Guest guest Posted December 31, 2004 Report Posted December 31, 2004 We are making our next trip to Mayo this weekend. We will be there from Sunday to Thursday and would love to meet with anyone else who might be going. We will hopefully stay at the Mc House in town. E-mail me if your going. Thanks! See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Quote
Guest guest Posted December 31, 2004 Report Posted December 31, 2004 We are making our next trip to Mayo this weekend. We will be there from Sunday to Thursday and would love to meet with anyone else who might be going. We will hopefully stay at the Mc House in town. E-mail me if your going. Thanks! See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Quote
Guest guest Posted December 31, 2004 Report Posted December 31, 2004 Darla Happy New Year Travel safely. Hopefully this will be a productive trip for all of you. Keep us posted. Best regards, rosy Quote
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