Re: Vitamin E - lack of pain sensation

> folder: Vitamin E

>

> Vitamin E could help with lack of pain sensation. has

talked

> about ph being able to feel pain after starting Vitamin E.

> Geng is another person that has mentioned it helping Tanner.

Please

> take a look in the Vitamin E folder for information to read through.

>

> (Neuro symptoms of vit E deficiency: Speech

> difficulty, coordination problems, low tone, loss of reflexes, loss

> of pain sensation (high pain tolerance), poor proprioception and

> positional sense - ie poor concept of body's position in space - so

> walks into walls etc). It is not a coincidence.

>

> Hope this is helpful

> Tina

>

January 14, 2008

I meant to say not something E addresses for us because it is not

there to address.

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

>

http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

January 14, 2008

Hi Janice:

here are some symptoms of Vitamin E deficiency

Vitamin E deficiency has been observed in individuals with severe

malnutrition, genetic defects affecting the alpha-tocopherol transfer

protein, and fat malabsorption syndromes. For example, children with

cystic fibrosis or cholestatic liver disease, who have an impaired

capacity to absorb dietary fat and therefore fat-soluble vitamins,

may develop symptomatic vitamin E deficiency. Severe vitamin E

deficiency results mainly in neurological symptoms, including

impaired balance and coordination (ataxia), injury to the sensory

nerves (peripheral neuropathy), muscle weakness (myopathy), and

damage to the retina of the eye (pigmented retinopathy). For this

reason, people who develop peripheral neuropathy, ataxia or retinitis

pigmentosa should be screened for vitamin E deficiency (2). The

developing nervous system appears to be especially vulnerable to

vitamin E deficiency because children with severe vitamin E

deficiency from birth, who are not treated with vitamin E, develop

neurological symptoms rapidly. In contrast, individuals who develop

malabsorption of vitamin E in adulthood may not develop neurological

symptoms for 10-20 years. It should be noted that symptomatic

vitamin E deficiency in healthy individuals who consume diets low in

vitamin E has never been reported (10).

http://www.merck.com/mmpe/sec01/ch004/ch004l.html

Symptoms and Signs

In children, chronic cholestatic hepatobiliary disease or cystic

fibrosis causes neurologic deficits, including spinocerebellar ataxia

with loss of deep tendon reflexes, truncal and limb ataxia, loss of

vibration and position senses, ophthalmoplegia, muscle weakness,

ptosis, and dysarthria.

I don't know enough about plasma Vitamin E levels to respond.

Perhaps can respond to blood tests coming up normal.

Tina

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

>

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

January 14, 2008

Marks E levels are normal but he lacked pain sensation. This is a low muscle

tone issue and perhaps carnitine and low EFA has something to do with it but I

have to question the vitamin E relationship here....

Perhaps there is a study that I have not read that associates muscle tone with

vitamin E....?

No disrespect intended.....

Janice

[sPAM][ ] Re: Vitamin E - lack of pain sensation

We had the lack of pain sensation and high B12 (which I think

indicates that) prior to dairy and gluten removal and fluoridated

water removal. We no longer have it. While we are E responders, this

issue is not something E addresses. My point in saying so is that if

that remains an issue allergen may be at play. I am an E fan but do

not believe in giving that vitamin extra jobs.

>

> folder: Vitamin E

>

> Vitamin E could help with lack of pain sensation. has

talked

> about ph being able to feel pain after starting Vitamin E.

> Geng is another person that has mentioned it helping Tanner.

Please

> take a look in the Vitamin E folder for information to read through.

>

> (Neuro symptoms of vit E deficiency: Speech

> difficulty, coordination problems, low tone, loss of reflexes, loss

> of pain sensation (high pain tolerance), poor proprioception and

> positional sense - ie poor concept of body's position in space - so

> walks into walls etc). It is not a coincidence.

>

> Hope this is helpful

> Tina

>

January 14, 2008

I wonder if high B12 and aluminum mask pain in some of these kids and

E as the powerful antioxidant that it is, cleans up allergic stuff

and aluminum.

I don't know about any studies but here is our E experience:

Country Life E: articulates better and loses all upper body

(not completely mouth though) tone issues. He literally looks for

things to hang from and use his upper body strentgh.

Twin Labs E (no soy): articulates better and has lower body

strength.

These were reactions we had a while ago before having to go off. The

poop we had was grey with black specs. The poop Stan Kurtz has seen

in recovering autism kids. No one has found a way to test it but the

specs are thought to be old blood.

> >

> > /links

> > folder: Vitamin E

> >

> > Vitamin E could help with lack of pain sensation. has

> talked

> > about ph being able to feel pain after starting Vitamin E.

>

> > Geng is another person that has mentioned it helping Tanner.

> Please

> > take a look in the Vitamin E folder for information to read

through.

> >

>

> > (Neuro symptoms of vit E deficiency: Speech

> > difficulty, coordination problems, low tone, loss of reflexes,

loss

> > of pain sensation (high pain tolerance), poor proprioception and

> > positional sense - ie poor concept of body's position in space -

so

> > walks into walls etc). It is not a coincidence.

> >

> > Hope this is helpful

> > Tina

> >

>

January 14, 2008

Vitamin E resolved Elliott's lack of pain sensation. Before it, he

had never cried when he got his finger pricked at the doc's, never

cried when he fell down and had clearly hurt himself, we never knew

he had MAJOR athlete's foot at 1 year old until we looked way up

under & between his toes and found them to be bright red with crusty

yellow stuff (sorry for the nice mental image there). There is no

way that wasn't itchy and painful, but he never once gave us an

indication. Makes me thankful he couldn't feel it at the time,

although the ability to feel pain is extremely important.

Now he feels everything, thank God.

> > >

/links

> > > folder: Vitamin E

> > >

> > > Vitamin E could help with lack of pain sensation.

has

> > talked

> > > about ph being able to feel pain after starting Vitamin

E.

> >

> > > Geng is another person that has mentioned it helping Tanner.

> > Please

> > > take a look in the Vitamin E folder for information to read

> through.

> > >

> >

>

6

> > > (Neuro symptoms of vit E deficiency: Speech

> > > difficulty, coordination problems, low tone, loss of

reflexes,

> loss

> > > of pain sensation (high pain tolerance), poor proprioception

and

> > > positional sense - ie poor concept of body's position in

space -

> so

> > > walks into walls etc). It is not a coincidence.

> > >

> > > Hope this is helpful

> > > Tina

> > >

> >

January 14, 2008

> > > >

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping

Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > >

> >

>

> 6

> > > > (Neuro symptoms of vit E deficiency: Speech

> > > > difficulty, coordination problems, low tone, loss of

> reflexes,

> > loss

> > > > of pain sensation (high pain tolerance), poor

proprioception

> and

> > > > positional sense - ie poor concept of body's position in

> space -

> > so

> > > > walks into walls etc). It is not a coincidence.

> > > >

> > > > Hope this is helpful

> > > > Tina

> > > >

> > >

January 15, 2008

Huge help! Thankyou once again.

> > > > >

> > /links

> > > > > folder: Vitamin E

> > > > >

> > > > > Vitamin E could help with lack of pain sensation.

> > has

> > > > talked

> > > > > about ph being able to feel pain after starting

Vitamin

> > E.

> > > >

> > > > > Geng is another person that has mentioned it helping

> Tanner.

> > > > Please

> > > > > take a look in the Vitamin E folder for information to

read

> > > through.

> > > > >

> > > >

> > >

> >

>

> > 6

> > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > difficulty, coordination problems, low tone, loss of

> > reflexes,

> > > loss

> > > > > of pain sensation (high pain tolerance), poor

> proprioception

> > and

> > > > > positional sense - ie poor concept of body's position in

> > space -

> > > so

> > > > > walks into walls etc). It is not a coincidence.

> > > > >

> > > > > Hope this is helpful

> > > > > Tina

> > > > >

> > > >

January 15, 2008

Thanks.

I'm going to look at switching mine up and see if I can get better results....

Janice

[sPAM]]Re:[ ] Re: Vitamin E - lack of pain

sensation

We use Vitamin Shoppe high gamma- it has 200iu d-alpha and 200mg high

gamma. Landon (4yr) right now needs the equal ratio and this is

considered a low dose, but we have seen better articulation and less

tiredness in the afternoon.

Tina

> > > >

> > > > folder: Vitamin E

> > > >

> > > > Vitamin E could help with lack of pain sensation.

> has

> > > talked

> > > > about ph being able to feel pain after starting Vitamin

> E.

> > >

> > > > Geng is another person that has mentioned it helping

Tanner.

> > > Please

> > > > take a look in the Vitamin E folder for information to read

> > through.

> > > >

> > >

> >

>