Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 , It would be nice not to have to sleep in the bedroom everytime I wanted to nap. Occasionally, I nap on the sofa, but I think I would be very comfortable in a recliner. I had to sleep in one when I had pneumonia about 10 years ago and that was the only place I could sleep for the first 10 days. Thank you. Terri G. > > It is funny you talk about riding your recliner - I was thinking about > buying one for my husband as a suprise, but I realized it I bought one > it would be for me. Pretty selfish huh? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 , It would be nice not to have to sleep in the bedroom everytime I wanted to nap. Occasionally, I nap on the sofa, but I think I would be very comfortable in a recliner. I had to sleep in one when I had pneumonia about 10 years ago and that was the only place I could sleep for the first 10 days. Thank you. Terri G. > > It is funny you talk about riding your recliner - I was thinking about > buying one for my husband as a suprise, but I realized it I bought one > it would be for me. Pretty selfish huh? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 we are all in the same boat. Darlene, that's a scary thought! We'll wind up adrift in the Pacific Ocean! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 we are all in the same boat. Darlene, that's a scary thought! We'll wind up adrift in the Pacific Ocean! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 LOL.......Rose, you are a nut! Hugs, Darlene RE: question we are all in the same boat. Darlene, that's a scary thought! We'll wind up adrift in the Pacific Ocean! Ramblin' RoseModeratorA merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 If Idon't take time to rest and push myself for a couple of days, I feellike major crap and have an increase in symptoms. If I rest for acouple of days the symptoms become minimal and I am back at it in thevicious circle pushing myself to get things done then back in the samedownward spiral. You aren't crazy. The biggest challenge for many of us was that we had to learn to pace ourselves. We get the rest we need, then we try to make up for those not so effective days- so we try to pack in all that we thought we had to do in the "up" day. This only knocks us on our butts more often than not. One of ways that I've found to help this-- is that I will go out and do ONE thing a day, and then come home and rest. I know it's not the best way to save on gasoline or even good time management, but it is what has to happen so that I can function. Take care, Tracie See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 One of ways that I've found to help this-- is that I will go out and do ONE thing a day, and then come home and rest. I know it's not the best way to save on gasoline or even good time management, but it is what has to happen so that I can function. Tracie, do I have your permission to include this in my new Adaptations project? Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22Make your little one a shining star! Shine on! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 One of ways that I've found to help this-- is that I will go out and do ONE thing a day, and then come home and rest. I know it's not the best way to save on gasoline or even good time management, but it is what has to happen so that I can function.Tracie, do I have your permission to include this in my new Adaptations project? YesSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 , This is wonderful advice. It is something I try to do but I cannot understand for the life of me, why I cannot stop. It is almost like an obsession.... Terri G. > > > In a message dated 9/21/2007 11:55:22 A.M. Pacific Daylight Time, > mosaicgirl1@... writes: > > If I > don't take time to rest and push myself for a couple of days, I feel > like major crap and have an increase in symptoms. If I rest for a > couple of days the symptoms become minimal and I am back at it in the > vicious circle pushing myself to get things done then back in the same > downward spiral. > > > > You aren't crazy. The biggest challenge for many of us was that we had to > learn to pace ourselves. We get the rest we need, then we try to make up for > those not so effective days- so we try to pack in all that we thought we had > to do in the " up " day. This only knocks us on our butts more often than not. > One of ways that I've found to help this-- is that I will go out and do ONE > thing a day, and then come home and rest. > I know it's not the best way to save on gasoline or even good time > management, but it is what has to happen so that I can function. > > Take care, > Tracie > > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Bonnie, We are very fortunate to be walking. My friend Anne Marie's husband has MS and is in a wheel chair. He got it before they developed the new drugs. So walking funny is fine with me. I was thinking maybe we should buy a pair of recliners. I could put mine in the Florida Room. I can use it all year round and could feel like I was outside more. Take care Terri G. > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Terri, years ago a friend gave me a book called, "Too Good for Her Own Good." So many of us have it ingrained in us, whether it's cultural expectations, personal, whatever, to be Super Woman. It seems like most of us on this list are "Type A" people; we've always been the one to get things done, no matter what. It's as hard for us to give up that expectation as it is for those around us. What helps me most is paying attention to my self-talk; those thoughts that pop into my mind & try to convince me that they are true. I've learned to question those tapes (at least 1% of the time!). Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver To: Neurosarcoidosis From: mosaicgirl1@...Date: Mon, 24 Sep 2007 21:47:26 +0000Subject: Re: question ,This is wonderful advice. It is something I try to do but I cannotunderstand for the life of me, why I cannot stop. It is almost like anobsession....Terri G.>>> >> If I> don't take time to rest and push myself for a couple of days, I feel> like major crap and have an increase in symptoms. If I rest for a> couple of days the symptoms become minimal and I am back at it in the> vicious circle pushing myself to get things done then back in the same> downward spiral.>>>> You aren't crazy. The biggest challenge for many of us was that we hadto> learn to pace ourselves. We get the rest we need, then we try to makeup for> those not so effective days- so we try to pack in all that we thoughtwe had> to do in the "up" day. This only knocks us on our butts more oftenthan not.> One of ways that I've found to help this-- is that I will go out anddo ONE> thing a day, and then come home and rest.> I know it's not the best way to save on gasoline or even good time> management, but it is what has to happen so that I can function.>> Take care,> Tracie>>>>> ************************************** See what's new athttp://www.aol.com> Can you find the hidden words? Take a break and play Seekadoo! Play now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Terri, make room for me in your florida room!! I have mine in a corner of my living room and it's MY corner. I have my books, quilting mags to read, a nice light, homemade pillows. But, I can't see outside from there! Yours sounds like a lovely room. Yes, I am lucky to be walking, and on good days, I actually go to the park and really walk. Sometimes 1 mile or more. I only had one time that I really got myself good and scared walking around my block. It's also about a mile and I was almost home, just about to turn the home stretch corner and I lost all my coordination. I felt like another step was more than I could do. Kind of freaked me out, but I did make it. Then I wouldn't walk for months. But, now I do and just try to listen to my body instead of my big, fat, blockhead brain. We all have talked about this before, listening to what your body is telling you. I just am too damn stubborn - there, I said it- to listen sometimes. Taught myself a good lesson that day. Have a good day. I'm actually home sick with a cold. Feel guilty about it, but can't breathe, can't talk, so, there it is. Bonnie BSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Bonnie, I love laying in my florida room. I have lots of little wild life to watch. I have taken pictures of baby birds in the yard and I will have to post some under temporary photos. One I never got was when it gets real hot, the squirrels come down and lay on the brick wall. It must be cool because it is shaded and when they lay down, they lay flat on their belly with all of their legs sticking out. It is halarious. I do my bible study, eat meals and nap (sometimes). I have on old love seat back there and if my legs are bothering me too much, I will nap. But most of the time I really need to stretch them out so I end up in the bed. I will think of you when I am in my room and I hope you think of me when you are in yours. Take care. Terri G > > Terri, make room for me in your florida room!! I have mine in a corner of my > living room and it's MY corner. I have my books, quilting mags to read, a > nice light, homemade pillows. But, I can't see outside from there! Yours sounds > like a lovely room. > Yes, I am lucky to be walking, and on good days, I actually go to the park > and really walk. Sometimes 1 mile or more. I only had one time that I really > got myself good and scared walking around my block. It's also about a mile > and I was almost home, just about to turn the home stretch corner and I lost > all my coordination. I felt like another step was more than I could do. Kind > of freaked me out, but I did make it. Then I wouldn't walk for months. But, > now I do and just try to listen to my body instead of my big, fat, blockhead > brain. We all have talked about this before, listening to what your body is > telling you. I just am too damn stubborn - there, I said it- to listen > sometimes. Taught myself a good lesson that day. Have a good day. I'm actually home > sick with a cold. Feel guilty about it, but can't breathe, can't talk, so, > there it is. > Bonnie B > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 > > > Hey Guys, > > I wanted to know if I am crazy or if this happens to anyone else. If I > don't take time to rest and push myself for a couple of days, I feel > like major crap and have an increase in symptoms. If I rest for a > couple of days the symptoms become minimal and I am back at it in the > vicious circle pushing myself to get things done then back in the same > downward spiral. > > What do you guys think. > > Terri G. > Dear terri I know how you feel. With this desease It is very importnt to get enough rest. It is essential that ecessiveexcersize or long and stressful days are followed by adiquite rest. Don't feel Lazy or allow others to make you feel guilty ( my nephew-who I love for all he does, often says " Tired, how can you be tired? You havent done anything. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 I think you hit It right on the nose. Same for me, I feel good and do too much, then feel like crap, rest feel better do too much, pay for it, rest, etc….. it’s so hard to find balance, like right now I should be in bed, I have been going strong for two days, helping with and going to a major Kay event, which was awesome and it still is what keeps me going, but I am sitting here now that it’s over and trying to catch up on life, when I should be resting, as I feel like crap from doing too much, see just can’t teach a new dog old tricks. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of kathy_ceamoore Sent: Friday, September 28, 2007 2:54 PM To: Neurosarcoidosis Subject: Re: question > > > Hey Guys, > > I wanted to know if I am crazy or if this happens to anyone else. If I > don't take time to rest and push myself for a couple of days, I feel > like major crap and have an increase in symptoms. If I rest for a > couple of days the symptoms become minimal and I am back at it in the > vicious circle pushing myself to get things done then back in the same > downward spiral. > > What do you guys think. > > Terri G. > Dear terri I know how you feel. With this desease It is very importnt to get enough rest. It is essential that ecessiveexcersize or long and stressful days are followed by adiquite rest. Don't feel Lazy or allow others to make you feel guilty ( my nephew-who I love for all he does, often says " Tired, how can you be tired? You havent done anything. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 > Kathy, Thanks for the words of encouragement. I called and spoke to my Neurologist the other day and he thinks I am in an exacerbation and to sit back and do nothing. When I mentioned this to a family member, they said you can't just sit there and do nothing. Go figure. The only thing I am having a hard time doing with my husband out of town, is grocery shopping. As you will see in other posts, I use bottled water and have to drag it into the house - also the dog food. Well, whaddya do. My husband will be home in 30 days and I plan on really taking it easy when he gets home. Thanks. Terri G. > > > Dear terri > I know how you feel. With this desease It is very importnt to get enough rest. It is essential > that ecessiveexcersize or long and stressful days are followed by adiquite rest. Don't feel > Lazy or allow others to make you feel guilty ( my nephew-who I love for all he does, often > says " Tired, how can you be tired? You havent done anything. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 he thinks I am in an exacerbation and tosit back and do nothing. Terri, I wasn't sure if the statement above was a typo. Did you mean to say that you are in a remission? Because exacerbation means the disease is active, even possibly worsening, and I don't think you would want to do nothing. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver Discover the new Windows Vista Learn more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Rose, By sit back and do nothing, I meant rest. He upped my Imuran and wants me to rest and let the medicine work. I have the habit of pushing all the time. Any suggestions you have woul be appreciated. Terri G. > > > he thinks I am in an exacerbation and tosit back and do nothing. > > Terri, I wasn't sure if the statement above was a typo. Did you mean to say that you are in a remission? Because exacerbation means the disease is active, even possibly worsening, and I don't think you would want to do nothing. > > Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 > " How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. " > > ~ Washington Carver > _________________________________________________________________ > Discover the new Windows Vista > http://search.msn.com/results.aspx?q=windows+vista & mkt=en-US & form=QBRE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Terri, thank you! This is a classic example of how misunderstandings occur. I've been through the communication classes where you repeat back what you think the other person said. Of course, it's not practical to do it all the time---can you imagine being in line at Walmart & telling the cashier, "Now, I heard you say that the total was $14.78, and that you put my milk in a plastic bag. Is that correct?" Then, to the person behind you, "What I heard you say is that if I don't hurry up, you are going to shove that jug of milk where the sun don't shine; is that correct?" However, often it's an important way to make sure that we understand the other person's meaning. I really thought that your doctor was just going to do nothing while the sarc monster ran amuck! (It's not a totally unreasonable assumption, since that does happen a lot.) Anyway, I'm glad you cleared that up for me. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mosaicgirl1@...Date: Tue, 2 Oct 2007 20:23:54 +0000Subject: Re: question Rose,By sit back and do nothing, I meant rest. He upped my Imuran and wantsme to rest and let the medicine work. I have the habit of pushing allthe time.Any suggestions you have woul be appreciated.Terri G.>>> he thinks I am in an exacerbation and tosit back and do nothing.>> Terri, I wasn't sure if the statement above was a typo. Did you meanto say that you are in a remission? Because exacerbation means thedisease is active, even possibly worsening, and I don't think you wouldwant to do nothing.>> Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22> "How far you go in life depends on your being tender with the young,compassionate with the aged, sympathetic with the striving, and tolerantof the weak and the strong. Because someday in life you will have beenall of these.">> ~ Washington Carver> __________________________________________________________> Discover the new Windows Vista> http://search.msn.com/results.aspx?q=windows+vista & mkt=en-US & form=QBRE> Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Hi Kathy, This happens to just about all of us. The more we push our bodies, the more we pay afterwards. I know it feels satisfying to be able to get up some days and accomplish a lot . Then you are flat on your back the next day or two from overdoing. It's frustrating to me and I in the 5 yrs that I have been sick, I have been in and out of depression because of this. Like most of us here, we were "go-getters" and busy with successful careers and family life. I miss my job a lot, it was the most fullfilling part of my life. Try and hang in there and you will learn just what you can handle and how much and rest accordingly. I have found (thru experience, of course!) that if I plan and space my activities out during the week and get enough rest in between , it helps lessen the bad days. Just a suggestion....... Debbie T. Co-Moderatorkathy_ceamoore wrote: >> > Hey Guys,> > I wanted to know if I am crazy or if this happens to anyone else. If I> don't take time to rest and push myself for a couple of days, I feel> like major crap and have an increase in symptoms. If I rest for a> couple of days the symptoms become minimal and I am back at it in the> vicious circle pushing myself to get things done then back in the same> downward spiral.> > What do you guys think.> > Terri G.>Dear terriI know how you feel. With this desease It is very importnt to get enough rest. It is essential that ecessiveexcersize or long and stressful days are followed by adiquite rest. Don't feel Lazy or allow others to make you feel guilty ( my nephew-who I love for all he does, often says "Tired, how can you be tired? You havent done anything." ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Do you get mad when you have to do this. I do....I get so aggrevated when I can't push like I used to. Like you say I may think I'm getting away with pushing myself, but I pay like a taxpayer that owes the IRS when I do...... Wouldn't you like to have a day where you could run, I'm not talking structured jogging, I'm talking about maybe running down a beach, feeling the wind and each stride becoming easier and easier. That would be so great.... Connie --- mosaicgirl1 wrote: > > , > > Your pattern is like mine. Two days of trying to be > normal and then my > goose is cooked. > > Hope you enjoy the wedding. > > Terri G. > > > > > > > wanted to know if I am crazy or if this happens to > anyone else. If I > > don't take time to rest and push myself for a > couple of days, I feel > > like major crap and have an increase in symptoms. > If I rest for a > > couple of days the symptoms become minimal and I > am back at it in the > > vicious circle pushing myself to get things done > then back in the same > > downward spiral. > > Terri > > If you're crazy so am I! Well everyone knew that > anyway. I'm resting & > skipping the wedding rehersal dinner last night so I > can make the > wedding today. I can usually do 2 days of stuff but > 3 will put me down > for days. I went to the yarn shop Thursday & out to > eat so I guess what > I'm trying to say is I have to pace myself too. > Especially if I haul the > walker down the steps by myself like I did Thursday. > Gotta catch some > sleep before I blow the stink off me & head out > tomorrow. Catch up with > everyone later. > > > > > > Join our Sock Challenge for Orphans in Kazakhstan > - 265 pairs needed > by 9/15/07 > > http://groups. yahoo.com/ group/Mittens_ > for_Akkol/ > > > > > > grannylunatic@... > > > > --------------------------------- > > Check out the hottest 2008 models today at Yahoo! > Autos. > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Do you get mad when you have to do this. I do....I get so aggrevated when I can't push like I used to. Like you say I may think I'm getting away with pushing myself, but I pay like a taxpayer that owes the IRS when I do...... Wouldn't you like to have a day where you could run, I'm not talking structured jogging, I'm talking about maybe running down a beach, feeling the wind and each stride becoming easier and easier. That would be so great.... Connie --- mosaicgirl1 wrote: > > , > > Your pattern is like mine. Two days of trying to be > normal and then my > goose is cooked. > > Hope you enjoy the wedding. > > Terri G. > > > > > > > wanted to know if I am crazy or if this happens to > anyone else. If I > > don't take time to rest and push myself for a > couple of days, I feel > > like major crap and have an increase in symptoms. > If I rest for a > > couple of days the symptoms become minimal and I > am back at it in the > > vicious circle pushing myself to get things done > then back in the same > > downward spiral. > > Terri > > If you're crazy so am I! Well everyone knew that > anyway. I'm resting & > skipping the wedding rehersal dinner last night so I > can make the > wedding today. I can usually do 2 days of stuff but > 3 will put me down > for days. I went to the yarn shop Thursday & out to > eat so I guess what > I'm trying to say is I have to pace myself too. > Especially if I haul the > walker down the steps by myself like I did Thursday. > Gotta catch some > sleep before I blow the stink off me & head out > tomorrow. Catch up with > everyone later. > > > > > > Join our Sock Challenge for Orphans in Kazakhstan > - 265 pairs needed > by 9/15/07 > > http://groups. yahoo.com/ group/Mittens_ > for_Akkol/ > > > > > > grannylunatic@... > > > > --------------------------------- > > Check out the hottest 2008 models today at Yahoo! > Autos. > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 The meal thing is very valid. It takes alot of energy to digest a meal and some of have gastric paresis so it takes longer. Heart patients have alot of problems with this and have to eat carefully or it will stress their heart and can cause them problems. Connie --- mosaicgirl1 wrote: > > Rick, > > What an over whelming response to a question I > thought no one would > answer. I sleep aroudn 2 hours each after noon. I > never thought about > how meals affect things. I will have to keep an eye > on that. > > Thank you so much for your concern > > Terri > > > > > Hey Guys, > > > > I wanted to know if I am crazy or if this happens > to anyone else. If I > > don't take time to rest and push myself for a > couple of days, I feel > > like major crap and have an increase in symptoms. > If I rest for a > > couple of days the symptoms become minimal and I > am back at it in the > > vicious circle pushing myself to get things done > then back in the same > > downward spiral. > > > > What do you guys think. > > > > Terri G. > > > > > > > > > > > > > > --------------------------------- > > Be a better Heartthrob. Get better relationship > answers from someone > who knows. > > Yahoo! Answers - Check it out. > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 The meal thing is very valid. It takes alot of energy to digest a meal and some of have gastric paresis so it takes longer. Heart patients have alot of problems with this and have to eat carefully or it will stress their heart and can cause them problems. Connie --- mosaicgirl1 wrote: > > Rick, > > What an over whelming response to a question I > thought no one would > answer. I sleep aroudn 2 hours each after noon. I > never thought about > how meals affect things. I will have to keep an eye > on that. > > Thank you so much for your concern > > Terri > > > > > Hey Guys, > > > > I wanted to know if I am crazy or if this happens > to anyone else. If I > > don't take time to rest and push myself for a > couple of days, I feel > > like major crap and have an increase in symptoms. > If I rest for a > > couple of days the symptoms become minimal and I > am back at it in the > > vicious circle pushing myself to get things done > then back in the same > > downward spiral. > > > > What do you guys think. > > > > Terri G. > > > > > > > > > > > > > > --------------------------------- > > Be a better Heartthrob. Get better relationship > answers from someone > who knows. > > Yahoo! Answers - Check it out. > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 What do you guys do when lying down becomes a nightmare. Somestimes even though I am so tired I can't see straight, I stay up because if I lie down everything goes haywire. The neuralgia will start my feet & legs stinging like i'm in a fire ant bed and the joint pain wakes me up off & on through the night. I've tried making the bed more comfortable, my mama calls it the " nest " . I have a box springs, regular mattress, foam pad, feather matress and a quilt on top of that (all on a twin bed)and the pressure still gets to be too much and different joints will wake me up. My trigeminal neuralgia is acting up and I'm back on Lyrica, that has helped some, but my joints are nuts. Short of hanging from a limb like a possum, i'm running out of ideas.....besides I don't have the backside for it, it's wide but it won't hook over a tree limb. Connie --- wrote: > > Terri, > > If you don't have a recliner you should really > invest in one. No, that > wouldn't be selfish of you at all...your comfort is > very important! I > had purchased mine a year and a half before I became > sick and I hardly > ever used it, but after the surgical biopsy on my > spinal cord it is the > only place I am truly comfortable. I take a 2 hour > nap each afternoon > also...so you are definitely not alone. I sleep > about 6-1/2 to 8 hours > a night and within several hours of getting out of > bed for the day I am > back asleep for several hours in my recliner. I > definitely have to divy > up my energy...just like Darlene said...store it up > if you know there is > something you have to do later in the day or the > next day. > > Hang in there! > > Hugs, > > in UT > > > > > It is funny you talk about riding your recliner - I > was thinking about > buying one for my husband as a suprise, but I > realized it I bought one > it would be for me. Pretty selfish huh? > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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