Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I don't know. The milk of today, raw and pateurized, is different from yesteryear. Not sure you will ever know for sure why. It may just be that you had enough:) > > Speaking of milk intolerances--I was just thinking about something. > > I know a few people have mentioned RAW milk as an alternative to typical > milk found in the stores. Growing up, I had SEVERE ear infections. I always had > one--- always! Now, keep in mind, in my other post I said that I'm not much > of a milk drinker. BACK THEN-- I WAS! As a child, I loved milk and my > mother got RAW MILK from a local farmer. Now-- out of 3 children that she had, > all of us were on raw milk growing up. > Would you guess that ALL THREE of us now are not milk drinkers by choice > because of the effects that we feel on our digestive systems. I believe that > all of us are now milk intolerant-- if my own symptoms have much to say about > it. > But my point is that personally speaking-- I don't believe it's a case > between raw or typical milk, but just milk in general. > > > becky > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 We had to let go of it completely. My boys were drinking about 80 ounces or more a day and were certainly addicted. We also got language shortly after the removal of milk. Here is a take on milk sensitivities. http://www.stankurtz.com/biomedical/not-milk-medical-literature.html We have issues with high calcium levels in our blood. ( so the calcium was not being absorbed) We stayed away from calcium supplements too on the advice of our doctor. PS All our kids had troubles with milk. If my 13 year old consumes it, he says it makes him feel really happy. He gets very silly when he drinks it and hyper which he is far from. I can just imagine while all the kids are out there having their first beer, mine will be in the corner guzzling down a carton of milk.LOL Sounds a little humourous, but it it quite disturbing to me, the ill effects milk has on MY kids. myra.bauza@... wrote: > Does milk have to be gone entirely? I give my son Lactaid. I've been trying > to wean him down but it's really difficult. I would say he is addicted to > it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Lactaid doesn't work for most of our kids.... [sigh]..... because it is not the lactose in the milk that is giving them trouble but the casien in the milk that is giving them trouble..... [sigh].... I tried lactaid as well..... [sigh again].... no luck What does seem to work and what is working for us is digestive enzymes to help the child digest both casien and gluten in food. We use Huston Neutraceutical enzymes called Peptzyde along with a ton of other moms but will soon be trying their new product called TriEnza that is out. I know that there is a mom or two on this board using TriEnza with great success. I give enzymes with all food, not just milk products. It helps not just with casien and gluten but also with phenols which also are problematic for many of our kids who have neurological issues. With enyzmes my son over the last 6 months has been able to slowly eat more and more dairy products such as cheese, pizza, etc. Milk & ice-cream are still absolutely out but I am hopeful that one day his system will repair itself and he will be able to consume these foods. Now, I am discovering that MSG is just an absolute nightmare as well. We just got back from Utah and 5 days of restaurant eating..... the gas my son is expelling has him being nick-named 'Fart-Boy' by all and sundry! WHEW! Yuck! One day home and 'ta-da', he is better. I know that restaurant food is loaded with MSG and so this is my assumption but it could be something else. Janice Mother of Mark, 13 [sPAM]Re: [ ] Re: swinging question/vestibular system Does milk have to be gone entirely? I give my son Lactaid. I've been trying to wean him down but it's really difficult. I would say he is addicted to it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I have not seen research documenting a link between milk intolerance and kids that don't have recurrent otitis media, drooling, congestion, etc. Maybe I missed it? Is there research that points to dairy intolerance for neurologically " fragile " or dyspraxic kids even if they don't test allergic or have allergic symptoms/ear problems? Trying not to enter in to the dispute.... > > .... to be flip.... Sue me.... > > I believe that the first study that I posted said 78% of normal population with recurrent ear issues. For me, this qualifies as a lot! If you were to look at the neurodevelopmentally compromised population, I would guess that this number is much higher. > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY POSTS. See? It's that easy! I don't claim to be an author but I am confident that every mother will do her own research because I trust that each mother will not " blindly " take the advice of a woman she has never met over the internet without putting some thought and research into it first! > > If you really want to spend your life picking apart others, go ahead. It is obvious that you have no other productive hobbies. If anyone who actually has a sick child wants clarification as to my son's personal experience, I am happy to respond. > > But I will not respond to someone who is spending their time being hurtful of others and purposefully SEEKING OUT contraversy. I am done with this childish nonsense. > The rest of us have enough issues to deal with..... don't we? > > You asked for proof with regards to milk being an issue, I gave it to you (as I have done in the past) and I expect this to be the end of the matter. I have honored your request, please honor mine. > > I am not going to spend my day looking through your quotes...... You are obviously looking for someone to fight with.... you need to look at your personal life and figure out why, day after day over the past week, you spend your time ridiculing others on this board. This is not like you .... again, I suggest that perhaps you need a break to recharge your batteries..... I worry about your spirit. I have been on this board since about June and yes, you have been the source of a lot of contraversy and arguments but never like this..... Please take a holiday from sick kids. We all need one once in a while. > > So please, , I beg of you.... stop! > > Janice > Mother of Mark, 13 > > > > > [sPAM][ ] Re: swinging question/vestibular system > > > Actually you did said for a " lot " of our kids. Here's the exact > quote from you that I answered: > > " For a lot of our kids, milk is a huge issue and really congests the > ears and > hearing, causes drooling, decreases sensation in the hands, the feet, > the face > esp the lips. Ever notice that your child doesn't feel the goop on > his face > when eating or the drool spilling out of his mouth? It is because he > has lost > sensation in his face as well as other extremities " > > Perhaps instead you could have written that we all know that children > need to avoid anything they are allergic to prevent any serious > complications -however for the 2% of the pediatric population under > the age of 5, that " fill in above quote here " But even then I > would start with " milk can be " and not " milk is " > " Approximately 2% of the pediatric population is affected by cow's > milk allergy. Moreover the condition tends to be outgrown by 5 years > of age. " > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf > > It's like if I wrote " If you drink water and you have symptoms like > nausea and muscle cramps it means you can die " Instead of sharing > information about a rare but possible complication from drinking too > much water too quickly. That is what I mean by sharing credible > links and not just my own opinion. And if it is just your opinion > and your child's reaction -then state that. > > Symptoms of Hyponatremia > The early warning signs are often subtle and may be similar to > dehydration and include nausea, muscle cramps, disorientation, > slurred speech, and confusion. At this point, many athletes drink > more water because they think they are dehydrated. Unfortunately, > water alone will increase the problem of hyponatremia. At the most > extreme an athlete may experience seizures, coma, or death. > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > http://www.yourmedicaldetective.com/public/446.cfm > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Yeast is a thought. They talk about that connection at nacd.org Also, with the milk, kids with casein issues tend to crave milk. Could be both or neither. I am not an expert. > > > In a message dated 3/3/2008 3:46:02 P.M. Eastern Standard Time, > myra.bauza@... writes: > > Does milk have to be gone entirely? I give my son Lactaid. I've been trying > to wean him down but it's really difficult. I would say he is addicted to > it. > > > > > > > It's interesting that you ask this and also that you said something about > thinking that he is addicted to milk. I've thought the SAME thing with my NT > kids these days! I've been trying to wean ALL of my kids from milk in > general, and I've noticed that at least one of them, if not two, have shown some > great resistance but it's almost as if they NEED those sugars provided in the > milk or something. It's odd really--- but like you said, an addiction almost. > With the one I've noticed it stronger than the others, and oddly enough he is > a MAJOR sugar addict as well. If I hide things with sugar, he will scour the > house looking for it to get a " fix " . > As I typed that out-- I'm totally making the connection-- shoot, I wonder if > he's got a systemic yeast issue going on. Darn it-- why did THAT take so long > to wonder??? <sigh> > > Yet another thing to look into > > > Becky > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 .... to be flip.... Sue me.... I believe that the first study that I posted said 78% of normal population with recurrent ear issues. For me, this qualifies as a lot! If you were to look at the neurodevelopmentally compromised population, I would guess that this number is much higher. IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY POSTS. See? It's that easy! I don't claim to be an author but I am confident that every mother will do her own research because I trust that each mother will not " blindly " take the advice of a woman she has never met over the internet without putting some thought and research into it first! If you really want to spend your life picking apart others, go ahead. It is obvious that you have no other productive hobbies. If anyone who actually has a sick child wants clarification as to my son's personal experience, I am happy to respond. But I will not respond to someone who is spending their time being hurtful of others and purposefully SEEKING OUT contraversy. I am done with this childish nonsense. The rest of us have enough issues to deal with..... don't we? You asked for proof with regards to milk being an issue, I gave it to you (as I have done in the past) and I expect this to be the end of the matter. I have honored your request, please honor mine. I am not going to spend my day looking through your quotes...... You are obviously looking for someone to fight with.... you need to look at your personal life and figure out why, day after day over the past week, you spend your time ridiculing others on this board. This is not like you .... again, I suggest that perhaps you need a break to recharge your batteries..... I worry about your spirit. I have been on this board since about June and yes, you have been the source of a lot of contraversy and arguments but never like this..... Please take a holiday from sick kids. We all need one once in a while. So please, , I beg of you.... stop! Janice Mother of Mark, 13 [sPAM][ ] Re: swinging question/vestibular system Actually you did said for a " lot " of our kids. Here's the exact quote from you that I answered: " For a lot of our kids, milk is a huge issue and really congests the ears and hearing, causes drooling, decreases sensation in the hands, the feet, the face esp the lips. Ever notice that your child doesn't feel the goop on his face when eating or the drool spilling out of his mouth? It is because he has lost sensation in his face as well as other extremities " Perhaps instead you could have written that we all know that children need to avoid anything they are allergic to prevent any serious complications -however for the 2% of the pediatric population under the age of 5, that " fill in above quote here " But even then I would start with " milk can be " and not " milk is " " Approximately 2% of the pediatric population is affected by cow's milk allergy. Moreover the condition tends to be outgrown by 5 years of age. " http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf It's like if I wrote " If you drink water and you have symptoms like nausea and muscle cramps it means you can die " Instead of sharing information about a rare but possible complication from drinking too much water too quickly. That is what I mean by sharing credible links and not just my own opinion. And if it is just your opinion and your child's reaction -then state that. Symptoms of Hyponatremia The early warning signs are often subtle and may be similar to dehydration and include nausea, muscle cramps, disorientation, slurred speech, and confusion. At this point, many athletes drink more water because they think they are dehydrated. Unfortunately, water alone will increase the problem of hyponatremia. At the most extreme an athlete may experience seizures, coma, or death. http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm http://www.yourmedicaldetective.com/public/446.cfm ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 We use TriEnza, and we thought it was helping with the occasional dairy infraction until we went overboard. I am convinced that some dairy is OK for , and some is definitely not. After the last few weeks of behavior issues, I just don't have the energy to nail it down right now. So even though we continue to use the enzymes with every meal and snack, he is strictly dairy free. Today is the first day of great behavior, so I think I'll just enjoy that for awhile. In the summer, I'll be with him 24/7 and in total control of his diet, so I may test certain dairy items at that time. in NJ > > > Lactaid doesn't work for most of our kids.... [sigh]..... because it is not the lactose in the milk that is giving them trouble but the casien in the milk that is giving them trouble..... [sigh].... > > I tried lactaid as well..... [sigh again].... no luck > > What does seem to work and what is working for us is digestive enzymes to help the child digest both casien and gluten in food. We use Huston Neutraceutical enzymes called Peptzyde along with a ton of other moms but will soon be trying their new product called TriEnza that is out. I know that there is a mom or two on this board using TriEnza with great success. I give enzymes with all food, not just milk products. It helps not just with casien and gluten but also with phenols which also are problematic for many of our kids who have neurological issues. > > With enyzmes my son over the last 6 months has been able to slowly eat more and more dairy products such as cheese, pizza, etc. Milk & ice-cream are still absolutely out but I am hopeful that one day his system will repair itself and he will be able to consume these foods. Now, I am discovering that MSG is just an absolute nightmare as well. We just got back from Utah and 5 days of restaurant eating..... the gas my son is expelling has him being nick- named 'Fart-Boy' by all and sundry! > > WHEW! Yuck! > > One day home and 'ta-da', he is better. I know that restaurant food is loaded with MSG and so this is my assumption but it could be something else. > > Janice > Mother of Mark, 13 > > > > > [sPAM]Re: [ ] Re: swinging question/vestibular system > > > Does milk have to be gone entirely? I give my son Lactaid. I've been trying > to wean him down but it's really difficult. I would say he is addicted to > it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 If they really seem addicted to milk, there is that whole opioid effect thing. (Partially digested proteins " leak " out of the gut and into the body, where they don't belong.) When my son was little, if he had too much milk he was very spacey/foggy. That ended before we gave up dairy entirely, probably due to gut healing from probiotics, enzymes, and fish oil. in NJ > > > In a message dated 3/3/2008 3:46:02 P.M. Eastern Standard Time, > myra.bauza@... writes: > > Does milk have to be gone entirely? I give my son Lactaid. I've been trying > to wean him down but it's really difficult. I would say he is addicted to > it. > > > > > > > It's interesting that you ask this and also that you said something about > thinking that he is addicted to milk. I've thought the SAME thing with my NT > kids these days! I've been trying to wean ALL of my kids from milk in > general, and I've noticed that at least one of them, if not two, have shown some > great resistance but it's almost as if they NEED those sugars provided in the > milk or something. It's odd really--- but like you said, an addiction almost. > With the one I've noticed it stronger than the others, and oddly enough he is > a MAJOR sugar addict as well. If I hide things with sugar, he will scour the > house looking for it to get a " fix " . > As I typed that out-- I'm totally making the connection-- shoot, I wonder if > he's got a systemic yeast issue going on. Darn it-- why did THAT take so long > to wonder??? <sigh> > > Yet another thing to look into > > > Becky > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I think this specific issue is covered in the intro to Special Diets for Special Kids. http://www.amazon.com/Special-Diets-Kids--/dp/1885477449 Dr. Bock covers it in the 4 As book. http://www.amazon.com/Healing-New-Childhood-Epidemics- Groundbreaking/dp/0345494512/ref=pd_bbs_1? ie=UTF8 & s=books & qid=1204586139 & sr=1-1 I think it is covered though just in the sense that it can cause neuro type issues, in Doris Rapp's Is this your Child. http://www.amazon.com/This-Your-Child-Doris- Rapp/dp/0688119077/ref=pd_bbs_sr_1? ie=UTF8 & s=books & qid=1204586079 & sr=1-1 Not trying to get into this either I promise. Solely trying to respond to your specific question. > > > > .... to be flip.... Sue me.... > > > > I believe that the first study that I posted said 78% of normal > population with recurrent ear issues. For me, this qualifies as a > lot! If you were to look at the neurodevelopmentally compromised > population, I would guess that this number is much higher. > > > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY > POSTS. See? It's that easy! I don't claim to be an author but I am > confident that every mother will do her own research because I trust > that each mother will not " blindly " take the advice of a woman she has > never met over the internet without putting some thought and research > into it first! > > > > If you really want to spend your life picking apart others, go > ahead. It is obvious that you have no other productive hobbies. If > anyone who actually has a sick child wants clarification as to my > son's personal experience, I am happy to respond. > > > > But I will not respond to someone who is spending their time being > hurtful of others and purposefully SEEKING OUT contraversy. I am done > with this childish nonsense. > > The rest of us have enough issues to deal with..... don't we? > > > > You asked for proof with regards to milk being an issue, I gave it > to you (as I have done in the past) and I expect this to be the end of > the matter. I have honored your request, please honor mine. > > > > I am not going to spend my day looking through your quotes...... You > are obviously looking for someone to fight with.... you need to look > at your personal life and figure out why, day after day over the past > week, you spend your time ridiculing others on this board. This is > not like you .... again, I suggest that perhaps you need a break > to recharge your batteries..... I worry about your spirit. I have > been on this board since about June and yes, you have been the source > of a lot of contraversy and arguments but never like this..... Please > take a holiday from sick kids. We all need one once in a while. > > > > So please, , I beg of you.... stop! > > > > Janice > > Mother of Mark, 13 > > > > > > > > > > [sPAM][ ] Re: swinging > question/vestibular system > > > > > > Actually you did said for a " lot " of our kids. Here's the exact > > quote from you that I answered: > > > > " For a lot of our kids, milk is a huge issue and really congests the > > ears and > > hearing, causes drooling, decreases sensation in the hands, the feet, > > the face > > esp the lips. Ever notice that your child doesn't feel the goop on > > his face > > when eating or the drool spilling out of his mouth? It is because he > > has lost > > sensation in his face as well as other extremities " > > > > Perhaps instead you could have written that we all know that children > > need to avoid anything they are allergic to prevent any serious > > complications -however for the 2% of the pediatric population under > > the age of 5, that " fill in above quote here " But even then I > > would start with " milk can be " and not " milk is " > > " Approximately 2% of the pediatric population is affected by cow's > > milk allergy. Moreover the condition tends to be outgrown by 5 years > > of age. " > > > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED- 98BC-8B4540203C4A/0/dcd773.pdf > > > > > It's like if I wrote " If you drink water and you have symptoms like > > nausea and muscle cramps it means you can die " Instead of sharing > > information about a rare but possible complication from drinking too > > much water too quickly. That is what I mean by sharing credible > > links and not just my own opinion. And if it is just your opinion > > and your child's reaction -then state that. > > > > Symptoms of Hyponatremia > > The early warning signs are often subtle and may be similar to > > dehydration and include nausea, muscle cramps, disorientation, > > slurred speech, and confusion. At this point, many athletes drink > > more water because they think they are dehydrated. Unfortunately, > > water alone will increase the problem of hyponatremia. At the most > > extreme an athlete may experience seizures, coma, or death. > > > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.ht m > > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > > http://www.yourmedicaldetective.com/public/446.cfm > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 It is impossible to put an absolute percentage on it, because it varies widely by ethnicity: " Lactose intolerance, due to genetic reasons, is more common among certain racial groups. It appears to be more common among the racial groups that had the least exposure to milk during the long evolutionary process. Consider the following chart. Lactose Intolerance Among American Racial Groups Asian Americans, 95% African Americans, 65% Native Americans, 65% Hispanics, 50% Caucasians, 15% Lactose intolerance can often be adequately remedied by taking supplements that contain lactase enzymes. However, these enzymes don't help kids whose problems are a result of a shortage of the DPP4 enzyme, or a result of an IgE allergy. " --This is a direct quote from page 209 of " Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies; The Groundbreaking Program for the 4-A Disorders. " written by Bock, M.D. and Cameron Stauth in NJ > > > In a message dated 3/3/2008 3:22:05 P.M. Eastern Standard Time, > kiddietalk@... writes: > > " Approximately 2% of the pediatric population is affected by cow's > milk allergy. Moreover the condition tends to be outgrown by 5 years > of age. " > > > > > > > I'd have to totally disagree with this statement-- just in speaking about > personal experiences and people I know. I am POSITIVE that well over 70% of my > friends and their children experience milk intolerance or allergy. Maybe we > have to make the distinction between intolerance and allergry??? I know that > most people will SAY allergy but it really is an intolerance? Maybe that's > where the statement is askew-- because I know more than 2% that have milk > issues and they don't outgrow them, but the problems seem to WORSEN throughout > the years > (almost 12 close friends of mine and I were recently out and we talked about > stomach issues, and it seems as though 10 of the 12 have dairy issues and > can no longer tolerate it, when they could as children, but it's got > increasingly worse as they get older) > interesting things we've been talking about lately-- that's for sure! LOL > > > becky > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Two anecdotal stories: Cousins son, diagnosed with milk allery, neurotypical, never seemed have the classic ear infection signs when he went back on milk after age 2. He just would seem spacey and she would take him to the Dr. and it would turn out he had double ear infections every time. He remains on milk but momis considering removal as he seems to suffer from stunted growth and now is failing hearing tests. She is seeking allergy testing first. Neither of my kids showed ear trouble signs but also seemed off. When we would get to the doc either ear infection or uninfected fluid was present. Because the fluid was often uninfected I did not suspect milk as that is not how it was described in the reading. We did get tubes due to the speech issue and after the fact removed milk. The ENT said milk may have been the cause of the fluid in our case. This story does apply to my speech kid. > > > > .... to be flip.... Sue me.... > > > > I believe that the first study that I posted said 78% of normal > population with recurrent ear issues. For me, this qualifies as a > lot! If you were to look at the neurodevelopmentally compromised > population, I would guess that this number is much higher. > > > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY > POSTS. See? It's that easy! I don't claim to be an author but I am > confident that every mother will do her own research because I trust > that each mother will not " blindly " take the advice of a woman she has > never met over the internet without putting some thought and research > into it first! > > > > If you really want to spend your life picking apart others, go > ahead. It is obvious that you have no other productive hobbies. If > anyone who actually has a sick child wants clarification as to my > son's personal experience, I am happy to respond. > > > > But I will not respond to someone who is spending their time being > hurtful of others and purposefully SEEKING OUT contraversy. I am done > with this childish nonsense. > > The rest of us have enough issues to deal with..... don't we? > > > > You asked for proof with regards to milk being an issue, I gave it > to you (as I have done in the past) and I expect this to be the end of > the matter. I have honored your request, please honor mine. > > > > I am not going to spend my day looking through your quotes...... You > are obviously looking for someone to fight with.... you need to look > at your personal life and figure out why, day after day over the past > week, you spend your time ridiculing others on this board. This is > not like you .... again, I suggest that perhaps you need a break > to recharge your batteries..... I worry about your spirit. I have > been on this board since about June and yes, you have been the source > of a lot of contraversy and arguments but never like this..... Please > take a holiday from sick kids. We all need one once in a while. > > > > So please, , I beg of you.... stop! > > > > Janice > > Mother of Mark, 13 > > > > > > > > > > [sPAM][ ] Re: swinging > question/vestibular system > > > > > > Actually you did said for a " lot " of our kids. Here's the exact > > quote from you that I answered: > > > > " For a lot of our kids, milk is a huge issue and really congests the > > ears and > > hearing, causes drooling, decreases sensation in the hands, the feet, > > the face > > esp the lips. Ever notice that your child doesn't feel the goop on > > his face > > when eating or the drool spilling out of his mouth? It is because he > > has lost > > sensation in his face as well as other extremities " > > > > Perhaps instead you could have written that we all know that children > > need to avoid anything they are allergic to prevent any serious > > complications -however for the 2% of the pediatric population under > > the age of 5, that " fill in above quote here " But even then I > > would start with " milk can be " and not " milk is " > > " Approximately 2% of the pediatric population is affected by cow's > > milk allergy. Moreover the condition tends to be outgrown by 5 years > > of age. " > > > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD- 41ED-98BC-8B4540203C4A/0/dcd773.pdf > > > > > It's like if I wrote " If you drink water and you have symptoms like > > nausea and muscle cramps it means you can die " Instead of sharing > > information about a rare but possible complication from drinking too > > much water too quickly. That is what I mean by sharing credible > > links and not just my own opinion. And if it is just your opinion > > and your child's reaction -then state that. > > > > Symptoms of Hyponatremia > > The early warning signs are often subtle and may be similar to > > dehydration and include nausea, muscle cramps, disorientation, > > slurred speech, and confusion. At this point, many athletes drink > > more water because they think they are dehydrated. Unfortunately, > > water alone will increase the problem of hyponatremia. At the most > > extreme an athlete may experience seizures, coma, or death. > > > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.ht m > > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > > http://www.yourmedicaldetective.com/public/446.cfm > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 , The link I supplied today was between Otis Media and kids with milk allergies. If your kids don't have recurrent ear issues, then this would not necessarily be an issue for you. Most DANS do advise experimenting with diet to ferret out food allergens for our kids. In addition, they like to see our children eating food that does not contain a lot of additives or preservatives since these items are hard on the digestive system and also contribute to neurodevelopmental issues. In the past, I supplied a link newspaper article by the CBC and shall do so again. In addition, there are thousands and thousands of kids who have positive responses with special diets. For more information, query GFCFKids to read their stories and watch their progress. This is a huge world, this neurodevelopmental world..... it is easy to miss a lot of things but special diets is one thing that a lot of parents are discovering success with. Not all children are diet responders but some do amazingly well on special diets. The Fengold Diet, for instance, really helps kids with ADHD issues and has been known to help them for a long, long time. In addition, people tend to use the word autism but all of these neurodevelopmental disorders have commonalities and overlaps. I consider my child's gut to be autistic in some senses but not quite as severe..... He responds to a CF (casien free) diet but not a GF (gluten free) diet. He responds to a Feingold Diet as well so we sort of use a hybrid of both and I continuously search for items that hurt him. There are vitamin companies devoted to the production of special enzymes for our kids who cannot tolerate casien and/or gluten. I doubt they would do so without having some inkling of the validity of the special diet for kids with NDD..... yet all of our kids are individuals. For instance, I recently discovered that starchy foods are tough for him to tolerate. He can do it but sometimes feels unwell afterwards so I have begun to limit them in order to 'see' what is happening for my specific child. This stuff is not cookie-cutter but highly specific and I have had to read so much bio-chemistry that my head spins! It has been worth it for we have chipped away at the disorder via both the vitamins and the diet. Our mainstay, however, continues to be the therapy. The therapy is simply the most important item for us...... for others it may be different as their children are younger and less behind their peer group. Below is the newspaper article that I have posted in past which links neurodevelopmental issues with casein and gluten. Anecdotally, there are a lot of success stories with special diets just as there are success stories with a lot of items like different types of therapy and biomedical interventions like vitamin E. Scientific proof is always a dogs-age behind the Moms proof! I like to look at the consensus of the moms..... and see what " may " help my child. It is amazing what you discover when you research the mothers that have come before us. " Special Diets for Special Kids " written by is an extremely well respected book on this subject. Again..... our kids are all different with regards to their metabolism and what works for one does not necessarily work for all. You need to play detective to help your child and to discover the very specific things that may help him or her. This is my own personal experience and do not expect a LASHING or FLAMING if someone disagrees with me. This has been an important piece in MY CHILD'S recovery..... http://www.cbc.ca/health/story/2007/09/27/autism-study.html Scientists make gut-brain connection to autism Last Updated: Thursday, September 27, 2007 | 5:29 PM ET CBC News Compounds produced in the digestive system have been linked to autistic-type behaviour in laboratory settings, potentially demonstrating that what autistic children eat can alter their brain function, say scientists from the University of Western Ontario. They announced their findings Thursday in Ottawa. Scientists are learning that the brain and body can influence each other, says a Harvard researcher. (CBC) UWO researchers investigated the " gut-brain " connection after many parents of autistic children reported significant improvements in the behaviour of their autistic children when they modified their diet, eliminating dairy and wheat products, Dr. Derrick MacFabe, the director of a research group at UWO in London, Ont., told CBC News Thursday. Researchers were particularly interested in one dietary characteristic the autistic children seemed to exhibit, he said. " Certainly, a lot of these children had peculiar cravings for high-carbohydrate foods that caused their behaviours, " he said. " We were interested in finding a link between certain compounds that are produced by bacteria in the digestive system - particularly those occurring with early childhood infections. " The bacteria produce propionic acid, a short chain fatty acid, which in addition to existing in the gut, is commonly found in bread and dairy products, MacFabe said. To test their hypothesis that diet plays a part in generating autistic behaviour, UWO scientists administered the compound to rats' brains. " They immediately engaged in bouts of repetitive behaviour, hyperactivity and impaired social behaviours which had close similarity to what parents are seeing with autism, " MacFabe said. When the rats' brains were examined later, they were found to have inflammatory processes similar to those in the brains of autistic children, he said. " We found, looking at the rats' brains under the microscope, changes that looked a lot like what's occurred from autopsy cases of patients who had autism. " It's remarkable that a simple compound like propionic acid would have such a dramatic effect on " normal " animals, he said. MacFabe said his research team, and scientists at Queen's University in Kingston, Ont., and Harvard University, are now conducting screening studies looking at effects of dietary changes in the general population. New way of approaching autism Dr. Martha Herbert, assistant professor in neurology at Harvard Medical School, told CBC News that the study opens up a new way of thinking about the disorder. " Now we're learning that the brain and body can influence each other, " she said. Autistic children are increasingly being seen as " oversensitized, " meaning " things may bother them that don't bother other people, " she said. " We need to pay attention to this. " Treating a child's health should be the first step in addressing autism, Herbert said, rather than solely focusing on behavioural therapy, currently a mainline approach. " Behaviour therapy is certainly important. But the child's health controls the bandwidth that the child has for being able to benefit from behavioural therapy. If a child is sick, they won't be able to focus. " Parents should watch their children closely to determine what foods trigger reactions and to consider removing those triggers, she said. Herbert strongly advocates a balanced diet, consisting of all food groups, not just " bread and cheese. " " If you have foods that child is sensitive to in their immune system, that can set up processes that can impact brain function, and it can do so in a negative way. And if you remove those foods, that negative impact can stop. " [sPAM][ ] Re: swinging question/vestibular system > > > Actually you did said for a " lot " of our kids. Here's the exact > quote from you that I answered: > > " For a lot of our kids, milk is a huge issue and really congests the > ears and > hearing, causes drooling, decreases sensation in the hands, the feet, > the face > esp the lips. Ever notice that your child doesn't feel the goop on > his face > when eating or the drool spilling out of his mouth? It is because he > has lost > sensation in his face as well as other extremities " > > Perhaps instead you could have written that we all know that children > need to avoid anything they are allergic to prevent any serious > complications -however for the 2% of the pediatric population under > the age of 5, that " fill in above quote here " But even then I > would start with " milk can be " and not " milk is " > " Approximately 2% of the pediatric population is affected by cow's > milk allergy. Moreover the condition tends to be outgrown by 5 years > of age. " > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf > > It's like if I wrote " If you drink water and you have symptoms like > nausea and muscle cramps it means you can die " Instead of sharing > information about a rare but possible complication from drinking too > much water too quickly. That is what I mean by sharing credible > links and not just my own opinion. And if it is just your opinion > and your child's reaction -then state that. > > Symptoms of Hyponatremia > The early warning signs are often subtle and may be similar to > dehydration and include nausea, muscle cramps, disorientation, > slurred speech, and confusion. At this point, many athletes drink > more water because they think they are dehydrated. Unfortunately, > water alone will increase the problem of hyponatremia. At the most > extreme an athlete may experience seizures, coma, or death. > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > http://www.yourmedicaldetective.com/public/446.cfm > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I hate saying this, but before you got on this list Janice, there was not a power struggle. I have been wondering for a couple of months why you didn't start your own list since you have such a problem with this one. I am truly wondering. Pam in GA. Janice wrote: > > .... to be flip.... Sue me.... > > I believe that the first study that I posted said 78% of normal > population with recurrent ear issues. For me, this qualifies as a lot! > If you were to look at the neurodevelopmentally compromised > population, I would guess that this number is much higher. > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY POSTS. > See? It's that easy! I don't claim to be an author but I am confident > that every mother will do her own research because I trust that each > mother will not " blindly " take the advice of a woman she has never met > over the internet without putting some thought and research into it first! > > If you really want to spend your life picking apart others, go ahead. > It is obvious that you have no other productive hobbies. If anyone who > actually has a sick child wants clarification as to my son's personal > experience, I am happy to respond. > > But I will not respond to someone who is spending their time being > hurtful of others and purposefully SEEKING OUT contraversy. I am done > with this childish nonsense. > The rest of us have enough issues to deal with..... don't we? > > You asked for proof with regards to milk being an issue, I gave it to > you (as I have done in the past) and I expect this to be the end of > the matter. I have honored your request, please honor mine. > > I am not going to spend my day looking through your quotes...... You > are obviously looking for someone to fight with.... you need to look > at your personal life and figure out why, day after day over the past > week, you spend your time ridiculing others on this board. This is not > like you .... again, I suggest that perhaps you need a break to > recharge your batteries..... I worry about your spirit. I have been on > this board since about June and yes, you have been the source of a lot > of contraversy and arguments but never like this..... Please take a > holiday from sick kids. We all need one once in a while. > > So please, , I beg of you.... stop! > > Janice > Mother of Mark, 13 > > [sPAM][ ] Re: swinging question/vestibular > system > > Actually you did said for a " lot " of our kids. Here's the exact > quote from you that I answered: > > " For a lot of our kids, milk is a huge issue and really congests the > ears and > hearing, causes drooling, decreases sensation in the hands, the feet, > the face > esp the lips. Ever notice that your child doesn't feel the goop on > his face > when eating or the drool spilling out of his mouth? It is because he > has lost > sensation in his face as well as other extremities " > > Perhaps instead you could have written that we all know that children > need to avoid anything they are allergic to prevent any serious > complications -however for the 2% of the pediatric population under > the age of 5, that " fill in above quote here " But even then I > would start with " milk can be " and not " milk is " > " Approximately 2% of the pediatric population is affected by cow's > milk allergy. Moreover the condition tends to be outgrown by 5 years > of age. " > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf > <http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B4540\ 203C4A/0/dcd773.pdf> > > > It's like if I wrote " If you drink water and you have symptoms like > nausea and muscle cramps it means you can die " Instead of sharing > information about a rare but possible complication from drinking too > much water too quickly. That is what I mean by sharing credible > links and not just my own opinion. And if it is just your opinion > and your child's reaction -then state that. > > Symptoms of Hyponatremia > The early warning signs are often subtle and may be similar to > dehydration and include nausea, muscle cramps, disorientation, > slurred speech, and confusion. At this point, many athletes drink > more water because they think they are dehydrated. Unfortunately, > water alone will increase the problem of hyponatremia. At the most > extreme an athlete may experience seizures, coma, or death. > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm > <http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm> > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > <http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm> > http://www.yourmedicaldetective.com/public/446.cfm > <http://www.yourmedicaldetective.com/public/446.cfm> > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 My son has benefitted tremendously off of milk. Once again I will state that my son's ped. was also in favor of taking him off of it after so many ear infections. We have not had one ear infection since we took him off of milk in August. He does not touch his ears like he did and I know for a fact he hears better and is more alert. Life is good for my boy now and he is speaking at or above level for his age. This is what has worked for us. Please RESPECT my choice and my choice to share it with all of you. Colleen Mother of Charlie 2.5 years Re: [ ] Re: swinging question/vestibular system Milk was the culprit for us too. Once the milk was gone, the congestion was gone, the drool was gone and the sensitivity to loud noises was gone. Janice wrote: > For a lot of our kids, milk is a huge issue and really congests the ears and hearing, causes drooling, decreases sensation in the hands, the feet, the face esp the lips. Ever notice that your child doesn't feel the goop on his face when eating or the drool spilling out of his mouth? It is because he has lost sensation in his face as well as other extremities..... this may not be because of the milk for your child but for my child it was a huge key. My son is not allergic to milk but most definately intol > erant. In addition, if your ears are congested, your vestibular system is compromised as well thus it leads to poor balance and coordination. > > Perhaps it is the globally dyspraxic children that are milk intolerant? That would be a good poll...... Knowledge is power! > > Janice > Mother of Mark, 13 > > > [sPAM]Re: [ ] Re: swinging question/vestibular system > > > Tara--the vestibule system controls the other systems--after I had tubes put in my childs ears they made a lot of progress and made clearer sounds-- > > mommyz7 <t_r_z (DOT) <mailto:t_r_z%40> com> wrote: My son was like that - I used to laugh that he was the only baby > 9+months old that would reach out and STOP the baby swing. If only I > had known... > > I would recommend that you see an ENT for the persistent fluid in the > ears. This is a very costly thing to fix later on. We are about 2 > yrs into it and still working hard. If you can't hear clearly, you > can't speak clearly. > > BUT you also have to look at what is causing the fluid in the ears. I > don't want to keep pushing dietary fixes - but try no MILK or MILK > containing products. > > Turns out my son has a major dairy allergy and the other two boys have > major dairy intolerances. > > > > > > Hello, I am looking for some guidance on this. Here is a typical > scenario: My dd is excited to swing, we put her in the swing, she > swings for about a minute or two and she cries and wants to get out. > We just found out (through a typmanogram) that she has fluid in her > ears. And now I am wondering if she has fluid in her ears often and > that's causing her vestibular systemm to feel " funny " or > " disorganized " .( which is why she wants to get outof the swing) I'm > wondering if the two are related. Because sometimes, I would say > about 20% of the time, she is fine on the swings and is able to swing > for longer periods.( which may be when her ears are clear) She is > almost 3 and is not walking and has no speech. Any thoughts on my > theory? thanks. tara > > > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 , Honestly, this is getting old and it is a shame that you continue to charge and try and bulldoze over those of us who are sharing positive stores on our journeys to recovery. It is amazing that Janice pulled me aside one day and told me the fate of my son if I did not get to the ROOT of his problems. Who knows how many others were helped who were just lurkers or too darn busy with work, home and sick kids to inquire futher. Janice, Liz, Stephanee and among others have helped my son here on this board. My son is in recovery. He is at the top of his game and will hopefully never have to endure all the hardship poor Mark has had to put up with in his life time. It is inspiring how Mark changes and improves weekly. As for you, I dont bother to read your posts because you are always condeming someone. Use all the scientific data you want to your advantage. I have ignored many a post from you, and it is a shame. I have never reccommended to you that you test your children even at their late ages. I personally believe you would see a difference. Please chill out and do what you do best, helping children. Helping children cannot take place if you continue to argue with parents. Perception is a funny thing! Colleen Mother of Charlie 2.5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I completely disagree with Pam's comments here. Janice's information has been a great asset to this group. I have learned so much from her and I know so many others feel the same. We are very lucky to have Janice here. Becky > > > > .... to be flip.... Sue me.... > > > > I believe that the first study that I posted said 78% of normal > > population with recurrent ear issues. For me, this qualifies as a lot! > > If you were to look at the neurodevelopmentally compromised > > population, I would guess that this number is much higher. > > > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY POSTS. > > See? It's that easy! I don't claim to be an author but I am confident > > that every mother will do her own research because I trust that each > > mother will not " blindly " take the advice of a woman she has never met > > over the internet without putting some thought and research into it first! > > > > If you really want to spend your life picking apart others, go ahead. > > It is obvious that you have no other productive hobbies. If anyone who > > actually has a sick child wants clarification as to my son's personal > > experience, I am happy to respond. > > > > But I will not respond to someone who is spending their time being > > hurtful of others and purposefully SEEKING OUT contraversy. I am done > > with this childish nonsense. > > The rest of us have enough issues to deal with..... don't we? > > > > You asked for proof with regards to milk being an issue, I gave it to > > you (as I have done in the past) and I expect this to be the end of > > the matter. I have honored your request, please honor mine. > > > > I am not going to spend my day looking through your quotes...... You > > are obviously looking for someone to fight with.... you need to look > > at your personal life and figure out why, day after day over the past > > week, you spend your time ridiculing others on this board. This is not > > like you .... again, I suggest that perhaps you need a break to > > recharge your batteries..... I worry about your spirit. I have been on > > this board since about June and yes, you have been the source of a lot > > of contraversy and arguments but never like this..... Please take a > > holiday from sick kids. We all need one once in a while. > > > > So please, , I beg of you.... stop! > > > > Janice > > Mother of Mark, 13 > > > > [sPAM][ ] Re: swinging question/vestibular > > system > > > > Actually you did said for a " lot " of our kids. Here's the exact > > quote from you that I answered: > > > > " For a lot of our kids, milk is a huge issue and really congests the > > ears and > > hearing, causes drooling, decreases sensation in the hands, the feet, > > the face > > esp the lips. Ever notice that your child doesn't feel the goop on > > his face > > when eating or the drool spilling out of his mouth? It is because he > > has lost > > sensation in his face as well as other extremities " > > > > Perhaps instead you could have written that we all know that children > > need to avoid anything they are allergic to prevent any serious > > complications -however for the 2% of the pediatric population under > > the age of 5, that " fill in above quote here " But even then I > > would start with " milk can be " and not " milk is " > > " Approximately 2% of the pediatric population is affected by cow's > > milk allergy. Moreover the condition tends to be outgrown by 5 years > > of age. " > > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD- 41ED-98BC-8B4540203C4A/0/dcd773.pdf > > <http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD- 41ED-98BC-8B4540203C4A/0/dcd773.pdf> > > > > > > It's like if I wrote " If you drink water and you have symptoms like > > nausea and muscle cramps it means you can die " Instead of sharing > > information about a rare but possible complication from drinking too > > much water too quickly. That is what I mean by sharing credible > > links and not just my own opinion. And if it is just your opinion > > and your child's reaction -then state that. > > > > Symptoms of Hyponatremia > > The early warning signs are often subtle and may be similar to > > dehydration and include nausea, muscle cramps, disorientation, > > slurred speech, and confusion. At this point, many athletes drink > > more water because they think they are dehydrated. Unfortunately, > > water alone will increase the problem of hyponatremia. At the most > > extreme an athlete may experience seizures, coma, or death. > > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.h tm > > <http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia. htm> > > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > > <http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm> > > http://www.yourmedicaldetective.com/public/446.cfm > > <http://www.yourmedicaldetective.com/public/446.cfm> > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 OT just told me that kids who have poor visual processing, appear to benefit from a " spinning " protocol. Apparently new research indicates that the vestibular development also triggers the OPTIC nerve development. I will try and keep everyone posted as we just started a spinning protocol for my apraxic child. If this is true, I am not surprised as I know his vestibular sense never developed correctly. --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Forgive me if this is a stupid question but does this idea sort of coincide with the whole rollercoaster craving some of our kids have as expressed here the other day? > > OT just told me that kids who have poor visual processing, appear to > benefit from a " spinning " protocol. Apparently new research indicates > that the vestibular development also triggers the OPTIC nerve > development. I will try and keep everyone posted as we just started a > spinning protocol for my apraxic child. If this is true, I am not > surprised as I know his vestibular sense never developed correctly. > > > --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I like Janice's posts and have learned innumerable things from them. I don't like 's posts. Janice if you start your own list let me know so I can be there too. > > > > .... to be flip.... Sue me.... > > > > I believe that the first study that I posted said 78% of normal > > population with recurrent ear issues. For me, this qualifies as a lot! > > If you were to look at the neurodevelopmentally compromised > > population, I would guess that this number is much higher. > > > > IF YOU DON'T LIKE THE WAY I WRITE, DON'T READ OR RESPOND TO MY POSTS. > > See? It's that easy! I don't claim to be an author but I am confident > > that every mother will do her own research because I trust that each > > mother will not " blindly " take the advice of a woman she has never met > > over the internet without putting some thought and research into it first! > > > > If you really want to spend your life picking apart others, go ahead. > > It is obvious that you have no other productive hobbies. If anyone who > > actually has a sick child wants clarification as to my son's personal > > experience, I am happy to respond. > > > > But I will not respond to someone who is spending their time being > > hurtful of others and purposefully SEEKING OUT contraversy. I am done > > with this childish nonsense. > > The rest of us have enough issues to deal with..... don't we? > > > > You asked for proof with regards to milk being an issue, I gave it to > > you (as I have done in the past) and I expect this to be the end of > > the matter. I have honored your request, please honor mine. > > > > I am not going to spend my day looking through your quotes...... You > > are obviously looking for someone to fight with.... you need to look > > at your personal life and figure out why, day after day over the past > > week, you spend your time ridiculing others on this board. This is not > > like you .... again, I suggest that perhaps you need a break to > > recharge your batteries..... I worry about your spirit. I have been on > > this board since about June and yes, you have been the source of a lot > > of contraversy and arguments but never like this..... Please take a > > holiday from sick kids. We all need one once in a while. > > > > So please, , I beg of you.... stop! > > > > Janice > > Mother of Mark, 13 > > > > [sPAM][ ] Re: swinging question/vestibular > > system > > > > Actually you did said for a " lot " of our kids. Here's the exact > > quote from you that I answered: > > > > " For a lot of our kids, milk is a huge issue and really congests the > > ears and > > hearing, causes drooling, decreases sensation in the hands, the feet, > > the face > > esp the lips. Ever notice that your child doesn't feel the goop on > > his face > > when eating or the drool spilling out of his mouth? It is because he > > has lost > > sensation in his face as well as other extremities " > > > > Perhaps instead you could have written that we all know that children > > need to avoid anything they are allergic to prevent any serious > > complications -however for the 2% of the pediatric population under > > the age of 5, that " fill in above quote here " But even then I > > would start with " milk can be " and not " milk is " > > " Approximately 2% of the pediatric population is affected by cow's > > milk allergy. Moreover the condition tends to be outgrown by 5 years > > of age. " > > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf > > <http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B4540\ 203C4A/0/dcd773.pdf> > > > > > > It's like if I wrote " If you drink water and you have symptoms like > > nausea and muscle cramps it means you can die " Instead of sharing > > information about a rare but possible complication from drinking too > > much water too quickly. That is what I mean by sharing credible > > links and not just my own opinion. And if it is just your opinion > > and your child's reaction -then state that. > > > > Symptoms of Hyponatremia > > The early warning signs are often subtle and may be similar to > > dehydration and include nausea, muscle cramps, disorientation, > > slurred speech, and confusion. At this point, many athletes drink > > more water because they think they are dehydrated. Unfortunately, > > water alone will increase the problem of hyponatremia. At the most > > extreme an athlete may experience seizures, coma, or death. > > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm > > <http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm> > > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > > <http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm> > > http://www.yourmedicaldetective.com/public/446.cfm > > <http://www.yourmedicaldetective.com/public/446.cfm> > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Janice, I bought these enzymes ..perhaps on your suggestion (I can't remember) BUT I could not sneak them in anything! He has sensory issues and eating problems and he smells everything. He immediately knew something was not right and refuse to eat the pureed fruit. I sneak every other supplement in his pureed fruit. I will try to put it in other things; the problem is he needs to eat the entire thing to get supplement in his system. That can be a challenge as well. I'll keep on trying. Interestingly enough, my son has been very gassy...I'm thinking he's been eating too many chicken nuggets & fries..which is our on the go meal to and/or from his therapies. I'm one of those that appreciate your advice. And I do not take any advice literally without researching it thoroughly. You put the thought in my head and I can take it from there. :-) Myra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Actually, that isn't completely true. For as long as I have read this list (maybe 5 years?) there have been struggles over which approach is best for kids. It seems that the struggles always arise when those whose kids are purely verbally apraxic butt heads with those whose kids struggle in multiple areas and who pursue methods that are, as of yet, scientifically unproven. This is not to say that science won't catch up, but that it hasn't yet. We also all know that for many methods, it never will. This group has gone off on many different paths since I have been reading, and I go for MONTHS at a time without even checking in because the in-fighting gets so tiresome. I remember the months that I didn't read here because my son was not a responder to EFAs...or Vitamin E. Then people talked about chelation...glutathione...cranial sacral therapy...chiropractic/DAN...etc. All of these subjects recycle, and have for years. Janice's posts about the intense home occupational therapy advocated by NACD are one of the first " new " topics I have seen here since Vit. E. The controversies have been here all along. For better or for worse, that comes from not screening the posts. On a positive note, it gives people a chance to discuss what has worked for their child. On the flip side, months and months might go by before a post is the least bit applicable to your child. When the tone gets ugly, a lot of us just check out. > > I hate saying this, but before you got on this list Janice, there was > not a power struggle. I have been wondering for a couple of months why > you didn't start your own list since you have such a problem with this > one. I am truly wondering. > > Pam in GA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 " You don't throw the baby out with the bathwater. " Thanks Janice for the smile! Being a child advocate I've always questioned even when others all agree. 'I' actually got thrown off the other apraxia grouplist because of all my posts about EFAs, neurodevelopmental medical doctors and why it's probably good to see them (back just a few years ago the attitude was that only SLPs knew anything) why schools for the hearing impaired may be great for our children -and all about the soft signs, oral apraxia etc. That's why this group was started -so parents and professionals can share all views. And while it's OK to question -there are right and wrong ways to debate. I am so glad that you recognize that I don't censor this group and allow everyone to express...even if the messages attack me in some way. I have very tough skin and honestly doesn't bother me. I know I'm not perfect just like anyone else. On the other hand I'm true to who I am. I won't stop being the one that questions the things that others accept at times without question. If someone follows advice posted here that's fine and my conscience as list owner will be clear as long as all sides pro and con are shared. While some post here- many email me in private and are afraid to question or share their views if they don't agree with what's posted and that's not good. And actually I had not been here for awhile posting and made a promise to those who were sad about the direction of the group that I would start posting again. I assure you that I am happy -just came in from a jog with my husband and dogs -and loving life. My both boys are doing better than I could have dreamed- and want others to have the same success. I 'would' however like to start talking more about older kids in this group. That's something that you and I share Janice. And of course I know diets are important and special ones are needed by those that have certain conditions. I myself was raised on one. Perhaps that's also why I am so hard on those that " try " diets that are not needed with their children. My family is not all organic - but we eat pretty healthy -shop at Whole Foods -and if you check with the pediatrician -I can't remember the last time our kids were sick. And this may be gross to mention but I don't get yeast infections but I knew about acidophilus yogurt since I was little since my aunt has her PhD in nursing. Actually she's probably a great part of why I question so much. (and also spending years in and out of the hospital as an infant when I almost died a few times before the diagnosis the celiac) So while I'm not " normal " that's normal for me. I am going to continue to question -and be happy doing it. And it's OK to not like me- even though most do! ) So do you also want to talk more about older kids in school? That's a much needed topic for sure! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 My Dear Friends, is a great person who moderates hundreds of posts a day when her own child is better. She is in need of a rest from us crazy warriors. NEVER seems to take a rest from moderation. She doesn't need to do further research while we are feverishly seeking out the pieces of the puzzle we are missing. Thus far she has not censored any of the posts but just lets them be. For that we need to be grateful. You don't throw the baby out with the bathwater. I do hope that looks at all of the information out there these days that suggests that dietary intervention is a necessity for 'SOME' kids to get better and to thrive. This division on milk must end and we need to unite as a group once more. I know that my child could not have gotten better without eliminating milk and I see this being reiterated time and again throughout the literature. Other moms need to know this as well and while vitamins are great, food allergens and intolerances really hurt the body of a child. Sometimes when you are fighting with all and sundry around you, it simply means that you need a break; a small rest to recharge and clear your head. I know that I need breaks from dyspraxia..... or I would go absolutely insane..... Janice [sPAM][ ] Re: swinging question/vestibular > > system > > > > Actually you did said for a " lot " of our kids. Here's the exact > > quote from you that I answered: > > > > " For a lot of our kids, milk is a huge issue and really congests the > > ears and > > hearing, causes drooling, decreases sensation in the hands, the feet, > > the face > > esp the lips. Ever notice that your child doesn't feel the goop on > > his face > > when eating or the drool spilling out of his mouth? It is because he > > has lost > > sensation in his face as well as other extremities " > > > > Perhaps instead you could have written that we all know that children > > need to avoid anything they are allergic to prevent any serious > > complications -however for the 2% of the pediatric population under > > the age of 5, that " fill in above quote here " But even then I > > would start with " milk can be " and not " milk is " > > " Approximately 2% of the pediatric population is affected by cow's > > milk allergy. Moreover the condition tends to be outgrown by 5 years > > of age. " > > http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B45402\ 03C4A/0/dcd773.pdf > > <http://www.nationaldairycouncil.org/NR/rdonlyres/69867157-06CD-41ED-98BC-8B4540\ 203C4A/0/dcd773.pdf> > > > > > > It's like if I wrote " If you drink water and you have symptoms like > > nausea and muscle cramps it means you can die " Instead of sharing > > information about a rare but possible complication from drinking too > > much water too quickly. That is what I mean by sharing credible > > links and not just my own opinion. And if it is just your opinion > > and your child's reaction -then state that. > > > > Symptoms of Hyponatremia > > The early warning signs are often subtle and may be similar to > > dehydration and include nausea, muscle cramps, disorientation, > > slurred speech, and confusion. At this point, many athletes drink > > more water because they think they are dehydrated. Unfortunately, > > water alone will increase the problem of hyponatremia. At the most > > extreme an athlete may experience seizures, coma, or death. > > http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm > > <http://sportsmedicine.about.com/od/hydrationandfluid/a/Hyponatremia.htm> > > http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm > > <http://www.nlm.nih.gov/medlineplus/ency/article/000394.htm> > > http://www.yourmedicaldetective.com/public/446.cfm > > <http://www.yourmedicaldetective.com/public/446.cfm> > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Actually I'm even afraid to mention one of the worst debates here was not over which therapy was best -but over wild Atlantic salmon. were you here for that one? Me and some other even posted links to how it's listed as an endangered species and one member was so angry as she said there was no such thing. This debate became a bit heated because in spite of links like this one www.worldwildlife.org/oceans/pdfs/osloresprogress.pdf this one member said it didn't exist -and she said she knew because she used to be a chef or something. One thing to point out. Here oral motor therapy is not a political issue. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 It's posts like this one that discourage me as a new mom to this group. I guess I just wonder where our hearts are at when we feel the need to go to the ends of the earth to prove we are right, or point out others' issues, or even just something like this..... go back to who knows when? to discuss a silly issue like salmon and to refer to that other person (and paint a picture of her/him almost as though they are nuts.) Yes, it does sound nutty ....but do I need to hear about it? > > Actually I'm even afraid to mention one of the worst debates here was > not over which therapy was best -but over wild Atlantic salmon. > were you here for that one? Me and some other even posted > links to how it's listed as an endangered species and one member was > so angry as she said there was no such thing. This debate became a > bit heated because in spite of links like this one > www.worldwildlife.org/oceans/pdfs/osloresprogress.pdf this one > member said it didn't exist -and she said she knew because she used > to be a chef or something. > > One thing to point out. Here oral motor therapy is not a political > issue. > > ===== > Quote Link to comment Share on other sites More sharing options...
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