

/message/72356

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

>

>

>

>

>

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Marks E levels are normal but he lacked pain sensation. This is a low muscle

tone issue and perhaps carnitine and low EFA has something to do with it but I

have to question the vitamin E relationship here....

Perhaps there is a study that I have not read that associates muscle tone with

vitamin E....?

No disrespect intended.....

Janice

[sPAM][ ] Re: Vitamin E - lack of pain sensation

We had the lack of pain sensation and high B12 (which I think

indicates that) prior to dairy and gluten removal and fluoridated

water removal. We no longer have it. While we are E responders, this

issue is not something E addresses. My point in saying so is that if

that remains an issue allergen may be at play. I am an E fan but do

not believe in giving that vitamin extra jobs.

>

> /links

> folder: Vitamin E

>

> Vitamin E could help with lack of pain sensation. has

talked

> about ph being able to feel pain after starting Vitamin E.

> Geng is another person that has mentioned it helping Tanner.

Please

> take a look in the Vitamin E folder for information to read through.

>

>

/message/72356

> (Neuro symptoms of vit E deficiency: Speech

> difficulty, coordination problems, low tone, loss of reflexes, loss

> of pain sensation (high pain tolerance), poor proprioception and

> positional sense - ie poor concept of body's position in space - so

> walks into walls etc). It is not a coincidence.

>

> Hope this is helpful

> Tina

>

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I wonder if high B12 and aluminum mask pain in some of these kids and

E as the powerful antioxidant that it is, cleans up allergic stuff

and aluminum.

I don't know about any studies but here is our E experience:

Country Life E: articulates better and loses all upper body

(not completely mouth though) tone issues. He literally looks for

things to hang from and use his upper body strentgh.

Twin Labs E (no soy): articulates better and has lower body

strength.

These were reactions we had a while ago before having to go off. The

poop we had was grey with black specs. The poop Stan Kurtz has seen

in recovering autism kids. No one has found a way to test it but the

specs are thought to be old blood.

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

> >

>

/message/72356

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

>

>

>

>

>

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Vitamin E resolved Elliott's lack of pain sensation. Before it, he

had never cried when he got his finger pricked at the doc's, never

cried when he fell down and had clearly hurt himself, we never knew

he had MAJOR athlete's foot at 1 year old until we looked way up

under & between his toes and found them to be bright red with crusty

yellow stuff (sorry for the nice mental image there). There is no

way that wasn't itchy and painful, but he never once gave us an

indication. Makes me thankful he couldn't feel it at the time,

although the ability to feel pain is extremely important.

Now he feels everything, thank God.

> > >

> > >

/links

> > > folder: Vitamin E

> > >

> > > Vitamin E could help with lack of pain sensation.

has

> > talked

> > > about ph being able to feel pain after starting Vitamin

E.

> >

> > > Geng is another person that has mentioned it helping Tanner.

> > Please

> > > take a look in the Vitamin E folder for information to read

> through.

> > >

> > >

> >

>

/message/7235

6

> > > (Neuro symptoms of vit E deficiency: Speech

> > > difficulty, coordination problems, low tone, loss of

reflexes,

> loss

> > > of pain sensation (high pain tolerance), poor proprioception

and

> > > positional sense - ie poor concept of body's position in

space -

> so

> > > walks into walls etc). It is not a coincidence.

> > >

> > > Hope this is helpful

> > > Tina

> > >

> >

> >

> >

> >

> >

> >

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> > > >

> > > >

> /links

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping

Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > > >

> > >

> >

>

/message/7235

> 6

> > > > (Neuro symptoms of vit E deficiency: Speech

> > > > difficulty, coordination problems, low tone, loss of

> reflexes,

> > loss

> > > > of pain sensation (high pain tolerance), poor

proprioception

> and

> > > > positional sense - ie poor concept of body's position in

> space -

> > so

> > > > walks into walls etc). It is not a coincidence.

> > > >

> > > > Hope this is helpful

> > > > Tina

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

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Huge help! Thankyou once again.

> > > > >

> > > > >

> > /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

> Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> >

>

/message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

> proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Thanks.

I'm going to look at switching mine up and see if I can get better results....

Janice

[sPAM]]Re:[ ] Re: Vitamin E - lack of pain

sensation

We use Vitamin Shoppe high gamma- it has 200iu d-alpha and 200mg high

gamma. Landon (4yr) right now needs the equal ratio and this is

considered a low dose, but we have seen better articulation and less

tiredness in the afternoon.

Tina

> > > >

> > > >

> /links

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping

Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > > >

> > >

> >

>

/message/7235

> 6

> > > > (Neuro symptoms of vit E deficiency: Speech

> > > > difficulty, coordination problems, low tone, loss of

> reflexes,

> > loss

> > > > of pain sensation (high pain tolerance), poor

proprioception

> and

> > > > positional sense - ie poor concept of body's position in

> space -

> > so

> > > > walks into walls etc). It is not a coincidence.

> > > >

> > > > Hope this is helpful

> > > > Tina

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

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> Kids with apraxia have no pain sensation.

Ethan never completely lacked pain sensation. He used to cry and run to

my husband or I if he fell down hard enough. He also had lots of

teething pain. He did used to have a higher pain tolerance level

though. That too seems to have remained the same despite the lower dose

of vitamin E we have been giving him lately. Maybe it was never a

transport issue with him - just a low level? Could it possibly be

related to different things in different kids even if they share an

apraxia dx?

Nadine

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Janice,

I use Perfect E by www.Lenandjoe.com. They are homeopathic MDs. They have

terrific radio site and radio show on top of a private pratice. I use them

as well for Charlie in finding the BEST QUALITY Suppliments. Quality is

extremely important. They are very knowledgeable. My father uses them. He

had/has epplipasy (sp) and has seasures when he eats certain foods. They

have pretty much solved this with him. I also use their buffered C.

I give Charlie 2 per day.

800 iu Vitamin E - Perfect E Comprised of:

Mixed Tocopherols 536mg

d-gamma tocopherol 400 mg

d-delta tocopherol 91 mg

d-beta tocopherol 45 mg

Tocotrienols (frompalm) 40 mg

Gamma tocotrientol 21 mg

Delta tocotrienol 6mg

Alpha Tocotrienol 12 mg

Beta tocotrienol 1mg

Colleen

Mother of Charlie 30 months

]Re:[ ] Re: Vitamin E - lack of pain sensation

,

What specific brand of E are you using? I am beginning to find that brand is

often important. How much E do you give each day? Perhaps this is a key for

Mark.... we may not be using the brand of E.

Always willing to give anothers success a shot......

It would be curious to know which E moms like the best? We know that Nordic

Naturals is a loved fish oil but which E is everyone using?

(E responders in particular?)

Janice

[sPAM]Re:[ ] Re: Vitamin E - lack of pain

sensation

Vitamin E resolved Elliott's lack of pain sensation. Before it, he

had never cried when he got his finger pricked at the doc's, never

cried when he fell down and had clearly hurt himself, we never knew

he had MAJOR athlete's foot at 1 year old until we looked way up

under & between his toes and found them to be bright red with crusty

yellow stuff (sorry for the nice mental image there). There is no

way that wasn't itchy and painful, but he never once gave us an

indication. Makes me thankful he couldn't feel it at the time,

although the ability to feel pain is extremely important.

Now he feels everything, thank God.

> > >

> > >

http://health.

< /links>

/group/ /links

> > > folder: Vitamin E

> > >

> > > Vitamin E could help with lack of pain sensation.

has

> > talked

> > > about ph being able to feel pain after starting Vitamin

E.

> >

> > > Geng is another person that has mentioned it helping Tanner.

> > Please

> > > take a look in the Vitamin E folder for information to read

> through.

> > >

> > >

> >

>

http://health.

< /message/7235>

/group/ /message/7235

6

> > > (Neuro symptoms of vit E deficiency: Speech

> > > difficulty, coordination problems, low tone, loss of

reflexes,

> loss

> > > of pain sensation (high pain tolerance), poor proprioception

and

> > > positional sense - ie poor concept of body's position in

space -

> so

> > > walks into walls etc). It is not a coincidence.

> > >

> > > Hope this is helpful

> > > Tina

> > >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

> > > > >

> > > > >

> > /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

> Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> >

>

/message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

> proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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> > Kids with apraxia have no pain sensation.

>

> Ethan never completely lacked pain sensation. He used to cry and

run to

> my husband or I if he fell down hard enough. He also had lots of

> teething pain. He did used to have a higher pain tolerance level

> though. That too seems to have remained the same despite the lower

dose

> of vitamin E we have been giving him lately. Maybe it was never a

> transport issue with him - just a low level? Could it possibly be

> related to different things in different kids even if they share an

> apraxia dx?

>

> Nadine

>

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Share on other sites

> > > >

> > > >

> http://health.

> < /links>

> /group/ /links

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping

Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > > >

> > >

> >

> http://health.

>

< /message/7235

>

> /group/ /message/7235

> 6

> > > > (Neuro symptoms of vit E deficiency: Speech

> > > > difficulty, coordination problems, low tone, loss of

> reflexes,

> > loss

> > > > of pain sensation (high pain tolerance), poor

proprioception

> and

> > > > positional sense - ie poor concept of body's position in

> space -

> > so

> > > > walks into walls etc). It is not a coincidence.

> > > >

> > > > Hope this is helpful

> > > > Tina

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

Link to comment
Share on other sites

> > > >

> > > >

> http://health.

> < /links>

> /group/ /links

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > > >

> > >

> >

> http://health.

>

< /message/7235

>

> /group/ /message/7235

> 6

> > > > (Neuro symptoms of vit E deficiency: Speech

> > > > difficulty, coordination problems, low tone, loss of

> reflexes,

> > loss

> > > > of pain sensation (high pain tolerance), poor proprioception

> and

> > > > positional sense - ie poor concept of body's position in

> space -

> > so

> > > > walks into walls etc). It is not a coincidence.

> > > >

> > > > Hope this is helpful

> > > > Tina

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

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I have to wonder......

is there a 'time limit' with regards to neurological damage ie. the low tone,

etc. I know that we did remedy Mark's pain sensory channels but it was a lot of

work and a lot of therapy.

My question is this.... does the supplement protocol success rate drop down as

a child ages? I would guess that the answer is 'yes'. This is why the

youngsters see such rapid and noticeable success from supplementation.

Yet, I do see improvements for Mark in supplementation..... it is just a lot

more subtle and easier to miss. The effects are less " WOW " (like the toddlers),

look at this new skill but more like ..... oh, he is really being helpful today,

has good eye contact and high energy and is really focused... I don't have to

repeat myself.....

We have had a few supplements that I have had 'wow' moments such as glutatione

and the DMSA challenge (sulfer stuff) but everything else is extremely subtle.

So, I think it is easier to miss improvements as a child ages and perhaps some

improvements will only come with therapy and other improvements will be affected

by the biomed. The older the child, definately, the more therapy that is

needed.

That is why you all with toddlers shouldn't be afraid to work the supplements.

There is definately a 'window' for certain things like McCarthy suggests

though I do believe that older kids like Mark are equally helped..... they will

not necessarily experience the same success as a child who has yet many

milestones ahead of him rather than behind him..... (Did I make sense?)

But I will switch up the E and see if it helps with body mass and tone.

Mark has been eating about 10 meals a day since we did DMSA round 1 this

weekend. He is hungry, hungry, hungry. I can almost see him getting taller in

front of my very eyes... 13, time to grow!

Janice

Mother of Mark, 13

[sPAM]Re:[ ] Re: Vitamin E - lack of pain

sensation

Vitamin E resolved Elliott's lack of pain sensation. Before it, he

had never cried when he got his finger pricked at the doc's, never

cried when he fell down and had clearly hurt himself, we never knew

he had MAJOR athlete's foot at 1 year old until we looked way up

under & between his toes and found them to be bright red with crusty

yellow stuff (sorry for the nice mental image there). There is no

way that wasn't itchy and painful, but he never once gave us an

indication. Makes me thankful he couldn't feel it at the time,

although the ability to feel pain is extremely important.

Now he feels everything, thank God.

> > >

> > >

http://health.

< /links>

/group/ /links

> > > folder: Vitamin E

> > >

> > > Vitamin E could help with lack of pain sensation.

has

> > talked

> > > about ph being able to feel pain after starting Vitamin

E.

> >

> > > Geng is another person that has mentioned it helping Tanner.

> > Please

> > > take a look in the Vitamin E folder for information to read

> through.

> > >

> > >

> >

>

http://health.

< /message/7235>

/group/ /message/7235

6

> > > (Neuro symptoms of vit E deficiency: Speech

> > > difficulty, coordination problems, low tone, loss of

reflexes,

> loss

> > > of pain sensation (high pain tolerance), poor proprioception

and

> > > positional sense - ie poor concept of body's position in

space -

> so

> > > walks into walls etc). It is not a coincidence.

> > >

> > > Hope this is helpful

> > > Tina

> > >

> >

> >

> >

> >

> >

> >

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Share on other sites

Thankyou! Diet only moved us from high pain tolerance to normal but

light touch remained a problem until recently for . Recently

though we got a multi in it with 70 iu of the right E. That coupled

with E taken in the past may be enough but I think we'll be upping it

after coagulation labs. Just yesterday I mentioned to hubby that

is more cuddly and actually encourages us to touch him in the

face head and neck...light touch problem areas before. I believe this

will make Prompt Therapy, which we start in three short weeks,

easier. I will read the book. There are no words. You have helped me

and mine more than anyone. Thank you so very much! As an aside, I

took E first (I take everything I give my kids first) and continue

taking it as it has helped me. For my concussion yesterday I took

Omega 3 as my antiinflammatory. Husband, research scientist, insisted

on nuprin at bedtime though. I get it...finally. I get what these

things help. Sorry I took so long to come around. I am glad I did not

just jump in on E though as our need was dietary and not transport,

likely because we are not dealing with pure apraxia here. We do have

a celiac E responder for sure in my daughter.

> > > Kids with apraxia have no pain sensation.

> >

> > Ethan never completely lacked pain sensation. He used to cry and

> run to

> > my husband or I if he fell down hard enough. He also had lots of

> > teething pain. He did used to have a higher pain tolerance level

> > though. That too seems to have remained the same despite the

lower

> dose

> > of vitamin E we have been giving him lately. Maybe it was never

a

> > transport issue with him - just a low level? Could it possibly

be

> > related to different things in different kids even if they share

an

> > apraxia dx?

> >

> > Nadine

> >

>

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>(whether from low levels in the blood because you have a genetic

syndrome ...

Since you mentioned this, what I really need to know is, if a child

does have a mild genetic syndrome that has hematological

characteristics involving clotting factors, is it safe (in your opinion)

to give vitamin E and high doses of fish oil?

I guess that what I am asking in a nutshell is are there any times it

is contraindicated?

Thanks again.

Nadine

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I think that reads that the 800IUs is the d-alpha. The rest is the

mg of the " other mixed " .

> > > > >

> > > > >

> > http://health.

> > < /links>

> > /group/ /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> > http://health.

> >

>

< /message/723

5

> >

> > /group/ /message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Okay,

I have not even 'approached' the dosage that everyone else is using and the E I

have been using has been all d-alpha. I will change it up and begin to ramp up

the dosage and see if it is if we get a response. Since Mark is 13, we may

not..... but unless I try it correctly, I will never know.

Also, puberty is around the corner. After that, it will be tough to change too

much for him I think. Time is fast running out..... cannot waste a moment of

it.

Janice

Mother of Mark, 13

[sPAM][ ] Re: Vitamin E - lack of pain sensation

I think that reads that the 800IUs is the d-alpha. The rest is the

mg of the " other mixed " .

> > > > >

> > > > >

> > http://health.

> > < /links>

> > /group/ /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> > http://health.

> >

>

< /message/723

5

> >

> > /group/ /message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Share on other sites

The Listening Program for sensory stuff has been a Godsend. We are

about to do disc 4. All I can say is I have been crying for three

days. I did not realize how close to spectrum's door we were and how

far away my boy had gotten had we not known enough to take action. It

haunts me.

> > > > >

> > > > >

> > http://health.

> > <http://health.

> < /links>

> /group/ /links>

> > /group/ /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

> Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> > http://health.

> >

> <http://health.

>

< /message/7235

>

> /group/ /message/7235

> >

> > /group/ /message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

> proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

Link to comment
Share on other sites

> > > > >

> > > > >

> > http://health.

> > < /links>

> > /group/ /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> > http://health.

> >

>

< /message/7235

> >

> > /group/ /message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

Link to comment
Share on other sites

> > > > > >

> > > > > >

> > > http://health.

> > > <http://health.

> > < /links>

> > /group/ /links>

> > > /group/ /links

> > > > > > folder: Vitamin E

> > > > > >

> > > > > > Vitamin E could help with lack of pain sensation.

> > > has

> > > > > talked

> > > > > > about ph being able to feel pain after starting

Vitamin

> > > E.

> > > > >

> > > > > > Geng is another person that has mentioned it helping

> > Tanner.

> > > > > Please

> > > > > > take a look in the Vitamin E folder for information to

read

> > > > through.

> > > > > >

> > > > > >

> > > > >

> > > >

> > > http://health.

> > >

> > <http://health.

> >

>

< /message/7235

> >

> > /group/ /message/7235

> > >

> > > /group/ /message/7235

> > > 6

> > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > difficulty, coordination problems, low tone, loss of

> > > reflexes,

> > > > loss

> > > > > > of pain sensation (high pain tolerance), poor

> > proprioception

> > > and

> > > > > > positional sense - ie poor concept of body's position in

> > > space -

> > > > so

> > > > > > walks into walls etc). It is not a coincidence.

> > > > > >

> > > > > > Hope this is helpful

> > > > > > Tina

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

Link to comment
Share on other sites

Liz,

I need to get to the listening program. My OT gave me two discs and we did

it for one day. I am not one to start something and not complete it:

however, I have to get this metal thing under control and start a new

program and see results. Then move onto the Listening Program. Your

thoughts?

By the way, thought I would share some good news this week... Charlie scored

OFF the CHARTS in language and retention for his age! Now the dyspraxia

stuff and dropping consinents...etc.

Glad we went into over drive last August.

Colleen

Mother of Charlie 30 months.

[ ] Re: Vitamin E - lack of pain sensation

The Listening Program for sensory stuff has been a Godsend. We are

about to do disc 4. All I can say is I have been crying for three

days. I did not realize how close to spectrum's door we were and how

far away my boy had gotten had we not known enough to take action. It

haunts me.

> > > > >

> > > > >

> > http://health.

> > <http://health.

> <http://health.

< /links>

/group/ /links>

> /group/ /links>

> > /group/ /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

> Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to read

> > > through.

> > > > >

> > > > >

> > > >

> > >

> > http://health.

> >

> <http://health.

>

<http://health.

< /message/7235>

/group/ /message/7235

>

> /group/ /message/7235

> >

> > /group/ /message/7235

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

> proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

Link to comment
Share on other sites

Here is the question: What further work up? We fit a lot but not all

of this. Though on diet a lot of our labs normalized so maybe that is

the extent of it.

> > > > > > >

> > > > > > >

> > > > http://health.

> > > > <http://health.

> > > < /links>

> > > /group/ /links>

> > > > /group/ /links

> > > > > > > folder: Vitamin E

> > > > > > >

> > > > > > > Vitamin E could help with lack of pain sensation.

> > > > has

> > > > > > talked

> > > > > > > about ph being able to feel pain after starting

> Vitamin

> > > > E.

> > > > > >

> > > > > > > Geng is another person that has mentioned it helping

> > > Tanner.

> > > > > > Please

> > > > > > > take a look in the Vitamin E folder for information to

> read

> > > > > through.

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > http://health.

> > > >

> > > <http://health.

> > >

> >

>

< /message/7235

> > >

> > > /group/ /message/7235

> > > >

> > > > /group/ /message/7235

> > > > 6

> > > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > > difficulty, coordination problems, low tone, loss of

> > > > reflexes,

> > > > > loss

> > > > > > > of pain sensation (high pain tolerance), poor

> > > proprioception

> > > > and

> > > > > > > positional sense - ie poor concept of body's position

in

> > > > space -

> > > > > so

> > > > > > > walks into walls etc). It is not a coincidence.

> > > > > > >

> > > > > > > Hope this is helpful

> > > > > > > Tina

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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